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Christina
Montalvo &
Marie Zvetina
HOW EXERCISE CAN
CHANGE YOUR LIFE:
One Patient’s Inspiring Journey
and Practical Tips for Everyone
A Body in Motion Stays in Motion
You Can’t Choose the Path
But You Can Choose the Journey……
MARIE’S STORY (THE READER’S DIGEST
VERSION)
• Diagnosed in 2000
Initially Affected My Hands and Neck
Gradually Affected My Ability to Bend My Head or Walk Without Tripping
• Told Not to Exercise, but Was Afraid of Becoming Unable to Walk
• Leg and Neck Pain/Tingling “Backed Off” in Late 2004
• Joined Curves in 2004
• Joined a Gym in 2006
• Started with My First Personal Trainer in 2011
• Started with Christina in 2012
STARTING WITH MARIE
• Previous trainer introduced Marie to me
• Perspective- fear vs. optimism
• Focus on what Marie can do vs. what she cannot do
• Communication
• Trust
• Realistic expectations
CHRISTINA’S THOUGHTS ON EXERCISE
• Truly is for everyone
• Intentional movement
• Be patient
• Managing expectations
• Working with your physical limitations
• Get creative
FINDING A PERSONAL TRAINER FOR YOU
• Preferably a degree in Exercise Science/Kinesiology
• Extensive initial assessment
• Building trust
• Feel comfortable
• Team effort
• Honesty, integrity
WORKING WITH A PERSONAL TRAINER
• Expectations from trainer for client: Effort, communication, trust, work ethic,
determination, goals
• Expectation from client for trainer: knowledge, flexibility, trust, realistic expectations,
client-focused goals
• Deviation from this will dilute your success
REALISTIC MODIFICATIONS
• TRX straps
• Handles
• Ankle Weights
• Bands/yoga straps
LEG STRENGTH
• Squats with modification
• Raising the heels helps Marie gain a better Range of Motion
CORE
ARM STRENGTH
ARM STRENGTH
ARM STRENGTH
ARM STRENGTH
FLEXIBILITY
• Yoga strap
• Sitting cross legged stretch
MARIE’S IMPROVEMENTS
• Arm strength
• Leg strength
• Core strength
• Increases in flexibility
…What does all of this really mean?
A BETTER QUALITY OF LIFE
• No Longer “Stuck” in a Sitting Position
• Can Board a Bus, Van or Anything with a Stair
I Am Not Afraid
• I Can Go Through a Drive-Thru
• I Can Experience Yoga, Zumba or Go On a Beautiful Hike
I Can Choose My Journey…..
WE ARE ALL IN DIFFERENT PLACES….A
FEW CLOSING THOUGHTS…..
• I Am Honest with Christina – I Will Not Do Anything I Feel Is Unsafe, but Will
Try Almost Anything (Even If I Don’t Want to…..)
• I Respect My Limitations, But Do Not Let Them Define Me – We’ll Find
Another Way to Do It!
• I Consistently Believe I Can Be Better – But “Better” Has Changed Over Time,
and Still Does…..
• Look Towards the Future - It Is the Only Journey We’ve Got!
• Make Your Own Choices – Don’t Allow Scleroderma to Make Them For You!
A Body in Motion Stays in Motion
You Can’t Choose the Path
But You Can Choose the Journey……
QUESTIONS?

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Exercise and Scleroderma

  • 1. Christina Montalvo & Marie Zvetina HOW EXERCISE CAN CHANGE YOUR LIFE: One Patient’s Inspiring Journey and Practical Tips for Everyone
  • 2. A Body in Motion Stays in Motion You Can’t Choose the Path But You Can Choose the Journey……
  • 3. MARIE’S STORY (THE READER’S DIGEST VERSION) • Diagnosed in 2000 Initially Affected My Hands and Neck Gradually Affected My Ability to Bend My Head or Walk Without Tripping • Told Not to Exercise, but Was Afraid of Becoming Unable to Walk • Leg and Neck Pain/Tingling “Backed Off” in Late 2004 • Joined Curves in 2004 • Joined a Gym in 2006 • Started with My First Personal Trainer in 2011 • Started with Christina in 2012
  • 4. STARTING WITH MARIE • Previous trainer introduced Marie to me • Perspective- fear vs. optimism • Focus on what Marie can do vs. what she cannot do • Communication • Trust • Realistic expectations
  • 5. CHRISTINA’S THOUGHTS ON EXERCISE • Truly is for everyone • Intentional movement • Be patient • Managing expectations • Working with your physical limitations • Get creative
  • 6. FINDING A PERSONAL TRAINER FOR YOU • Preferably a degree in Exercise Science/Kinesiology • Extensive initial assessment • Building trust • Feel comfortable • Team effort • Honesty, integrity
  • 7. WORKING WITH A PERSONAL TRAINER • Expectations from trainer for client: Effort, communication, trust, work ethic, determination, goals • Expectation from client for trainer: knowledge, flexibility, trust, realistic expectations, client-focused goals • Deviation from this will dilute your success
  • 8. REALISTIC MODIFICATIONS • TRX straps • Handles • Ankle Weights • Bands/yoga straps
  • 9. LEG STRENGTH • Squats with modification • Raising the heels helps Marie gain a better Range of Motion
  • 10. CORE
  • 15. FLEXIBILITY • Yoga strap • Sitting cross legged stretch
  • 16. MARIE’S IMPROVEMENTS • Arm strength • Leg strength • Core strength • Increases in flexibility …What does all of this really mean?
  • 17. A BETTER QUALITY OF LIFE • No Longer “Stuck” in a Sitting Position • Can Board a Bus, Van or Anything with a Stair I Am Not Afraid • I Can Go Through a Drive-Thru • I Can Experience Yoga, Zumba or Go On a Beautiful Hike I Can Choose My Journey…..
  • 18. WE ARE ALL IN DIFFERENT PLACES….A FEW CLOSING THOUGHTS….. • I Am Honest with Christina – I Will Not Do Anything I Feel Is Unsafe, but Will Try Almost Anything (Even If I Don’t Want to…..) • I Respect My Limitations, But Do Not Let Them Define Me – We’ll Find Another Way to Do It! • I Consistently Believe I Can Be Better – But “Better” Has Changed Over Time, and Still Does….. • Look Towards the Future - It Is the Only Journey We’ve Got! • Make Your Own Choices – Don’t Allow Scleroderma to Make Them For You!
  • 19. A Body in Motion Stays in Motion You Can’t Choose the Path But You Can Choose the Journey……