The Brain Tumour Charity

Poor prognosis. Harsh treatments. Long-term side effects. These are just some of the things many families face when their child is diagnosed with a brain tumour. We’re committed to going further and faster in funding the brightest minds tackling childhood brain tumours. That’s why, since 2013, we’ve invested over £33 million into projects involving paediatric research. From Dr Elizabeth Cooper's work exploring how high-grade tumours can evade the immune system, to our newly established Quality of Life Award looking at ways to help children living beyond a brain tumour diagnosis, we’re going further and faster thanks to your help. #Research #ChildhoodCancerAwarenessMonth #ChildhoodBrainTumours

📣 We have an update on the progress being made on the National Brain Tumour Research Consortium! The application has now been submitted, with a decision expected in early November. The NIHR (National Institute for Health and Care Research) worked closely with the consortium to ensure that the application was robust, ambitious and flexible, enabling the immediate launch of trials that are ready to begin following the award, promoting the development of new studies, and supporting the expansion of existing research throughout the lifetime of the consortium. We will continue to work with stakeholders, helping to bring the consortium’s ambition to life and ensuring it has the best possible chance of being successful. You can read the full update here: https://bit.ly/4nzrT0d

We’re looking for a caring and confident Support Services Officer to join our team and make a real difference to children, young people and their families affected by a brain tumour. You’ll be there for people when they need it most — offering clear, compassionate support across phone, email, social media and more. Whether someone’s just been diagnosed or looking for advice, you’ll help them feel heard, understood and supported. Join us as we go further and faster to improve life for everyone affected by a brain tumour. In this role, you’ll: 💬 Share helpful, easy-to-understand information about treatment and care 📱 Support people across different platforms — from phone calls to social media 🧠 Help create new tools and resources that meet the changing needs of our community 🤝 Work closely with other teams to make sure families get the best support possible Want to learn more? Head to the link below. https://bit.ly/42afZBJ

Around half of UK adults don’t have a Will — yet it’s one of the most important ways to protect your loved ones and shape the legacy you leave behind. This week, we’ve been sharing Nicola’s story across our channels. After losing both her brother Stephen and her husband David to glioblastomas, Nicola has made the powerful decision to leave a gift in her Will to The Charity. With our free Will writing services, writing or amending your Will can be simple and cost-free. Your gift could one day fund the breakthrough that will give families facing a brain tumour diagnosis the one thing they so desperately need – hope. Find out more and explore how you can fill your Will with hope via the link below. https://bit.ly/4nvcApl

We’re pleased to announce a new funding collaboration with the Grace Kelly Childhood Cancer Trust! Together, we’re co-funding a new research project that uses AI to speed up and improve the diagnosis of children’s brain tumours. Led by Dr John Apps at the University of Birmingham, this project will test an AI tool that helps clinicians analyse MRI scans, potentially reducing diagnosis times from weeks to days and providing families and clinicians with more time and information to guide treatment. https://bit.ly/4nooKQL #ChildhoodCancerAwarenessMonth

With children from across the country returning to school this month, we’re spotlighting a project we’re funding as part of our Quality of Life Award, looking at how we help ensure children living with a brain tumour are supported in education. We know that those living with this disease face lasting challenges in education, and yet levels of support vary, and research is limited. Through surveys, interviews, and workshops with children, families, teachers, and healthcare professionals, this research aims to gather the evidence necessary to develop a national approach that ensures consistent, long-term support for children returning to school after a brain tumour diagnosis. This research will help create practical, evidence-based support so every child can succeed at school. Find out more by heading to the link below. https://bit.ly/4lVCCAK Great Ormond Street Hospital for Children NHS Foundation Trust

Today, Brain Cancer Justice gathered in Parliament Square to demand urgent action from the Government for everyone affected by this devastating disease. People living with a brain tumour face unique and complex challenges at every stage of care. It’s clear that current cancer strategies are falling short for The Community. We support Brain Cancer Justice in calling for more to be done to ensure that there is continued sustainable funding for research into brain tumours. At The Brain Tumour Charity, we’re committed to helping EVERYONE affected by a brain tumour diagnosis live longer, better lives. High-grade or low-grade tumours. Adult or child. That’s why we continue to call for a National Brain Tumour Strategy—to save lives and reduce suffering.

“We were told we would be 'lucky' to get months with her. There was no cure. We were going to lose our beautiful five-year-old daughter, and there was nothing anyone could do to stop it.” Emma and Dean Giles, parents of Eva and founders of Eva’s Angels, have committed £10,000 to The Brain Tumour Charity to fund paediatric research. We are so grateful to Eva’s Angels for their support and for sharing their heart-breaking story. Thank you Eva’s Angels! We’re looking forward to the work we do together in Eva’s name. Read more about our partnership here. https://bit.ly/3VApC8O

This week, we hosted a roundtable, chaired by Sarah Edwards MP , to examine the barriers facing brain tumour innovation — from new treatments to med-tech devices. Brain tumours remain the biggest cancer killer of those under 40, yet too many patients still face delays in diagnosis and limited treatment options that haven’t changed in decades. This roundtable marks the first step in understanding why. Attendees included representatives from the community and the Life Sciences sector, and the insights shared will inform our forthcoming policy report. We are grateful to Sarah Edward and all participants, and we look forward to updating the community on our findings. Read more in our latest blog: https://bit.ly/47okrjA

🧠 “Fundraising, the good, the bad and the difficult…” This #InternationalDayOfCharity, we’re sharing reflections from Richard Rawcliffe — a fundraiser who’s been raising money for causes close to his heart for over 50 years. In 2020, Richard and his family set up Northern Joe’s Fund for The Charity, following the devastating loss of his son Joe to a brain tumour. Since then, his fundraising has taken on new meaning — driven by love, memory, and determination to improve the lives of others affected by a brain tumour. Read the blog by heading to the link below.