DEMENTIA CAREGIVING AND INSTITUTIONALIZATION Joseph E. Gaugler, Ph.D. Associate Professor McKnight Presidential Fellow School of Nursing, Center on Aging University of Minnesota
SPECIFIC AIMS Who am I?  Overview of current research projects Upcoming community outreach efforts
Longitudinal implications of informal long-term care Effectiveness of psychosocial interventions Social integration in residential long-term care OTHERS Eli Lilly:  Diagnostic Process of Alzheimer’s Disease NIA R01 AG022066  Comprehensive Support for AD CGs  (2005-2011) NIA R21 AG026525  CG Outcomes Post NH Placement  (2007-2011) NIA K02  ADS Use and Outcomes: MM  (2008-2013)   NIA R21 AG026525  CG Outcomes Post NH Placement  (2007-2011)
RESEARCH PROGRAM Title : Comprehensive Support for Alzheimer's Disease  Caregivers (R01 AG 022066) Dr. Gaugler's role:  Principal Investigator Funding source:  National Institutes of Health/National Institute on Aging Duration:  2005-2011 Specific Aims:  1) Testing the benefits of the New York University Caregiver Intervention for Alzheimer's caregivers at two sites: University of Minnesota and New York University;  2) Expanding the scope of the New York University Caregiver Intervention by focusing on adult child Alzheimer's caregivers.
RESEARCH PROGRAM Title : Adult Day Service Utilization and Outcomes: A Mixed Methods Approach (K02 AG 022066) Dr. Gaugler's role:  Principal Investigator Funding source:  National Institutes of Health/National Institute on Aging Duration:  2008-2013 Specific Aims:  Qualitative: Identify respite-enhancing elements and therapeutic activities of adult day services (ADS) that improve outcomes  Quantitative: Conduct a statewide survey of ADS programs and family caregivers to confirm what programmatic elements of ADS are linked to key outcomes Process evaluation: Develop and pilot an intervention that enhances ADS programs’ capability of improving client and family caregiver outcomes
RESEARCH PROGRAM Title : Caregiver Outcomes Post NH Placement of a Family Member (R21 AG 026525)  Dr. Gaugler's role:  Principal Investigator Funding source:  National Institutes of Health/National Institute on Aging Duration:  2007-2009 Specific Aims:  1) Describe the pattern(s) of change in the degree of caregiver burden and depression after patients with dementia are permanently placed in a nursing home;  2) Determine which caregiver and patient factors prior to placement predict persistently high or increased levels of depression and burden after placement;  3) Develop and validate a prognostic index to identify caregivers at greatest risk of poor adaptation; and  4) Integrate the prognostic index created in the large-scale secondary analyses as a targeting tool in the development of a clinical intervention for dementia caregivers during institutionalization.
RESEARCH PROGRAM Title : The Memory Club: Providing Support to Persons with Early-Stage Alzheimer’s Disease and their Care Partners  Dr. Gaugler's role:  Principal Investigator Funding source:  Office of Public Engagement, University of Minnesota; The Alzheimer’s Association Minnesota-North Dakota Regional Office; The Wilder Foundation Duration:  2007-2010 Specific Aims:  1) To analyze longitudinal data collected from the Memory Club to determine initial efficacy of a psychosocial program for early-stage Alzheimer’s patients and their family members.
OTHER RESEARCH INITIATIVES Enhancing family involvement and interaction in the NH R41 NR010642 Focusing on other transitions in dementia care: Onset and the early-stage of AD Minnesota Early Memory Care Initiative, Contemporary Journeys at Walker Art Center, Discover Your Story at Minneapolis Institute of Arts Enhancing consumer-directed service use for community-residing older adults The Minnesota Community Living Project Collaborations with Eli Lilly on behavioral disturbances and institutionalization in dementia (2010-2011) and the Alzheimer’s disease diagnostic process (2011-2012)
COMMUNITY OUTREACH/EDUCATIONAL EFFORTS “ Caring for a Parent with Memory Loss Conference” University of Minnesota, Saturday after Memorial Day, Free community educational conference (see  http:// tinyrul.com/CPWMLresources ) Community presentations: Alzheimer’s and Dementia Land of the Dancing Sky Area Agency on Aging Research staff presentations: Alzheimer’s and caregiving Local support groups, senior centers, churches, long-term care facilities Mixed Methods Interest Group Campus wide, meets last Wednesday of each month; see  http:// tinyurl.com/MMIGGlibrary . NURS 8195: “Mixed Methods in the Behavioral, Social, and Applied Health Sciences” each Spring
CONTACT INFORMATION Joseph E. Gaugler, Ph.D. Associate Professor, McKnight Presidential Fellow School of Nursing, Center on Aging 6-153 Weaver-Densford Hall, 1331 308 Harvard Street S.E. University of Minnesota Minneapolis, MN  55455 Email:  [email_address] Telephone: 612-626-2485 Fax: 612-625-7180

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Dr. Gaugler Overview Of Research Projects

  • 1. DEMENTIA CAREGIVING AND INSTITUTIONALIZATION Joseph E. Gaugler, Ph.D. Associate Professor McKnight Presidential Fellow School of Nursing, Center on Aging University of Minnesota
  • 2. SPECIFIC AIMS Who am I? Overview of current research projects Upcoming community outreach efforts
  • 3. Longitudinal implications of informal long-term care Effectiveness of psychosocial interventions Social integration in residential long-term care OTHERS Eli Lilly: Diagnostic Process of Alzheimer’s Disease NIA R01 AG022066 Comprehensive Support for AD CGs (2005-2011) NIA R21 AG026525 CG Outcomes Post NH Placement (2007-2011) NIA K02 ADS Use and Outcomes: MM (2008-2013) NIA R21 AG026525 CG Outcomes Post NH Placement (2007-2011)
  • 4. RESEARCH PROGRAM Title : Comprehensive Support for Alzheimer's Disease Caregivers (R01 AG 022066) Dr. Gaugler's role: Principal Investigator Funding source: National Institutes of Health/National Institute on Aging Duration: 2005-2011 Specific Aims: 1) Testing the benefits of the New York University Caregiver Intervention for Alzheimer's caregivers at two sites: University of Minnesota and New York University; 2) Expanding the scope of the New York University Caregiver Intervention by focusing on adult child Alzheimer's caregivers.
  • 5. RESEARCH PROGRAM Title : Adult Day Service Utilization and Outcomes: A Mixed Methods Approach (K02 AG 022066) Dr. Gaugler's role: Principal Investigator Funding source: National Institutes of Health/National Institute on Aging Duration: 2008-2013 Specific Aims: Qualitative: Identify respite-enhancing elements and therapeutic activities of adult day services (ADS) that improve outcomes Quantitative: Conduct a statewide survey of ADS programs and family caregivers to confirm what programmatic elements of ADS are linked to key outcomes Process evaluation: Develop and pilot an intervention that enhances ADS programs’ capability of improving client and family caregiver outcomes
  • 6. RESEARCH PROGRAM Title : Caregiver Outcomes Post NH Placement of a Family Member (R21 AG 026525) Dr. Gaugler's role: Principal Investigator Funding source: National Institutes of Health/National Institute on Aging Duration: 2007-2009 Specific Aims: 1) Describe the pattern(s) of change in the degree of caregiver burden and depression after patients with dementia are permanently placed in a nursing home; 2) Determine which caregiver and patient factors prior to placement predict persistently high or increased levels of depression and burden after placement; 3) Develop and validate a prognostic index to identify caregivers at greatest risk of poor adaptation; and 4) Integrate the prognostic index created in the large-scale secondary analyses as a targeting tool in the development of a clinical intervention for dementia caregivers during institutionalization.
  • 7. RESEARCH PROGRAM Title : The Memory Club: Providing Support to Persons with Early-Stage Alzheimer’s Disease and their Care Partners Dr. Gaugler's role: Principal Investigator Funding source: Office of Public Engagement, University of Minnesota; The Alzheimer’s Association Minnesota-North Dakota Regional Office; The Wilder Foundation Duration: 2007-2010 Specific Aims: 1) To analyze longitudinal data collected from the Memory Club to determine initial efficacy of a psychosocial program for early-stage Alzheimer’s patients and their family members.
  • 8. OTHER RESEARCH INITIATIVES Enhancing family involvement and interaction in the NH R41 NR010642 Focusing on other transitions in dementia care: Onset and the early-stage of AD Minnesota Early Memory Care Initiative, Contemporary Journeys at Walker Art Center, Discover Your Story at Minneapolis Institute of Arts Enhancing consumer-directed service use for community-residing older adults The Minnesota Community Living Project Collaborations with Eli Lilly on behavioral disturbances and institutionalization in dementia (2010-2011) and the Alzheimer’s disease diagnostic process (2011-2012)
  • 9. COMMUNITY OUTREACH/EDUCATIONAL EFFORTS “ Caring for a Parent with Memory Loss Conference” University of Minnesota, Saturday after Memorial Day, Free community educational conference (see http:// tinyrul.com/CPWMLresources ) Community presentations: Alzheimer’s and Dementia Land of the Dancing Sky Area Agency on Aging Research staff presentations: Alzheimer’s and caregiving Local support groups, senior centers, churches, long-term care facilities Mixed Methods Interest Group Campus wide, meets last Wednesday of each month; see http:// tinyurl.com/MMIGGlibrary . NURS 8195: “Mixed Methods in the Behavioral, Social, and Applied Health Sciences” each Spring
  • 10. CONTACT INFORMATION Joseph E. Gaugler, Ph.D. Associate Professor, McKnight Presidential Fellow School of Nursing, Center on Aging 6-153 Weaver-Densford Hall, 1331 308 Harvard Street S.E. University of Minnesota Minneapolis, MN 55455 Email: [email_address] Telephone: 612-626-2485 Fax: 612-625-7180