Woman looking sideways

How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents

Paid and presented by Chiesi Global Rare Diseases.

Spend a day in the life of Michael and Abrar, from Italy and Saudi Arabia, who have never met but share a diagnosis, Epidermolysis Bullosa (EB), a rare and painful genetic skin disorder where even the gentlest touch can cause the skin to blister and tear. Explore this story of resilience, connection and the universal human desire to live a meaningful life, even in the face of extraordinary challenges.

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