This document has not been cited yet.

1. Aldcroft, A. (2018) ‘New Requirements for Patient and Public Involvement Statements in BMJ Open’, BMJ Open.
   Paper not yet in RePEc: Add citation now
   
2. Bandura, A. (1986) Social Foundations of Thought and Action, pp. 23–8. Englewood Cliffs: Prentice Hall.
   Paper not yet in RePEc: Add citation now
   
3. Baxter, S., Muir, D., Brereton, L., et al. (2016) ‘Evaluating Public Involvement in Research Design and Grant Development: Using a Qualitative Document Analysis Method to Analyse an Award Scheme for Researchers’, Research Involvement and Engagement, 2: 1–15.
   Paper not yet in RePEc: Add citation now
   
4. Bellows, M., Burns, K. K., Jackson, K., et al. (2015) ‘Meaningful and Effective Patient Engagement: What Matters Most to Stakeholders’, Patient Experience Journal, 2: 18–28.
   Paper not yet in RePEc: Add citation now
   
5. Boutin, M., Dewulf, L., Hoos, A., et al. (2017) ‘Culture and Process Change as a Priority for Patient Engagement in Medicines Development’, Therapeutic Innovation & Regulatory Science, 51: 29–38.
   Paper not yet in RePEc: Add citation now
   
6. Braun, V. and Clarke, V. (2006) ‘Using Thematic Analysis in Psychology ’, Qualitative Research in Psychology, 3: 77–101.
   Paper not yet in RePEc: Add citation now
   
7. Brett, J., Staniszewska, S., Mockford, C., et al. (2014) ‘Mapping the Impact of Patient and Public Involvement on Health and Social Care Research: A Systematic Review’, Health Expectations, 17: 637–50.
   Paper not yet in RePEc: Add citation now
   
8. Broerse, J. E. W. and Bunders, J. F. G. (2000) ‘Requirements for Biotechnology Development: The Necessity for an Interactive and Participatory Innovation Process’, International Journal of Biotechnology, 2: 275–96.
   Paper not yet in RePEc: Add citation now
   

9. Caron-Flinterman, J. F., Broerse, J. E. W., and Bunders, J. F. G. (2005) ‘The Experiential Knowledge of Patients: A New Resource for Biomedical Research?’ Social Science & Medicine, 60: 2575–84.

10. Carroll, S. L., Embuldeniya, G., Abelson, J., et al. (2017) ‘Questioning Patient Engagement: Research Scientists’ Perceptions of the Challenges of Patient Engagement in a Cardiovascular Research Network’, Patient Preference and Adherence, 11: 1573–83.
    Paper not yet in RePEc: Add citation now
    
11. De Haan, H. (2010) Towards Transition Theory, Rotterdam: DRIFT (Dutch Research Institute for Transitions) and Faculty of Social Sciences, Erasmus University Rotterdam.
    Paper not yet in RePEc: Add citation now
    
12. de Wit, M., Beurskens, A., Piškur, B., et al. (2018a) ‘Preparing Researchers for Patient and Public Involvement in Scientific Research: Development of a Hands-on Learning Approach through Action Research’, Health Expectations, 21: 752–63.
    Paper not yet in RePEc: Add citation now
    
13. de Wit, M., Teunissen, T., van Houtum, L., et al. (2018b) ‘Development of a Standard Form for Assessing Research Grant Applications from the Perspective of Patients’, Research Involvement and Engagement, 4: 27.
    Paper not yet in RePEc: Add citation now
    
14. Den Oudendammer, W. M., Noordhoek, J., Abma-Schouten, R. Y., et al. (2019) ‘Patient Participation in Research Funding: An Overview of When, Why and How Amongst Dutch Health Funds’, Research Involvement and Engagement, 5: 33.
    Paper not yet in RePEc: Add citation now
    
15. Domecq, J. P., Prutsky, G., Elraiyah, T., et al. (2014) ‘Patient Engagement in Research: A Systematic Review’, BMC Health Services Research, 14: 1–9.
    Paper not yet in RePEc: Add citation now
    
16. Downloaded from https://academic.oup.com/spp/article/49/5/751/6583406 by White and Case LLP user on December 764 Science and Public Policy Staley, K. and Barron, D. (2019) ‘Learning as an Outcome of Involvement in Research: What Are the Implications for Practice, Reporting and Evaluation?’ Research Involvement and Engagement, 5: 1–9.
    Paper not yet in RePEc: Add citation now
    
17. Downloaded from https://academic.oup.com/spp/article/49/5/751/6583406 by White and Case LLP user on December Science and Public Policy 763 Black, A., Strain, K., Wallsworth, C., et al. (2018) ‘What Constitutes Meaningful Engagement for Patients and Families as Partners on Research Teams?’, Journal of Health Services Research & Policy, 23: 158–67.
    Paper not yet in RePEc: Add citation now
    
18. Elberse, J. E., Caron-Flinterman, J. F., and Broerse, J. E. W. (2011) ‘Patient–Expert Partnerships in Research: How to Stimulate Inclusion of Patient Perspectives’, Health Expectations, 14: 225–39.
    Paper not yet in RePEc: Add citation now
    
19. Faulkner, S. D., Pittens, C. A. C. M., Goedhart, N. S., et al. (2021) ‘Optimising Multi-stakeholder Practices in Patient Engagement: A Gap Analysis to Enable Focused Evolution of Patient Engagement in Medicines Development’, Therapeutic Innovation & Regulatory Science, 55: 1165–79.
    Paper not yet in RePEc: Add citation now
    
20. Frost, J., Gibson, A., Harris-Golesworthy, F., et al. (2018) ‘Patient Involvement in Qualitative Data Analysis in a Trial of a Patientcentred Intervention: Reconciling Lay Knowledge and Scientific Method’, Health Expectations, 21: 1111–21.
    Paper not yet in RePEc: Add citation now
    
21. Gibson, A., Kok, M., Evans, D., et al. (2019) ‘Challenges and Opportunities for Involving Patients and the Public in Acute Antimicrobial Medicine Development Research: An Interview Study’, BMJ Open, 9: e024918.
    Paper not yet in RePEc: Add citation now
    
22. Gillard, S., Simons, L., Turner, K., et al. (2012) ‘Patient and Public Involvement in the Coproduction of Knowledge: Reflection on the Analysis of Qualitative Data in a Mental Health Study’, Qualitative Health Research, 22: 1126–37.
    Paper not yet in RePEc: Add citation now
    
23. Greenhalgh, T., Hinton, L., Finlay, T., et al. (2019) ‘Frameworks for Supporting Patient and Public Involvement in Research: Systematic Review and Co-design Pilot’, Health Expectations, 22: 785–801.
    Paper not yet in RePEc: Add citation now
    
24. Jennings, H., Slade, M., Bates, P., et al. (2018) ‘Best Practice Framework for Patient and Public Involvement (PPI) in Collaborative Data Analysis of Qualitative Mental Health Research: Methodology Development and Refinement’, BMC Psychiatry, 18: 213.
    Paper not yet in RePEc: Add citation now
    
25. Kirwan, J. R., de Wit, M., Frank, L., et al. (2017) ‘Emerging Guidelines for Patient Engagement in Research’, Value in Health, 20: 481–6.
    Paper not yet in RePEc: Add citation now
    
26. Lander, J., Langhof, H., and Dierks, M.-L. (2019) ‘Involving Patients and the Public in Medical and Health Care Research Studies: An Exploratory Survey on Participant Recruiting and Representativeness from the Perspective of Study Authors’, PLoS One, 14: e0204187.
    Paper not yet in RePEc: Add citation now
    
27. Leese, J., Macdonald, G., Kerr, S., et al. (2018) “‘Adding Another Spinning Plate to an Already Busy Life’. Benefits and Risks in Patient Partner–Researcher Relationships: A Qualitative Study of Patient Partners’ Experiences in a Canadian Health Research Setting’, BMJ Open, 8: e022154.
    Paper not yet in RePEc: Add citation now
    

28. Maccarthy, J., Guerin, S., Wilson, A. G., et al. (2019) ‘Facilitating Public and Patient Involvement in Basic and Preclinical Health Research’, PLoS One, 14/5: e0216600.

29. Manafò, E., Petermann, L., Vandall-Walker, V., et al. (2018) ‘Patient and Public Engagement in Priority Setting: A Systematic Rapid Review of the Literature’, PLoS One, 13: e0193579.

30. McCoy, M. S., Jongsma, K. R., Friesen, P., et al. (2018) ‘National Standards for Public Involvement in Research: Missing the Forest for the Trees’, Journal of Medical Ethics, 44: 801–4.
    Paper not yet in RePEc: Add citation now
    
31. Nierse, C. J., Schipper, K., van Zadelhoff, E., et al. (2012) ‘Collaboration and Co-ownership in Research: Dynamics and Dialogues Between Patient Research Partners and Professional Researchers in a Research Team’, Health Expectations, 15: 242–54.
    Paper not yet in RePEc: Add citation now
    

32. Oliver, K. and Pearce, W. (2017) ‘Three Lessons from Evidence-based Medicine and Policy: Increase Transparency, Balance Inputs and Understand Power’, Palgrave Communications, 3: 43.

33. Oliver, K., Everett, M., Verma, A., et al. (2012) ‘The Human Factor: Reorganisations in Public Health Policy’, Health Policy, 106: 97–103.

34. Pittens, C. A. C. M., Elberse, J. E., Visse, M., et al. (2014) ‘Research Agendas Involving Patients: Factors That Facilitate or Impede Translation of Patients’ Perspectives in Programming and Implementation ’, Science & Public Policy, 41: 809–20.

35. Pushparajah, D., Geissler, J., and Westergaard, N. (2015) ‘EUPATI: Collaboration Between Patients, Academia and Industry to Champion the Informed Patient in the Research and Development of Medicines’, Journal of Medicines Development Sciences, 1: 74–80.
    Paper not yet in RePEc: Add citation now
    
36. Rotmans, J., Kemp, R., and van Asselt, M. (2001) ‘More Evolution than Revolution: Transition Management in Public Policy’, Foresight, 3: 15–31.
    Paper not yet in RePEc: Add citation now
    
37. Schölvinck, A. F. M. (2018) ‘Towards Meaningful and Sustainable Patient Involvement in Health Research Decision-making’.
    Paper not yet in RePEc: Add citation now
    
38. Schölvinck, A. F. M., Schuitmaker, T. J., and Broerse, J. E. W. (2018) ‘Embedding Meaningful Patient Involvement in the Process of Proposal Appraisal at the Dutch Cancer Society’, Science & Public Policy, 46: 254–63.
    Paper not yet in RePEc: Add citation now
    

39. Schuitmaker, T. J. (2012) ‘Identifying and Unravelling Persistent Problems ’, Technological Forecasting and Social Change, 79: 1021–31.

40. Schunk, D. H. and DiBenedetto, M. K. (2020) ‘Motivation and Social Cognitive Theory’, Contemporary Educational Psychology, 60: 101832.
    Paper not yet in RePEc: Add citation now
    
41. Selemani, A., Chawinga, W. D., and Dube, G. (2018) ‘Why Do Postgraduate Students Commit Plagiarism? An Empirical Study’, International Journal for Educational Integrity, 14: 1–15.
    Paper not yet in RePEc: Add citation now
    
42. Staniszewska, S., Denegri, S., Matthews, R., et al. (2018) ‘Reviewing Progress in Public Involvement in NIHR Research: Developing and Implementing a New Vision for the Future’, BMJ Open, 8: e017124.
    Paper not yet in RePEc: Add citation now
    
43. Turk, A., Boylan, A.-M., and Locock, L. (2017) ‘A Researcher’s Guide to Patient and Public Involvement’, University of Oxford.
    Paper not yet in RePEc: Add citation now
    
44. Van Mierlo, B., Regeer, B., van Amstel, M., et al. (2010) Reflexive Monitoring in Action. A Guide for Monitoring System Innovation Projects. Wageningen: Communication and Innovation Studies WUR and Amsterdam: Athena Institute Vrije Universiteit.
    Paper not yet in RePEc: Add citation now
    
45. VCWE. (2016) Code of Ethics for Research in the Social and Behavioural Sciences Involving Human Participants. The Netherlands: VCWE.
    Paper not yet in RePEc: Add citation now
    
46. Vroonland, E., Schalkers, I., Bloemkolk, D., et al. (2019) ‘Patient Involvement in Cardiovascular Research: A Qualitative Impact Evaluation’, Research Involvement and Engagement, 5: 29. Downloaded from https://academic.oup.com/spp/article/49/5/751/6583406 by White and Case LLP user on December
    Paper not yet in RePEc: Add citation now
    

1. The impact of patient engagement on patient safety in care transitions after cancer treatment: Protocol for a systematic review and meta-analysis. (2024). Schmidt-Wolf, Ingo ; Weigl, Matthias ; Brust, Larissa.
   In: PLOS ONE.
   RePEc:plo:pone00:0307831.

   Full description at Econpapers || Download paper

2. Supporting health researchers to realize meaningful patient involvement in research: Exploring researchers’ experiences and needs. (2022). Harmsen, Simone ; Vroonland, Eva.
   In: Science and Public Policy.
   RePEc:oup:scippl:v:49:y:2022:i:5:p:751-764..

   Full description at Econpapers || Download paper

3. What Patients Prioritize for Research to Improve Their Lives and How Their Priorities Get Dismissed again. (2022). Abma, Tineke ; van Zuijlen, Ruud ; Buree, Mireille ; Groot, Barbara ; Haveman, Annyk.
   In: IJERPH.
   RePEc:gam:jijerp:v:19:y:2022:i:4:p:1927-:d:745164.

   Full description at Econpapers || Download paper

4. Crowdsourcing research questions in science. (2022). Brasseur, Tiare-Maria ; Beck, Susanne ; Poetz, Marion ; Sauermann, Henry.
   In: Research Policy.
   RePEc:eee:respol:v:51:y:2022:i:4:s0048733322000191.

   Full description at Econpapers || Download paper

5. Fostering place-based coalitions between social movements and science for sustainable urban environments: A case of embedded agency. (2020). Ramirez, Matias ; Romero, Oscar Yandy ; Garcia, Javier Hernando ; Obando, Claudia E.
   In: Environment and Planning C.
   RePEc:sae:envirc:v:38:y:2020:i:7-8:p:1386-1411.

   Full description at Econpapers || Download paper

6. Patient and Public Involvement in Sexual and Reproductive Health: Time to Properly Integrate Citizen’s Input into Science. (2020). Garcia-Martin, Miguel ; Khan, Khalid Saeed ; Jorgensen, Jan Stener ; Amezcua-Prieto, Carmen ; al Wattar, Bassel H ; Bueno-Cavanillas, Aurora.
   In: IJERPH.
   RePEc:gam:jijerp:v:17:y:2020:i:21:p:8048-:d:438473.

   Full description at Econpapers || Download paper

7. Applying priority-setting frameworks: A review of public and vulnerable populations’ participation in health-system priority setting. (2020). Wilson, Michael ; Kapiriri, Lydia ; Abelson, Julia ; Razavi, Donya S.
   In: Health Policy.
   RePEc:eee:hepoli:v:124:y:2020:i:2:p:133-142.

   Full description at Econpapers || Download paper

8. “We treat humans, not herds!”: A qualitative study of complementary and alternative medicine (CAM) providers’ individualized approaches to vaccination in Switzerland. (2019). Deml, Michael J ; Notter, Julia ; Pfeiffer, Constanze ; Burton-Jeangros, Claudine ; Huber, Benedikt M ; Buhl, Andrea ; Tarr, Philip E ; Kliem, Paulina.
   In: Social Science & Medicine.
   RePEc:eee:socmed:v:240:y:2019:i:c:s0277953619305507.

   Full description at Econpapers || Download paper

9. Experience as knowledge: Disability, distillation and (reprogenetic) decision-making. (2017). Boardman, Felicity K.
   In: Social Science & Medicine.
   RePEc:eee:socmed:v:191:y:2017:i:c:p:186-193.

   Full description at Econpapers || Download paper

10. Experience in action: Moderating care in web-based patient feedback. (2017). Ziewitz, Malte.
    In: Social Science & Medicine.
    RePEc:eee:socmed:v:175:y:2017:i:c:p:99-108.

    Full description at Econpapers || Download paper

11. Self-help organisations as patient representatives in health care and policy decision-making. (2017). Forster, Rudolf ; Rojatz, Daniela.
    In: Health Policy.
    RePEc:eee:hepoli:v:121:y:2017:i:10:p:1047-1052.

    Full description at Econpapers || Download paper

12. Innovation in the Era of Experience: The Changing Role of Users in Healthcare Innovation. (2016). Trigo, Alexandre.
    In: Journal of Entrepreneurship, Management and Innovation.
    RePEc:aae:journl:v:12:y:2016:i:2:p:29-51.

    Full description at Econpapers || Download paper

13. An Innovative Lab-Based Training Program to Help Patient Groups Understand Their Disease and the Research Process. (2015). Hammond, Constance ; Mathieu, Marion ; Karlin, David G.
    In: PLOS Biology.
    RePEc:plo:pbio00:1002067.

    Full description at Econpapers || Download paper

14. Knowledge policies for inclusive development: lessons from Uruguay. (2014). Robaina, Sofia ; Alzugaray, Santiago ; Maria Go-i, ; Mederos, Leticia .
    In: Chapters.
    RePEc:elg:eechap:15491_7.

    Full description at Econpapers || Download paper

15. Patient involvement in a scientific advisory process: Setting the research agenda for medical products. (2012). Pittens, Carina Anna Cornelia Maria, ; Elberse, Janneke Elisabeth ; de Cock Buning, Tjard, ; Broerse, Jacqueline Elisabeth Willy, .
    In: Health Policy.
    RePEc:eee:hepoli:v:107:y:2012:i:2:p:231-242.

    Full description at Econpapers || Download paper

16. Non-compliance as illness management: Hemodialysis patients descriptions of adversarial patient-clinician interactions. (2011). Hutchinson, Thomas ; Wainwright, Megan ; Allen, Dawn.
    In: Social Science & Medicine.
    RePEc:eee:socmed:v:73:y:2011:i:1:p:129-134.

    Full description at Econpapers || Download paper

17. Patient involvement in health research: A contribution to a systematic review on the effectiveness of treatments for degenerative ataxias. (2009). Mahtani-Chugani, V. ; la Paz, Posada-de M. ; Serrano-Aguilar, P. ; Trujillo-Martin, M. M. ; Perestelo-Perez, L. ; Ramos-Goi, J. M..
    In: Social Science & Medicine.
    RePEc:eee:socmed:v:69:y:2009:i:6:p:920-925.

    Full description at Econpapers || Download paper

18. Assessing genetic testing: Who are the lay experts?. (2008). Goven, Joanna .
    In: Health Policy.
    RePEc:eee:hepoli:v:85:y:2008:i:1:p:1-18.

    Full description at Econpapers || Download paper

19. Complex syndromes, ambivalent diagnosis, and existential uncertainty: The case of Systemic Lupus Erythematosus (SLE). (2007). Stockl, Andrea.
    In: Social Science & Medicine.
    RePEc:eee:socmed:v:65:y:2007:i:7:p:1549-1559.

    Full description at Econpapers || Download paper

20. Focus group research and the patients view. (2006). Lehoux, Pascale ; Daudelin, Genevieve ; Poland, Blake.
    In: Social Science & Medicine.
    RePEc:eee:socmed:v:63:y:2006:i:8:p:2091-2104.

    Full description at Econpapers || Download paper

Report date: 2025-09-30 20:43:27 || Missing content? Let us know