We’re pleased to share that ALS TDI’s CEO/CSO, Fernando Vieira, M.D., will participate in a panel discussion at the Critical Path Institute (C-Path)'s Global Impact Conference on September 11th. The session, Today’s Voices, Tomorrow’s Treatments: The Growing Role of Patient Advocacy in Innovation, will highlight how patient advocates are reshaping drug development, regulatory decisions, and healthcare innovation. This important conversation will explore: • The impact of patient advocacy on advancing research and treatments • Key challenges in developing effective therapies • Opportunities to strengthen collaboration between advocates, scientists, policymakers, and industry leaders We’re honored to have ALS TDI represented in this dialogue and look forward to the insights and collaborations that will emerge. Learn more at https://lnkd.in/eww4CXUK #ALSTDI #PatientAdvocacy #CPATHConference #DrugDevelopment #ALSResearch #CPath20Years #GlobalHealth #RegulatoryScience #Collaboration #CGIC2025
ALS Therapy Development Institute
Biotechnology Research
Watertown, Massachusetts 4,550 followers
We are the world's foremost drug discovery lab focused solely on ALS. Our mission is to discover and develop treatments.
About us
The ALS Therapy Development Institute (ALS TDI) and its researchers discover and develop potential treatments for ALS. It is the world’s first and largest nonprofit biotech focused 100 percent on ALS research. Led by drug development experts and people living with ALS, ALS TDI understands the urgent need to slow and stop this disease. Based in the Greater Boston Area, ALS TDI has over 30 full-time, industry trained, drug development experts on staff. ALS TDI is internationally recognized as a leader in preclinical and translational ALS research, and partners with pharmaceutical companies and biotechs around the world. Rated a four-star nonprofit on Charity Navigator, ALS TDI spends 87 cents of every dollar raised on research to find an effective treatment and cure. Learn more at www.als.net.
- Website
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http://www.als.net
External link for ALS Therapy Development Institute
- Industry
- Biotechnology Research
- Company size
- 11-50 employees
- Headquarters
- Watertown, Massachusetts
- Type
- Nonprofit
- Founded
- 1999
- Specialties
- Biotech, Biology, ALS, ALS Research, Research, Therapy Development, Non Profit, Amyotrophic Lateral Sclerosis, Development, ALS Institute, and ALS Awareness
Locations
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Primary
Get directions
480 Arsenal St
Suite 201
Watertown, Massachusetts 02472, US
Employees at ALS Therapy Development Institute
Updates
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ALS Therapy Development Institute reposted this
🚨 1 week to go! If you're looking to learn more about the Longitude Prize on ALS or planning to enter, you won't want to miss our Data showcase webinar. Be among the first to explore the unique datasets powering the Prize and hear from our data partners (Project MinE, ANSWER ALS, ALS Therapy Development Institute & ALS Compute). Join us to explore the tools shaping the future of ALS research and register your place today 👇
⏰ Keen to learn more about the data aspect of the Prize? Join leading voices in #ALS and key data partners as we showcase the datasets and tools available to Prize entrants. If you're planning to enter the Prize, or want to understand the data powering it, this is the session for you. Discover how our comprehensive data will support AI-driven approaches in identifying new treatment targets. In this 90-minute online session, our data partners, including Project MinE, ANSWER ALS, ALS Therapy Development Institute and ALS Compute, will showcase the unique genomic, multi-omic, and clinical datasets available to the Prize participants. You’ll gain insight into how these datasets were generated, what makes them valuable, and how they can support AI-driven therapeutic discovery. This session is designed to help you unlock the full potential of the data. If you cannot attend live, there will be a recorded version available on our website. Be among the first to explore the tools shaping the future of ALS research 🗓️ 28 August | 16:00 BST Sign up below 👇 #LongitudePrizeOnALS #ALSResearch #AI #ALS #AIforGood
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We're so honored to be leading all research operations for Champion Insights study beginning this Fall. You can read our full announcement here: https://lnkd.in/eYYcYvGG
Announcing Champion Insights: A new remote-participation study to understand why high-performing athletes and military service members face higher ALS rates. Answer ALS, ALS TDI, and Augie's Quest to Cure ALS have joined forces to launch Champion Insights. The study uses simple at home participation and a single blood draw, with data flowing into the Neuromine Data Portal to connect genetics, metabolism, movement, history, and outcomes. The goal of the openly shared data is to surface druggable targets and speed therapeutic discovery. New Orleans Saints great and ALS advocate Steve Gleason will be participant #1. Learn more, here: https://lnkd.in/gsZFgtS6. Clare Durrett Fernando Vieira Shannon K. Shryne Matt Bellina #ALS #EndALS #ALSResearch #LouGehrigsDisease #TeamGleason #Neuroscience #MedicalResearch #AnswerALS #ALSTDI #AugiesQuest #OpenScience #military #athletes
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🧬 Ever wondered what a natural history study is and why it matters in ALS research? These studies help researchers better understand how ALS progresses and bring us closer to effective treatments. Read more 👉 https://lnkd.in/eMab7Zkr
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Join us on July 29 at 1:00 PM EST for an ALS TDI Town Hall exploring the evolving world of brain-computer interface (BCI) technology and its potential to impact the ALS community. We’re thrilled to welcome Dr. Daniel Rubin, neurologist at Massachusetts General Hospital and Assistant Professor of Neurology at Harvard Medical School, to lead this session. Learn how BCI works, its current use in ALS research and care, and what the future may hold. 🔗 Register here: https://lnkd.in/ewwsGPh
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You're invited to Leadership Weekend at ALS TDI this October 16th–18th! Join us for three powerful days of connection, learning, and celebration—including lab tours, the ALS TDI Research Summit, and the White Coat Affair gala. It’s an opportunity to engage directly with ALS research, meet the team behind the science, and honor those impacted by this disease. 🔗 Learn more and register: https://lnkd.in/e5r9gzXz
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Today, the Global Neurodegeneration Proteomics Consortium (GNPC) launched the world's largest harmonized proteomics dataset, a monumental achievement we at ALS TDI are proud to be a part of. This momentous effort, a collaboration of 100+ researchers from 23 global members, reveals what 250 million proteins are telling us about diseases like ALS, Alzheimer's, Parkinson's, and FTD. Learn more and explore the data today: https://lnkd.in/dR4pzjuU
GNPC Dataset: Live this July The wait is almost over. In a few weeks, the Global Neurodegeneration Proteomics Consortium (GNPC) will release its Harmonized Dataset (V1) to the global research community. What’s in the dataset? · 20+ international cohorts · Proteomic data across 4 indications (Alzheimer’s Disease (AD), Parkinson’s Disease (PD), Amyotrophic Lateral Sclerosis (ALS), and Frontotemporal Dementia (FTD)) plus healthy aging controls · >40 phenotypic indicators including demographics, cognitive scores, and disease-specific genotypes This dataset represents the world’s largest proteomic biomarker discovery effort for neurodegenerative diseases to date. It’s built to support cross-disease comparisons, predictive modeling, and biomarker discovery at scale. For more information, visit neuroproteome.org or contact us at info@neuroproteome.org. #Alzheimers #Parkinsons #ALS #FTD #dementia #neurodegeneration #proteomics #collaboration #CSF #biomarkers #neuroscience #GNPC
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“This is a major step forward for ALS research.” - Fernando Vieira We're proud to share that iPSC-derived cells from the ALS Research Collaborative (ARC) are now accessible through Axol's global infrastructure, expanding the impact of every participant's contribution. ➡️ Read more about this exciting announcement on our blog: https://lnkd.in/eQPrSByT
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New Blog Post: Biomarker Discovery at ALS TDI ALS TDI is committed to finding a cure for everyone living with ALS, and we need more reliable biomarkers to improve clinical care and make trials faster and more efficient. As part of this mission, ALS TDI is advancing biomarker discovery to enhance diagnosis, monitor disease progression, and streamline clinical trials. Through the ALS Research Collaborative (ARC) Study, we partner with people living with ALS worldwide to collect biological samples and digital data. This collaboration has led to five prototype digital biomarkers using voice and movement recordings—offering objective, quantifiable measures of ALS. Additionally, our partnership with LifeArc focuses on identifying and validating blood-based biomarkers to improve diagnostics and therapies. These efforts are driving more precise and effective approaches to ALS research and treatment. 👉 Read the full article to learn more about our work and how you can get involved: https://lnkd.in/eGPjHMUk
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What an incredible weekend at the 2025 Tri-State Trek in Durham, NH! Over 300 riders took on up to 200 miles through the New England countryside—and many more joined us virtually from across the country—all to support ALS research at the ALS Therapy Development Institute (ALS TDI). Even with some less-than-ideal weather, the energy, determination, and community spirit never wavered. We are beyond grateful to every rider, tag-along, crew member, and volunteer who made this Trek so unforgettable. Together, we’ve raised over $636,000 so far—and we’re pushing to hit our goal of $650,000 by the end of October. Every dollar fuels the fight to end ALS. Thank you to everyone who showed up, supported, and continues to fundraise. You are making a real impact. 💜 If you are looking to help support our riders or learn more, you can do so here: https://lnkd.in/eYpx_zEM