![In 2014 the governance model of the organization was expanded to include a new membership structure.
This was implemented to ensure the vision of the organization remains connected to the needs of the
Canadian brain tumour community. Starting in 2014, the Board of Directors chose 20 to 25 people to
become Members of Brain Tumour Foundation of Canada (“Members”). Each Member will serve a
five-year term (with a two-term maximum). Members at the end of 2014 were:
Barbara Armstrong
Jane Arnott
Denise Bilodeau
Marjoree Brazina
Catherine Bravo
Yaron Butterfield
Gilles Cayouette
Ron Craig
Chris Curry
Dr. Faith Davis
Pamela Del Maestro, Co-Founder
Dr. Rolando Del Maestro, Co-Founder
Perry Ferguson, Founding Director
Dr. Sharon Guger
Jane Hauser
Marianne E. Lee
David Lucy, Founding Director
Susan Marshall
Heather Mastromatti
Diane McAuley
Dr. Joseph Megyesi
Dan Motyka
Adam Nicholson
Melodie Northey
Steve Northey, Co-Founder
Dr. Kevin Petrecca
Kathy Pronga
Phyllis Retty
Dr. Brenda Sabo
Dr. Arjun Sahgal
Sara Shearkhani
Chris Sullivan
Hany Soliman
John Stevenson
Dr. Brian Thiessen
Jennifer Verhelle
Karen Vickers
Christopher Wynder
Since our founding in
1982, the determination
to overcome brain tumours
has brought together
thousands of Canadians
affected by this disease.
2014 BOARD OF DIRECTORS
A volunteer Board of Directors guides the mission and vision of the organization and 100 per cent
of this group supports the organization through their gifts of time and financial support.
EXECUTIVE COMMITTEE
Chair Sean Taggart
Acting Vice-Chair Marjory Buttrum
Treasurer Sarah Keels
Secretary Jane Arnott
VISION:
To find the cause of and a cure for brain tumours
while improving the quality of life for those affected..
MISSION:
To reach every person in Canada who is affected
by a brain tumour through support, education,
information and research.
VALUES:
These values inform everything that we do to create
impact and meaning for the brain tumour community
in Canada: Hope, Caring, Integrity, Accountability
and Collaboration.
DIRECTORS
Rosemary Cashman Kristin Danniels
Jeane King Patricia Klein
Alykhan Mamdani Dr. Adrianna Ranger
Dr. Arjun Sahgal Chris Sullivan
Fred Wilder
620 Colborne St.
Suite 301
London, ON
N6B 3R9
T 519.642.7755
1 [800] 265.5106
F 519.642.7192
www.braintumour.ca
© BrainTumour Foundation of Canada, 2015](https://image.slidesharecdn.com/6bf5fa72-8c8c-4150-8d95-54e57b5d2f24-160124220552/85/BTFCImpactReport2014-final-5-320.jpg)
BTFCImpactReport2014-final
- 1. I M P A C T R E P O R T 2014 • 11,032 connections were made with patients, families and health care professionals, empowering them as they fight this disease • 17 research projects were invested in, bringing hope across Canada • A formal presence was established in Quebec • $2.72 million was raised The grey ribbon is a symbol of awareness for the brain tumour cause 27 Canadians are diagnosed with a brain tumour every day. SER V ING BRA IN TUMOU R PATIEN TS AC ROSS C AN AD A
- 2. THANK YOU FROM LEADERSHIP Your support changes lives The impact of a brain tumour on a patient and their family is immense. It is only because of the generosity of donors that this burden can be lifted.From finding information through resources, relief through support, respite at events, and change through advocacy – it all happens because people like you give. In 2014: • A formal presence was established in Montreal, including support groups. • Advocacy efforts took action on issues like equal access to drugs. • The feasibility study for the Canadian Brain Tumour Registry is now complete. • More pediatric brain tumour survivors were able to achieve their dreams through post-secondary education. AND TOGETHER WE CONTINUE TO FIGHT THIS DISEASE. • The survival rate for brain cancer patients hasn’t increased since the 1950s – we must accelerate this. • We know a Canadian Brain Tumour Registry is possible – we need to make it happen. • Together we can keep the best and brightest researchers focused on brain tumours. • Through specialized programs, we can bring all patients and families hope. Thank you for your generous gifts. Let’s put an end to brain tumours. ADVOCACY AND AWARENESS Increasing Awareness and Advocating for Change Awareness efforts aim to educate, engage and inspire action while advocacy works to ensure important change is made for all brain tumour patients and families. SEAN TAGGART, Chair – Board of Directors CARL CADOGAN, Chief Executive Officer In 2014: • 466,389 website visits connected the community, provided important information, and drove awareness about the disease, while advertising and media stories across the country helped reach even more Canadians. •198 stories were sent to government during October’s Brain Tumour Awareness Month. Families shared their experience and asked for government help in making change. Better access to drugs, counting every brain tumour, and the importance of increased funding for research were key issues. Great effort was put into the need for equal access to drugs across Canada by joining the CanCertainty Coalition. This partnership is helping to make change on this critical issue. More than 700 volunteers gave of their time in 2014 to help patients and families affected by a brain tumour. In recognition of their extraordinary service, three volunteers were awarded the Volunteer of Distinction award: David Kelly of Fredericton, NB; Diane McAuley of London, ON; and Siobhan Taylor of Edmonton, AB. And for the first time, the Chair’s Award for Community Service was presented. Ross MacDougall received the inaugural award for his leadership with the annual Concert for the Cure in Halifax. This community event has raised $120,000 for brain tumour research since 2010. In 2015, the award will be renamed in honour of brain tumour advocate and fundraising leader David Kelly, from Fredericton, NB, who passed away in October 2014. It makes absolutely no sense that the standard- of-care for brain cancer is not covered equally for all patients. People should not have to struggle to pay for medication they need – it’s such an unnecessary stressor, especially when you should be focused on getting well. LYNSEY FRANGAKIS, brain tumour survivor Unwavering Volunteers Lynsey Frangakis Ross MacDougall David Kelly
- 3. INFORMATION, EDUCATION AND SUPPORT You Are Not Alone Today, no matter where you live, you can connect with others on the brain tumour journey. RESEARCH Investing in Hope Investing in research means ensuring there is scientific excellence and the ability to test new ideas in Canada. This is vital in the fight against brain tumours. Research advances our understanding of this complex disease by: In 2014: • 589 people learned through education programs offered across Canada and online. • 1,250 patients and families received information and support by email and phone. • 272 activities offered support to patients, survivors and families – adults and pediatric, including new support groups and the BrainWAVE expansion to Alberta. • 1,262 Health Care Professionals were reached with events across Canada. • 7,675 informative resources were distributed to patients and families nationwide. In 2014, new support groups were launched in Montreal, QC, in both English and French; a group began in St. John’s, NFLD; and Virtual Support Groups were also launched. And, Alberta pediatric patients and their families now have their own BrainWAVE program thanks to the support of the Edmonton Oilers Community Foundation, Edmonton Teachers Association and RBC Foundation. The workshops give me new things to take back to work and to my team. They also help us understand patients better. CONSTANCE LAM, RN at Foothills Medical Centre Department of Neurosurgery Virtual group attendance is definitely a good thing. Just talking to people who are going through the same thing I am made me feel like I was not alone. I do have support here but they have no idea how I feel. This was just something I always looked forward to doing… I live in an area which is not close to any type of in-person support. L.L., brain tumour survivor and Brain Tumour Virtual Support Group Member New! Supportive Care Advisory Group Supporting patients and families facing a terminal brain tumour diagnosis is something we are committed to. In 2014, patients, caregivers and health care professionals came together to form the Supportive Care Advisory Group (SCAG). This group is identifying gaps in services for those living with a terminal diagnosis and developing programs to meet these needs. This new program has been supported entirely through a partnership with Hoffman-LaRoche Ltd. Participating in the Supportive Care Advisory Group hits home for me, as I am a patient who may require supportive care in the future. I am a Grade IV GBM survivor, and have been for nearly 2 years. Being a part of the SCAG allows me to bring in my own experiences, in hopes that future patients will benefit. DENIS RAYMOND, brain tumour survivor and Supportive Care Advisory Group member • Building capacity among the next generation of researchers. • Contributing on an international scale to the global search for a cause and cure. • Searching for better treatments with fewer impacts on the brain tumour patient. • Improving quality of life for patients so they can live well today. I want everyone to know how far we’ve come. It’s understandable to think research is too slow, that looking for a cure is taking so long; but from a science perspective, it’s been a whirlwind of change. Even the past decade, with its advances in technology and information sharing, has transformed everything. DR. LISA PORTER, Scientific Director, Windsor Cancer Research Group • $1.09 million invested in 17 projects at centres of excellence across the country. • Ongoing investments through seven funding methods spur projects at several points in the research pipeline; these include project grants, fellowships, studentships, professional awards, the Brain Tumour Tissue Bank, international collaboratives, the Canadian Brain Tumour Registry project and the Impact Grant with the Canadian Cancer Society and Brain Canada. Advancing research is truly funding hope: Hope for better treatments and hope for discovering the cause and cure for brain tumours. The feasibility study into a Canadian Brain Tumour Registry is now complete. We are confident that a standardized system to gather brain tumour statistics is possible and a three-year plan for its development is now in progress. When established, this registry will help accelerate efforts to ensure equal access to drugs, treatments and services for all brain tumour patients. A report on the next steps for this exciting project is expected in 2015. Thanks to donors, the total investment in research in 2014 was: The Canadian Brain Tumour Registry is close…
- 4. Brain Tumour Foundation of Canada is a proud member of the Imagine Canada Ethical Code program. If you are interested in a detailed financial report, please contact Carl Cadogan, CEO, at ccadogan@braintumour.ca or 1-800-265-5106 ext. 222 or visit BrainTumour.ca/Financials. HERITAGE CLUB Heritage Club members ensure support, education and research funding for the future by including Brain Tumour Foundation of Canada in their will or through a gift of life insurance. CORPORATE AND FOUNDATION DONORS Special gifts of $1,000 or more were received from the following corporations and foundations: FUNDRAISING EVENTS: SPRING SPRINT, BRAIN TUMOUR WALKS & COMMUNITY EVENTS Events bring together the community and raise critical funds.In 2014,special events raised a total of $1.82 million.For the 20 Spring Sprint events,three new BrainTumour Walks,and community events all across Canada,heartfelt gratitude is expressed to the families,friends and co-workers of brain tumour patients who support these special events,every day. MONTHLY GIVING CLUB Monthly donors make gifts that provide a stable groundwork for programs and services for brain tumour patients as well as crucial funding for research. KELLY SOCIETY Named for Kelly Northey, who inspired the founding of BrainTumour Foundation of Canada, these leadership donors generously make a multi-year commitment to support brain tumour patients. YOUR GIFTS GIVE HOPE Where do the funds come from? TOTAL EXPENSES IN 2014:$3.61 MILLION NOTE: The difference in expenses versus revenue is accounted for largely by the five-year commitment to the matching Impact Grant program with the Canadian Cancer Society and Brain Canada. In 2014, $2.72 million in generous donations was given to reach every Canadian affected by a brain tumour with support, information, education and research. Where are they invested? FUNDRAISING EVENTS: 67% DONATIONS: 27% INVESTMENT INCOME AND OTHER REVENUE: 6% RESEARCH AND PATIENT PROGRAMS: 76% Program investment highlights in 2014 included the launch of a formal presence in Quebec including two support groups, support group growth in Newfoundland, the launch of Virtual Groups, expansion of BrainWAVE into Alberta, and funding for 17 research opportunities across Canada. Management expenses ensure the organization is run with transparency and integrity, and include the annual external audit of financials, receipting of donations, legal, and facility costs. FUNDRAISING: 18% MANAGEMENT: 6% TheresaAcchione Parkinson Jane Arnott Ken Arnott Joseph A. Baldanza Rosaria Baldanza Joseph Barnes Sue Barnes Wendy Bethune Farida Chislett Peter Chislett Leendert De Goffau Marion De Goffau Ann Estill Shelley Fitak Douglas Flood Ryan Fraser Jane Hawkins Carina Jacobsen Peter Jacobsen Barbara Kennedy Anne-Marie Kinahan Susan Marshall Donna McKee Norman McLeod Bridget Plumb Grace Schenk Diana Stott Joan Sutherland Michelle Thibodeau Valerie Wicks JaneArnott Chantalle Butler Marjory Buttrum Carl Cadogan Rosemary Cashman Pam&RolandoDelMaestro Dawn & Ron Fulmer Tracey Jones Sarah Keels Jeane King Patricia Klein Suzanne Lanthier Marianne Lee Maryanne MacDonald Margaret MacDougall Alykhan Mamdani Susan Marshall Heather Mastromattei Jennifer & Kyle McIntosh Joseph Megyesi Dwight Moulin Vincent & Moira Nash Steve & Melodie Northey Jeff Patt Adrianna Ranger Ken Ramsay Susan Relecom Phyllis Retty Arjun Sahgal Ben Seewald Richard Seewald & Carol Van Evera Norman Sonnenberg Sean & MichelleTaggart FredWilder MeganWinkler & Scott Courtice MaryannAbele TheresaAcchione Parkinson JamesAnderson Madeh Badaoui Dr.Lewis Balsdon Tony & Joan Barton Dr.Glenn Bauman Denna Benn Wendy Bethune Lori Betik Nick Betik Iona Bolger Denis Bouchard Shirley Boyle Jennifer Bruno Bulatao Keith Burling Cindy Burns Trice Cameron Michael Cattani Sandra Celikors Judy Chisholm Ann Clark Debbie Collins Adele Crocker Phyllis Derbyshire Trevor Dodd Marie Duff-Whichelo Scott and Marilyn Duffield Diane Duplessis Scott Dyke James & Beth Dynes Lawrence Ewanchuk Fran Ferguson Joan Francis Patrick Fraser Monika Goodluck Muriel Grant Patti Gray Koch Jean Gross Betty Lou Haldane Harry & Marian Hall Diane Halliwell Joshua Hunt Bruce Innes Sheila Jackson Peter & Carina Jacobsen Leslie Jager Emile Jetzer Daiva Jocius Arlene Joly Anne-Marie Kinahan Negar Koochakzadeh Karin Larson Alice Lawes Carol Lidbetter Angelo Ligori Wenli Liu Priscilla Loates Jennifer MacKinnon Liliane Macko Frances Mandell-Arad Brian Marriott Ron and Pam Mazza Theresa McCombs Bronwyn McConvey Kathleen McKay Gerard Meagher Joan Medve Brian Montag Leo Richard Moreau Amitabh Mukerji Cora Murphy Luh Murtadi Carolyn Naus Teresa Negrich Catheline Nemeth Danika Painter Gilda Planamente Everett Pope Susan Purchase Ken Raymond Carolyn Reed Lew Roberts Ruth Russell Stephanie Schappert Elizabeth Schneider James Seigel Andrea Seymour Patricia Sharpe Kelly Sheardown Kathleen Sherwood Wendy Sidwell Ralph Simons Elizabeth Smith Erinn Somerville Debbie Swords The late GwladysTanner GrahamThompson AlbertToews RaymondTurmaine RobertoValente ThomasWard KaraWilson ShereeWilson MarkWitt GaryYorke 3M Employees’ CharitableTrust ATCO Limited BHP Billiton Crich Holdings and Buildings Ltd. Edmonton PublicTeachers Encana Corporation Fondation de la Famille J.Rodolphe Rousseau Gamma-Dynacare Medical Laboratories JL Stayners Consulting Ltd. London Community Foundation National Steele Car Limited NorthWaterlooFarmersMutualInsurance Par Fore Marketing Shell Canada Sound Extractor Studio Inc. Spyglass Resources Corp 10TH Annual Strikezone Mixed Slow Pitch 4TH Annual Rumsey/Givon Halloween Event ASCISWalkathon Awareness Events Banff Jasper Relay Battle on the Beech GolfTournament Bearduary Birdies for BrainTumours Black Knight Badminton Bloom Sprint Mayfield Secondary School BMOVancouver Marathon 2014 Brawl on Bay St CalithumpianWeekend Festival Cardinal Leger Secondary SchoolActivites CDL Beach Dodgeball Celebration of Signifcant People Colour Paradise Greenhouse Ltd.BBQ Concert for the Cure Coquitlam Celebration Choir Curl for a Cure DanCoteFoundationCharityGolfTournament Everything Financial Group GolfTournament Gains for Brains Game-A-Thon Hak-Elliott GolfTournament Hike for Hope Ironman Norway Jonasaurus Nickname Challenge KathyTurek Memorial Golf Kinsmen Golf Classic Oshawa Kumar Classic 3v3 Basketball Markville Fitness Challenge Mission Fun Day-St Elzabeth Public School MPI Dress Down Days Mulligans for Michelle NPT LLP GolfTournament OliveWalkerZinkham& WallerCasualDays PickYour Brains Pursuit ofWisdom RBC Royal Bank - Pakenham BBQ Rene’s Battle Rival Office Solutions GolfTournament ServerAuction/Ladies night Showing Up Cancer Social Committee,Ottawa Hospital, Civic Campus - Casual Days SpiritWear StTimothys School fundraiser Swing for a Cure GolfTournament ThisAin’T Hollywood -Tribute to Imants Krumins UK Marathon Victoria Marathon West CoastWalk Wish Upon on a Song THANK YOU Thank you to each and every donor who makes programs and services for brain tumour patients and families possible. Every gift brings hope to anyone affected by this disease. Thank you to the following individuals, families and businesses for making a special gift in 2014: LEGACY GIFTS Our sincere thanks to the generous donors who made a gift through their will to support brain tumour patients and research across Canada. Estate of Joanne Sue Dunn Estate of Conrad James Morgan ENDOWMENT FUNDS These special funds continue to provide endowed funding to chosen services thanks to the ongoing support of donors. The David Bloom Legacy Fund The Kelly Northey Legacy Fund The Hannah Patterson Legacy Fund The R.Angus King Legacy Fund LEADERSHIP GIFTS We gratefully acknowledge those donors who made gifts of $5,000 or more in 2014. A.M.A.Plastics Ltd. Diane Cameron Rene Cayouette Edmonton Oilers Community Foundation Laura Hawthorn Steve Harrison Hey!Wire Electric Ian Hobbs & Kim Staikos Nexen Energy ULC Jack Nichol Family Fund,a fund within London Community Foundation Olympia Charitable Foundation RBC Foundation David Scragg Selectpath Benefits and Financial SickKids Hospital Foundation The Jeff Davie Foundation The Nazira Mamdani BrainTumour Research Fellowship TheTaite Boomer Memorial BrainTumor Foundation
- 5. In 2014 the governance model of the organization was expanded to include a new membership structure. This was implemented to ensure the vision of the organization remains connected to the needs of the Canadian brain tumour community. Starting in 2014, the Board of Directors chose 20 to 25 people to become Members of Brain Tumour Foundation of Canada (“Members”). Each Member will serve a five-year term (with a two-term maximum). Members at the end of 2014 were: Barbara Armstrong Jane Arnott Denise Bilodeau Marjoree Brazina Catherine Bravo Yaron Butterfield Gilles Cayouette Ron Craig Chris Curry Dr. Faith Davis Pamela Del Maestro, Co-Founder Dr. Rolando Del Maestro, Co-Founder Perry Ferguson, Founding Director Dr. Sharon Guger Jane Hauser Marianne E. Lee David Lucy, Founding Director Susan Marshall Heather Mastromatti Diane McAuley Dr. Joseph Megyesi Dan Motyka Adam Nicholson Melodie Northey Steve Northey, Co-Founder Dr. Kevin Petrecca Kathy Pronga Phyllis Retty Dr. Brenda Sabo Dr. Arjun Sahgal Sara Shearkhani Chris Sullivan Hany Soliman John Stevenson Dr. Brian Thiessen Jennifer Verhelle Karen Vickers Christopher Wynder Since our founding in 1982, the determination to overcome brain tumours has brought together thousands of Canadians affected by this disease. 2014 BOARD OF DIRECTORS A volunteer Board of Directors guides the mission and vision of the organization and 100 per cent of this group supports the organization through their gifts of time and financial support. EXECUTIVE COMMITTEE Chair Sean Taggart Acting Vice-Chair Marjory Buttrum Treasurer Sarah Keels Secretary Jane Arnott VISION: To find the cause of and a cure for brain tumours while improving the quality of life for those affected.. MISSION: To reach every person in Canada who is affected by a brain tumour through support, education, information and research. VALUES: These values inform everything that we do to create impact and meaning for the brain tumour community in Canada: Hope, Caring, Integrity, Accountability and Collaboration. DIRECTORS Rosemary Cashman Kristin Danniels Jeane King Patricia Klein Alykhan Mamdani Dr. Adrianna Ranger Dr. Arjun Sahgal Chris Sullivan Fred Wilder 620 Colborne St. Suite 301 London, ON N6B 3R9 T 519.642.7755 1 [800] 265.5106 F 519.642.7192 www.braintumour.ca © BrainTumour Foundation of Canada, 2015