U.S.
PhilanthroPic
SUPPort
to addreSS
hiv/aidS



                2008
in 2008
acknowledgementS

FCAA wishes to thank the Ford Foundation and UNAIDS for their very generous funding and
in-kind support of this publication. The data, findings, and conclusions presented in this report
are those of FCAA alone and do not necessarily reflect the perspectives or the opinions of the
Ford Foundation, UNAIDS, or any other funder.
FCAA also gratefully acknowledges the efforts of the following people in ensuring the quality
and comprehensiveness of this report:

ww Erika Baehr, primary author
ww FCAA Board members Anu Gupta of Johnson & Johnson, Mark Ishaug of AIDS Foundation
   of Chicago, and Jen Kates of The Henry J. Kaiser Family Foundation
ww Members of the Working Group on Global Philanthropic Resource Tracking: Makfire
   Alija, EFG Network Coordinator, European Foundation Centre’s European HIV/AIDS
   Funders Group (EFG); Astrid Bonfield, Chief Executive, The Diana, Princess of Wales
   Memorial Fund and Chair, EFG; Nancy Cunningham, Research Consultant; Paul Di Donato,
   Philanthropic Consultant; and Benjamin Gobet, Global Flows Technical Officer, UNAIDS
ww Chris Collins of amfAR
ww Pamela Hayman, design
FCAA thanks all the philanthropic entities that responded to the 2008 FCAA resource tracking
survey that provided the bulk of information for this publication. Thanks also to the Foundation
Center and Foundation Search for use of their data to supplement this report.

Finally, FCAA thanks all the funding institutions that supported us with a membership
contribution in 2009 – our work to build community in HIV/AIDS philanthropy would not be
possible without your support.
U.S. PhilanthroPic SUPPort to addreSS
hiv/aidS in 2008
table of contentS

3    Executive Summary                23 Geographic Distribution
                                         of HIV/AIDS Funding
6    About FCAA and
     This Report                      34 Intended Use of
                                         HIV/AIDS Funding
8    2009 Review and the
     Road Ahead                       36 Target Populations of
                                         HIV/AIDS Funding
11   Total U.S. HIV/AIDS
     Grantmaking in 2008              38 Appendix A:
                                         Methodology
13   Top U.S. HIV/AIDS
     Funders in 2008                  43 Appendix B:
                                         FCAA Survey
15   Concentration of
     HIV/AIDS Funders                 50 Appendix C:
                                         Top U.S. HIV/AIDS
17   Changes in HIV/AIDS                 Funders Websites
     Grantmaking
                                      52 Appendix D:
20 2009 Forecast                         Global HIV/AIDS
                                         Funding Organizations
21   U.S. Corporate
     HIV/AIDS Funders




     ACRONyMS AND ABBREVIATIONS

     ARV = antiretroviral drug         HCWs = healthcare workers     PLWHA = people living
                                                                     with HIV/AIDS
     CBO = community-based             IDUs = injecting drug users
     organization                                                    STI = sexually transmitted
                                       MSM = men who have sex
                                                                     infection
     CDC = U.S. Centers for Disease    with men
     Control and Prevention                                          UNAIDS = Joint United
                                       NGO = non-governmental
                                                                     Nations Programme on
     EFG = European HIV/AIDS           organization
                                                                     HIV/AIDS
     Funders Group
                                       OVC = orphans and
                                                                     Note on text:
     FCAA = Funders Concerned          vulnerable children
                                                                     All figures marked in $ are U.S.
     About AIDS
                                       PEPFAR = U.S. President’s     dollar amounts.
     Global Fund = Global Fund         Emergency Plan for
     to Fight AIDS, Tuberculosis       AIDS Relief
     and Malaria
execUtive SUmmary

T
       otal HIV/AIDS-related philanthropy by U.S.-based funders increased by 11% between
       2007 and 2008, rising from $555 million to $618 million in estimated disbursements.
       This increase was solely due to increased funding by the world’s largest private
philanthropy engaged in HIV/AIDS, the Bill & Melinda Gates Foundation. Without funding
from the Gates Foundation, estimated disbursements actually decreased slightly (by
approximately 3%) from 2007 to 2008.

Key findings and highlights for 2008 include:

ww HIV/AIDS-related philanthropic funding is increasingly concentrated among a relatively
    small number of funders. The Gates Foundation alone accounted for 59% of funding
    disbursements in 2008. The top 10 funders, including the Gates Foundation, accounted for
    82% of all HIV/AIDS-related disbursements in 2008.
ww Corporate funders represented 16% of total 2008 disbursements, and 42% of all non-Gates
    HIV/AIDS-related philanthropy that year.
ww Most funding in 2008 (84% of disbursements) was directed to addressing the
    HIV/AIDS epidemic outside of the United States. Even without the Gates Foundation,
    which exclusively funds HIV/AIDS projects outside of the U.S., the majority of funding
    (59%) by other top funders was directed outside the U.S., and an increased percentage of
    funders since 2007 (66% of funders in 2008, compared to 55% in 2007) devoted some
    or all of their giving to addressing the international epidemic. A growing share of this
    funding was given to organizations based in sub-Saharan Africa (42% in 2008, compared
    with 33% in 2007), and Asia and the Pacific (22% in 2008, up from 14% in 2007).
ww Correspondingly, the share of funding for the domestic epidemic fell (from 18% of all
    funding in 2007 to 16% in 2008), and a lesser percentage of the top funders provided
    funding exclusively to address domestic HIV/AIDS issues in 2008. As in previous years, the
    Northeast region of the United States received the largest share of domestic funding (41%).
    Increased funding is needed in all regions—especially in Southern states, which continue to
    account for the greatest number of new AIDS diagnoses and the largest number of people
    living with HIV/AIDS (PLWHA).
ww The biggest share of international funding went to research in 2008 ($215 million),
    followed by prevention ($112m) and treatment ($80m). The biggest share of domestic
    funding went to HIV prevention in 2008 ($27 million), followed closely by social services
    ($24m) and treatment ($21m). Smaller shares of both international and domestic funding
    were allocated to advocacy—which traditionally lags behind research, prevention and
    treatment—and orphans and vulnerable children (OVC) and human resources, two new
    categories this year.
ww PLWHA were identified more frequently than any other population group as beneficiaries
    of both international and domestic philanthropy by U.S.-based funders. Internationally,
    other population groups identified after PLWHA were, in rank order, women, youth,
    OVC, and injecting drug users (IDUs). Domestically, after PLWHA, funders identified, in
    rank order, African-Americans, gay men and men who have sex with men (MSM), youth,
    homeless/impoverished persons, women, and IDUs. It is notable that while data from
    the U.S. Centers for Disease Control and Prevention (CDC) indicate over half of new HIV
    infections in the United States in 2006 were among gay and bisexual men, only a third of
    domestic funders identified this group as a top beneficiary of their organizations’ giving.



U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                            3
execUtive SUmmary




        Similarly, African-Americans accounted for almost half of new HIV infections in 2006,
        but only a third of domestic funders identified this group as a top target population of
        their funding.
    ww Looking ahead, funder projections for 2009 suggest that HIV/AIDS-related
        philanthropy funding levels will likely decrease: 42% of funders are forecasting
        anticipated decreases for 2009, including six of the top 10 funders. Forty-three percent
        of funders expect their HIV/AIDS-related disbursements to remain approximately
        the same or are unsure about 2009 funding levels, while only 15% of funders expected
        their funding to increase in 2009. This is the lowest percentage of funders expecting an
        increase on record since FCAA began surveying funders about their predictions for the
        upcoming year.

    These findings carry several important implications for HIV/AIDS philanthropy. A trend
    of note this year is that aggregate HIV/AIDS-related disbursements among funders other
    than the Gates Foundation were flat from 2006 to 2007, and slightly decreased from 2007
    to 2008 (by 3%). Given the extent of the economic crisis, increasing or even maintaining
    a stable level of HIV/AIDS financing through 2008 may have been a challenge for some
    funders, and funders deserve praise and recognition for the maintenance of support for
    critical HIV/AIDS work in 2008. Yet the needs of individuals and communities affected by
    HIV/AIDS have not leveled off since 2006; they continue to grow.

    Internationally, the economic downturn has exacerbated the situation on-the-ground as
    it disproportionately impacts poorer countries, home to the vast majority of the tens of
    millions of people affected by HIV, who need more at precisely the time that donors are less
    able to provide such financing. Some international donors and governments are likely to
    cut health budgets, resulting in reduced funding for HIV/AIDS services. On the domestic
    front, many states are facing major deficits that will result in millions of dollars in budget
    cuts to HIV/AIDS programs, with prevention activities being some of the hardest-hit. Such
    cutbacks place the health and well-being of millions of people at risk, and threaten to stall
    progress toward scaling up HIV prevention, treatment, and care for all in need.

    Private philanthropic funders have a unique opportunity to target funding for populations
    and issues that governments and other donors are reluctant to prioritize because they are
    perceived as too specific or controversial—such as advocacy activities that support the
    rights of PLWHA and marginalized communities, or prevention strategies that include
    harm reduction. The need is all the more urgent because in many countries and contexts,
    the activities perceived as more controversial (prevention programs for higher risk
    populations, for example) are more vulnerable to public budget cuts than other programs




4   FUNDERS CoNCERNED AboUT AIDS
because they have less political support. Private philanthropic funders should consider
developing programs and strategic collaborations aimed at increasing the level and scope
of targeted resources for these types of activities. Private philanthropic funders should also
consider resourcing local NGOs and community-based organizations, which tend to be the
most effective agents at reaching and delivering services to the most vulnerable HIV-
affected individuals and families, and thus, are primed to best engender a longer-term,
sustainable response.

Current economic and epidemiological realities demand greater resources for HIV/AIDS, not
acceptance of stable levels, and further yet, more effective uses of the resources at hand. The
economic crisis introduces new opportunities for critical funding, and can be seen as a catalyst
towards ensuring that the resources that are available have maximum impact. Funders should
be creative and committed in their efforts to increase resources and to sharpen the focus and
effectiveness of their programs, in order to sustain the momentum made and ensure support to
people living with and affected by HIV/AIDS, even in tougher financial times.




    Approximately 33 million people are currently living with HIV around the world. Effective HIV
    treatment reaches only one in three people in need, however, and for every two people who start
    treatment, another five are newly infected. According to UNICEF, as of 2005, more than 15 million
    children under 18 had lost one or both parents to AIDS, and in 2007, 2.1 million children were living
    with HIV. There are over 1 million people in the United States living with HIV today, the highest
    number of all the world’s industrialized countries. It is estimated that more than 20% of them do
    not know they are infected. In the U.S., there are 56,000 new HIV infections each year.




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                      5
aboUt fcaa and thiS rePort

    F
          unders Concerned About AIDS (FCAA) was founded in 1987 with the mission to
          mobilize the leadership, ideas, and resources of U.S.-based funders to eradicate the
          HIV/AIDS pandemic – domestically and internationally – and to address its social and
    economic consequences. FCAA is the only U.S.-based organization comprised of and for private
    philanthropic institutions engaged in the response to HIV/AIDS.

    For more than 20 years, FCAA has fostered and enhanced a meaningful grantmaker response
    to HIV/AIDS here in the United States and abroad. In early 2009 FCAA staff and board
    entered into a strategic planning process to determine our organizational and programming
    priorities, and emerged reaffirmed in our vision: to create a philanthropic sector that works
    collaboratively, informedly and urgently to ensure that the HIV/AIDS epidemic is halted, and
    that the communities already affected by it receive the resources they need.

    The new economy necessitates working together to maximize our resources in the fight against
    HIV and AIDS. However, we also realize that partnerships are not forged overnight. In order
    to focus on building a community of funders through open dialogue and trust, FCAA convened
    our first-ever annual gathering in September 2009. See Page 22 for a review of the significant
    themes defined by gathering attendees around the role of private philanthropy in contributing
    to an end to the pandemic.

    This signature publication series is proof that collaboration is not just part of our vision, it is
    the cornerstone of our approach. Four years ago FCAA, the European Foundation Centre’s
    European HIV/AIDS Funders Group (EFG), and UNAIDS created the Working Group
    on Global Philanthropic Resource Tracking to formalize the working relationships that
    had existed among these three groups for years, and to further harmonize our collection
    approaches and present the most accurate possible picture of HIV/AIDS-related institutional
    philanthropy. Along with this publication, and EFG’s 2008 resource tracking work, a specific
    result of this collaboration can be found in Appendix D, which includes an enhanced contact
    list and profiles of select funding organizations located outside of the U.S. and Western and
    Central Europe. At FCAA’s Annual Gathering, Keynote speaker Stephen Lewis, Co-Director
    of AIDS-Free World, urged funders to partner closely with organizations on-the-ground; this
    project provides a beginning list of potential local partners and new insight into the landscape
    of global philanthropy.

    This is FCAA’s seventh annual publication that provides data and analysis on HIV/AIDS-
    related philanthropic giving by U.S.-based philanthropic institutions, including private, family,
    and community foundations, public charities, and corporate grantmaking programs. This
    edition covers funding disbursements made in 2008. All information in this report is accurate
    and current as of September 2009. This year’s Top U.S.-Based HIV/AIDS Funders list includes
    the top 72 U.S. HIV/AIDS philanthropic entities. Each of these entities disbursed $300,000 or
    more to HIV/AIDS in 2008. Where possible, we have observed changes in grantmaking among
    these top funders.




6   FUNDERS CoNCERNED AboUT AIDS
Now, more than ever, FCAA’s resource tracking publication is poised to analyze the true
impact of the economic crisis on HIV/AIDS grantmaking. While the funding landscape has
changed, there is still room for optimism. Throughout the publication you will find profiles
of grantmaker innovation: building the next generation of leaders in HIV prevention and
advocacy; taking a collaborative approach to comprehensive sexual education in an urban
school district; and funding grassroots organizations to effectively reach at-risk populations
on-the-ground.

 Some funders receive substantial funding from the U.S. government to implement
HIV/AIDS programming or distribute funding to other programs. While we know these
public/private partnerships are extremely valuable in ensuring that funds are allocated
effectively, government funds (which are tracked and reported by UNAIDS) are not included
in total grantmaking reported here because this report focuses exclusively on private sector
philanthropy. See page 16 for a sidebar on public/private partnerships.

 As noted in Table 1, some funders reported that they received some financial resources from
other funders tracked by FCAA. At least some of these funds were used to support HIV/AIDS-
related funding to other institutions. In order to avoid double-counting, the top grantmakers
total in Table 1 reflects a reduction of $19,644,373 to correct for reported re-granting of funds
from one FCAA-tracked top grantmaker to another.

FCAA’s resource tracking work is intended to contribute to a critical and thoughtful assessment
of the total U.S.-based philanthropic investment in HIV/AIDS. By building upon HIV/AIDS
grantmaking information reported by The Foundation Center and Foundation Search, and
collecting other types of detailed data directly from the HIV/AIDS funders, FCAA’s goal is to
create an easy-to-use, comprehensive, and informative publication that captures the scope and
depth of philanthropic funding and support for HIV/AIDS.

FCAA hopes that this report will enable a wide variety of readers to gain new understanding
about the overall distribution and diversity of U.S. HIV/AIDS philanthropic funding as well as
trends in this grantmaking. We welcome input from readers about how to make future editions
of U.S. Philanthropic Support more useful.




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                              7
2009 review and the road ahead

                                           T
                                                    he most recent UNAIDS update on the global AIDS epidemic, released in November
                                                    2008, suggested that new infections were stabilizing in sub-Saharan Africa and most
                                                    other parts of the world—a refreshing affirmation that something was indeed working
                                           in the fight against AIDS. The six-fold increase in HIV/AIDS financing from public and private
                                           funders since 2001 has been crucial to this progress. Such powerful momentum can and should
                                           be sustained even as the world struggles to overcome the challenges associated with the global
                                           economic crisis that began suddenly in 2008.

                                           The global economic downturn has negatively affected the lives of millions of people around
                                           the world, but few have faced as much uncertainty as HIV-affected individuals and members of
                                           vulnerable populations.

                                           It is estimated that the global economy as a whole will shrink this year for the first time since
                                           the 1940s. The impact is already particularly devastating among people living in low- and
                                           middle-income countries, which have limited resources to help citizens weather the downturn.
                                           Many governments have been forced to reduce social-sector spending even as the value of
                                           remittances from abroad—a key source of income in several resource-constrained countries
                                           around the world—has declined. The World Bank has estimated that some 200 million people
                                           around the world will have been pushed into poverty (living on less than $2 a day) in the 18
                                           months prior to the end of 2009 due to a combination of rising joblessness and higher food and
                                           energy prices.1

                                           As individuals and families become poorer, they have less disposable income to spend on
                                           health care (significant in regions like sub-Saharan Africa, where up to two-thirds of health
                                           expenditures are out-of-pocket), while the other necessities of life (such as basic nutrition,
                                           safe water, housing, and children’s education) become more difficult to afford. The current
                                           and potential risks to the health and well-being of millions of PLWHA and their families are
                                           numerous. For example, they may not be able to afford transport fares to clinics, let alone pay
                                           various fees for services that once were cheaper or free.

                                           Faced with major budget constraints, governments in some countries (such as Tanzania and
                                           Botswana) have made plans to reduce spending on national AIDS programs. According to a
                                           joint UNAIDS and World Bank report released in June 2009, treatment programs in 31% of
                                           the countries surveyed were expected to fall short of necessary resources by the end of 2009
                                           if current trends continue.2 The situation is likely to be even more devastating for prevention
                                           programs, especially those targeting marginalized populations, because such programs tend to
                                           be the first cut when budgets tighten.
1 World bank press release. “Crisis
Hitting Poor Hard in Developing World,
World bank says.” February 12, 2009.
http://web.worldbank.org/WbSITE/
                                           It is therefore increasingly clear that most poorer and high-burden countries desperately need
EXTERNAl/NEWS/0,,contentMDK:22067          additional external help to maintain and further develop effective prevention interventions,
892~pagePK:64257043~piPK:437376~theS
itePK:4607,00.html                         enhance the focus on the interconnections between reproductive health and rights and HIV/
                                           AIDS, support the myriad needs of especially marginalized HIV/AIDS populations such
2 UNAIDS and the World bank.
The Global Economic Crisis and HIV         as OVC, MSM and women, and ensure the provision of basic services to people currently
Prevention and Treatment Programmes:
Vulnerabilities and Impact. June 2009.
                                           receiving lifesaving HIV/AIDS treatment and support.
Available at: http://data.unaids.org:80/
pub/Report/2009/jc1734_econ_crisis_
hiv_response_en.pdf                        Bilateral and multilateral donors have been able to uphold their funding commitments through
                                           2008 and 2009, but there may be some potential shortfalls on the horizon. As of November
3 Global Fund website. “latest figures
on pledges and contributions to the        2009, secured funding for the Global Fund to Fight AIDS, Tuberculosis and Malaria totaled
Global Fund.” November 2, 2009.
http://www.theglobalfund.org/en/
                                           $9.5 billion, little more than two-thirds of expected demand for 2008–2010.3 The launch of a
resources/?lang=en                         new, comprehensive global health initiative by the Obama Administration in the midst of the

8                                          FUNDERS CoNCERNED AboUT AIDS
difficulties of the economic crisis was welcome. Yet there is concern that the FY 2010 budget
                                          request to Congress for HIV/AIDS and the Global Fund through PEPFAR does not include any
                                          significant increase over FY 2009 levels, and will not be enough. HIV/AIDS was also not on the
                                          agenda at the July 2009 G8 summit in Italy, also raising concern that world leaders no longer
                                          consider the epidemic a major priority, and are failing to honor their commitment, made at a
                                          summit in 2005, to provide adequate resources to achieve universal access to HIV prevention,
                                          care and treatment by 2010.

                                          A recent survey conducted by the Henry J. Kaiser Family Foundation found that the U.S.
                                          public’s sense of urgency about the domestic HIV/AIDS epidemic as a national health problem
                                          has greatly decreased over the past decade4. A concomitant decline was seen in regards to
                                          understanding or concern about personal risk, even among members of groups most vulnerable
                                          to HIV. Such complacency is dangerous, given that the annual number of new infections in
                                          the United States has remained the same over the past decade—about 56,000—and almost a
                                          quarter of those infected are not aware of their status. Also alarming is the domestic epidemic’s
                                          disproportionate impact on racial and ethnic minorities and gay and bisexual men. To put it in
                                          perspective, compared with the global epidemic, the total number of African-Americans living
                                          with HIV in the United States is greater than the total number of HIV-infected people in seven
                                          of the 15 PEPFAR focus countries, and on its own would represent the 16th largest epidemic in
                                          the world.5

                                          Domestic HIV prevention in particular requires more focus and more funding, as certain
                                          populations (African Americans and MSM) are not being effectively reached, and 21% of HIV-
                                          infected persons in the U.S. do not know they are infected. Yet prevention programs represented
                                          the smallest share (only 4%) of the FY2009 and FY2010 federal HIV/AIDS funding6. And,
                                          as a result of the economic crisis, state and local governments have been reducing budgets,
                                          cutting prevention programs as well as health and administrative staff for HIV/AIDS programs
                                          sharply. According to a survey by the National Alliance of State and Territorial AIDS Directors
                                          (NASTAD), 74% of HIV/AIDS programs that receive state funding experienced cuts to HIV
                                          prevention activities in 2009 as a result of state budget cuts. (The comparable share of HIV
                                          treatment programs receiving state funding that experienced cuts in 2009 was nearly 50%.)

                                          The economic crisis has impacted most private philanthropic funders of HIV/AIDS. Some
                                          have reduced grantmaking and scaled back the provision of human and financial resources.
                                          For funders that rely on endowments for their source of wealth, the financial downturn,
                                          beginning in late 2007, has since cut a significant percentage of the value of their assets, with
                                          some sustaining losses exceeding 30% to date. Meanwhile, funders that rely on fundraising
4 The Henry J. Kaiser Family              for income are finding it more difficult to secure existing donors as well as identify new ones.
Foundation, press release, “less than a
year after CDC announced the U.S. HIV
                                          Regardless of income source, therefore, some funders have had to make difficult decisions this
epidemic is much larger than previously   year—including 1) reductions in staff, salaries, benefits, or extra costs such as travel in order
thought, public’s sense of urgency is
down, even among some higher risk         to maintain current levels of grantmaking or limit the scope of cuts; and/or 2) reductions in
groups”. April 28, 2009. www.kff.org/     new or existing grantmaking. With no clear confidence in financial security for the future, the
kaiserpolls/posr042809nr.cfm%20
                                          overall atmosphere is such that funders may be averse to supporting new or different projects.
5 black AIDS Institute. Left Behind:
Black America, A Neglected Priority in
the Global AIDS Epidemic. August 2008.    All of these factors contribute to an atmosphere of pessimism and uncertainty regarding the
www.blackaids.org/image_uploads/
article_575/08_left_behind.pdf            future of both the domestic and international HIV/AIDS response. It is necessary, though, that
                                          all stakeholders recognize the importance of maintaining the hard-earned momentum built
6 The Henry J. Kaiser Family
Foundation, HIV/AIDS Policy Fact Sheet,   up over the past decade of increased investments in HIV/AIDS and health service delivery.
“U.S. Federal Funding for HIV/AIDS: The
FY 2009 budget Request.” April 2008.
                                          These investments have paid off in countless ways, most notably in the huge number of lives
www.kff.org/hivaids/upload/7029-041.pdf   saved. Instead of a reason to retrench, the economic crisis should be viewed as an opportunity

                                          U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                              9
2009 review and the road ahead




     to ensure that the limited resources available have maximum impact. Instead of succumbing
     to “HIV/AIDS fatigue,” or leaving AIDS behind to focus on other issues, all global players—
     multilateral and bilateral donors, governments in needy countries, and private philanthropists—
     should look anew at the epidemic, focusing on identifying and utilizing the most effective
     evidence-based solutions to rally additional resources and ensure continued progress on all
     fronts: human rights, prevention, social services, care, and treatment.

     Private philanthropy has a critical and unique role in such efforts. Advocacy activities,
     especially those that empower PLWHA, marginalized populations and others affected by
     HIV/AIDS, are key to building campaigns, movements, and networks that support leadership
     among these populations, a development that helps give them a stronger voice and influence
     in policymaking, and creating social change. For a variety of reasons, they are also activities
     that large multilateral and bilateral organizations and national governments are less likely to
     support. Many smaller funders make up the field of private philanthropy, and, compared with
     larger donor organizations or governments, private philanthropic funders can respond much
     more flexibly to targeted prevention and treatment initiatives (such as the provision of clean
     syringes to injecting drug users) and the particular needs of marginalized populations (such as
     MSM, sex workers, and migrants). These are issues and populations that many larger and more
     formal entities ignore, at best, or discriminate against (at worst).

     Collaborations among private philanthropic funders, as well as with corporations,
     governments, and large bilateral and multilateral organizations, are another important avenue
     to pursue in the near future. Funders can help each other meet mutual goals by coordinating
     and sharing best practices and skills, establishing successful models of service delivery, and
     leveraging investments to bring in additional commitments and resources. Partnerships should
     also be fostered with community-based organizations, thereby increasing the local capacity of
     constituents as a longer-term sustainable solution.

     The economic downturn has forced funders to take stock of their work and to streamline
     programs to be as critically effective as possible. This could be precisely what is needed
     to sustain the momentum of past years and enhance it in the future. To achieve the goal
     of universal access to HIV prevention, treatment, and care by 2010, and the Millennium
     Development Goal of halting and reversing the spread of HIV by 2015, HIV/AIDS
     philanthropists must closely examine their successes and failures, join together with
     colleagues, and recommit to combating the epidemic with their best efforts.




10   FUNDERS CoNCERNED AboUT AIDS
total U.S. hiv/aidS grantmaking
                                             in 2008
                                             FCAA identified 345 U.S.-based funders that made HIV/AIDS-related grant disbursements in
                                             2008. Combined, these funders supported some 6,300 HIV/AIDS-related grants or projects,
                                             disbursing a total of approximately $618 million to these projects.

                                             Note on missing data:
                                             The great majority of private philanthropic funding for HIV/AIDS in 2008 has been captured
                                             in the available data. However, it is important to note that despite repeated efforts, FCAA was
                                             unable to receive data from some funders, and they are not included in the report. No data
                                             were received from the Children’s Investment Fund Foundation (US), which was a top funder
                                             in 2005, 2006, and 2007; the Coca-Cola Africa Foundation, which was a top funder in 2004,
                                             2005, and 2006; and Gilead Sciences, which was a top funder in 2005. In addition, several
                                             other funders that have appeared in previous reports are not included this year for various
                                             reasons. They include the Rockefeller Foundation (which is focusing increasingly on health
                                             systems strengthening and not disease-specific programming) and The Henry J. Kaiser Family
                                             Foundation7 (an operating foundation that develops and runs its own policy research and
                                             communications programs, which are increasingly difficult to value financially). Two corporate
                                             funders that appeared in past reports (ExxonMobil and Altria Group) moved away from
                                             funding HIV/AIDS in 2008.

                                             FCAA surveyed funders about funding commitments and disbursements in 2008. Tracking
                                             commitments (funding pledged for grants/projects in a given year, whether or not the funds
                                             were disbursed in that year) helps to gauge current and future outlays. Tracking disbursements
                                             (funding actually made available in a given year, which may include funding from prior year
                                             commitments) provides data on funds actually disbursed in a given year. For some funders,
                                             commitments and disbursements are the same in a given year; for others, commitments indicate
                                             funding above or below actual disbursements in a year.)

                                             Among all funders for which FCAA has both 2007 and 2008 data, the total value of
                                             disbursements increased 17% from 2007 to 2008.

                                             Chart 1a:
                                             Total HIV/AIDS Grantmaking Disbursements by U.S. Philanthropies 2005-20088
7 The Henry J. Kaiser Family
Foundation is a private operating
foundation with HIV-related           2005                                             $351
activities that are increasingly
integrated throughout its programs
across the entire foundation.         2006                                                           $501
Though the foundation is usually
one of the top ten funders in terms
of highest annual disbursements, it   2007                                                                  $544
is no longer possible to separately
identify and report the level of
foundation resources dedicated
                                      2008                                                                         $612
specifically to HIV/AIDS. It should
be noted that the foundation has
maintained its commitment and                $0          $100            $200       $300      $400     $500         $600   $700
level of resources dedicated
to HIV/AIDS both domestically
and globally. (See Appendix A                HIV/AIDS Grantmaking (in $ millions)
for a larger discussion about
operating foundations and Kaiser’s
contributions.)

8 This chart includes only the
funders for which FCAA has all
four years of disbursement data
(2005, 2006, 2007 and 2008)
for 2005-2008.



                                             U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                        11
total U.S. hiv/aidS grantmaking in 2008




                                                Among the top funders9 tracked by FCAA, commitments decreased 16% between
                                                2007 and 2008.

                                                Chart 1b:
                                                Total HIV/AIDS Grantmaking Commitments by U.S. Philanthropies 2000-200810

                                         2000                        $312
                                         2001                                         $501
                                         2002                      $300
                                         2003                               $394
                                         2004                          $346
                                         2005                           $354
                                         2006                                                                    $979
                                         2007                                         $491
                                         2008                                  $413

                                             $0               $200              $400               $600   $800      $1000   $1200
                                                HIV/AIDS Grantmaking Commitments (in $ millions)




9 “Top funders” are those identified by
FCAA that have disbursed $300,000 or
more to HIV/AIDS grants and projects in a
given year. In 2008, a total of 72 funders
met that criterion.

10 This chart includes all commitments
data available for all top funders
each year.


12                                              FUNDERS CoNCERNED AboUT AIDS
toP U.S. hiv/aidS fUnderS in 2008

                                              Seventy-two funders reported HIV/AIDS-related grantmaking disbursements of $300,000 or
                                              more in 2008. All are listed in Table 1.

                                              Table 1:
                                              Top 72 U.S. HIV/AIDS Funders in 2008
                                              (ranked by amount of disbursements)11

                                              Name                                                           Disbursements ($)     Commitments ($)
                                              1.    bill & Melinda Gates Foundation, WA                            378,482,751w    w    234,155,177
                                              2.    The Ford Foundation, NY                                         27,777,195w    w     31,714,691
                                              3.    Abbott and Abbott Fund, Il                                      25,229,419w    w              0
                                              4.    M•A•C AIDS Fund and M•A•C Cosmetics, NY                         23,461,948w    w     27,362,165
                                              5.    Merck & Co., Inc, NJ                                            13,368,736w    w   Not available
                                              6.    open Society Institute, NY12                                    12,494,236w    w     12,494,236
                                              7.    Johnson & Johnson, NJ                                           11,667,000w    w     11,667,000
                                              8.    bristol-Myers Squibb Foundation
                                                    and bristol-Myers Squibb Co., NY                                10,383,997w    w      4,553,626
                                              9.    broadway Cares/Equity Fights AIDS, NY                           10,039,298*w   w     10,039,298
                                              10.   Pfizer Inc and Pfizer Foundation, NY13                           9,162,372         Not available
                                              11.   Irene Diamond Fund, NY                                           8,305,366w    w      9,820,866
                                              12.   Elton John AIDS Foundation, NY                                   6,375,034*w   w      6,375,034
                                              13.   Tides Foundation, CA14                                           5,494,462*w   w      3,044,581
                                              14.   The Foundation for AIDS Research (amfAR), NY                     5,100,050*w   w      4,619,805
11 The state associated with each entity      15.   Robin Hood Foundation, NY                                        4,895,000w    w      5,135,000
refers to the state in which the entity is
based, not necessarily where grants and
                                              16.   National AIDS Fund, DC                                           4,750,273*w   w      5,456,797
projects are funded by the entity.            17.   Elizabeth Glaser Pediatric AIDS Foundation, CA                   4,168,868*w   w      4,756,639
12 The 2008 dollar amounts provided by        18.   Doris Duke Charitable Foundation, NY                             3,830,000w    w      2,790,000
the open Society Institute are estimates      19.   HIV Collaborative Fund, a project of the Tides Center, CA        3,001,210*        Not available
and not exact figures. These estimated
disbursements only include HIV/AIDS-          20. Rockefeller brothers Fund, Inc., NY                                2,550,000w    w      2,692,500
related grants made to 1) the open
Society Institute’s Public Health Program,
                                              21.   The Starr Foundation, NY                                         2,005,000w    w     10,005,000
2) the Southeast Asia Initiative/burma        22. W.K. Kellogg Foundation, MI                                        1,985,000         Not available
Project, and 3) national and regional Soros
Foundations. They do not include              23. Global Fund for Women, CA                                          1,968,090*w   w      2,058,600
HIV/AIDS-related grants made by any           24. Firelight Foundation, CA                                           1,872,084*w   w      1,977,584
other Soros Foundation network program
or entity.                                    25. levi Strauss & Co., CA                                             1,809,000w    w      1,809,000
                                              26. The New York Community Trust, NY                                   1,746,000*w   w      1,746,000
13 This figure includes grants from both
Pfizer Inc. and the Pfizer Foundation, but    27.   The Wells Fargo Foundation, CA                                   1,722,269         Not available
should be regarded as an estimate that
does not include all HIV/AIDS funding due     28. AIDS Foundation of Chicago, Il                                     1,663,982*        Not available
to the unavailability of complete data.       29. American Jewish World Service, NY                                  1,640,623w    w      1,430,009
14 A large part of HIV Collaborative Fund     30. The Sidney Kimmel Foundation, PA                                   1,640,000         Not available
monies are included in the total figure for   31.   GlaxoSmithKline US, NC15                             w           1,575,174         Not available
Tides Foundation, but the Collaborative
Fund also handles funds that are not          32. The San Francisco AIDS Foundation, CA                  w           1,512,500w    w        750,000
included in the Tides Foundation total.
Double counting of funds is corrected in
                                              33. Silicon Valley Community Foundation, CA                            1,435,066         Not available
the aggregate total of disbursements.         34. Washington AIDS Partnership, DC                    w               1,354,984*w   w      1,199,620
15 The figure for GlaxoSmithKline
includes grants data from the U.S.
branch of the company only. The
company is headquartered in the United
Kingdom, and non-U.S. HIV/AIDS funding
(approximately $4.7 million in 2008) is
tracked in the European HIV/AIDS Funders
Group (EFG) resource tracking report
(see www.hivaidsfunders.org to view the
report, European Philanthropic Support to
Address HIV/AIDS in 2008).


                                              U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                              13
toP U.S. hiv/aidS fUnderS in 2008




                                            Table 1, continued
                                            Name                                                        Disbursements ($)     Commitments ($)
                                            35. Pride Foundation, WA                                w           1,316,952w    w   Not available
                                            36. Missouri Foundation for Health, Mo                  w           1,185,662w    w      1,421,612
                                            37.   H. van Ameringen Foundation, NY                               1,091,000w    w   Not available
                                            38. Children Affected by AIDS Foundation, CA        w               1,057,593*w   w      1,057,593
                                            39. Alphawood Foundation, Il                            w           1,057,000w    w   Not available
                                            40. The Design Industries Foundation Fighting
                                                AIDS (DIFFA), NY                                    w           1,026,131w    w      1,264,008
                                            41.   James b. Pendleton Charitable Trust, WA           w             990,411w    w        990,411
                                            42. International Fund for Health & Family Planning, NY               950,109w        Not available
                                            43. The Comer Foundation, Il                         w                940,775w    w        940,775
                                            44.   The William and Flora Hewlett Foundation, CA w                  900,000w    w      1,049,048
                                            45.   The Pew Charitable Trusts, PA                  w                881,000w        Not available
                                            46.   Weingart Foundation, CA                        w                773,400w        Not available
                                            47.   United Nations Foundation, DC                w                  753,346*w   w        953,346
                                            48. The Anne Dinning and Michael Wolf Foundation, NY                  750,000w        Not available
                                            49. The Harry and Jeanette Weinberg Foundation, Inc., MD              725,000w        Not available
                                            50. boston Foundation, Inc., MA                     w                 713,850*w       Not available
                                            51.   South Africa Development Fund, MA             w                 686,928*w   w        686,928
                                            52. Macy’s Foundation, oH                               w             673,070w        Not available
                                            53.   Evelyn and Walter Haas, Jr. Fund, CA              w             645,000w    w        505,000
                                            54. The John D. & Catherine T. MacArthur Foundation, Il               615,000w    w        250,000
                                            55. The Summit Foundation, DC                           w             568,000w    w        568,000
                                            56. The David and lucile Packard Foundation, CA         w             550,000w    w      1,580,000
                                            57.   AIDS Funding Collaborative, oH                w                 544,763*w   w        525,048
                                            58. bD (becton, Dickinson and Company), NJ              w             524,000w    w        250,000
                                            59. Houston Endowment Inc., TX                          w             522,500w    w        465,000
                                            60. Arcus Foundation, MI                                w             510,000w        Not available
                                            61.   The Skoll Foundation, CA                          w             510,000w        Not available
                                            62. The Community Foundation for the
                                                National Capital Region, DC                         w             504,030w        Not available
                                            63. The John M. lloyd Foundation, CA                    w             484,550w    w        334,550
                                            64. Staying Alive Foundation, NY                        w             480,810w    w        665,458
                                            65. San Diego HIV Funding Collaborative, CA             w             470,081w    w        541,000
                                            66. The Campbell Foundation, Fl                         w             442,946w    w        442,946
16 The Indiana AIDS Fund is a program       67.   Indiana AIDS Fund, IN16                           w             424,550w    w        424,550
of the Health Foundation of Greater
                                            68. The Health Foundation of Greater Indianapolis, IN                 394,740w    w        418,251
Indianapolis; however, the two conduct
separate RFPs and grantmaking.              69. Charles Stewart Mott Foundation, MI                 w             370,000w        Not available

17 Funders with an asterisk (*) after
                                            70. World Children’s Fund, CA                           w             322,019w        Not available
their total reported that they received     71.   The Duke Endowment, NC                            w             320,929w        Not available
some financial resources from other
agencies tracked by FCAA. At least some     72. The Denver Foundation, Co                           w             315,500w        Not available
of these funds were then re-granted to
support HIV/AIDS-related funding to other
institutions. To avoid double counting      2008 HIV/AIDS Grantmaking Disbursements by Top 7217                               	   $600,814,259
of funds, the top 72 subtotal reflects a
                                            2008 HIV/AIDS Grantmaking Commitments by Top 72                                   	   $412,986,752
reduction of $19,644,373 to correct for
re-granting of funds from one FCAA-         Total 2008 U.S. HIV/AIDS Grantmaking Disbursements                                	   $617,883,789
tracked top grantmaker to another. The
total amount for all grantmakers also
reflects a reduction of $19,644,373 to
account for re-granting of funds from one
FCAA-tracked grantmaker to another. See
Appendix A for a more full explanation of
the methodology used for this report.


14                                          FUNDERS CoNCERNED AboUT AIDS
concentration of hiv/aidS fUnderS

HIV/AIDS funding by U.S.-based private philanthropic funders is increasingly concentrated
among a relatively small number of entities. Funding disbursements from the largest U.S.
HIV/AIDS grantmaker, the Bill & Melinda Gates Foundation, accounted for 59% of all identified
HIV/AIDS grantmaking disbursements in 2008—a slightly higher share than the 54% recorded
for 2007. The top 10 U.S. HIV/AIDS funders, including the Gates Foundation, accounted for
82% of all identified HIV/AIDS grantmaking disbursements in 2008 (a slight increase from
79% in 2009).

Chart 2:
Distribution of Disbursements by Amount of the U.S. HIV/AIDS Funders in 2008
(by percentage of total disbursements)

                                                             Largest funder (Gates) 59%

                                                             Funders 2-10 23%




                                                             Funders 11-26 9%



                                                             Funders 27-72 6%

                                                             Funders 73-345 3%




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                     15
INCREASING IMPACT THROUGH PUBLIC/PRIVATE PARTNERSHIPS
THE WASHINGTON AIDS PARTNERSHIP


In November 2007 headlines across the country pronounced
Washington, D.C. as home to the highest HIV infection rate among U.S.
cities. The first statistics amassed on HIV in the District revealed “a
modern epidemic remarkable for its size, complexity and reach into all
parts of the city.”

The Washington AIDS Partnership, an initiative of the Washington
Regional Association of Grantmakers, is the largest private funder
of HIV/AIDS prevention, education and advocacy services in the
Washington, D.C. metropolitan region. The Partnership awards
approximately $1 million a year to local HIV/AIDS agencies, and also
works to find ways to increase local HIV/AIDS resources and foster
collaborative relationships with a variety of local and national partners.

In 2008 the Partnership formed a new public-private partnership with
the D.C. government and the HIV/AIDS Administration (HAA) to expand
the HIV medication safety-net and improve advanced planning for
D.C.’s AIDS Drug Assistance Program (ADAP). ADAP is a federal
program that provides funding to states for HIV medication for low-
income individuals with HIV/AIDS who have limited or no access to
prescription drugs.                                                          At FCAA’s Annual Gathering in September, Washington AIDS
                                                                             Partnership Executive Director Channing Wickham (far left)
A significant problem with enrollment and planning had led to $5.8           moderated a panel on the local epidemic. Dr. Shannon Hader (far
million in unspent federal ADAP funding in the District – money that the     right), Director, HIV/AIDS Administration, D.C. Department of Health,
D.C. government would have had to forfeit. As a result of this public-       joined the panel to emphasize the District’s growing leadership in
private partnership, the surplus was transferred to the Washington           innovative public-private partnerships.
AIDS Partnership to examine best practices in the field, ensure that D.C.
has an innovative drug procurement and delivery process in place, and        According to Channing Wickham, Executive Director of the Washington
purchase much-needed HIV medications for low-income individuals              AIDS Partnership, the District’s approach to ADAP had not been
living with HIV/AIDS.                                                        evaluated prior to 2008. “In order to create the type of forward-looking
                                                                             program that can be responsive to shifts in enrollment and drug
                                                                             utilization, we first had to study and align ourselves with best practices
     With a staff of two and a 23 member advisory committee of               from around the world.” The Partnership contracted John Snow, Inc.
     funders, experts, and individuals living with HIV/AIDS to guide         (JSI), a public health research and consulting firm, to provide technical
     the work, the Washington AIDS Partnership invests resources             assistance in establishing an HIV Medication Pipeline to ensure the
     in local organizations to improve HIV/AIDS prevention and               supply of antiretroviral (ARV) drugs and other HIV medications for the
     care services in the Washington, D.C. region. In addition to            D.C. ADAP. JSI’s detailed analysis included the exploration of alternative
     grantmaking, activities include providing techincal assistance to       sources of supply and options for procurement of ARV drugs, as well
     local organizations, facilititating local public policy initiatives     as the development of a forecasting methodology to guide long-term
     to improve the HIV/AIDS system of prevention and care, and              planning and management of the HIV Medication Pipeline.
     recruiting and mentoring a team of young people who commit
     to a year of full-time volunteer service at local HIV/AIDS              Ultimately, the scale up of the D.C. ADAP will maximize drug availability,
     agencies as AmiCorps members.                                           HIV treatment stability, and enrollment of District residents who
                                                                             desperately need HIV medications. The public-private partnership is
     The Partnership is pursuing five important goals in its efforts to
                                                                             just one step in this massive effort: with new systems in place, a public
     end HIV/AIDS in the region. They are:
                                                                             marketing campaign will also be needed to work with providers on
     1.   PROMOTING EFFECTIVE POLICy;                                        getting HIV positive people back into care and treatment. “In this type
     2.   BUILDING NONPROFIT CAPACITy;                                       of partnership, you have access to resources far beyond your own,”
     3.   PROMOTING BEST PRACTICES;                                          says Wickham. “As private philanthropy, our fluency in grantmaking
     4.   DEVELOPING AND INVESTING IN LEADERS;                               and ability to negotiate flexible contracts has complemented the
     5.   ENGAGING PHILANTHROPIC PARTNERS.                                   public sector’s epidemiology expertise and access to federal dollars.”
                                                                             This unique combination of skills and resources has created the right
     For more information on the Partnership, and their goals,
                                                                             environment to support the D.C. government in the development of
     please visit:
                                                                             an innovative new model for drug access and provision in the
     www.washingtonaidspartnership.org/PDF/AFightWeCanWin.pdf                District of Columbia.




16                                       FUNDERS CoNCERNED AboUT AIDS
changeS in hiv/aidS grantmaking

Among the top 72 U.S.-based HIV/AIDS funders for which FCAA had disbursements data
for 2005 through 2008 (51 of 72 funders), a total of 41 reported a higher level of HIV/AIDS
grantmaking disbursements in 2008 than in 2005. Thirty-six funders reported higher amounts
of disbursements in 2008 compared with 2007.

Table 2:
HIV/AIDS Funders Reporting Higher Amounts of HIV/AIDS Grantmaking
Disbursements in 2008 than 2005
(ranked by amount of increase between reported amounts for those years)
                                                                                                       Change       %
Name                                   2005 ($)        2006 ($)           2007 ($)      2008 ($)     05-08 ($) Change
bill & Melinda Gates
Foundation, WA                      137,546,593w 257,855,885w 308,917,741w 378,482,751w 240,936,158w                175%
M•A•C AIDS Fund and
M•A•C Cosmetics, NY                    9,122,623w     16,187,422w     22,042,057w      23,461,948w   14,339,325w    157%
The Ford
Foundation, NY                        14,692,292w     22,669,531w     18,482,541w      27,777,195w   13,084,903w     89%
Merck & Co.,
Inc, NJ                                8,340,000w     15,696,000w     15,937,739w      13,368,736w    5,028,736w     60%
Johnson &
Johnson, NJ                            7,812,000w     12,925,000w     12,490,000w      11,667,000w    3,855,000w     49%
The Foundation for AIDS
Research (amfAR), NY                   2,568,944w      2,812,983w         2,085,840w    5,100,050w    2,531,106w     99%
Elton John AIDS
Foundation, NY                         3,884,391w      4,805,874w         6,288,676w    6,375,034w    2,490,643w     64%
National AIDS
Fund, DC                               2,568,944w      2,812,983w         2,085,840w    5,100,050w    2,531,106w     99%
broadway Cares/Equity
Fights AIDS, NY                        7,986,298w      8,035,864w         8,824,046w   10,039,298w    2,053,000w     26%
Robin Hood
Foundation, NY                         2,845,000w      3,805,000w         4,275,000w    4,895,000w    2,050,000w     72%
Irene Diamond
Fund, NY                               6,426,715w      6,690,905w         7,127,787w    8,305,366w    1,878,651w     29%
Tides
Foundation, CA                         3,976,736w      4,332,319w         5,037,793w    5,494,462w    1,517,726w     38%
American Jewish World
Service, NY                              309,008w      1,839,061w         1,538,960w    1,640,623w    1,331,615w    431%
Abbott and Abbott
Fund, Il                              23,933,226w     19,474,610w     26,449,721w      25,229,419w    1,296,193w      5%
Pride Foundation,
WA                                        73,000w         73,000w           77,864w     1,316,952w    1,243,952w   1704%
The New York
Community Trust, NY                      730,000w      1,330,000w         1,545,450w    1,746,000w    1,016,000w    139%
Firelight Foundation,
CA                                       930,037w      1,507,723w         2,056,400w    1,872,084w     942,047w     101%
W. K. Kellogg
Foundation, MI                         1,045,000w      1,520,073w         1,450,000w    1,985,000w     940,000w      90%
Rockefeller brothers
Fund, Inc., NY                         1,650,000w      1,624,500w         2,050,000w    2,550,000w     900,000w      55%
Global Fund for
Women, CA                              1,132,924w      1,371,583w         1,961,758w    1,968,090w     835,166w      74%




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                                17
changeS in hiv/aidS grantmaking




     Table 2, continued
                                                                                              Change       %
     Name                               2005 ($)     2006 ($)     2007 ($)     2008 ($)     05-08 ($) Change

     Weingart
     Foundation, CA                       35,000w     265,000w     130,000w     773,400w     738,400w   2110%
     boston Foundation,
     Inc., MA                             80,000w     110,000w     140,280w     713,850w     633,850w    792%
     The Pew Charitable
     Trusts, PA                          338,000w            0w    326,000w     881,000w     543,000w    161%
     Washington AIDS
     Partnership, DC                     821,675w    1,010,800w   1,193,050w   1,354,984w    533,309w     65%
     AIDS Funding
     Collaborative, oH                    49,565w     424,232w     386,398w     544,763w     495,198w    999%
     The Design Industries Foundation
     Fighting AIDS (DIFFA), NY           594,807w     683,000w    1,221,290w   1,026,131w    431,324w     73%
     Charles Stewart Mott
     Foundation, MI                       48,600w     404,228w     260,000w     370,000w     321,400w    661%
     Children Affected by AIDS
     Foundation, CA                      749,686w     911,364w     909,986w    1,057,593w    307,907w     41%
     The David and lucile
     Packard Foundation, CA              250,000w     750,000w    1,270,000w    550,000w     300,000w    120%
     bD (becton, Dickinson
     and Company), NJ                    243,200w     837,464w     650,000w     524,000w     280,800w    115%
     The Wells Fargo
     Foundation, CA                     1,470,175w   1,490,089w   1,607,101w   1,722,269w    252,094w     17%
     AIDS Foundation
     of Chicago, Il                     1,435,148w   1,785,401w   1,186,594w   1,663,982w    228,834w     16%
     The Comer
     Foundation, Il                      724,836w     806,000w    1,140,000w    940,775w     215,939w     30%
     International Fund for Health
     & Family Planning, NY               750,253w    1,703,029w   1,619,810w    950,109w     199,856w     27%
     H. van Ameringen
     Foundation, NY                      933,500w    1,178,000w   1,434,000w   1,091,000w    157,500w     17%
     The Health Foundation of
     Greater Indianapolis, IN            933,500w    1,178,000w   1,434,000w   1,091,000w    157,500w     17%
     Evelyn and Walter Haas,
     Jr. Fund, CA                        532,000w     585,000w     280,000w     645,000w     113,000w     21%
     The Community Foundation for
     the National Capital Region, DC     416,963w     472,067w     263,253w     504,030w      87,067w     21%
     The John M. lloyd
     Foundation, CA                      404,175w     410,000w     390,000w     484,550w      80,375w     20%
     South Africa Development
     Fund, MA                            614,041w     638,455w     686,828w     686,928w      72,887w     12%
     Indiana AIDS
     Fund, IN                            375,550w     433,900w     515,050w     424,550w      49,000w     13%




18   FUNDERS CoNCERNED AboUT AIDS
Of the top 72 funders for which FCAA had HIV/AIDS grantmaking disbursement data from
2005 through 2008, a total of 10 reported disbursing less in 2008 than in 2005. Twenty-three
funders reported disbursing less in 2008 than in 2007. It should be noted that some changes
in funding are not indicative of larger trends of decreases in funding for some funders. Many
funders make multi-year commitments and expenditures of those commitments can vary
greatly between years.

Table 3:
U.S. HIV/AIDS Funders Reporting Lower Amounts of HIV/AIDS Grantmaking
Disbursements in 2008 than 2005
(ranked by amount of decrease between reported amounts for those years)
                                                                                                       Change       %
Name                                   2005 ($)        2006 ($)           2007 ($)      2008 ($)     05-08 ($) Change

bristol-Myers Squibb
Foundation and bristol-Myers
Squibb Co., NY                       26,806,679w     31,935,113w      15,996,612w      10,383,997w -16,422,682w    -61%
Elizabeth Glaser Pediatric
AIDS Foundation, CA                    8,580,706w     8,619,232w          5,821,951w    4,168,868w   -4,411,838w   -51%
United Nations
Foundation, DC                         1,531,278w     6,708,922w          1,537,977w     753,346w     -777,932w    -51%
Alphawood
Foundation, Il                         1,700,600w     2,275,000w           570,000w     1,057,000w    -643,600w    -38%
The John D. & Catherine T.
MacArthur Foundation, Il               1,138,000w     1,336,000w          1,817,000w     615,000w     -523,000w    -46%
Missouri Foundation
for Health, Mo                         1,667,440w     2,147,438w          1,086,099w    1,185,662w    -481,778w    -29%
levi Strauss & Co.,
CA                                     2,124,958w     2,212,370w          1,876,100w    1,809,000w    -315,958w    -15%
The William and Flora
Hewlett Foundation, CA                 1,075,000w     1,390,417w          2,100,000w     900,000w     -175,000w    -16%
The Campbell
Foundation, Fl                           603,400w        652,668w          644,687w      442,946w     -160,454w    -27%
Houston Endowment
Inc., TX                                 550,000w     1,040,000w           435,000w      522,500w      -27,500w    -5%




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                               19
2009 forecaSt

     In the FCAA survey on 2008 funding, funders were asked about their anticipated grantmaking
     levels for 2009. Only 15% of HIV/AIDS funders that responded to this survey question (8 of 52
     entities) indicated that they expected an increase in HIV/AIDS grantmaking in 2009, including
     only one of the top 10 funders. This is the lowest forecast for a year-on-year increase since
     FCAA began asking this question on the survey. Equally troubling is the sharp increase in the
     share of funders that forecast their 2009 grantmaking levels to be less than in 2008—41% (21 of
     52 responding), compared with only 17% of respondents forecasting a year-on-year decrease for
     the report compiled in 2008 (on 2007 data). Six of the top 10 funders expect their funding to
     decrease in 2009. Forty-four percent (22 of 52) reported that they anticipate disbursements to
     remain at approximately the same level or were unsure.

     Chart 3:
     Forecast of 2009 U.S. Philanthropic HIV/AIDS Funding
     (by percentage of funders)

                                                                   Expect funding to remain
                                                                   the same in 2009,
                                                                   or unsure of likely levels 44%

                                                                   Expect funding to
                                                                   decrease in 2009 41%




                                                                   Expect funding to
                                                                   increase in 2009 15%




20   FUNDERS CoNCERNED AboUT AIDS
U.S. corPorate hiv/aidS fUnderS

                                           In 2008, 11 corporate foundations and giving programs were among the top 72 U.S. HIV/AIDS
                                           funders identified by FCAA. The total estimated support of these 11 entities in 2008 was $100
                                           million (1,831 grants), representing 16% of the $618 million total estimated HIV/AIDS U.S.
                                           philanthropy for 2008, and a 3% decrease in the amount of corporate giving compared with
                                           results reported for the 11 top corporate funders for 2007.18

                                           Table 4:
                                           Top U.S. Corporate HIV/AIDS Funders in 2008
                                           (ranked by amount of disbursements)


                                           Abbott and Abbott Fund, Il                                                          $25,229,419
                                           M•A•C AIDS Fund and M•A•C Cosmetics, NY                                              23,461,948
                                           Merck & Co., Inc, NJ                                                                 13,368,736
                                           Johnson & Johnson, NJ                                                                11,667,000
                                           bristol-Myers Squibb Foundation and bristol-Myers Squibb Co., NY                     10,383,997
                                           Pfizer Inc and Pfizer Foundation, NY                                                  9,162,372
                                           levi Strauss & Co., CA                                                                1,809,000
                                           GlaxoSmithKline US, NC                                                                1,575,174
                                           The Wells Fargo Foundation, CA                                                        1,722,269
                                           Macy’s Foundation, oH                                                                   673,070
                                           bD (becton, Dickinson and Company), NJ                                                  524,000

                                           Total                                                                               $99,576,985




                                           2009 Corporate Forecast
                                           Nine of the 11 corporate funders listed in Table 4 provided FCAA with information about their
                                           grantmaking, including whether they expected their HIV/AIDS-related funding to increase or
                                           decrease in 2009. None of the corporate funders forecasted funding to increase in 2009. Three
                                           expected grantmaking to remain about the same, two funders were unsure, and four funders
                                           said they expected funding to decrease in 2009.




18 FCAA reported $102.2 million in
disbursements among the top 11 corporate
HIV/AIDS funders in 2007.


                                           U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                          21
BRINGING FUNDERS TOGETHER
THE FIRST ANNUAL GATHERING OF FUNDERS CONCERNED ABOUT AIDS



Alone we can impact the epidemic,
together we can end it.
                                      - FCAA



From September 16-18, 2009, balancing the hope and opportunity
presented by new leadership in the fight against AIDS with unparalleled
global economic challenges, FCAA convened its first annual gathering
of more than 120 domestic and international HIV/ADS grantmakers,
advocates, and people living with HIV/AIDS; key federal administration
officials; newly appointed leaders of international efforts focused on
HIV/AIDS; and other distinguished thought leaders and innovators. Key
to the gathering was also the outreach to and attendance of stalwart
leaders from the field of private philanthropy, particularly other affinity
groups whose members’ work intersects with the myriad issues
surrounding HIV and AIDS.

over the course of three intensive and action-packed days, we heard
from all corners of the globe about innovative approaches to HIV/AIDS         Members of the Future of Funding for HIV/AIDS in the Private
grantmaking, prevention, social services and care provision, and human        Sector panel: (from L to R) Moderator, Steve Gunderson (Council
rights protections for people with or at high risk of HIV/AIDS; discussed     on Foundations), Kim Frawley (Pfizer, Inc.), Thomas Coates (UCLA),
the impact of the new economic paradigm in which we all live and work;        Nancy Mahon (M•A•C AIDS Fund), Todd Summers (Bill & Melinda
learned about the future of U.S. policy and funding for HIV/AIDS at           Gates Foundation), and Kandy S. Ferree (National AIDS Fund).
home and abroad; discovered innovative and exciting uses being made
of media and technology in AIDS work; delved deep into the issue of
reproductive rights of women with HIV and AIDS; and explored new
collaborative possibilities between funders and among funders, the
public sector and NGos.

Several significant themes emerged around the role of private
philanthropy in contributing to the end of the epidemic, including:

•    breaking through the blockages that exist in funding essential
     to HIV/AIDS advocacy work at the local, state, regional and
     global levels;
                                                                              Grantmakers took part in roundtable discussions to help guide future
•    Participating actively in the development of a coherent, evidence-       FCAA programming.
     based and effective U.S. National HIV/AIDS Strategy;

•    Exploring and taking concrete action on grantmaker collaborations
     to enhance philanthropy’s positive impact on the epidemic;

•    Refocusing on building the basic capacity and leadership of              “I look forward to continuing to
     grassroots organizations, particularly those that serve marginalized
     populations, and with a special focus on developing the next             advocate for grantmakers to support
     generation of leaders in the fight against HIV/AIDS.                     our common goal to maintain the energy,
NExT STEPS FOR FCAA
                                                                              commitment, and results that we need
The net result of the gathering for FCAA is a richness of ideas on            to reverse this epidemic.”
short- and long-term opportunities to continue to fulfill our mission
and further hone our approach to Inform, Convene and Collaborate.                                               - Keynote Speaker Michel Sidibé,
our first tasks – already begun - to embark on the important work                                                 Executive Director, UNAIDS
prioritized for FCAA by participants include producing an in-depth
report on the gathering to be shared with our stakeholders, collecting
the vast resources shared by participants into one central location,
and continuing the conversations about collaboration begun at this
historic event.




22                                      FUNDERS CoNCERNED AboUT AIDS
geograPhic diStribUtion of
hiv/aidS fUnding
Among the top 72 U.S. HIV/AIDS funders in 2008, a total of 55 (76%) provided data on the
geographic distribution of their funding disbursements. FCAA gathered geographic distribution
data for 16 other funders from The Foundation Center, Foundation Search, grants databases on
a funder’s website, or 990 tax forms, but could not obtain data on geographic distribution for
one of the top 72 HIV/AIDS funders.

Analysis by FCAA suggests that of the estimated $618 million disbursed in 2008 by the top 72
funders, at least $521 million (84%) was directed to global or international HIV/AIDS work
(including funds granted to U.S. organizations for international work). At least $98 million was
disbursed to domestic U.S. HIV/AIDS efforts, representing 16% of the amount of all HIV/AIDS
grants disbursed by the top 72 funders. The geographic distribution of the remaining funds
(approximately $1.5 million, or 0%) could not be identified. In 2007, the figure for international
funding was $446 million (an increase of 77% from 2007 to 2008), and the figure for domestic
funding was $97 million (an increase of 1% from 2007 to 2008).

Chart 4:
U.S. Grant Dollar Disbursements in 2008 by Geographic Focus
(by percentage of total disbursements)

                                                                 For international grants
                                                                 and projects 84%

                                                                 For domestic U.S. epidemic 16%

                                                                 Unspecified 0%




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                            23
geograPhic diStribUtion of hiv/aidS fUnding




     Data collected by FCAA indicates that, in 2008, 32% of funders provided funding exclusively
     to address the epidemic internationally, while 34% of funders provided funding exclusively to
     address the epidemic domestically. In 2007, 45% of those funders for whom FCAA was able to
     gather geographic distribution data were focused exclusively on the U.S. domestic epidemic,
     indicating a decrease of funders focused exclusively on the United States.

     Chart 5:
     Geographic Focus of U.S. HIV/AIDS Funders in 2008
     (by percentage of funders)

                                                                    U.S. and international focus 34%




                                                                    U.S. domestic focus only 34%




                                                                    International focus only 32%




24   FUNDERS CoNCERNED AboUT AIDS
fUnderS with an international hiv/aidS focUS
FCAA identified 24 funders out of the top 72 funders that disbursed 90% or more of their
grantmaking to support international HIV/AIDS programming in 2008.

Table 5:
Top U.S. HIV/AIDS Funders with a Primarily International Focus in 2008
(ranked by amount of international disbursements)

                                                               International ($)    % of total

bill & Melinda Gates Foundation, WA                            w     378,482,751w          100%
open Society Institute, NY                                     w      12,494,236w          100%
Elizabeth Glaser Pediatric AIDS Foundation, CA                 w       4,168,869w          100%
Doris Duke Charitable Foundation, NY                           w       3,830,000w          100%
HIV Collaborative Fund, a project of the Tides Center, CA      w       3,001,210w          100%
Rockefeller brothers Fund, Inc., NY                            w       2,555,000w          100%
The Starr Foundation, NY                                       w       2,005,000w          100%
Global Fund for Women, CA                                      w       1,968,090w          100%
Firelight Foundation, CA                                       w       1,872,084w          100%
American Jewish World Service, NY                              w       1,640,623w          100%
International Fund for Health & Family Planning, NY            w         950,109w          100%
The William and Flora Hewlett Foundation, CA                   w         900,000w          100%
United Nations Foundation, DC                                  w         753,346w          100%
The Anne Dinning and Michael Wolf Foundation, NY               w         750,000w          100%
South Africa Development Fund, MA                              w         686,928w          100%
The John D. & Catherine T. MacArthur Foundation, Il            w         615,000w          100%
The Summit Foundation, DC                                      w         568,000w          100%
The David and lucile Packard Foundation, CA                    w         550,000w          100%
San Diego HIV Funding Collaborative, CA                        w         541,000w          100%
bD (becton, Dickinson and Company), NJ                         w         524,027w          100%
The Skoll Foundation, CA                                       w         510,000w          100%
Staying Alive Foundation, NY                                   w         468,765w           97%
Charles Stewart Mott Foundation, MI                            w         370,000w          100%
World Children’s Fund, CA                                      w         322,019w          100%




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                       25
geograPhic diStribUtion of hiv/aidS fUnding




                                   Of the top 72 funders in 2008, FCAA identified 48 that disbursed funds to address the
                                   international epidemic. FCAA was not able to determine international regional distribution of
                                   funding disbursements for one of these 72 funders.

                                   In comparison with earlier reports, more detail was requested from funders for the 2008 report
                                   in regards to the geographical distribution of their funding. Two new categories were added:
                                   funds to the Global Fund to Fight AIDS, Tuberculosis and Malaria; and funds to the World
                                   Health Organization (WHO), the Joint United Nations Programme on HIV/AIDS (UNAIDS),
                                   and other multilateral organizations. In addition, two regional categories were broken down
                                   further: sub-Saharan Africa was divided into two separate categories (Western and Central
                                   Africa, and Eastern and Southern Africa), and Asia and the Pacific was divided into two
                                   separate categories (South Asia and the Pacific, and East Asia and Southeast Asia). Finally, the
                                   Middle East and North Africa were combined as one new category.

                                   Chart 6:
                                   Geographic Distribution of International U.S. HIV/AIDS Philanthropic Funding in 2008
                                   (by percentage of top U.S. Funders’ total international disbursements)

                                                                                                            Eastern & Southern Africa 36%
                                                                                                            North Africa & Middle East 0%
                                                                                                            South Asia & Pacific 16%


                                                                                                            East Asia & Southeast Asia 6%


                                                                                                            Global Fund 12%



                                                                                                            WHO, UN etc. 3%
Western & Central Africa 8%                                                                                 Unspecified 1%
Eastern Europe & Central Asia 4%                                                                            U.S. for International 9%
Western & Central Europe 1%                                                                                 Caribbean 1%
Latin America 3%                                                                                            Canada 0%

                                   Comparisons can be made for the larger regions with previous years’ data by combining the
                                   new subcategories. For example, there was an increase in giving to the sub-Saharan Africa
                                   region: Western and Central Africa’s 8%, plus Eastern and Southern Africa’s 36%, gives a total
                                   of 42% of total international disbursements given to sub-Saharan Africa in 2008—compared
                                   with the 33% share provided to sub-Saharan Africa in 2007. There was also an increase in
                                   funding to the Asia and Pacific region: South Asia and the Pacific’s 16%, plus East Asia and
                                   Southeast Asia’s 6%, gives a total of 22%—compared with the 14% given in 2007. Funding to U.S.
                                   organizations for international work decreased in 2008, from 45% in 2007 to only 9% in 2008.


26                                 FUNDERS CoNCERNED AboUT AIDS
fUnderS with a domeStic U.S. focUS
Thirty of the top 72 U.S. funders in 2008 identified by FCAA disbursed 90% or more of their
grantmaking to domestic HIV/AIDS issues.

Table 6:
Top U.S. HIV/AIDS Funders with a Primarily Domestic Focus in 2008
(ranked by amount of domestic disbursements)
                                                                    Domestic ($)     % of total

broadway Cares/Equity Fights AIDS, NY                                  9,434,298w          94%
Irene Diamond Fund, NY                                                 8,305,366w         100%
Robin Hood Foundation, NY                                              4,895,000w         100%
National AIDS Fund, DC                                                 4,750,273w         100%
The New York Community Trust, NY                                       1,746,000w         100%
The Wells Fargo Foundation, CA                                         1,716,969w         100%
AIDS Foundation of Chicago, Il                                         1,617,115w          97%
GlaxoSmithKline US, NC                                                 1,575,174w         100%
Washington AIDS Partnership, DC                                        1,354,984w         100%
Pride Foundation, WA                                                   1,316,952w         100%
Missouri Foundation for Health, Mo                                     1,185,662w         100%
H. van Ameringen Foundation, NY                                        1,091,000w         100%
The Design Industries Foundation Fighting AIDS (DIFFA), NY             1,026,131w         100%
James b. Pendleton Charitable Trust, WA                                  990,410w         100%
The Comer Foundation, Il                                                 940,775w         100%
The Pew Charitable Trusts, PA                                            881,000w         100%
Weingart Foundation, CA                                                  773,400w         100%
The Harry and Jeanette Weinberg Foundation, Inc., MD                     725,000w         100%
boston Foundation, Inc., MA                                              702,350w          98%
Macy’s Foundation, oH                                                    660,070w          98%
Evelyn and Walter Haas, Jr. Fund, CA                                     645,000w         100%
AIDS Funding Collaborative, oH                                           544,763w         100%
Houston Endowment Inc., TX                                               522,500w         100%
Arcus Foundation, MI                                                     510,000w         100%
The Community Foundation for the National Capital Region, DC             504,330w         100%
The Campbell Foundation, Fl                                              399,892w          90%
Indiana AIDS Fund, IN                                                    424,550w         100%
The Health Foundation of Greater Indianapolis, IN                        394,740w         100%
The Duke Endowment, NC                                                   320,929w         100%
The Denver Foundation, Co                                                300,500w          95%


Chart 7 shows the U.S. regional distribution of domestic HIV/AIDS philanthropic funding.
Of the top 72 funders in 2008, FCAA identified a total of 49 funders that disbursed funds to
addressing the U.S. domestic epidemic. Approximately 4% of total grantmaking to address U.S.
domestic activities tracked by FCAA was not able to be identified by region.

FCAA asks funders to report domestic funding according to where the office of the grantee is
located. It is important to note that some funders’ grantees conduct HIV/AIDS work outside of
the region in which they are based. Therefore, the share of funding given to a domestic region
in Chart 7 is only an estimate of the actual funding spent in the region.



U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                        27
geograPhic diStribUtion of hiv/aidS fUnding




                                             The funding patterns in Chart 7 do not reflect geographic HIV prevalence estimates in the
                                             United States. According to the CDC, 46% of the country’s new AIDS cases in 2007 were in the
                                             South, as well as the highest numbers of people living with HIV and AIDS and the most AIDS
                                             deaths. That region was followed, in decreasing order of HIV prevalence, by the Northeast, the
                                             West, and the Midwest.19

                                             Chart 7:
                                             Regional Distribution of Domestic U.S. HIV/AIDS Philanthropic Funding in 2008
                                             (by percentage of total domestic disbursements)

                                                                                                            Northeast 41%
                                                                                                            South 22%




                                                                                                            Midwest 13%




                                                                                                            West 20%

                                                                                                            Unspecified 4%
                                                                                                            U.S. territories 0%




19 Centers for Disease Control and
Prevention, HIV/AIDS Surveillance Report,
2007, Vol. 19. Atlanta: U.S. Department of
Health and Human Services, CDC, 2009.
www.cdc.gov/hiv/topics/surveillance/
resources/reports/


28                                           FUNDERS CoNCERNED AboUT AIDS
Table 7:
Top Funders by U.S. Region in 2008
(ranked by amount of disbursements to grantees based in each region)

Northeast                                                                   ($)

Irene Diamond Fund, NY                                                 8,305,366
broadway Cares/Equity Fights AIDS, NY                                  6,381,574
M•A•C AIDS Fund and M•A•C Cosmetics, NY                                4,970,728
Robin Hood Foundation, NY                                              4,895,000
The New York Community Trust, NY                                       1,746,000

South                                                                       ($)

The Ford Foundation, NY                                                3,690,500
National AIDS Fund, DC                                                 3,178,450
M•A•C AIDS Fund and M•A•C Cosmetics, NY                                1,774,660
Elton John AIDS Foundation, NY                                         1,470,291
Pfizer Inc and Pfizer Foundation, NY                                   1,424,697

Midwest                                                                     ($)

AIDS Foundation of Chicago, Il                                         1,617,115
Pfizer Inc and Pfizer Foundation, NY                                   1,327,765
Abbott and Abbott Fund, Il                                             1,279,691
Missouri Foundation for Health, Mo                                     1,185,662
M•A•C AIDS Fund and M•A•C Cosmetics, NY                                1,080,900

West                                                                        ($)

Merck & Co., Inc, NJ                                                   5,247,648
M•A•C AIDS Fund and M•A•C Cosmetics, NY                                2,076,822
The Wells Fargo Foundation, CA                                         1,410,425
Abbott and Abbott Fund, Il                                             1,279,691
Pfizer Inc and Pfizer Foundation, NY                                   1,248,495




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                        29
geograPhic diStribUtion of hiv/aidS grantS




     Table 8:
     Focus of Funding by the Top 72 U.S. HIV/AIDS Funders in 2008
     (in alphabetical order)

                                                                        Domestic   International   Both

     Abbott and Abbott Fund, Il                                                                     ●
     AIDS Foundation of Chicago, Il                                                                 ●
     AIDS Funding Collaborative, oH                                       ●
     Alphawood Foundation, Il                                                                       ●
     American Jewish World Service, NY                                                  ●
     The Anne Dinning and Michael Wolf Foundation, NY                                   ●
     Arcus Foundation, MI                                                 ●
     bD (becton, Dickinson and Company), NJ                                                         ●
     bill & Melinda Gates Foundation, WA                                                ●
     boston Foundation, Inc., MA                                                                    ●
     bristol-Myers Squibb Foundation and bristol-Myers Squibb Co., NY                               ●
     broadway Cares/Equity Fights AIDS, NY                                                          ●
     The Campbell Foundation, Fl                                                                    ●
     Charles Stewart Mott Foundation, MI                                                ●
     Children Affected by AIDS Foundation, CA                                                       ●
     The Comer Foundation, Il                                             ●
     The Community Foundation for the National Capital Region, DC         ●
     The David and lucile Packard Foundation, CA                                        ●
     The Denver Foundation, Co                                                          ●
     The Design Industries Foundation Fighting AIDS (DIFFA), NY           ●
     Doris Duke Charitable Foundation, NY                                               ●
     The Duke Endowment, NC                                               ●
     Elizabeth Glaser Pediatric AIDS Foundation, CA                                     ●
     Elton John AIDS Foundation, NY                                                                 ●
     Evelyn and Walter Haas, Jr. Fund, CA                                 ●
     Firelight Foundation, CA                                                           ●
     The Ford Foundation, NY                                                                        ●
     The Foundation for AIDS Research (amfAR), NY                                                   ●
     GlaxoSmithKline US, NC                                               ●
     Global Fund for Women, CA                                                          ●
     H. van Ameringen Foundation, NY                                      ●
     The Harry and Jeanette Weinberg Foundation, Inc., MD                 ●
     The Health Foundation of Greater Indianapolis, IN                    ●
     HIV Collaborative Fund, a project of the Tides Center, CA                          ●
     Houston Endowment Inc., TX                                           ●
     Indiana AIDS Fund, IN                                                ●
     International Fund for Health & Family Planning, NY                                ●
     Irene Diamond Fund, NY                                               ●
     James b. Pendleton Charitable Trust, WA                              ●
     The John D. & Catherine T. MacArthur Foundation, Il                                ●
     The John M. lloyd Foundation, CA                                                               ●




30   FUNDERS CoNCERNED AboUT AIDS
Table 8, continued


                                                         Domestic   International     Both

Johnson & Johnson, NJ                                                                   ●
levi Strauss & Co., CA                                                                  ●
M•A•C AIDS Fund and M•A•C Cosmetics, NY                                                 ●
Macy’s Foundation, oH                                                                   ●
Merck & Co., Inc, NJ                                                                    ●
Missouri Foundation for Health, Mo                         ●
National AIDS Fund, DC                                     ●
The New York Community Trust, NY                           ●
open Society Institute, NY                                               ●
The Pew Charitable Trusts, PA                              ●
Pfizer Inc. and Pfizer Foundation, NY                                                   ●
Pride Foundation, WA                                       ●
Robin Hood Foundation, NY                                  ●
Rockefeller brothers Fund, Inc., NY                                      ●
San Diego HIV Funding Collaborative, CA                                  ●
The San Francisco AIDS Foundation, CA                                                   ●
The Sidney Kimmel Foundation, PA                                             Not available
Silicon Valley Community Foundation, CA                                                 ●
The Skoll Foundation, CA                                                 ●
South Africa Development Fund, MA                                        ●
The Starr Foundation, NY                                                 ●
Staying Alive Foundation, NY                                                            ●
The Summit Foundation, DC                                                ●
Tides Foundation, CA                                                                    ●
United Nations Foundation, DC                                            ●
Washington AIDS Partnership, DC                            ●
Weingart Foundation, CA                                    ●
The Wells Fargo Foundation, CA                             ●
The William and Flora Hewlett Foundation, CA                             ●
W. K. Kellogg Foundation, MI                                                            ●
World Children’s Fund, CA                                                ●




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                       31
EXAMPLES OF FUNDER INNOVATION



As part of this year’s survey, FCAA asked grantmakers to provide               SUPPORTING LEADERSHIP IN AIDS ADVOCACy:
examples of innovative programs they funded in 2008. While                     THE JOHN M. LLOyD FOUNDATION
collected responses ranged broadly in scope, we were pleased to find
common definitions of innovation, including: working collaboratively           In 2008 the John M. lloyd Foundation created The John M. lloyd AIDS
to solve a problem and leverage resources towards greater impact;              leadership Award to recognize, support and empower the unsung
and, trusting in grantees to best address the true needs of their local        heroes of AIDS activism. A portion of the $100,000 award, modeled
communities. Below are just a few of the submitted examples.                   on the MacArthur Fellows Program, is paid directly to the honoree as
                                                                               an unrestricted gift to be used however s/he believes will build their
                                                                               leadership capacity. The balance is then given to the organization for
ASSESSING IMPACT:
                                                                               which the honoree works. The first award was bestowed upon Gregg
AIDS FUNDING COLLABORATIVE
                                                                               Gonsalves, formerly of the AIDS and Rights Alliance of Southern Africa
                                                                               (ARASA). More recently, AIDS activists Paisan Suwannawong and Karyn
                       Around the country momentum continues
                                                                               Kaplan of the Thai AIDS Treatment Action Group (TTAG) were selected
                       to build around K-12 comprehensive sexual
                                                                               as co-recipients of the 2009 leadership Award.
                       education; however, the lack of replicable
                       evidence-based programming remains an
                                                                               The leadership Award is just one of the Foundation’s strategic
                       obstacle to national progress.
                                                                               responses to the changing AIDS epidemic. Established in 1991 by
                                                                               John Musser lloyd (1948-1991) “to seek creative, compassionate and
In the summer of 2006, concerned by data on increasing HIV infection
                                                                               courageous solutions to the root causes of the AIDS epidemic,” the
rates in local teenagers, Cleveland’s Mayor Frank G. Jackson called for
                                                                               early work of the foundation was driven by the family’s grief and
a plan to address the issue in the public schools. A multi-stakeholder
                                                                               personal connection to the epidemic. They operated through person-to-
collaborative -- composed of educators, public officials, community
                                                                               person grantmaking, supporting mostly local AIDS service organizations
organizations, activists and funders -- responded by designing
                                                                               in the los Angeles area. by 2001 the Foundation’s geographic focus
the K-12 Responsible Sexual behavior (RSb) Initiative to provide a
                                                                               shifted from domestic to global, and in 2003 their funding priorities
comprehensive sexuality education to all students within the Cleveland
                                                                               moved from education and prevention to an emphasis on mobilization,
Metropolitan School District (CMSD). At its inception, the RSb Initiative
                                                                               grassroots movement in advocacy, and convening.
was one of the only, if not the only, such programs in a large urban
school district in the United States.
                                                                               In 2006, led by board Chair Robert Estrin, the board, Staff and
                                                                               select thought leaders gathered in New Mexico to commemorate the
A cornerstone of the approach of the AIDS Funding Collaborative (AFC)
                                                                               Foundation’s 15th anniversary and reflect on the road ahead. Together
-- established as a public-private partnership in 1994 -- is “enabling local
                                                                               they recognized the potential for long-term impact in supporting
funders to respond collectively to HIV/AIDS by increasing coordination
                                                                               advocacy organizations active in the fight against AIDS. The leadership
of funding efforts and identifying gaps.” According to Director, laureen
                                                                               Award is a direct result of the Foundation’s new approach and provides
Tews Harbert, AFC quickly recognized an opportunity to support the
                                                                               the flexible money necessary for advocates to do innovative and
RSb Initiative’s evaluation phase. “We knew it would be a critical step
                                                                               responsive work. “by trusting in grantees to make the best decisions
to ensuring that the program was responsive to, and reflective of, the
                                                                               for their organizations, you create the space for them to dream,” says
needs of students, parents and teachers.” In November 2007, AFC
                                                                               Executive Director Melanie Havelin. “but it requires new thinking, and
engaged Philliber Research Associates (PRA) to conduct the full-scale
                                                                               the patience to creatively develop benchmarks to evaluate success
K-12 evaluation effort. To date, the AFC has committed to three years
                                                                               along the way.”
of funding, as well as staff time, to manage the evaluation process in
partnership with local stakeholders.

Evidence-based case studies are essential to encourage other school
districts to replicate the success of the RSb Initiative. “For the
stakeholders in our community, the evaluation process is not just about
monitoring outcomes to improve the RSb initiative,” says Harbert. “It’s
also about a commitment to communicating about our program and
documenting our lessons learned so that the CMSD model can inform
conversations happening in other communities and at the state and
national level.”

The results of the first phase of the evaluation, released in January
2009, “demonstrated improvements in students’ knowledge, attitudes,
skills, and behavioral intent as a result of the program, and strong
                                                                               2008 AIDS Leadership Award recipient Gregg Gonsalves,
support for the initiative among parents, teachers, and community
                                                                               formerly of ARASA, and 2009 recipients Paisan Suwannawong
leaders.” In the 2009-2010 school year, the 3rd year of the evaluation,
                                                                               and Karyn Kaplan of TTAG
one goal is transferring more of implementation and management of
the evaluation in-house in effort to build a sustainable program.




32                                      FUNDERS CoNCERNED AboUT AIDS
SUPPORTING THE GROWTH OF GRASSROOTS                                          MOBILIZING NEW LEADERS IN HIV PREVENTION:
ORGANIZATIONS: THE GLOBAL FUND FOR WOMEN                                     M∙A∙C AIDS FUND

                                             The legal AIDS Division         In 2007, the M·A·C AIDS Fund partnered with two of the world’s leading
                                             of Shannxi Women’s              educational institutions – Columbia University and the University
                                             Federation was                  of California, los Angeles (UClA) – to create the M·A·C AIDS Fund
                                             established in 1993 to          leadership Initiative (MAFlI), a fellowship program aimed at cultivating
                                             protect the rights of           emerging leaders in HIV prevention and seeding innovative HIV
                                             rural women in Shaanxi,         prevention programs in South Africa. In 2009, the Human Science
                                             an arid province in             Research Council, South Africa’s statutory research agency, joined this
                                             northern China. In 2002         collaboration as the primary implementing partner in South Africa.
                                             the Division conducted
                                             a survey of migrant             Each year a group of local emerging leaders in the field of HIV/AIDS
                                             workers living with HIV/        prevention apply for the fellowship program with a proposed HIV
                                             AIDS that revealed              prevention plan. Applicants are mid-career individuals who have
                                             rampant discrimination,         demonstrated strong leadership potential. After an open nation-wide
Members of the Legal AIDS Division           poverty, fear, and              competition, selected fellows undergo an intensive two-month HIV
conduct HIV training in Shaanxi, China.      ignorance around                prevention training program, facilitated by local and international
                                             AIDS. At particular risk        experts in HIV prevention, and develop a business model to rollout their
were women, whose frequent travel back and forth for jobs creates            prevention plans. Upon completion, fellows receive seed funding from
opportunities for the virus to spread.                                       the M·A·C AIDS Fund to launch their HIV prevention programs. Fellows
                                                                             also receive ongoing one-on-one mentorship throughout a 10-month
As their own data predicted an explosion in both migration patterns          implementation period to help identify solutions to possible roadblocks
and HIV, the Division quickly reprioritized their efforts on HIV/AIDS        in their plans. In total, the M·A·C AIDS Fund committed more than $3.29
awareness. This led them to launch HIV/AIDS programs in 2002, now            million dollars in support of MAFlI from 2007-2010.
known as their “love and Care” campaign for women and children
living with HIV/AIDS. Recent successes include education workshops,          one of the more innovative aspects of this program is that it seeks out
distribution of over 100,000 illustrated pamphlets on self-protection        applicants from a wide range of professional backgrounds as diverse
and medical services and training for 250 women migrant workers on           entry points for at-risk individuals. Projects have ranged from working
sexual and reproductive health and rights. The project focuses on the        with male juvenile offenders in local detention centers to factory
use of labor recruiters as a last “point of contact,” with migrant women,    employees at large local employers such as the Ford Motor Company.
many of whom experience isolation once they are in a factory or              MAFlI also prioritizes fellowships that give special consideration to
domestic care situation.                                                     gender-based inequities and their role in the spread of HIV.

The Global Fund for Women (GFW) has proudly provided the Division            To date, 34 fellows have completed the training program and are
with general operating support for more than 12 years, and just recently     implementing their HIV prevention programs. Together, the partners are
increased their commitment in 2009. Since its founding in 1987, GFW          currently planning for the program’s evolution, and importantly, on the
has nurtured flexible and responsive grantmaking strategies deeply           need to identify and leverage additional funding to help fellows to bring
rooted in the recognition that “women should have a full range of            their programs to scale. “We created this program to support local
choices and that women themselves know best how to determine                 leaders to create and integrate HIV prevention programs into diverse
their needs and propose solutions for lasting change.” According to          institutions like schools, churches and early childhood programs, in
Caitlin Stanton, Senior Development officer, Philanthropic Partnerships,     which the fellows were already established and trusted. The programs
GFW’s emphasis on flexible support, “allows organizations to be truly        they have created have been as varied, creative and effective as the
responsive to the needs of their community, sustainably grow their           fellows themselves,” says Nancy Mahon, Executive Director, M·A·C AIDS
budget, and attract new and diverse funders.” The Division continually       Fund. “With a relatively small investment of about $30,000 per fellow,
self-evaluates their own progress, measuring success in increased            we have been able to foster leadership and much needed local capacity
numbers of women reached, publications produced, and the depth of            on HIV prevention. We would very much like to find other funding
information shared.                                                          partners for this program.”

A former GFW board Member, Wu Qing, first met with the legal Aid
Division in 1996 at a training workshop organized by another GFW
grantee. This highlights the tremendous value of flexible grant dollars as
a tool to support networking opportunities that build leadership within
civil society organizations. “breaking the isolation of these groups is
critical,” says Stanton. “It is the reality that for women leaders of NGos
to develop their strength, they need the opportunity to interact with
each other and other experts in the field.”




                                       U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                      33
intended USe of hiv/aidS fUnding

                         Fifty-three (74%) of the top 72 U.S. HIV/AIDS funders in 2008 provided survey data on
                         intended use of their HIV/AIDS grants. FCAA was able to gather intended use data for 15
                         additional funders from The Foundation Center, Foundation Search, grants databases on
                         funders’ websites, or 990 tax forms, but could not obtain intended use data for four of the top
                         72 HIV/AIDS funders.

                         For the 2008 survey, FCAA asked funders to provide detail on intended use of international and
                         HIV/AIDS grants separately. Also new were two additional categories: “orphans and vulnerable
                         children” (OVC) and “human resources.”

                         Chart 8:
                         International Intended Use of U.S. HIV/AIDS Philanthropic Funding in 2008

         Prevention                     $111,777,498
           Treatment             $80,029,631
       Social services        $10,589,550
            Advocacy          $61,416,791
            Research                                           $215,394,610
                  OVC         $8,168,442
     Human resources $1,681,904
                Other             $29,814,774

                         $0                 $100,000,000          $200,000,000            $300,000,000

                         The “other” category for international intended use includes funding that was un-specified and funding
                         for projects that did not fall under the pre-determined categories, such as: long-term health systems
                         strengthening, general operating funds to community-based and service organizations, funding that fell across
                         multiple categories and could not be broken down, organizational capacity-building, salaries, travel, rent and
                         other administrative costs, building facilities, stigma reduction, and creating organizational alliances.




34                        FUNDERS CoNCERNED AboUT AIDS
Chart 9:
                    Domestic Intended Use of U.S. HIV/AIDS Philanthropic Funding in 2008

    Prevention                                                        $26,953,627
      Treatment                                         $20,876,039
  Social services                                              $23,551,300
       Advocacy        $6,121,228
       Research                         $12,636,120
             OVC $391,061
Human resources $334,823
           Other           $7,565,474

                $0                      $10,000,000          $20,000,000            $30,000,000

                    The “other” category for domestic intended use includes funding that was un-specified and funding
                    for projects that did not fall under the pre-determined categories, such as: general operating funds to
                    community-based and service organizations, funding that fell across multiple categories and could not be
                    broken down, capacity-building of community-based organizations, technical assistance, fundraising events
                    and activities, stigma reduction, and creating organizational alliances.




                    U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                      35
target PoPUlationS of
                                        hiv/aidS fUnding
                                        Of the top 72 U.S. HIV/AIDS funders in 2008, FCAA was able to obtain information from
                                        67 on the three population groups that receive the greatest benefit from their domestic and
                                        international funding. Funders were asked to report the top three target populations of their
                                        funding only. However, some funders reported more than three populations as their main focus.
                                        The charts below show the percentage of funders of the total 67 that answered the survey
                                        question that chose each category.

                                        Chart 10:
                                        International Target Populations for U.S. HIV/AIDS Philanthropic Funding in 2008
                                        (by percentage of 41 top funders that responded to the survey question)


                               PLWHA                                                                           80%
                               Women                                                      59%
                                Youth                                              51%
                                 OVC                        27%
                                 IDUs              17%
                                Other              17%
                                 MSM         12%
                                HCWs 5%
                         Sex workers 5%

                                    0%         10%       20%        30%     40%      50%       60%       70%      80%   90%
                                        Percentage of Top Funders


                                        The “other” category for international target populations included responses such as: funding for all
                                        populations, funding that does not have a specific target population, children living with HIV/AIDS, medical
                                        research not directed to a specific population, apparel workers, and rural populations.




 HCWs= healthcare workers
 IDUs = injecting drug users
 MSM = men who have sex
 with men
 OVC = orphans and
 vulnerable children
 PLWHA = people living
 with HIV/AIDS


36                                      FUNDERS CoNCERNED AboUT AIDS
Chart 11:
                                                  Domestic Target Populations for U.S. HIV/AIDS Philanthropic Funding in 2008
                                                  (by percentage of 48 top funders that responded to the survey question)


                                                  Domestic Funding Target Populations

                                      PLWHA                                                                                 63%
                      African-Americans                                               33%
                                           MSM                                        33%
                                          Youth                                      31%
                  Homeless/impoverished                                              31%
                                     Women                                     27%
                                           IDUs                       21%
                                          Other                    19%
                                      Latinos               13%
                                          HCWs 6%
                    Asian/Pacific Islanders 4%
                                           OVC 4%
                                    Migrants         2%
                                Sex workers          2%
                       Incarcerated people 1%

                                              0%            10%          20%          30%       40%          50%            60%   70%
                                                  Percentage of Top Funders


                                                  The “other” category for domestic target populations included responses that fell outside of the pre-
                                                  determined categories. Funders reported the following examples as “other”: funding for all populations,
                                                  people of color, medical research not directed to a specific population, all persons at risk of contracting
                                                  HIV, Jewish communities, and immigrant communities.

                                                  It is notable that while data from the U.S. Centers for Disease Control and Prevention (CDC) indicate over
                                                  half of new HIV infections in the United States in 2006 were among gay and bisexual men, only a third
                                                  of domestic funders identified this group as a top beneficiary of their organizations’ giving.20 Similarly,
                                                  African-Americans accounted for half of HIV diagnoses in 2007, but only a third of domestic funders
                                                  identified this group as a top target population of their funding.21

20 Centers for Disease Control and
Prevention. HIV/AIDS Surveillance
Report 2007, (Vol. 19). http://www.cdc.
gov/hiv/topics/surveillance/resources/
reports/2007report/default.htm

22 ibid.


                                                  U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                        37
APPENDIx A
     methodology
     SoUrceS of hiv/aidS grantmaking data
     This report covers HIV/AIDS grant disbursements from all sectors of U.S. philanthropy,
     including private, family, and community foundations; public charities; corporate grantmaking
     programs (corporate foundations and direct giving programs); and major U.S. HIV/AIDS
     grantmaking charities. FCAA included data for over 340 grantmaking entities in this report.
     Data were collected using a variety of sources: 1) a survey tool developed and administered by
     FCAA to funders, 2) grants databases maintained by The Foundation Center and Foundation
     Search, 3) funder websites and 990 forms, and 4) direct communications with funders.
     FCAA believes that this multi-faceted approach arrives at a more comprehensive data set
     of HIV/AIDS funders than can be accomplished using any single data source or any single
     method of calculation.

     FCAA FUNDER SURVEy
     FCAA distributed a survey instrument that asked respondents to describe their HIV/AIDS-
     related grantmaking disbursements in 2008 (see Appendix B). The survey was sent to several
     hundred U.S. funders in May 2009. FCAA staff distributed the survey to a pre-determined list of
     grantmaking organizations which FCAA determined were most likely to have significant levels
     of 2008 HIV/AIDS grantmaking and/or were most likely to list HIV/AIDS as a priority funding
     issue. Staff conducted several rounds of follow-up to secure as much data as possible directly
     from funders.

     Responses to the survey were received from 79 funders, either through fully completed surveys
     or other communications with foundation staff. Over 95% of estimated total HIV/AIDS
     grantmaking activity is captured by surveys returned to FCAA.

     FOUNDATION CENTER AND FOUNDATION SEARCH DATABASES AND OTHER SOURCES
     To capture data for which FCAA did not have survey responses, FCAA conducted further
     research of U.S. HIV/AIDS funders and 2008 HIV/AIDS grant disbursements using the
     Foundation Center and Foundation Search grants databases, as well as grantmaker websites and
     990 forms. FCAA reviewed HIV/AIDS grantmaking totals and notable dataset outliers.

     It is important to reiterate that 2008 data for the Children’s Investment Fund Foundation (US),
     Coca-Cola Africa Foundation, and Gilead Foundation (all likely to be top HIV/AIDS funders)
     were not available, and therefore not included, at the time of publication of this report.


     analySiS
     DEFINITION OF HIV/AIDS PHILANTHROPy
     FCAA was intentionally broad in its definition and selection of U.S. HIV/AIDS funders by
     including the HIV/AIDS philanthropic activity of several large U.S.-based public charities,
     donor-advised funds, corporate grantmaking programs, and operating foundations. While this
     report focuses only on U.S.-based funders, it also includes HIV/AIDS grants from foreign offices
     of U.S.-based foundations that operate internationally, such as the Ford Foundation.

     Survey respondents were asked to distinguish between domestic (within the United States and
     for U.S. programs) and international HIV/AIDS efforts, to the extent possible. For domestic U.S.
     grantmaking, FCAA requested regional data based on five U.S. sub-regions, using Northeast,


38   FUNDERS CoNCERNED AboUT AIDS
South, Midwest, West, and U.S. territories categories as defined by the U.S. Census Bureau
                                            and used by the CDC and other federal agencies.22 For internationally focused HIV/AIDS
                                            grantmaking, FCAA requested data about where the grantee was located, using global regions
                                            as defined by UNAIDS.23

                                            FCAA also asked about the intended use of HIV/AIDS grants disbursed both inside and outside
                                            the United States, using the following eight categories:

                                            ●	 HIV/AIDS awareness and prevention (including harm reduction);
                                            ●	 HIV/AIDS-related treatment and medical care (including provider and patient treatment
                                               information);
                                            ●	 HIV/AIDS-related social services (e.g. housing, employment, food, legal);
                                            ●	 HIV/AIDS public policy, advocacy and communications;
                                            ●	 HIV/AIDS research (including medical, prevention, and social science research);
                                            ●	 Orphans and vulnerable children;
                                            ●	 Human resources (e.g. training, recruitment, and retention of healthcare workers); and
                                            ●	 Other.
                                            FCAA also asked funders to indentify the three population groups that benefit the most from
                                            their domestic and/or international funding. The tally of responses listed in this report captures
                                            the number of funders focusing on particular groups, not the relative share of actual funding
                                            dedicated to addressing these groups.

                                            DISBURSEMENTS VS. COMMITMENTS
                                            FCAA uses funders’ disbursements rather than funding commitments to calculate distribution
                                            of total funding by geographic region, intended use and other details. The reliance on
                                            disbursement data for funding details harmonizes the report with other resource tracking
                                            projects.

                                            Disbursements are the amount of funding expended on grants/projects in a given year and
                                            may include funding from commitments made in prior years as well as in the current year.
                                            Commitments are funding pledged for grants/projects in a given year, whether or not the funds
                                            were disbursed in that year. For some funders, commitments and disbursements are the same
                                            in a given year; for others, commitments indicate funding above or below actual disbursements
                                            in a year.

                                            CALCULATIONS OF RE-GRANTING
                                            To avoid counting the same funds twice, data in this report are adjusted to account for known
                                            re-granting. Re-granting refers to funds given by one FCAA-tracked grantmaker to another
                                            for the purposes of making HIV/AIDS-related grants. The 2008 aggregate total grantmaking
                                            for all funders was adjusted downward by $19,644,373 to account for known re-granting.
                                            This adjustment represents approximately 3% of the total estimated 2008 HIV/AIDS grant
                                            disbursements. The re-granting figures are estimates based on direct communications with
                                            funders following review of FCAA survey and Foundation Center and Foundation Search
22 U.S. Census bureau. “Census Regions
and Divisions of the United States:” www.   data. The true re-granting total is likely modestly higher than the total used for calculating the
census.gov.
                                            2008 total.
23 www.unaids.org



                                            U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                           39
aPPendix a
                                            methodology




                                            LIMITATIONS
                                            FCAA’s data may differ from other data on HIV/AIDS philanthropy in several ways:

                                            1) The use of multiple data sources is the main way FCAA seeks to ensure the accuracy
                                            of the information presented in its report. However, such reliance also presents challenges
                                            in reconciling the different methodologies—each of which has its respective advantages
                                            and limitations—applied to obtain information about grantmaking and philanthropic
                                            support activity.

                                            2) Missing data/under-reporting: FCAA recognizes that its data for 2008 HIV/AIDS
                                            grantmaking are likely to have missed HIV/AIDS disbursements from some institutions for
                                            which FCAA had no information or incomplete or unverified data. FCAA was also unable to
                                            collect data from some of the philanthropic organizations that did not respond to the survey,
                                            in addition to institutions for which data were unavailable from the Foundation Center,
                                            Foundation Search, or other sources.

                                            In the case of corporations, although federal law makes a corporation’s tax returns open to
                                            the public, businesses are not otherwise legally required to disclose details about corporate
                                            philanthropic giving. Thus, determining levels of corporate philanthropic efforts are
                                            more challenging than estimations of private foundation/public charity giving. Moreover,
                                            corporations are neither required nor always able to place a value on the many forms of other
                                            support they can and do offer, such as volunteer efforts by their employees, in-kind donations,
                                            cause-related marketing, and similar activities.24 Finally, philanthropic support is often not
                                            collected centrally within business organizations and may be higher than reported in this
                                            publication.25

                                            3) The definition of HIV/AIDS-related philanthropy in the survey was intentionally inclusive
                                            and broad, in acknowledgement of the fact that such efforts often overlap with many
                                            other issue areas of philanthropy. Several respondents chose a restricted definition and
                                            reporting of HIV/AIDS-related grantmaking, excluding grants that were not wholly focused
                                            on HIV/AIDS efforts.




24 See also Committee to Encourage
Corporate Philanthropy, “The Corporate
Giving Standard: A Measurement Model
for Corporate Philanthropy,” which aims
to establish methods of accounting
for corporate contributions: www.
corphilanthropy.org.

25 According to the National Committee
for Responsive Philanthropy, an estimated
50% of corporate philanthropy is
undisclosed to the American public.
National Committee for Responsive
Philanthropy. The NCRP Quarterly,
Summer 2003, p 7.



40                                          FUNDERS CoNCERNED AboUT AIDS
OTHER TyPES OF HIV/AIDS SUPPORT



The data in this report represent financial contributions only from           CORPORATE PROGRAMS
HIV/AIDS funders, in the form of external grants and programs.                Several corporations that operate HIV/AIDS programs are not willing or
Such financial contributions can be used to conduct a trend                   able to report those programs financially. In some cases, corporations
analysis because they are quantifiable as monetary amounts and                do not centrally or specifically track HIV/AIDS expenditures and
are measurable in a clear and distinct way. However, many funders             therefore reporting is not feasible. Also, many corporations with
contribute in other important ways that are not as easily quantifiable        branch facilities in areas highly affected by HIV (such as in sub-Saharan
or measurable. Some examples are noted below.                                 Africa) support workplace programs that provide HIV/AIDS services to
                                                                              employees, sometimes extending those services to employees’ families
PRIVATE OPERATING FOUNDATIONS                                                 or all community members. These HIV/AIDS-specific services are usually
Private operating foundations are those specifically designated as            offered with other health services at a corporate facility’s on-site clinic.
such by the Internal Revenue Service (IRS). They use the bulk of              As such, quantifying the monetary value of specific HIV/AIDS services
their resources to run their own charitable programs and make few,            for a corporation with facilities in several countries as data is very
if any, grants to outside organizations. In some cases, the HIV/AIDS          difficult, if not impossible.
philanthropy reported to FCAA includes the value of programmatic
efforts and operational grantmaking, but not operational (internal)           In addition, other forms of support—such as volunteer efforts by
staff or other costs.                                                         corporate employees, matching donations programs, in-kind donations,
                                                                              cause-related marketing, and donations of technical assistance—are
The Henry J. Kaiser Foundation is one example of a private operating          not always able to be valued monetarily or tracked as such. They are
foundation that is not able to identify and report HIV/AIDS-specific          nonetheless valuable resources offered by corporations, especially
funding. Nevertheless, it is a leader in HIV/AIDS policy, media, and          those that can leverage other investments or build the capacity of
communications efforts. This includes serving as a major producer of          communities to operate their own programs and services.
policy analysis and research on domestic and global HIV/AIDS policy
issues, providing fact sheets, polls, policy briefs, briefings, online news
information services, and numerous other web-based resources, and
developing and helping to run large-scale public health information
campaigns on HIV throughout the world, in direct partnership with
media companies, with an emphasis on reaching young people.




                                         U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                          41
OTHER TyPES OF HIV/AIDS SUPPORT



IN-KIND DONATIONS                                                            FUNDERS WITH A BROADER FOCUS
FCAA offers funders the option of reporting donations of goods and           In some cases, funders choose to support projects across broad focus
services that are not or cannot be valued monetarily. Some reported          areas, such as health systems strengthening or sexual and reproductive
examples are noted below, illustrating the diversity of support:             health, where funding for HIV/AIDS would only be a part of a grant or
                                                                             project. FCAA asks funders to report a project or grant if a significant
•    boston Foundation, Inc.: Staff time for boston Community
                                                                             aspect is focused on HIV/AIDS; however, some funders may not be able
     AIDS Partnership
                                                                             to separately quantify specific HIV/AIDS funding. of course, all HIV/AIDS

•    bristol-Myers Squibb Foundation and bristol-Myers Squibb Company        interventions are important and should be encouraged, including the
     (bMS): South-to-South technical assistance: grantees and partners       more broad approaches, even though they are difficult to track.
     from bMS’s Secure the Future program provide technical assistance
     to organizations, governments, and communities in Africa on             OTHER SOURCES OF SUPPORT
     planning, fundraising, and advocacy.                                    Community programs, research institutions, hospitals, clinics, counseling
                                                                             centers, churches, homeless shelters, orphanages, private individual
•    Children Affected by AIDS Foundation (CAAF): Distribution of toys
                                                                             donors, and anonymous donors all represent other valuable sources of
     to a non-profit serving American children infected or affected by
                                                                             HIV/AIDS funding, goods, and services that are difficult to identify and/
     HIV, and tickets for HIV-affected families to attend the CAAF Dream
                                                                             or quantify.
     Halloween Fundraisings in los Angeles and Chicago

•    The Design Industries Foundation Fighting AIDS (DIFFA):
     Distribution of approximately $100,000 in goods to AIDS service
     organizations for sale and/or auction

•    Firelight Foundation: Providing training in monitoring and evaluation
     to grantees, and distribution of resource materials on program
     planning, community mobilization, and resource mobilization

•    M•A•C AIDS Fund and M•A•C Cosmetics: Donation of approximately
     $60,000 in cosmetics to HIV/AIDS organizations in North America.
     M•A•C makeup artists also participate in the M•A•C Good Spirits
     program, where they volunteer their time to teach men and women
     with HIV/AIDS simple makeup techniques and help them enhance
     their appearance and minimize problems resulting from the illness
     or medication regimens. The program aims to encourage those with
     HIV/AIDS to be active in promoting their own health and well-being.
     In 2008, M•A•C artists volunteered at more then 60 Good Spirits
     sessions across North America, donating over $1 million in services
     for 4,300 people living with HIV and AIDS.

•    Merck & Co., Inc: Donations of the medicines Crixivan, Stocrin and
     Isentress benefitting underserved populations in the United States
     and Africa (botswana)

•    Pfizer Inc and Pfizer Foundation: Donations of the medicine Diflucan
     from Pfizer Inc to governments and NGos in developing countries.
     Pfizer also provides materials to support patient education and
     healthcare worker training.

•    Staying Alive Foundation: HIV/AIDS awareness television
     programming on DVDs; condoms




42                                      FUNDERS CoNCERNED AboUT AIDS
APPENDIx B
                                               fcaa 2008 hiv/aidS reSoUrce
                                               tracking SUrvey
Name of organization:

Person completing survey:

Email address:

Telephone:

organization website URl:


In answering the questions below, please note the following:

ww   Changes to this year’s survey: We have made a few changes in this year’s survey in an effort to capture more useful
     information for readers of the Resource Tracking report and to minimize time needed to complete the survey where
     possible. For those with HIV/AIDS-related disbursements below $300,000 in 2008 we are only asking that you
     complete the beginning of the survey. The “geographic” question for international funding now includes revised
     categories for regional funding in harmonization with UNAIDS’ latest resource tracking regional definitions, and
     includes categories for funding to the Global Fund and other multilateral organizations that work globally. This year
     we are asking that you report “intended use” of funding for domestic and international funding separately. Two new
     categories—oVC and human resources—have been added to the “intended use” question to harmonize with UNAIDS’
     intended use categories. We have made minor changes to the “target population” categories. Finally, we have provided
     space for you to let us know of particularly innovative funding projects in which you are engaged.

ww   As with last year’s survey, questions about the geographic focus and intended use of funding are asked about your
     organization’s disbursements rather than commitments. If you are unable to answer any of the survey questions for
     your disbursements, but could provide data based on commitments, please provide that data with a note that the data
     were based on commitments. We distinguish disbursements and commitments as follows:

           •     Disbursements: Disbursements are the amount of funding expended on grants/projects in a given year and
                 may include funding from commitments made in prior years as well as in the current year.
           •     Commitments: Commitments are funding pledged for grants/projects in a given year, whether or not the funds
                 were disbursed in that year.

ww   Defining an HIV/AIDS grant or project: In addition to reporting on grants/projects that are focused explicitly on HIV/
     AIDS, please include grants/projects made in other health, social, economic, and political areas when a significant
     aspect of the grant or project included a focus on HIV/AIDS.

ww   Activities to include: Please restrict your answers to external HIV/AIDS grantmaking/projects (i.e., do not count internal
     expenditures on staff and/or other programming).

           •     Private operating foundations (as defined by the IRS)* should include the direct costs of HIV/AIDS-related
                 programs only and not costs for staff.
           •     Do not include the value of donated services, products, or other in-kind donations. (there is a space to list
                 examples of your organization’s in-kind donations, if you wish)
           •     Do not include grants/projects committed or disbursed from funding received from the U.S. government or
                 any other government.


* Private operating foundations are those specifically designated as such by the Internal Revenue Service (IRS) that use the bulk of their resources to run their own charitable
programs, making few, if any, grants to outside organizations. Very few funders that FCAA surveys qualify as private operating foundations.



                                               U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                                              43
aPPendix b
                                                fcaa 2008 hiv/aidS reSoUrce tracking SUrvey




Please complete the survey by June 15, 2009. Return your completed survey to Erika baehr via email at erikabaehr@
gmail.com or fax at (617) 674.2240. Questions? Call Erika at (617) 987.0095



QUeStionS for calendar year 2008
1a. What was the total dollar amount of your HIV/AIDS grant/project disbursements in 2008?                                                               $ ________________

      Note: Disbursements means the total dollar amount actually paid out to grantees/projects or for projects during
      the calendar year. This total should include funds re-granted from other organizations.

1b. What was the total dollar amount of your HIV/AIDS grant/project commitments in 2008?                                                                 $ ________________

      Note: Commitments means the total dollar amount pledged during the calendar year, whether the funds were disbursed
      in that or another year. This total should include funds re-granted from other organizations. A multi-year grant/project
      should be fully counted in the year that it was committed.

      Note: If your answer to question 1a was below $300,000, please STOP HERE. You do not need to complete the rest
      of the survey. Please send us the information above. Thank you.

            All SUbSEQUENT QUESTIoNS FoR THIS YEAR REFER To GRANT/PRoJECT DISBURSEMENTS ONLy.

            (Private operating foundations should include only the direct costs of HIV/AIDS-related programs)

            1c. Private operating foundations only*: of the amount reported in #1a above,
                please provide a breakdown between:

                  The dollar amount of HIV/AIDS cash grants disbursed in 2008                                                                            $ ________________

                  The dollar value of HIV/AIDS program activities conducted in 2008                                                                      $ ________________

            1d. All organizations: Compared to 2008, please predict whether the total amount of your HIV/AIDS
                disbursements in 2009 will (please type ‘x’ by only one response):

                  increase                       ____
                  decrease                       ____
                  remain the same                ____
                  discontinue                    ____
                  unsure                         ____

2.    What was the total number of HIV/AIDS grants/projects disbursed in 2008?

      2a. Were any of these grants/projects multi-year commitments?                                        Y( )/N( )               (type ‘x’ next to one)




* Private operating foundations are those specifically designated as such by the IRS that use the bulk of their resources to run their own charitable programs, making few, if any, grants
to outside organizations. Very few funders that FCAA surveys qualify as private operating foundations.



44                                              FUNDERS CoNCERNED AboUT AIDS
3.   In 2008, where were your HIV/AIDS grant/project dollars disbursed?

     (Please approximate total dollar amounts as best you can for the locations of grant recipients/projects. The
     geographical location would be where the recipients’ main offices are situated. If you are unable to provide
     geographical data on disbursements, but could provide data based on commitments, please provide the data with a
     note that the data was based on commitments.)

     The amounts in 3a, 3b, and 3c should add up to the total reported for question 1a.

        3a. Total dollars disbursed to U.S.-based grantees/projects for domestic
            HIV/AIDS programs:                                                                         $ ________________

            Please provide total dollar disbursements by region (the definitions of U.S. regions are consistent with
            U.S. Census definitions):

            Amounts should add up to the total reported for question 3a.

            Northeast           $   _____       (CT, MA, ME, NH, NJ, NY, PA, RI, VT)
            South               $   _____       (Al, AR, DC, DE, Fl, GA, KY, lA, MD, MS, NC, oK, SC, TN, TX, VA, WV)
            Midwest             $   _____       (IA, Il, IN, KS, MI, MN, Mo, NE, ND, oH, SD, WI)
            West                $   _____       (AK, AZ, CA, Co, HI, ID, MT, NV, NM, oR, UT, WA, WY)
            U.S. territories    $   _____       (PR, VI)

        3b. Total dollars disbursed to U.S.-based grantees/projects for international HIV/AIDS work: $ ________________

        3c. Total dollars disbursed to grantees/projects based outside the United States for
            international HIV/AIDS work:                                                               $ ________________

            Please provide total dollar disbursements to grantees/projects by region. Funding provided directly to the
            Global Fund, WHo, UNAIDS or other multilateral organizations should be entered in the appropriate area
            below, and not in a geographic region. Please see Appendix 1 for definition of each region.

            The amounts here should add up to the total reported for question 3c.

            Canada                              $   _____
            Caribbean                           $   _____
            latin America                       $   _____
            Western and Central Europe          $   _____
            Eastern Europe and Central Asia     $   _____
            West and Central Africa             $   _____
            East and Southern Africa            $   _____
            North Africa and the Middle East    $   _____
            South Asia and the Pacific          $   _____
            East Asia and South East Asia       $   _____
            The Global Fund                     $   _____
            WHo, UNAIDS, other multilaterals    $   _____




                                U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                   45
aPPendix b
                                fcaa 2008 hiv/aidS reSoUrce tracking SUrvey




4a. In 2008, what was the intended use of your disbursed grants/projects to address the epidemic in the United States?

     (Please approximate total dollar amounts as best you can for the intended use of your grants/projects. If you are
     unable to provide intended use data on disbursements, but could provide data based on commitments, please provide
     the data with a note that the data was based on commitments.)

     These amounts should add up to the total reported for question 3a.

     HIV/AIDS awareness and prevention (including harm reduction)                                    $ ________________
     HIV/AIDS treatment and medical care (including provider and patient
     treatment information)                                                                          $ ________________
     HIV/AIDS-related social services (e.g. housing, employment, food, legal)                        $ ________________
     HIV/AIDS public policy, advocacy, and communications                                            $ ________________
     HIV/AIDS research (including medical, prevention, and social science research)                  $ ________________
     orphans and vulnerable children (oVC)                                                           $ ________________
     HIV/AIDS human resources (e.g. training, recruitment, and retention of health care workers)     $ ________________
     other (e.g. long-term health systems strengthening and/or facilities investment, program
     management and administration) - Please specify: (                                          )   $ ________________

4b. In 2008, what was the intended use of your disbursed grants/projects to address the epidemic outside of the
    United States (including funds given to U.S.-based organizations to address HIV/AIDS outside the United States)?

     (Please approximate total dollar amounts as best you can for the intended use of your grants/projects. If you are
     unable to provide intended use data on disbursements, but could provide data based on commitments, please provide
     the data with a note that the data was based on commitments.)

     These amounts should add up to the total reported for questions 3b and 3c combined.

     HIV/AIDS awareness and prevention (including harm reduction)                                    $ ________________
     HIV/AIDS treatment and medical care (including provider and patient
     treatment information)                                                                          $ ________________
     HIV/AIDS-related social services (e.g. housing, employment, food, legal)                        $ ________________
     HIV/AIDS public policy, advocacy, and communications                                            $ ________________
     HIV/AIDS research (including medical, prevention, and social science research)                  $ ________________
     orphans and vulnerable children (oVC)                                                           $ ________________
     HIV/AIDS human resources (e.g. training, recruitment, and retention of health care workers)     $ ________________
     other (e.g., long-term health systems strengthening and/or facilities investment, program
     management and administration) - Please specify: (                                          )   $ ________________




46                               FUNDERS CoNCERNED AboUT AIDS
5.   Target populations: Please place an ‘x’ next to the three population groups that receive the greatest benefit from your
     domestic and international funding. The categories below are not mutually exclusive. Please mark the three that best
     reflect the main target populations reached through your funding.

     Domestic funding – Please only pick three                        International funding – Please only pick three

     People living with HIV/AIDS                  ______              People living with HIV/AIDS                 ______
     Women                                        ______              Women                                       ______
     Youth                                        ______              Youth                                       ______
     orphaned/vulnerable children (oVC)           ______              orphaned/vulnerable children (oVC)          ______
     African-Americans                            ______              Migrants                                    ______
     latinos                                      ______              Refugees                                    ______
     Native Americans                             ______              Injecting drug users (IDUs)                 ______
     Asians/Pacific Islanders                     ______              Sex workers                                 ______
     Migrants                                     ______              Health care workers                         ______
     Injecting drug users (IDUs)                  ______              Men who have sex with men (MSM)             ______
     Sex workers                                  ______              Incarcerated people                         ______
     Healthcare workers                           ______              other: (_______________________)            ______
     Men who have sex with men (MSM)              ______
     Incarcerated people                          ______
     Homeless/impoverished persons                ______
     other: (_______________________)             ______

6.   In-kind donations (optional): If you would like to, please list examples of HIV/AIDS-related in-kind donations
     you made in 2008.




7.   Re-granting: If you received $50,000 or more from any of the foundations noted in Appendix 2 in 2008, please list
     the value of grants received from each foundation that were subsequently re-granted through your organization.
     Note that your organization’s total grantmaking, including funds you re-granted, will be reflected in the FCAA report.

     Grant received from                                              Total re-granted to other organizations

     __________________________________________                       $__________________________________________
     __________________________________________                       $__________________________________________
     __________________________________________                       $__________________________________________
     ____________________________________________________             $___________________________________________________

8.   Innovative funding (optional): Please feel free to use the space below to share an example of innovative funding
     that you would like others to know about. We will publish several examples in our report.




                                 U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                       47
fcaa 2008 hiv/aidS reSoUrce tracking SUrvey

                                             aPPendix 126
                                             definitions of global regions
                                             (note: these definitions are taken from UnaidS)

                                             CARIBBEAN
                                             Anguilla, Antigua and barbuda, Aruba, bahamas, barbados, bermuda, british Virgin Islands, Cayman Islands,
                                             Cuba, Dominica, Dominican Republic, French Guyana, Grenada, Guadeloupe, Guyana, Haiti, Jamaica,
                                             Martinique, Montserrat, Netherland Antilles, Puerto Rico, St. Kitts and Nevis, St. lucia, St. Vincent and the
                                             Grenadines, Suriname, Trinidad and Tobago, Turks and Caicos Islands, U.S. Virgin Islands


                                             LATIN AMERICA
                                             Argentina, belize, bolivia, brazil, Chile, Colombia, Costa Rica, Ecuador, El Salvador, Guatemala, Honduras,
                                             Mexico, Nicaragua, Panama, Paraguay, Peru, Uruguay, Venezuela


                                             WESTERN AND CENTRAL EUROPE
                                             Austria, belgium, Denmark, Finland, France, Germany, Greece, Iceland, Ireland, Italy, liechtenstein,
                                             luxembourg, the Netherlands, Norway, Portugal, Spain, Sweden, Switzerland, United Kingdom of Great britain
                                             and Northern Ireland, Vatican City


                                             EASTERN EUROPE AND CENTRAL ASIA
                                             Armenia, Albania, Azerbaijan, belarus, bosnia and Herzegovina, bulgaria, Croatia, Cyprus, Czech Republic,
                                             Estonia, Georgia, Hungary, Kazakhstan, Kosovo, Kyrgyzstan, latvia, lithuania, Macedonia, Malta, Moldova,
                                             Poland, Romania, Russian Federation, Serbia and Montenegro, Slovakia, Slovenia, Tajikistan, Turkey,
                                             Turkmenistan, Ukraine, Uzbekistan


                                             WEST AND CENTRAL AFRICA
                                             benin, burkina Faso, burundi, Cameroon, Cape Verde, Central African Republic, Chad, Congo (brazzaville),
                                             Congo (DR), Côte d’Ivoire, Equatorial Guinea, Gabon, Gambia, Ghana, Guinea-bissau, Guinea (Conakry),
                                             liberia, Mali, Mauritania, Niger, Nigeria, Sao Tome, Senegal, Sierra leone, Togo


                                             EAST AND SOUTHERN AFRICA
                                             Angola, botswana, Comoros, Djibouti, Eritrea, Ethiopia, Kenya, lesotho, Madagascar, Malawi, Mauritius,
                                             Mozambique, Namibia, Rwanda, Seychelles, Somalia, South Africa, Swaziland, Uganda, United Republic of
                                             Tanzania, Zambia, Zimbabwe


                                             NORTH AFRICA AND THE MIDDLE EAST
                                             Afghanistan, Algeria, bahrain, Egypt, Iran, Iraq, Israel, Jordan, Kuwait, lebanon, libya, Morocco, oman,
                                             Palestinian Territories, Qatar, Saudi Arabia, Sudan, Syria, Tunisia, United Arab Emirates, Yemen


                                             SOUTH ASIA AND THE PACIFIC
                                             Australia, bangladesh, bhutan, Fiji, India, Maldives, Nepal, New Zealand, Pakistan, Papua New Guinea, Samoa,
                                             Sri lanka, Timor-leste


                                             EAST ASIA AND SOUTH EAST ASIA
                                             brunei Darussalam, Cambodia, China, Indonesia, Japan, lao People’s Democratic Republic, Korea (DPR),
                                             Korea (Republic), Malaysia, Mongolia, Myanmar, Philippines, Singapore, Thailand, Vietnam




26 This appendix was associated with the
original survey sent to funders. It should
therefore be considered a sub-appendix
to Appendix b.



48                                           FUNDERS CoNCERNED AboUT AIDS
aPPendix 227
                                             grantmaker list to review for calculating re-granting
                                             (this list includes the top 82 funders in alphabetical order, based on 2007 data.)

Abbott Laboratories Fund, IL                 The Elizabeth Glaser Pediatric            James B. Pendleton Charitable              Kate B. Reynolds Charitable
                                             AIDS Foundation, CA                       Trust, WA                                  Trust, NC
AIDS Foundation of Chicago, IL
                                             Elton John AIDS Foundation,               Johnson & Johnson, NJ                      Richmond County Savings
AIDS Funding Collaborative, OH               Inc., Ny                                                                             Foundation, Ny
                                                                                       The Robert Wood Johnson
Alphawood Foundation, IL                     ExxonMobil Foundation, Tx                 Foundation, NJ                             The Robin Hood Foundation, Ny


Altria Group, Inc., Ny                       Firelight Foundation, CA                  The Henry J. Kaiser Family                 The Rockefeller Brothers Fund,
                                                                                       Foundation, CA                             Inc., Ny
American Jewish World Service,               The Ford Foundation, Ny
Inc., Ny                                                                               W. M. Keck Foundation, CA                  The Rockefeller Foundation, Ny
                                             The Foundation for AIDS
The Annenberg Foundation, PA                 Research (amfAR), Ny                      W. K. Kellogg Foundation, MI               San Diego HIV Funding
                                                                                                                                  Collaborative, a project of
                                             Bill & Melinda Gates                      The Kresge Foundation, MI                  the Alliance Healthcare
Atlanta AIDS Partnership
                                             Foundation, WA                                                                       Foundation, CA
Fund, GA
                                                                                       Levi Strauss Foundation, CA
                                             The Gill Foundation, CO                                                              San Francisco AIDS
BD (Becton, Dickinson and
                                                                                                                                  Foundation, CA
Company), NJ                                                                           The John M. Lloyd
                                             Glaser Progress Foundation, WA            Foundation, CA
                                                                                                                                  The San Francisco
Bickerstaff Family
                                                                                                                                  Foundation, CA
Foundation, CA                               The Global Fund for Women, CA             M•A•C AIDS Fund and M•A•C
                                                                                       Cosmetics, Ny
                                                                                                                                  Silicon Valley Community
The Bristol-Myers Squibb                     The George Gund
                                                                                                                                  Foundation, CA
Foundation, Inc., Ny                         Foundation, OH                            John D. & Catherine T. MacArthur
                                                                                       Foundation, IL
                                                                                                                                  South Africa Development
Broadway Cares/Equity Fights                 Hartford Foundation for Public
                                                                                                                                  Fund, MA
AIDS, Ny                                     Giving, CT                                Merck Company Foundation and
                                                                                       Merck & Co., Inc., NJ
                                                                                                                                  The Starr Foundation, Ny
The California Endowment, CA                 The Health Foundation of
                                             Greater Indianapolis, IN                  Missouri Foundation for
                                                                                       Health, MO                                 Staying Alive Foundation, Ny
The California Wellness
Foundation, CA                               The Healthcare Foundation of
                                             New Jersey, NJ                            National AIDS Fund, DC                     Tides Foundation, CA
The Campbell Foundation, FL
                                             The William and Flora Hewlett             The New york Community                     United Nations Foundation, DC
Children Affected by AIDS                    Foundation, CA                            Trust, Ny
Foundation, CA                                                                                                                    Until There’s A Cure
                                             HIV Collaborative Fund,                   The John R. Oishei                         Foundation, CA
The Children’s Investment Fund               a project of the Tides Center, CA         Foundation, Ny
Foundation, Ny                                                                                                                    H. van Ameringen
                                             Houston Endowment Inc., Tx                The David and Lucile Packard               Foundation, Ny
The Comer Foundation, IL                                                               Foundation, CA
                                             Indiana AIDS Fund, IN                                                                Washington AIDS
                                                                                       The Pew Charitable Trusts, PA              Partnership, DC
The Design Industries
Foundation Fighting AIDS                     International Fund for Health &
(DIFFA), Ny                                  Family Planning, Ny                       The Pfizer Foundation, Inc., Ny            The Wells Fargo Foundation, CA


Doris Duke Charitable                        Irene Diamond Fund, Ny                    Polk Bros. Foundation, IL                  White Flowers Foundation, Ny
Foundation, Ny
                                                                                       Public Welfare Foundation,                 Williamsburg Community Health
                                                                                       Inc., DC                                   Foundation, VA
27 This appendix was associated with the
original survey sent to funders. It should
therefore be considered a sub-appendix
to Appendix b.



                                             U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                              49
APPENDIx C
                                 toP U.S. hiv/aidS fUnderS webSiteS
Abbott and Abbott Fund, IL       Bill & Melinda Gates               The David & Lucille Packard       Global Fund for Women, CA
www.abbott.com                   Foundation, WA                     Foundation, CA                    www.globalfundforwomen.org
                                 www.gatesfoundation.org            www.packard.org
AIDS Foundation of Chicago, IL                                                                        The Harry and Jeannette
www.aidschicago.org              The Boston Foundation, MA          The Denver Foundation, CO         Weinberg Foundation,
                                 www.tbf.org                        www.denverfoundation.org          Inc., MD
AIDS Funding Collaborative, OH                                                                        www.hjweinbergfoundation.org
www.communitysolutions.          Bristol-Myers Squibb Foundation    The Design Industries
com/projects/displayProject.     and Bristol-Myers Squibb Co., Ny   Foundation Fighting AIDS          The Health Foundation of
asp?project_id=16                www.bms.com                        (DIFFA), Ny                       Greater Indianapolis, IN
                                                                    www.diffa.org                     www.thfgi.com
Alphawood Foundation, IL         Broadway Cares/Equity Fights
www.alphawoodfoundation.com      AIDS, Ny                           Doris Duke Charitable             HIV Collaborative Fund,
                                 www.broadwaycares.org              Foundation, Ny                    a project of the Tides Center, CA
American Jewish World                                               www.ddcf.org                      www.hivcollaborativefund.org
Service, Ny                      The Campbell Foundation, FL
www.ajws.org                     www.campbellfoundation.com         The Duke Endowment, NC            Houston Endowment
                                                                    www.dukeendowment.org             Inc., Tx
The Foundation for AIDS          Charles Stewart Mott                                                 www.houstonendowment.org
Research (amfAR), Ny             Foundation, MI                     Elizabeth Glaser Pediatric AIDS
www.amfar.org                    www.mott.org                       Foundation, CA                    Indiana AIDS Fund, IN
                                                                    www.pedaids.org                   www.indianaaidsfund.org
The Annenberg Foundation, PA     Children Affected By AIDS
www.annenbergfoundation.org      Foundation, CA                     Elton John AIDS Foundation, Ny    The John D. & Catherine T.
                                 www.caaf4kids.org                  www.ejaf.org                      MacArthur Foundation, IL
Arcus Foundation, MI                                                                                  www.macfound.org
www.arcusfoundation.org          The Comer Foundation, IL           The Evelyn and Walter Haas, Jr.
                                 www.comer-foundation.com           Fund, CA                          The John M. Lloyd
Atlanta AIDS Partnership                                            www.haasjr.org                    Foundation, CA
Fund, GA                         The Community Foundation for                                         www.johnmlloyd.org
www.aidsfundatl.org              the National Capitol               Firelight Foundation, CA
                                 Region, DC                         www.firelightfoundation.org       Johnson & Johnson, NJ
BD (Becton, Dickinson and        www.cfncr.org                                                        www.jnj.com/community/index.
Company), NJ                                                        The Ford Foundation, Ny           htm
www.bd.com/responsibility                                           www.fordfound.org

                                                                    GlaxoSmithKline US, NC
                                                                    us.gsk.com




50                               FUNDERS CoNCERNED AboUT AIDS
Levi Strauss Foundation, CA       Pride Foundation, WA            The Starr Foundation, Ny         Note:
www.levistrauss.com/citizenship   www.pridefoundation.org         www.starrfoundation.org          The Anne Dinning and
                                                                                                   Michael Wolf Foundation, the
M•A•C AIDS Fund and M•A•C         Robin Hood                      Staying Alive Foundation, Ny
                                                                                                   International Fund for Health
Cosmetics, Ny                     Foundation, Ny                  www.staying-alive.org/en/home
www.macaidsfund.org               www.robinhood.org                                                and Family Planning, the Irene

                                                                  The Summit Foundation, DC        Diamond Fund, the James b.
Macy’s Foundation                 Rockefeller Brothers Fund, Ny   www.summitfdn.org                Pendleton Charitable Trust, and
www.macysinc.com/Community/       www.rbf.org                                                      the H. van Ameringen Foundation
                                                                  Tides Foundation, CA             do not have websites.
Merck & Co., Inc., NJ             San Diego HIV Funding           www.tides.org
www.merck.com/cr                  Collaborative, CA
                                  www.alliancehf.org/sdhiv/who_   United Nations Foundation, DC
Missouri Foundation for           we_are.html                     www.unfoundation.org
Health, MO
www.mffh.org                      San Francisco AIDS              Washington AIDS
                                  Foundation, CA                  Partnership, DC
National AIDS Fund, DC            www.sfaf.org                    www.washingtonaidspartnership.
www.aidsfund.org                                                  org
                                  The Sidney Kimmel
The New york Community            Foundation, PA                  Weingart Foundation, CA
Trust, Ny                         www.kimmel.org                  www.weingartfnd.org
www.nycommunitytrust.org
                                  Silicon Valley Community        Wells Fargo Foundation, CA
Open Society Institute, Ny        Foundation, CA                  www.wellsfargo.com/about/
www.soros.org                     www.siliconvalleycf.org         charitable

The Pew Charitable Trusts, PA     The Skoll Foundation, CA        The William and Flora Hewlett
www.pewtrusts.com                 www.skollfoundation.org         Foundation, CA
                                                                  www.hewlett.org
Pfizer Inc and Pfizer             South Africa Development
Foundation, Ny                    Fund, Ny                        W.K. Kellogg Foundation, MI
www.pfizerphilanthropy.com        www.southafrica-newyork.net/    www.wkkf.org
                                  sadf.htm
                                                                  World Children’s Fund, CA
                                                                  www.worldchildrensfund.org




                                  U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                             51
APPENDIx D
                                         global hiv/aidS fUnding organizationS
                                         GLOBAL RESOURCE TRACKING: HISTORy AND HARMONIZATION
                                         The Working Group on Global HIV/AIDS Philanthropic Resource Tracking is a current
                                         collaboration among FCAA, the European HIV/AIDS Funders Group (EFG) and UNAIDS that
                                         was formed to investigate HIV/AIDS philanthropy on a global level. UNAIDS began convening
                                         meetings of key players to examine global resource flows several years ago by creating the
                                         Global Consortium on Resource Tracking. Representatives included staff from multilateral
                                         agencies and NGOs (including WHO, the United Nations Population Fund [UNFPA], the Global
                                         Fund, the International AIDS Vaccine Initiative, and others), HIV/AIDS experts, and experts
                                         in tracking global resource flows. Members of the group met twice a year to begin creating
                                         coherent resource tracking mechanisms and reporting on global HIV/AIDS resource flows.

                                         The European HIV/AIDS Funders Group (EFG) was created in 2002 by a group of European-
                                         based funders working to promote greater transparency, collaboration, and effectiveness in
                                         European HIV/AIDS philanthropy, and to encourage new activity in the field. FCAA and
                                         EFG have deepened their collaborative relationship since, stepping away from a country- or
                                         region-specific approach towards connecting funders in both regions and mobilizing a global
                                         philanthropic response to HIV/AIDS.

                                         In 2008, FCAA and EFG worked to harmonize their resource tracking data by using a similar
                                         survey tool, categories, and layout in their resource tracking reports; they subsequently
                                         launched the reports jointly to a global audience. The regional and intended use categories
                                         found in both the FCAA and EFG resource tracking reports for 2008 coordinate with the
                                         UNAIDS categories, which are also used by PEPFAR and the Global Fund, in an effort to make
                                         all resource flows data comparable.28

                                         CURRENT OBJECTIVES
                                         In continuation of the earlier exploratory resource tracking efforts of UNAIDS and others, the
                                         Working Group on Global HIV/AIDS Philanthropic Resource Tracking has sought to identify
                                         funders of HIV/AIDS in regions of the world beyond those tracked by FCAA (U.S.-based
                                         funders) and EFG (Western and Central Europe-based funders), including private and public
                                         foundations, corporate foundations, and other funding institutions. The Working Group aims to
                                         connect with these funders as best as possible, to offer information and support for their work,
                                         to foster channels of potential collaboration between funders in the global North and those in
                                         the global South, Eastern Europe and Asia, and to inform the global dialogue about HIV/AIDS
                                         resource tracking.

                                         METHODOLOGy
                                         In 2008, the Working Group drafted a preliminary list of funders located outside the United
                                         States and Western and Central Europe that were likely to be engaged in funding HIV/AIDS-
                                         related programming. This list, which also included the funders’ websites, resulted from a brief
                                         web-based and literature-review research project. More recently, in 2009, the Working Group
                                         engaged in deeper research into private global philanthropy over a longer period and reached
                                         out to the funders previously identified and others in a much more systematic way—by, for
                                         example, identifying resources on philanthropy in different regions of the world, consulting
                                         with experts in philanthropy at the global and regional levels, and surveying the global funders
                                         directly about their HIV/AIDS giving. Surveys were sent in June to over 80 funders.

28 See www.hivaidsfunders.org for the
EFG HIV/AIDS resource tracking report,
European Philanthropic Support to
Address HIV/AIDS in 2008.



52                                       FUNDERS CoNCERNED AboUT AIDS
CHALLENGES
The formidable challenges to this research include: a lack of any kind of centralized or
comprehensive database of philanthropic entities (such as the Foundation Center in the
United States); a wide range of different kinds of philanthropic resources; language barriers;
lack of transparency of financial information; and great variety in the definition of private
philanthropy. It should also be noted that in general resource tracking surveys request a level of
detail that can be prohibitively time-consuming or otherwise difficult for funders to voluntarily
share. Therefore, high response rates are always a challenge, especially in the early efforts of
outreach to newly identified funders unfamiliar with the project.

RESULTS
The results of this research have provided a new understanding of private philanthropy
climates and regions, and the barriers in identifying them, outside of the United States and
Western and Central Europe. Moreover, they enabled the production of a refined and expanded
global funders list with additional in-depth information about select funders for this report.

Research and survey results revealed that in many regions outside of the United States and
Western and Central Europe, there are few private foundations or trusts as they are defined in
the United States. A majority of the organizations featured, for example, acted as local funding
intermediaries and were financially, technically, or otherwise supported by governments and/or
multilateral and bilateral organizations (e.g., the Global Fund or PEPFAR). Others, meanwhile,
were corporations with main offices based in the United States or Western and Central Europe,
and/or branches of private foundations with main offices based in those two regions.

While the responses received from such funders were informative, there was not enough of a
critical mass of data to produce analysis as extensive as that provided in the FCAA and EFG reports.

Research highlights include the following:

●	 Few funders on the list had exclusively independent sources of income such as traditional
   endowments, which are common among funders in the United States and Western and
   Central Europe.
●	 In the Asia and Pacific, Latin American, Eastern Europe and sub-Saharan Africa regions,
   research suggested that most HIV/AIDS organizations are structured as community-based
   organizations (CBOs) or non-governmental organizations (NGOs), and are funded in part or
   wholly by governments and other organizations.
●	 In the Asia and Pacific region, private philanthropy was reported as not very visible—at least
   partly because bilateral and multilateral donor programs are so large.
●	 Similarly, in Latin America, public policies funded by governments largely overshadow
   private philanthropy, which plays a much smaller role.
●	 In India, a source reported that there are few indigenous HIV/AIDS funders; rather, HIV/
   AIDS programs are supported by the government, multilaterals, and a few major foreign
   foundations.




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                             53
aPPendix d
     global hiv/aidS fUnding organizationS




     ●	 In the Middle East, a source reported being “appalled” at the lack of private HIV/AIDS
        funders.
     ●	 Many major foundations and corporations based in the United States and Western and
        Central Europe have active funding branches in sub-Saharan Africa, particularly in South
        Africa, that provide local philanthropic funding.

     GLOBAL RESOURCE TRACKING—AN IMPORTANT WORK IN PROGRESS
     Despite the many variables that make private institutional philanthropy different in different
     regions of the world, institutions engaged in such grantmaking can be as uniquely poised as
     their counterparts in the United States and elsewhere to fund projects and populations that
     governments, corporations, and other organizations may consider too controversial or sensitive
     to fund. One foundation officer in the Central American region reported that philanthropists
     with private or corporate wealth avoid funding HIV/AIDS in general and seek more
     conservative issues to support.

     This situation highlights the difficulties faced by many local community groups and PLWHA
     seeking funding and support, especially those working with and on behalf of marginalized
     groups. Private HIV/AIDS philanthropy funders from more robust and well-resourced regions,
     such as the United States and Western and Central Europe, should be encouraged to fill the
     gap by seeking out and supporting individuals and groups engaged in HIV/AIDS activities that
     local stakeholders ignore. One potentially useful strategy would be to prioritize the creation of
     partnerships between organizations in the global North and the global South, Eastern Europe
     and Asia, with the goal of promoting impactful philanthropy in these regions. Structures
     and opportunities such as collaborative partnerships, networks, and coalitions with partner
     organizations and business partners can increase access to funding and other vital resources at
     the grassroots level in those needy areas.

     Given the flexibility of private philanthropy to respond to critical issues, the synergistic
     opportunities of global partnerships, and the potential of emerging economies in parts of the
     world outside of the United States and Western and Central Europe, global resource tracking
     efforts are a valuable work in progress that will continue to be pursued.

     FCAA welcomes any feedback related to this section of the report. Comments or
     suggestions about how to improve global resource tracking in the future should be sent to
     Makfire Alija at makfire.alija@hivaidsfunders.org.




54   FUNDERS CoNCERNED AboUT AIDS
liSt of global                   ARMENIA
                                 Open Society Institute
                                                                     Helen Macpherson Smith Trust
                                                                     level 43
                                                                                                        CANADA
                                                                                                        Canadian Foundation For AIDS
hiv/aidS fUnding                 Assistance Foundation               80 Collins Street                  Research (CANFAR)

organizationS                    7/1 Tumanyan St. 2-nd cul-de-sac,
                                 375002
                                                                     Melbourne, Australia 3000
                                                                     Tel.: +61 03 9631 2551
                                                                                                        165 University Avenue, Suite 710
                                                                                                        Toronto, ontario
                                 Yerevan, Armenia                    Fax: +61 03 9631 2530              Canada M5H 3b8
The following is a list of
                                 Tel./Fax: +374 10 53 38 62          www.hmstrust.org.au                Tel.: +1 416 361 6281
funding organizations
                                 www.osi.am                                                             Fax: +1 416 361 5736
outside of the United States                                         The Trust awards a limited
                                                                                                        www.canfar.com
and Western and Central          The Foundation supports             number of HIV/AIDS grants
Europe that are involved in      harm reduction programs             through its health program.        CANFAR is the only national
HIV/AIDS-related activities.     to reduce HIV transmission                                             organization in Canada dedicated
                                 among IDUs and others at risk.      BRAZIL                             to privately funding research
ARGENTINA                        It supports capacity-building,      Fundacao Athos Bulcao              into all aspects of HIV infection
Fundacion Mantovano Para         public awareness and advocacy       Setor de Autarquias Norte          and AIDS.
La Prevencion Del Sida y         programs throughout                 Quadra 01 bloco E
Drogadiccion                     the country.                        70041-904 brasília – DF – brasil   Farha Foundation
Rodriguez Peña 69 1º Piso                                            Tel./fax: +55 61 3322 7801         100-576 rue Ste-Catherine West
(1020) Capital Federal           AUSTRALIA                           www.fundathos.org.br               Montréal, Quebec
buenos Aires, Argentina          AIDS TRUST of Australia                                                Canada H2l 2E1
                                                                     Athos bulcao supports HIV/
Tel./Fax: +54 114 371 7393       P.o. box 1030                                                          Tel.: +1 514 270 4900
                                                                     AIDS awareness and prevention
www.drwebsa.com.ar/fmsida        Darlinghurst NSW                                                       Fax: +1 514 270 5363
                                                                     programs for youth.
                                 Sydney, Australia 1300                                                 www.farha.qc.ca/en/index.html
The Foundation provides HIV/
                                 Tel.: +61 02 9285 4400
AIDS awareness and prevention                                        Fundo Angela Borba                 Farha funds organizations
                                 Fax: +61 02 9261 8845
education, direct services,                                          Rua Hans Staden, 21 - botafogo,    throughout Quebec providing
                                 www.aidstrust.com.au
and financial stipends to help                                       Cep 22281-060                      HIV/AIDS care and services
PlWHA and their families.        The Trust raises funds and          Rio de Janeiro - RJ - brasil       as well as prevention and
                                 distributes grants to community-    Tel.: +55 21 2286 1046             education programs.
UBATEC                           based organizations that provide    Fax: +55 21 2286 6712
Viamonte 577 5º Piso, C1053AbK   HIV/AIDS awareness education,       www.angelaborbafundo.org           Match International
Ciudad Autónoma de buenos        research and direct support                                            310 - 411 Roosevelt Avenue
                                                                     The Foundation has a Women &
Aires, Argentina                 for PlWHA.                                                             ottawa, ontario
                                                                     HIV/AIDS project.
Tel./Fax: +54 11 4313 3600                                                                              Canada K2A 3X9
www.ubatec.uba.ar                Bobby Goldsmith Foundation                                             Tel.: +1 613 238 1312
                                 P.o. box 97                                                            Fax: +1 613 238 6867
UbATEC serves as an
                                 Darlinghurst NSW                                                       www.matchinternational.org
intermediary for funds for
                                 Sydney, Australia 1300
HIV/AIDS public awareness,                                                                              MATCH supports initiatives,
                                 Tel.: +61 02 9283 8666
prevention and education                                                                                including those addressing HIV/
                                 Fax: +61 02 9283 8288
programs with a focus on                                                                                AIDS, which are identified by
                                 www.bgf.org.au
women, youth and lGbT                                                                                   women in the global South and
communities in Argentina.        The Foundation provides                                                are led and implemented by
                                 financial support to PlWHA                                             women in Africa, Asia, South
                                 for medical, housing and                                               America and the Caribbean.
                                 educational expenses.




                                 U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                     55
aPPendix d
                                    global hiv/aidS fUnding organizationS




Rooftops Canada Foundation          CHINA, PEOPLE’S                      Kadoorie Charitable Foundations     INDIA
720 Spadina Avenue, Suite 313       REPUBLIC OF                          1st Floor, St. George’s building    Rajiv Gandhi Foundation
Toronto, ontario                    Chi Heng Foundation                  2 Ice House Street                  Rajendra Prasad Road
Canada M5S 2T9                      P.o. box: GPo box 3923               Hong Kong, China                    New Delhi - 110 001, India
Tel.: +1 416 366 1445               Central Hong Kong, China             Tel.: +852 2905 3386                Tel.: +91 11 2375 5117
Fax: +1 416 366 3876                Tel.: +852 2517 0564                                                     Fax: +91 11 2375 5119
                                                                         The Foundation funds a wide
www.rooftops.ca                     Fax: +852 2517 0594                                                      www.rgfindia.com
                                                                         range of initiatives in health,
                                    www.chihengfoundation.com
Rooftops focuses on                                                      community development, poverty      The Foundation supports HIV
disadvantaged communities in        The Foundation funds and             alleviation and education. It       training programs for health
Africa, Asia, latin America, the    operates projects in education       supports community health           professionals working with NGos
Caribbean and Eastern Europe.       and care for children and            education and HIV prevention        to treat the underprivileged
It provides support for housing     adults impacted by AIDS, as          programs.                           throughout India. It also supports
and support services for PlWHA.     well as HIV prevention and anti-                                         education, prevention and direct
                                    discrimination programs.             ECUADOR                             services programs for PlWHA as
Snowy Owl AIDS Foundation                                                Corporación KIMIRINA                well as capacity-building grants
200 2500 Palladium Drive            Hong Kong AIDS Foundation            Ramirez Davalos 258 y Paez          for Cbos working in this area.
ottawa, ontario                     5/F, Shaukeiwan Jockey Club Clinic   Quito, Ecuador
Canada K2V 1E2                      8 Chai Wan Road                      Tel.: +593 22 55 67 50              Vasavya Mahila Mandali
Tel.: +1 613 828 8843               Hong Kong, China                     Fax: +593 22 56 87 67               benz Circle, Vijayawada - 520 010
Fax: +1 613 828 7964                Tel.: +852 2560 8528                 www.kimirina.org                    Andhra Pradesh, India
www.snowyowl.org                    Fax: +852 2560 4154                                                      Tel.: +91 86 6247 0966
                                                                         KIMIRINA supports HIV/AIDS
                                    www.aids.org.hk                                                          Fax: +91 86 6247 3056
The Foundation supports                                                  education, awareness prevention
                                                                                                             www.vasavya.com
organizations dedicated to HIV/     The Foundation has a PlWHA           and treatment programs
AIDS education, prevention, and     Support Fund through which it        throughout Ecuador from a           Vasavya is an intermediary for
direct support services in the      provides limited direct assistance   human rights perspective with a     international and national
ottawa-Hull region of Canada.       to PlWHA.                            focus on gender equality.           funders and governments. It
                                                                                                             supports home and community-
Stephen Lewis Foundation            Hua Qiao Foundation                  GHANA                               based HIV/AIDS care and
260 Spadina Avenue                  6 lane 1279                          African Women’s Development         prevention programs.
Suite 501                           Zhong Shan Xi Road                   Fund
Toronto, ontario                    Shanghai 200051, China               PMb CT 89 Cantonments               MAMTA Health Institute for
Canada M5T 2E4                      Tel.: +86 21 3209 5514               Accra, Ghana                        Mother and Child
Tel.: +1 416 533 9292               www.huaqiaofoundation.org            Tel.: +233 21 521257                b-5, Greater Kailash Enclave-II
Fax: +1 416 850 4910                                                     Fax: +233 21 782502                 New Delhi, India 110048
                                    Hua Qiao serves as an
www.stephenlewisfoundation.org                                           www.awdf.org                        Tel.: +91 11 2922 0210
                                    intermediary for international
                                                                                                             Fax: +91 11 2922 0575
The Foundation supports             funding to HIV/AIDS programs in      The group’s HIV/AIDS Fund
                                                                                                             www.mamta-himc.org
community-based organizations       China that support AIDS orphans.     supports women’s organizations
in Africa working to assist                                              throughout Africa advocating        MAMTA is an intermediary for
AIDS orphans, provide care                                               for non-discrimination and          international and national funders
to women who are ill, support                                            gender equality as well as direct   and governments. It supports
grandmothers caring for their                                            support for HIV prevention,         HIV/AIDS programs focusing
orphan grandchildren, and sustain                                        treatment, support and              on direct care, advocacy, and
associations of PlWHA.                                                   community care. The Fund            training throughout the country.
                                                                         also provides capacity-building
                                                                         grants to women’s organizations
                                                                         working on HIV/AIDS issues.




56                                  FUNDERS CoNCERNED AboUT AIDS
Palmyrah Workers Development          organization, providing direct          KENyA                                Kenya Community
Society (PWDS)                        monetary support to PlWHA               Africa Medical and Research          Development Foundation
Crystal Street, Marthandam – 629165   and their families. It also             Foundation (AMREF)                   P.o.box 10501
Kanyakumari District                  engages in advocacy, training,          P.o. box 27691-00506                 Nairobi 00100, Kenya
Tamil Nadu, India                     organizing, and networking              Nairobi, Kenya                       Tel.: +254 20 676 3002
Tel.: +91 46 5127 0241                with local community members,           Tel.: +254 20 699 300                Fax: +254 20 676 2538
Fax: +91 46 5127 0138                 communities of faith, local             Fax: +254 20 609 518                 www.kcdfoundation.org
www.pwds.org                          governments, and others to              www.amref.org
                                                                                                                   KCDF awards grants for
                                      educate and promote care
PWDS is an intermediary for                                                   AMREF supports HIV prevention        education scholarships, asset
                                      for PlWHA.
international and national                                                    and treatment programs as            development, early childhood
funders and governments.                                                      well as advocacy and capacity-       development, arts and culture,
                                      JAPAN
It supports Cbos and NGos                                                     building for HIV/AIDS Cbos           youth development, HIV/AIDS,
                                      Japanese Foundation For
working with AIDS orphans as                                                  and NGos in most countries           organizational capacity-building
                                      AIDS Prevention
well as organizations providing                                               throughout Africa.                   and food security.
                                      Suidobashi bldg. 5F, Misakicho 1-3-12
community-based care and
                                      Chiyoda-ku, Tokyo 101-0061, Japan
support programs for PlWHA.                                                   Allavida K-Rep                       KyRGyZSTAN
                                      Tel.: +81 3 5259 1811
                                                                              Development Agency                   Soros Foundation – Kyrgyzstan
                                      Fax: +81 3 5259 1812
LEPRA Society                                                                 P.o. box 10434 – 0100                55A, logvinenko St.
                                      www.jfap.or.jp/english/index.htm
Post box No. 1518                                                             Nairobi, Kenya                       bishkek, 720040 Kyrgyzstan
West Marredpally, Secunderabad        JFAP raises funds from the              Tel.: +254 20 310 526                Tel.: +996 312 66 34 75
Andhra Pradesh, India                 public to support its SToP AIDS         Fax: +254 20 310 525                 Fax: +996 312 66 34 48
Tel.: +91 040 2780 2139               Fund, which provides grants to          www.allavida.org                     www.soros.org/about/
Fax: +91 040 2780 1391                Japanese grassroots HIV/AIDS-                                                foundations/kyrgyzstan
                                                                              Allavida’s mission is to transform
www.leprasociety.org                  related NGos.
                                                                              the practice and outcomes            The Foundation administers
lEPRA is an intermediary for                                                  of development funding,              the Central Asia Regional
                                      JORDAN
international and national funders                                            grantmaking and philanthropy in      HIV/AIDS Program, which is
                                      Noor Al-Hussein Foundation
and governments. It supports a                                                Africa. one of its projects funded   designed to prevent the further
                                      P.o. box 926687
wide range of HIV/AIDS projects                                               by PEPFAR provides credit and        spread of HIV in Central Asia
                                      Amman 11110 Jordan
from direct care to advocacy                                                  savings interventions to HIV-        through capacity-building for
                                      Tel.: +962 6 560 7460
to education and vocational                                                   positive and affected persons to     organizations addressing harm
                                      Fax: +962 6 560 6994
programs throughout the country.                                              enable them to start or expand       reduction, supporting prevention
                                      www.nooralhusseinfoundation.org
                                                                              micro-enterprises and small-scale    activities, and advocating
TEST Foundation                       The Foundation addresses                farming activities.                  for policies to increase the
4, Sathalvar Street                   HIV/AIDS through its Family                                                  effectiveness of awareness and
Mugappair West                        Planning and Reproductive               Development Innovation for           prevention programs.
Chennai, India 600037                 Health program, which focuses           Rural Communities (DEVIRUCO)
Tel.: +91 044 2624 4100               on education, prevention and            P.o. box 542
Fax: +91 044-2625 0315                awareness campaigns.                    busia, Kenya 50400
www.testfoundation.in                                                         Tel.: +254 722 693 689

TEST is both an operating                                                     DEVIRUCo serves as an
foundation, running its own                                                   intermediary to disburse a
programs including home-based                                                 small amount of funding to
care and a hospice for AIDS                                                   Cbos. It also operates HIV/AIDS
patients, and a grantmaking                                                   education, prevention
                                                                              and treatment programs.




                                      U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                         57
aPPendix d
                                  global hiv/aidS fUnding organizationS




MOZAMBIQUE                        NICARAGUA                           ActionAid International            Atlantic Philanthropies
Foundation for Community          Fondo Centroamericano               PostNet suite #248                 South Africa
Development                       de Mujeres                          Private bag X31                    Cradock Heights, Second Floor
Av. 25 de Setembro Edificio       Rotonda El Gueguense                Saxonwold 2132                     21 Cradock Avenue
Times Square                      1 c. al Norte                       Johannesburg, South Africa         Rosebank 2196
C.P - 4206                        Managua, Nicaragua                  Tel.: +27 11 731 4500              Johannesburg, South Africa
Mozambique                        Tel.: +505 254 4981                 Fax: +27 11 880 8082               Tel.: +27 11 880 0995
Tel.: +258 21 355 300             Fax: +505 254 4982                  www.actionaid.org                  Fax: +27 11 880 0809
Fax: +258 21 355 355              www.fcmujeres.org                                                      www.atlanticphilanthropies.org
                                                                      ActionAid serves as an
www.fdc.org.mz
                                  The Fund supports HIV               intermediary for foundations       Atlantic supports HIV/AIDS
FCD supports education,           prevention and treatment            and governments throughout         research, policy development and
prevention and treatment          programs for women in               the world. It builds the           organizational infrastructure in
programs for PlWHA, capacity-     Central America.                    capacity of NGos and Cbos          South Africa.
building for HIV/AIDS Cbos, and                                       in 23 countries to advocate
care for orphaned children.       PHILIPPINES                         and provide support for            DG Murray Trust
                                  Philippine Business for             comprehensive HIV prevention,      P.o. box 23893
NEW ZEALAND                       Social Progress                     treatment, care and support.       Claremont 7735
J.R. Mckenzie Trust               P.o. box 3839                                                          Cape Town, South Africa
P.o. box 10 006                   Manila, Philippines                 Adelle Searll Memorial Trust       Tel.: +27 21 670 9856
Wellington 6143, New Zealand      Tel.: +63 2 527 7741                28 Norwich Drive                   Fax: +27 21 670 9850
Tel.: +64 04 472 8876             Fax: +63 2 527 3743                 bishops Court Est, Claremont       www.dgmt.co.za
Fax: +64 04 472 5367              www.pbsp.org.ph                     Cape Town, South Africa
                                                                                                         The Trust funds NGos providing
www.jrmckenzie.org.nz                                                 Tel.: +27 21 797 2890
                                  PbSP supports advocacy efforts                                         services to AIDS orphans
The Trust makes grants in         to increase awareness of HIV/       The Trust awards small grants      and children.
the areas of social services,     AIDS throughout the Philippine      in the Western Cape to Cbos
health services and community     business sector. It has supported   working on aging, mental health,   Dockda Rural
development, with a focus on      the development of HIV/AIDS         AIDS orphans and other issues.     Development Agency
children, young people and        education prevention programs                                          P.o. box 186
people with disabilities. It      for employees in companies          AIDS Foundation of South Africa    Rondebosch 7701
supports HIV/AIDS programs in     across the country.                 P.o. box 50582                     Cape Town, South Africa
all of its focus areas.                                               Musgrave, Durban 4062              Tel.: +27 21 685 1236
                                  SOUTH AFRICA                        South Africa                       Fax: +27 21 689 7199
New Zealand AIDS Foundation       Ackerman Family Foundation          Tel.: +27 31 277 2700              www.dockda.org.za
P.o. box 6663, Wellesley Street   P.o. box 23087                      Fax: +27 31 202 9522
                                                                                                         The agency’s HIV/AIDS program
Auckland 1141, New Zealand        Claremont                           www.aids.org.za
                                                                                                         supports Cbos that provide
Tel.: +64 09 303 3124             Cape Town 7735, South Africa
                                                                      The Foundation supports HIV        treatment for PlWHA, support
Fax: +64 09 309 3149              Tel.: +27 21 658 1000
                                                                      prevention, education and          for orphans, and advocacy for
www.nzaf.org.nz                   Fax: +27 21 658 1135
                                                                      treatment in the poorest and       increased resources, prevention
The Foundation supports MSM       The Foundation funds a wide         most under-resourced areas of      and education.
who have HIV and AIDS through     range of issues in South Africa,    the country. It also supports
its Wellness Fund and a small     including HIV/AIDS.                 AIDS orphans programs.
scholarship fund.




58                                FUNDERS CoNCERNED AboUT AIDS
Ikhala Trust                        Nelson Mandela Children’s Fund       Starfish Greathearts Foundation     TANZANIA
P.o. box 210957                     P.o. box 797                         Postnet Suite 510, Private bag X9   WAMA Foundation
The Fig Tree                        Highlands North 2037                 benmore 2010                        P.o. box 10641
Port Elizabeth, South Africa        South Africa                         South Africa                        Dar es Salaam
Tel.: +27 41 585 0970               Tel.: +27 11 274 5600                Tel.: +27 11 259 4000               Tanzania
Fax: +27 41 582 1425                Fax: +27 11 486 3914                 Fax: +27 11 259 4111                Tel.: +255 22 212 6516
www.ikhala.org.za                   www.nmcf.co.za                       www.strafishcharity.org             Fax: +255 22 2121 916
                                                                                                             www.wamafoundation.or.tz
The Trust provides seed funding     Children orphaned by AIDS are        Starfish builds the capacity
and organizational capacity-        supported through the fund’s         of NGos and Cbos throughout         WAMA’s focus is to improve
building grants to Cbos in the      Wellbeing Program.                   South Africa to meet the            the social and economic
Eastern Cape working on HIV/                                             educational, material and           advancement of women and
AIDS issues.                        Networking AIDS Community of         emotional needs of                  girls in Tanzania by increasing
                                    South Africa (NACOSA)                AIDS-orphaned children in           access to education, maternal
The Isidore, Theresa and Ronald     P.o. box 6358                        their own communities.              and newborn health and sexual
Cohen Charitable Trust              Roggebaai, 8012                                                          reproductive health services
P.o. box 7256                       South Africa                         Uthungulu Community                 including HIV and AIDS.
Cape Town, 8000                     Tel.: +27 21 461 7348                Foundation
South Africa                        Fax: +27 21 461 7953                 P.o. box 1748                       UKRAINE
Tel.: +27 21 421 7110               www.nacosa.org.za                    Richards bay 3900                   Elena Franchuk
Fax: +27 21 421 7191                                                     South Africa                        Anti-AIDS Foundation
                                    NACoSA is a network of over
                                                                         Tel.: +27 35 797 1882/3             Horizon office Towers, office
The Trust funds a wide range of     300 NGos and Cbos working
                                                                         Fax: +27 35 797 3134                419-А
issues in South Africa, including   to reduce the impact of HIV and
                                                                         www.ucf.org.za                      Shovkovychna Street, 42-44
HIV/AIDS.                           AIDS. It operates primarily in the
                                                                                                             Kyiv, Ukraine 01601
                                    Western Cape, where it provides      UCF awards small grants
                                                                                                             Tel.: +380 44 490 4805
Ken Collins Charity Trust           small seed grants to Cbos.           to grassroots organizations
                                                                                                             Fax: +380 44 490 4885
P.o. box 2330                                                            providing direct service,
                                                                                                             www.antiaids.org
Pietermaritzburg 3200               Open Society Foundation              advocacy and education and
KwaZulu-Natal, South Africa         for South Africa                     awareness on HIV/AIDS issues.       The Foundation supports
Tel.: +27 33 345 3947               P.o. box 143                                                             information and educational
                                    Howard Place                         TAIWAN                              campaigns and NGos providing
The Trust supports Cbos
                                    Pinelands, South Africa 7450         Nurses’ AIDS Prevention             direct support to PlWHA and
providing HIV resources in
                                    Tel.: +27 21- 511 1679               Foundation                          HIV-positive children.
South Africa.
                                    Fax: +27 21- 511 5058                4F, 279 Hsinyi Rd., Sec.4
                                    www.osf.org.za                       Taipei, Taiwan                      ZIMBABWE
Nelson Mandela Foundation
                                                                         Tel.: +886 02 2531 7575             Community Foundation for the
Private bag X70000                  Through its Human Rights and
                                                                         Fax: +886 02 2567 7585              Western Region of Zimbabwe
Houghton 2041                       Governance Program, oSF
                                                                         www.napf.org.tw/intor7_E.htm        21 Walter Howard Road
South Africa                        promotes policy development
                                                                                                             North End
Tel.: +27 11 728 1000               and public awareness of HIV/AIDS     In addition to HIV/AIDS
                                                                                                             bulawayo, Zimbabwe
Fax: +27 11 728 1111                as a human rights issue.             counseling and education/
                                                                                                             Tel./Fax: +263 9 200 078/209 617
www.nelsonmandela.org                                                    prevention work, the Foundation
                                                                                                             www.westfound.com
                                                                         supports a competition that
The Foundation sponsors
                                                                         presents cash awards for HIV/       The Foundation supports school-
community dialogues
                                                                         AIDS nursing-related articles on    based programs providing
throughout the country on
                                                                         research and special projects. It   psychosocial support for young
HIV/AIDS resulting in expanded
                                                                         also provides stipends for nurses   children affected by AIDS and
education and awareness
                                                                         who become infected through         funds advocacy efforts to
leading to community action.
                                                                         their work.                         increase support for a wide range
                                                                                                             of HIV/AIDS programs.



                                    U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                                     59
aPPendix d
                             global hiv/aidS fUnding organizationS




                             As part of the global resource tracking effort, the following profiles present examples of
                             funding organizations (with income from various public and private sources) outside of
                             the U.S. and Western and Central Europe. Their work offers useful models for utilizing the
                             power of partnerships, creative fundraising, and a human rights approach to PLWHA and
                             marginalized populations.



Profile of a fUnding
                             T
                                     he statistics reflecting the number of
                                     children in South Africa orphaned or left
organization                         vulnerable by HIV/AIDS are staggering,
                             with an estimated 1.4 million AIDS orphans in
Starfish Greathearts         the country in 2008. In response to the growing
Foundation                   pandemic, a group of young South Africans founded
Johannesburg, South Africa   the Starfish Greathearts Foundation in 2001.
HIV/AIDS funding in 2008:
                             Driven by a vision to ensure that every orphaned
$3,824,632
                             and vulnerable child has access to basic services,
Andre van Rensburg           Starfish’s goal is to support over 100,000 children
Chief Executive Officer      within the next five years. It hopes to achieve this goal by building the capacity of non-
avanrensburg@iqgroup.net     governmental and community-based organizations throughout South Africa to meet the
www.starfishcharity.org      educational, material and emotional needs of AIDS-orphaned children in their
Tel.: +27 11 259 4000        own communities.

                             Starfish is a not-for-profit developmental organization that enters into partnership with local
                             organizations in under-resourced communities in the country’s nine provinces. It currently
                             supports 120 projects that provide services for over 36,000 AIDS-orphaned children. Its
                             primary services include home visits, counseling, nutritional support, access to education and
                             access to social grants.

                             Starfish offers a unique capacity-building program that empowers community-based
                             organizations (CBOs) so that they are able to provide more effective services to a larger number
                             of children orphaned by AIDS. This program provides mentors to teach basic management and
                             fundraising skills to CBOs and provides training to local caregivers to assess and appropriately
                             care for orphaned children in their community. General operating support is provided to the
                             CBOs while in the program.

                             Once they have completed the capacity-building program, organizations are eligible to apply
                             for annual grant funding of $12,000 to $36,000 to provide direct services to the children they
                             serve. One such organization is the Alex AIDS Orphans Project in the Johannesburg suburb
                             of Alexandra, which was set up over a decade ago to provide food for families and ensure that
                             local children have access to education in local schools. With the support of Starfish, newly
                             added programs now include home visits, bereavement counseling for children, and support
                             groups for grandparents and HIV-positive mothers caring for children.

                             Children orphaned by AIDS seldom have the resources to continue with their education.
                             Recognizing this critical problem, and being passionate about educational development,
                             Starfish established an educational support program. Through this program the foundation
                             provides needed assistance to CBOs such as Gozololo in KwaZulu-Natal, where its funding pays
                             for children’s school fees and stationery and provides a new school uniform each year.


60                           FUNDERS CoNCERNED AboUT AIDS
In addition to basic food and education, every child needs emotional support, encouragement
and care. Starfish ensures that orphans and vulnerable children receive much-needed
counseling and home visits by caregivers in the community. Many caregivers receive training
through its capacity-building program. The Ethembeni Orphan Care project near Port
Elizabeth receives support from Starfish for food and education, and equally important,
psychosocial support.

Starfish is supported by a range of foundations, corporations, charitable trusts and development
agencies in addition to generating income from innovative fundraising events. The vast
majority of funding for its programs is provided by PEPFAR.

Children throughout South Africa orphaned by AIDS are given a chance to be nurtured and
loved by families in their communities thanks to the vision and commitment of the
Starfish Foundation.




U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                        61
aPPendix d
                            global hiv/aidS fUnding organizationS




Profile of a fUnding
                            T
                                    he economic crisis that Ecuador has been
                                    experiencing since 1999 has resulted in a
organization                        dramatic increase in the levels of poverty
                            throughout the country. Hardest hit by this crisis are
Corporación KIMIRINA        communities already vulnerable to HIV infection,
Quito, Ecuador              such as sex workers, migrants and men who have
                            sex with men. The government has reduced funding
HIV/AIDS funding in 2008:
                            for public health, thereby leaving many people
$428,213
                            living with HIV unable to afford adequate nutrition,
Amira Herdoiza              medical attention and medications.
Executive Director
amiraherdoiza@hotmail.com   Partly in response to this growing crisis, Corporación KIMIRINA was founded in late 1999
Website: www.kimirina.org   to help address the needs of people living with HIV and expand HIV/AIDS awareness and
Tel.: +593 22 556 750       prevention efforts across the country. Unique among many funders in the country, KIMIRINA
                            approaches its work from a human rights perspective with a focus on gender equality.

                            A registered not-for-profit charity, Corporación KIMIRINA sponsors fundraising events and
                            receives funds for re-granting to local organizations. During the past several years KIMIRINA
                            has partnered with over 30 non-governmental and community-based organizations in 12
                            of Ecuador’s 22 provinces, providing technical support and financial assistance to build
                            organizational capacity to address a range of advocacy, policy and service issues.

                            In partnership with the International HIV/AIDS Alliance, KIMIRINA developed the Frontiers
                            Prevention Project (FPP), which was implemented in six cities within Ecuador. The target
                            populations included MSM, transgendered individuals, sex workers, and PLWHA. Working
                            with dozens of local grassroots public and private partners, KIMIRINA provided organizational
                            and programmatic technical support to increase counseling and HIV testing services. In
                            addition, it trained partner organizations to advocate with local and national decision-makers
                            for expanded rights and access to services. One significant result of these efforts was the
                            inclusion of sex workers in a national program providing free HIV and STI testing services.

                            KIMIRINA has supported many projects to raise awareness and community involvement in
                            HIV prevention. In collaboration with local and regional governments it supported training
                            activities for municipal employees, utilized innovative theatre and artistic techniques with
                            teenagers in public and private schools, and increased awareness and prevention education
                            with indigenous and Afro–Ecuadorian organizations.

                            Currently, KIMIRINA is supporting the development of a program for the Empowerment
                            of Women Living with HIV/AIDS. Workshops, training of peer educators and a campaign
                            on women and HIV/AIDS are components of this program targeting the cities of Quito and
                            Guayaquil. The project will also empower women to lobby local and national decision-makers
                            for a broader, more holistic response to HIV and AIDS, emphasizing the importance of
                            sustainable public policy advocacy.

                            KIMIRINA has effectively built the capacity of NGOs, CBOs and government entities to address
                            issues of sexual and reproductive human rights, awareness and prevention of HIV/AIDS. Its
                            work has been supported by foundations, corporations, and multi/bilateral organizations.
                            Through community mobilization initiatives, public policy advocacy strategies and expansive
                            social dialogue, Corporación KIMIRINA has made an important impact on HIV/AIDS
                            awareness, prevention and services in Ecuador.

62                          FUNDERS CoNCERNED AboUT AIDS
Profile of a fUnding
                               U
                                        kraine remains one of the most affected
                                        countries in Europe, with an estimated adult
organization                            HIV prevalence of 1.4%. WHO/UNAIDS
                               estimates that the number of people living with HIV
Elena Franchuk                 in Ukraine totals nearly 400,000. Ukraine also has
Anti-AIDS Foundation           one of the highest rates of HIV-positive pregnant
Kyiv, Ukraine                  women in Europe. In 2008 alone, over 3,600
                               children were born to HIV-positive mothers and the
HIV/AIDS funding in 2008:
                               number is increasing 20-30% annually.
$2,399,547

Olga Rudneva,                  Founded in 2003, the Elena Franchuk Anti-AIDS
Executive Director             Foundation is trying to change these statistics. As the only private foundation dedicated to
o.Rudneva@antiaids.org         fighting HIV/AIDS in Ukraine, it works in partnership with the Ukrainian government and
Website: www.antiaids.org/en   other foundations around the world. The Foundation’s activities focus on conducting large-
Tel.: +38 44 490 4805          scale information and educational campaigns primarily through the mass media; providing
                               direct support to people living with HIV and AIDS; attracting additional resources to support
                               projects for prevention and treatment of HIV/AIDS; and working to decrease stigma and
                               discrimination against people living with HIV/AIDS.

                               The Foundation supports a number of programs working with HIV-positive children, providing
                               direct support for families who have adopted HIV-positive children as well as awarding grants
                               to orphanages and hospitals caring for them. In 2008 it entered into a partnership with the
                               Elton John AIDS Foundation to create the Children Plus (+) project. That project focuses on
                               ending discrimination against HIV-positive children, changing public attitudes through teacher
                               training programs, and helping the children move out of orphanages and into adoptive or foster
                               homes. The lives of hundreds of HIV-infected children have already been positively impacted
                               by this work in 11 districts throughout Ukraine.

                               A new and unique project, Mobile Clinic, was recently launched with funds raised through the
                               largest charity auction ever held in the country, which was organized by the Foundation under
                               Anti-AIDS’ social brand Fashion AID. Five fully equipped mobile clinics were purchased and
                               given to regional HIV/AIDS centers in the areas most impacted by the epidemic. These clinics
                               will provide thousands of children with critical medical treatment and care which would
                               otherwise be nearly impossible to obtain.

                               Children are not the only focus of the Anti-AIDS Foundation. The Foundation is in its third
                               year of a five-year collaborative project with the Clinton HIV/AIDS Initiative. The project
                               aims to reduce the growth rate of HIV cases in Ukraine and to improve access to treatment
                               and care for PLWHA. Target areas include increasing access to HIV/AIDS testing; training
                               healthcare providers; improving the government procurement system; and extending access to
                               substitution therapy for IDUs.

                               Saving lives and providing a better quality of life for thousands of children and adults affected
                               by HIV/AIDS in Ukraine is a major goal of the Anti-AIDS Foundation. Through innovative and
                               creative partnerships, it is turning that goal into reality.




                               U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008                                          63
fcaa board and Staff
board of directorS             Staff                          © November 2009, Funders
                                                              Concerned About AIDS,
Patricia Doykos Duquette       John L. Barnes                 Brooklyn, NY.
Bristol-Myers Squibb           Executive Director
Foundation, Inc.                                              Permission is granted to
                               Bob Bronzo                     reproduce this document
Gregory W. Edwards             Former Program Manager         in part or in its entirety,
Flowers Heritage Foundation                                   provided that Funders
                               Sarah Hamilton                 Concerned About AIDS
Kandy S. Ferree                Development & Communications   (FCAA) is cited as the source
National AIDS Fund             Manager                        for all reproduced material.
                                                              This document is posted
Anu Gupta                      Ann Maldonado                  and distributed primarily
Johnson & Johnson              Administrative Coordinator     as an electronic condensed
                                                              PDF file. Please feel free to
Melanie Havelin                                               contact FCAA if you would
The John M. Lloyd Foundation                                  prefer printed copies of
                                                              this report.
Mark Ishaug
AIDS Foundation of Chicago                                    Funders Concerned
                                                              About AIDS
Jen Kates                                                     189 Montague St., Suite 801A
The Henry J. Kaiser Family                                    Brooklyn, NY 11201
Foundation                                                    Telephone: 718-875-0251
                                                              Fax: 718-875-0255
Daniel Jae-Won Lee                                            Email: info@fcaaids.org
Levi Strauss Foundation                                       Website: www.fcaaids.org

LaTida Smith
Chair
Saint Luke’s Foundation of
Cleveland, Ohio


Jasmine Thomas
Surdna Foundation




64
U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008   65
Funders Concerned
About AIDS
189 Montague St., Suite 801A
Brooklyn, NY 11201
Telephone: 718-875-0251
Fax: 718-875-0255
Email: info@fcaaids.org Website:
Website: www.fcaaids.org

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FCAA Resource Tracking 2009

  • 2. acknowledgementS FCAA wishes to thank the Ford Foundation and UNAIDS for their very generous funding and in-kind support of this publication. The data, findings, and conclusions presented in this report are those of FCAA alone and do not necessarily reflect the perspectives or the opinions of the Ford Foundation, UNAIDS, or any other funder. FCAA also gratefully acknowledges the efforts of the following people in ensuring the quality and comprehensiveness of this report: ww Erika Baehr, primary author ww FCAA Board members Anu Gupta of Johnson & Johnson, Mark Ishaug of AIDS Foundation of Chicago, and Jen Kates of The Henry J. Kaiser Family Foundation ww Members of the Working Group on Global Philanthropic Resource Tracking: Makfire Alija, EFG Network Coordinator, European Foundation Centre’s European HIV/AIDS Funders Group (EFG); Astrid Bonfield, Chief Executive, The Diana, Princess of Wales Memorial Fund and Chair, EFG; Nancy Cunningham, Research Consultant; Paul Di Donato, Philanthropic Consultant; and Benjamin Gobet, Global Flows Technical Officer, UNAIDS ww Chris Collins of amfAR ww Pamela Hayman, design FCAA thanks all the philanthropic entities that responded to the 2008 FCAA resource tracking survey that provided the bulk of information for this publication. Thanks also to the Foundation Center and Foundation Search for use of their data to supplement this report. Finally, FCAA thanks all the funding institutions that supported us with a membership contribution in 2009 – our work to build community in HIV/AIDS philanthropy would not be possible without your support.
  • 3. U.S. PhilanthroPic SUPPort to addreSS hiv/aidS in 2008
  • 4. table of contentS 3 Executive Summary 23 Geographic Distribution of HIV/AIDS Funding 6 About FCAA and This Report 34 Intended Use of HIV/AIDS Funding 8 2009 Review and the Road Ahead 36 Target Populations of HIV/AIDS Funding 11 Total U.S. HIV/AIDS Grantmaking in 2008 38 Appendix A: Methodology 13 Top U.S. HIV/AIDS Funders in 2008 43 Appendix B: FCAA Survey 15 Concentration of HIV/AIDS Funders 50 Appendix C: Top U.S. HIV/AIDS 17 Changes in HIV/AIDS Funders Websites Grantmaking 52 Appendix D: 20 2009 Forecast Global HIV/AIDS Funding Organizations 21 U.S. Corporate HIV/AIDS Funders ACRONyMS AND ABBREVIATIONS ARV = antiretroviral drug HCWs = healthcare workers PLWHA = people living with HIV/AIDS CBO = community-based IDUs = injecting drug users organization STI = sexually transmitted MSM = men who have sex infection CDC = U.S. Centers for Disease with men Control and Prevention UNAIDS = Joint United NGO = non-governmental Nations Programme on EFG = European HIV/AIDS organization HIV/AIDS Funders Group OVC = orphans and Note on text: FCAA = Funders Concerned vulnerable children All figures marked in $ are U.S. About AIDS PEPFAR = U.S. President’s dollar amounts. Global Fund = Global Fund Emergency Plan for to Fight AIDS, Tuberculosis AIDS Relief and Malaria
  • 5. execUtive SUmmary T otal HIV/AIDS-related philanthropy by U.S.-based funders increased by 11% between 2007 and 2008, rising from $555 million to $618 million in estimated disbursements. This increase was solely due to increased funding by the world’s largest private philanthropy engaged in HIV/AIDS, the Bill & Melinda Gates Foundation. Without funding from the Gates Foundation, estimated disbursements actually decreased slightly (by approximately 3%) from 2007 to 2008. Key findings and highlights for 2008 include: ww HIV/AIDS-related philanthropic funding is increasingly concentrated among a relatively small number of funders. The Gates Foundation alone accounted for 59% of funding disbursements in 2008. The top 10 funders, including the Gates Foundation, accounted for 82% of all HIV/AIDS-related disbursements in 2008. ww Corporate funders represented 16% of total 2008 disbursements, and 42% of all non-Gates HIV/AIDS-related philanthropy that year. ww Most funding in 2008 (84% of disbursements) was directed to addressing the HIV/AIDS epidemic outside of the United States. Even without the Gates Foundation, which exclusively funds HIV/AIDS projects outside of the U.S., the majority of funding (59%) by other top funders was directed outside the U.S., and an increased percentage of funders since 2007 (66% of funders in 2008, compared to 55% in 2007) devoted some or all of their giving to addressing the international epidemic. A growing share of this funding was given to organizations based in sub-Saharan Africa (42% in 2008, compared with 33% in 2007), and Asia and the Pacific (22% in 2008, up from 14% in 2007). ww Correspondingly, the share of funding for the domestic epidemic fell (from 18% of all funding in 2007 to 16% in 2008), and a lesser percentage of the top funders provided funding exclusively to address domestic HIV/AIDS issues in 2008. As in previous years, the Northeast region of the United States received the largest share of domestic funding (41%). Increased funding is needed in all regions—especially in Southern states, which continue to account for the greatest number of new AIDS diagnoses and the largest number of people living with HIV/AIDS (PLWHA). ww The biggest share of international funding went to research in 2008 ($215 million), followed by prevention ($112m) and treatment ($80m). The biggest share of domestic funding went to HIV prevention in 2008 ($27 million), followed closely by social services ($24m) and treatment ($21m). Smaller shares of both international and domestic funding were allocated to advocacy—which traditionally lags behind research, prevention and treatment—and orphans and vulnerable children (OVC) and human resources, two new categories this year. ww PLWHA were identified more frequently than any other population group as beneficiaries of both international and domestic philanthropy by U.S.-based funders. Internationally, other population groups identified after PLWHA were, in rank order, women, youth, OVC, and injecting drug users (IDUs). Domestically, after PLWHA, funders identified, in rank order, African-Americans, gay men and men who have sex with men (MSM), youth, homeless/impoverished persons, women, and IDUs. It is notable that while data from the U.S. Centers for Disease Control and Prevention (CDC) indicate over half of new HIV infections in the United States in 2006 were among gay and bisexual men, only a third of domestic funders identified this group as a top beneficiary of their organizations’ giving. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 3
  • 6. execUtive SUmmary Similarly, African-Americans accounted for almost half of new HIV infections in 2006, but only a third of domestic funders identified this group as a top target population of their funding. ww Looking ahead, funder projections for 2009 suggest that HIV/AIDS-related philanthropy funding levels will likely decrease: 42% of funders are forecasting anticipated decreases for 2009, including six of the top 10 funders. Forty-three percent of funders expect their HIV/AIDS-related disbursements to remain approximately the same or are unsure about 2009 funding levels, while only 15% of funders expected their funding to increase in 2009. This is the lowest percentage of funders expecting an increase on record since FCAA began surveying funders about their predictions for the upcoming year. These findings carry several important implications for HIV/AIDS philanthropy. A trend of note this year is that aggregate HIV/AIDS-related disbursements among funders other than the Gates Foundation were flat from 2006 to 2007, and slightly decreased from 2007 to 2008 (by 3%). Given the extent of the economic crisis, increasing or even maintaining a stable level of HIV/AIDS financing through 2008 may have been a challenge for some funders, and funders deserve praise and recognition for the maintenance of support for critical HIV/AIDS work in 2008. Yet the needs of individuals and communities affected by HIV/AIDS have not leveled off since 2006; they continue to grow. Internationally, the economic downturn has exacerbated the situation on-the-ground as it disproportionately impacts poorer countries, home to the vast majority of the tens of millions of people affected by HIV, who need more at precisely the time that donors are less able to provide such financing. Some international donors and governments are likely to cut health budgets, resulting in reduced funding for HIV/AIDS services. On the domestic front, many states are facing major deficits that will result in millions of dollars in budget cuts to HIV/AIDS programs, with prevention activities being some of the hardest-hit. Such cutbacks place the health and well-being of millions of people at risk, and threaten to stall progress toward scaling up HIV prevention, treatment, and care for all in need. Private philanthropic funders have a unique opportunity to target funding for populations and issues that governments and other donors are reluctant to prioritize because they are perceived as too specific or controversial—such as advocacy activities that support the rights of PLWHA and marginalized communities, or prevention strategies that include harm reduction. The need is all the more urgent because in many countries and contexts, the activities perceived as more controversial (prevention programs for higher risk populations, for example) are more vulnerable to public budget cuts than other programs 4 FUNDERS CoNCERNED AboUT AIDS
  • 7. because they have less political support. Private philanthropic funders should consider developing programs and strategic collaborations aimed at increasing the level and scope of targeted resources for these types of activities. Private philanthropic funders should also consider resourcing local NGOs and community-based organizations, which tend to be the most effective agents at reaching and delivering services to the most vulnerable HIV- affected individuals and families, and thus, are primed to best engender a longer-term, sustainable response. Current economic and epidemiological realities demand greater resources for HIV/AIDS, not acceptance of stable levels, and further yet, more effective uses of the resources at hand. The economic crisis introduces new opportunities for critical funding, and can be seen as a catalyst towards ensuring that the resources that are available have maximum impact. Funders should be creative and committed in their efforts to increase resources and to sharpen the focus and effectiveness of their programs, in order to sustain the momentum made and ensure support to people living with and affected by HIV/AIDS, even in tougher financial times. Approximately 33 million people are currently living with HIV around the world. Effective HIV treatment reaches only one in three people in need, however, and for every two people who start treatment, another five are newly infected. According to UNICEF, as of 2005, more than 15 million children under 18 had lost one or both parents to AIDS, and in 2007, 2.1 million children were living with HIV. There are over 1 million people in the United States living with HIV today, the highest number of all the world’s industrialized countries. It is estimated that more than 20% of them do not know they are infected. In the U.S., there are 56,000 new HIV infections each year. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 5
  • 8. aboUt fcaa and thiS rePort F unders Concerned About AIDS (FCAA) was founded in 1987 with the mission to mobilize the leadership, ideas, and resources of U.S.-based funders to eradicate the HIV/AIDS pandemic – domestically and internationally – and to address its social and economic consequences. FCAA is the only U.S.-based organization comprised of and for private philanthropic institutions engaged in the response to HIV/AIDS. For more than 20 years, FCAA has fostered and enhanced a meaningful grantmaker response to HIV/AIDS here in the United States and abroad. In early 2009 FCAA staff and board entered into a strategic planning process to determine our organizational and programming priorities, and emerged reaffirmed in our vision: to create a philanthropic sector that works collaboratively, informedly and urgently to ensure that the HIV/AIDS epidemic is halted, and that the communities already affected by it receive the resources they need. The new economy necessitates working together to maximize our resources in the fight against HIV and AIDS. However, we also realize that partnerships are not forged overnight. In order to focus on building a community of funders through open dialogue and trust, FCAA convened our first-ever annual gathering in September 2009. See Page 22 for a review of the significant themes defined by gathering attendees around the role of private philanthropy in contributing to an end to the pandemic. This signature publication series is proof that collaboration is not just part of our vision, it is the cornerstone of our approach. Four years ago FCAA, the European Foundation Centre’s European HIV/AIDS Funders Group (EFG), and UNAIDS created the Working Group on Global Philanthropic Resource Tracking to formalize the working relationships that had existed among these three groups for years, and to further harmonize our collection approaches and present the most accurate possible picture of HIV/AIDS-related institutional philanthropy. Along with this publication, and EFG’s 2008 resource tracking work, a specific result of this collaboration can be found in Appendix D, which includes an enhanced contact list and profiles of select funding organizations located outside of the U.S. and Western and Central Europe. At FCAA’s Annual Gathering, Keynote speaker Stephen Lewis, Co-Director of AIDS-Free World, urged funders to partner closely with organizations on-the-ground; this project provides a beginning list of potential local partners and new insight into the landscape of global philanthropy. This is FCAA’s seventh annual publication that provides data and analysis on HIV/AIDS- related philanthropic giving by U.S.-based philanthropic institutions, including private, family, and community foundations, public charities, and corporate grantmaking programs. This edition covers funding disbursements made in 2008. All information in this report is accurate and current as of September 2009. This year’s Top U.S.-Based HIV/AIDS Funders list includes the top 72 U.S. HIV/AIDS philanthropic entities. Each of these entities disbursed $300,000 or more to HIV/AIDS in 2008. Where possible, we have observed changes in grantmaking among these top funders. 6 FUNDERS CoNCERNED AboUT AIDS
  • 9. Now, more than ever, FCAA’s resource tracking publication is poised to analyze the true impact of the economic crisis on HIV/AIDS grantmaking. While the funding landscape has changed, there is still room for optimism. Throughout the publication you will find profiles of grantmaker innovation: building the next generation of leaders in HIV prevention and advocacy; taking a collaborative approach to comprehensive sexual education in an urban school district; and funding grassroots organizations to effectively reach at-risk populations on-the-ground. Some funders receive substantial funding from the U.S. government to implement HIV/AIDS programming or distribute funding to other programs. While we know these public/private partnerships are extremely valuable in ensuring that funds are allocated effectively, government funds (which are tracked and reported by UNAIDS) are not included in total grantmaking reported here because this report focuses exclusively on private sector philanthropy. See page 16 for a sidebar on public/private partnerships. As noted in Table 1, some funders reported that they received some financial resources from other funders tracked by FCAA. At least some of these funds were used to support HIV/AIDS- related funding to other institutions. In order to avoid double-counting, the top grantmakers total in Table 1 reflects a reduction of $19,644,373 to correct for reported re-granting of funds from one FCAA-tracked top grantmaker to another. FCAA’s resource tracking work is intended to contribute to a critical and thoughtful assessment of the total U.S.-based philanthropic investment in HIV/AIDS. By building upon HIV/AIDS grantmaking information reported by The Foundation Center and Foundation Search, and collecting other types of detailed data directly from the HIV/AIDS funders, FCAA’s goal is to create an easy-to-use, comprehensive, and informative publication that captures the scope and depth of philanthropic funding and support for HIV/AIDS. FCAA hopes that this report will enable a wide variety of readers to gain new understanding about the overall distribution and diversity of U.S. HIV/AIDS philanthropic funding as well as trends in this grantmaking. We welcome input from readers about how to make future editions of U.S. Philanthropic Support more useful. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 7
  • 10. 2009 review and the road ahead T he most recent UNAIDS update on the global AIDS epidemic, released in November 2008, suggested that new infections were stabilizing in sub-Saharan Africa and most other parts of the world—a refreshing affirmation that something was indeed working in the fight against AIDS. The six-fold increase in HIV/AIDS financing from public and private funders since 2001 has been crucial to this progress. Such powerful momentum can and should be sustained even as the world struggles to overcome the challenges associated with the global economic crisis that began suddenly in 2008. The global economic downturn has negatively affected the lives of millions of people around the world, but few have faced as much uncertainty as HIV-affected individuals and members of vulnerable populations. It is estimated that the global economy as a whole will shrink this year for the first time since the 1940s. The impact is already particularly devastating among people living in low- and middle-income countries, which have limited resources to help citizens weather the downturn. Many governments have been forced to reduce social-sector spending even as the value of remittances from abroad—a key source of income in several resource-constrained countries around the world—has declined. The World Bank has estimated that some 200 million people around the world will have been pushed into poverty (living on less than $2 a day) in the 18 months prior to the end of 2009 due to a combination of rising joblessness and higher food and energy prices.1 As individuals and families become poorer, they have less disposable income to spend on health care (significant in regions like sub-Saharan Africa, where up to two-thirds of health expenditures are out-of-pocket), while the other necessities of life (such as basic nutrition, safe water, housing, and children’s education) become more difficult to afford. The current and potential risks to the health and well-being of millions of PLWHA and their families are numerous. For example, they may not be able to afford transport fares to clinics, let alone pay various fees for services that once were cheaper or free. Faced with major budget constraints, governments in some countries (such as Tanzania and Botswana) have made plans to reduce spending on national AIDS programs. According to a joint UNAIDS and World Bank report released in June 2009, treatment programs in 31% of the countries surveyed were expected to fall short of necessary resources by the end of 2009 if current trends continue.2 The situation is likely to be even more devastating for prevention programs, especially those targeting marginalized populations, because such programs tend to be the first cut when budgets tighten. 1 World bank press release. “Crisis Hitting Poor Hard in Developing World, World bank says.” February 12, 2009. http://web.worldbank.org/WbSITE/ It is therefore increasingly clear that most poorer and high-burden countries desperately need EXTERNAl/NEWS/0,,contentMDK:22067 additional external help to maintain and further develop effective prevention interventions, 892~pagePK:64257043~piPK:437376~theS itePK:4607,00.html enhance the focus on the interconnections between reproductive health and rights and HIV/ AIDS, support the myriad needs of especially marginalized HIV/AIDS populations such 2 UNAIDS and the World bank. The Global Economic Crisis and HIV as OVC, MSM and women, and ensure the provision of basic services to people currently Prevention and Treatment Programmes: Vulnerabilities and Impact. June 2009. receiving lifesaving HIV/AIDS treatment and support. Available at: http://data.unaids.org:80/ pub/Report/2009/jc1734_econ_crisis_ hiv_response_en.pdf Bilateral and multilateral donors have been able to uphold their funding commitments through 2008 and 2009, but there may be some potential shortfalls on the horizon. As of November 3 Global Fund website. “latest figures on pledges and contributions to the 2009, secured funding for the Global Fund to Fight AIDS, Tuberculosis and Malaria totaled Global Fund.” November 2, 2009. http://www.theglobalfund.org/en/ $9.5 billion, little more than two-thirds of expected demand for 2008–2010.3 The launch of a resources/?lang=en new, comprehensive global health initiative by the Obama Administration in the midst of the 8 FUNDERS CoNCERNED AboUT AIDS
  • 11. difficulties of the economic crisis was welcome. Yet there is concern that the FY 2010 budget request to Congress for HIV/AIDS and the Global Fund through PEPFAR does not include any significant increase over FY 2009 levels, and will not be enough. HIV/AIDS was also not on the agenda at the July 2009 G8 summit in Italy, also raising concern that world leaders no longer consider the epidemic a major priority, and are failing to honor their commitment, made at a summit in 2005, to provide adequate resources to achieve universal access to HIV prevention, care and treatment by 2010. A recent survey conducted by the Henry J. Kaiser Family Foundation found that the U.S. public’s sense of urgency about the domestic HIV/AIDS epidemic as a national health problem has greatly decreased over the past decade4. A concomitant decline was seen in regards to understanding or concern about personal risk, even among members of groups most vulnerable to HIV. Such complacency is dangerous, given that the annual number of new infections in the United States has remained the same over the past decade—about 56,000—and almost a quarter of those infected are not aware of their status. Also alarming is the domestic epidemic’s disproportionate impact on racial and ethnic minorities and gay and bisexual men. To put it in perspective, compared with the global epidemic, the total number of African-Americans living with HIV in the United States is greater than the total number of HIV-infected people in seven of the 15 PEPFAR focus countries, and on its own would represent the 16th largest epidemic in the world.5 Domestic HIV prevention in particular requires more focus and more funding, as certain populations (African Americans and MSM) are not being effectively reached, and 21% of HIV- infected persons in the U.S. do not know they are infected. Yet prevention programs represented the smallest share (only 4%) of the FY2009 and FY2010 federal HIV/AIDS funding6. And, as a result of the economic crisis, state and local governments have been reducing budgets, cutting prevention programs as well as health and administrative staff for HIV/AIDS programs sharply. According to a survey by the National Alliance of State and Territorial AIDS Directors (NASTAD), 74% of HIV/AIDS programs that receive state funding experienced cuts to HIV prevention activities in 2009 as a result of state budget cuts. (The comparable share of HIV treatment programs receiving state funding that experienced cuts in 2009 was nearly 50%.) The economic crisis has impacted most private philanthropic funders of HIV/AIDS. Some have reduced grantmaking and scaled back the provision of human and financial resources. For funders that rely on endowments for their source of wealth, the financial downturn, beginning in late 2007, has since cut a significant percentage of the value of their assets, with some sustaining losses exceeding 30% to date. Meanwhile, funders that rely on fundraising 4 The Henry J. Kaiser Family for income are finding it more difficult to secure existing donors as well as identify new ones. Foundation, press release, “less than a year after CDC announced the U.S. HIV Regardless of income source, therefore, some funders have had to make difficult decisions this epidemic is much larger than previously year—including 1) reductions in staff, salaries, benefits, or extra costs such as travel in order thought, public’s sense of urgency is down, even among some higher risk to maintain current levels of grantmaking or limit the scope of cuts; and/or 2) reductions in groups”. April 28, 2009. www.kff.org/ new or existing grantmaking. With no clear confidence in financial security for the future, the kaiserpolls/posr042809nr.cfm%20 overall atmosphere is such that funders may be averse to supporting new or different projects. 5 black AIDS Institute. Left Behind: Black America, A Neglected Priority in the Global AIDS Epidemic. August 2008. All of these factors contribute to an atmosphere of pessimism and uncertainty regarding the www.blackaids.org/image_uploads/ article_575/08_left_behind.pdf future of both the domestic and international HIV/AIDS response. It is necessary, though, that all stakeholders recognize the importance of maintaining the hard-earned momentum built 6 The Henry J. Kaiser Family Foundation, HIV/AIDS Policy Fact Sheet, up over the past decade of increased investments in HIV/AIDS and health service delivery. “U.S. Federal Funding for HIV/AIDS: The FY 2009 budget Request.” April 2008. These investments have paid off in countless ways, most notably in the huge number of lives www.kff.org/hivaids/upload/7029-041.pdf saved. Instead of a reason to retrench, the economic crisis should be viewed as an opportunity U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 9
  • 12. 2009 review and the road ahead to ensure that the limited resources available have maximum impact. Instead of succumbing to “HIV/AIDS fatigue,” or leaving AIDS behind to focus on other issues, all global players— multilateral and bilateral donors, governments in needy countries, and private philanthropists— should look anew at the epidemic, focusing on identifying and utilizing the most effective evidence-based solutions to rally additional resources and ensure continued progress on all fronts: human rights, prevention, social services, care, and treatment. Private philanthropy has a critical and unique role in such efforts. Advocacy activities, especially those that empower PLWHA, marginalized populations and others affected by HIV/AIDS, are key to building campaigns, movements, and networks that support leadership among these populations, a development that helps give them a stronger voice and influence in policymaking, and creating social change. For a variety of reasons, they are also activities that large multilateral and bilateral organizations and national governments are less likely to support. Many smaller funders make up the field of private philanthropy, and, compared with larger donor organizations or governments, private philanthropic funders can respond much more flexibly to targeted prevention and treatment initiatives (such as the provision of clean syringes to injecting drug users) and the particular needs of marginalized populations (such as MSM, sex workers, and migrants). These are issues and populations that many larger and more formal entities ignore, at best, or discriminate against (at worst). Collaborations among private philanthropic funders, as well as with corporations, governments, and large bilateral and multilateral organizations, are another important avenue to pursue in the near future. Funders can help each other meet mutual goals by coordinating and sharing best practices and skills, establishing successful models of service delivery, and leveraging investments to bring in additional commitments and resources. Partnerships should also be fostered with community-based organizations, thereby increasing the local capacity of constituents as a longer-term sustainable solution. The economic downturn has forced funders to take stock of their work and to streamline programs to be as critically effective as possible. This could be precisely what is needed to sustain the momentum of past years and enhance it in the future. To achieve the goal of universal access to HIV prevention, treatment, and care by 2010, and the Millennium Development Goal of halting and reversing the spread of HIV by 2015, HIV/AIDS philanthropists must closely examine their successes and failures, join together with colleagues, and recommit to combating the epidemic with their best efforts. 10 FUNDERS CoNCERNED AboUT AIDS
  • 13. total U.S. hiv/aidS grantmaking in 2008 FCAA identified 345 U.S.-based funders that made HIV/AIDS-related grant disbursements in 2008. Combined, these funders supported some 6,300 HIV/AIDS-related grants or projects, disbursing a total of approximately $618 million to these projects. Note on missing data: The great majority of private philanthropic funding for HIV/AIDS in 2008 has been captured in the available data. However, it is important to note that despite repeated efforts, FCAA was unable to receive data from some funders, and they are not included in the report. No data were received from the Children’s Investment Fund Foundation (US), which was a top funder in 2005, 2006, and 2007; the Coca-Cola Africa Foundation, which was a top funder in 2004, 2005, and 2006; and Gilead Sciences, which was a top funder in 2005. In addition, several other funders that have appeared in previous reports are not included this year for various reasons. They include the Rockefeller Foundation (which is focusing increasingly on health systems strengthening and not disease-specific programming) and The Henry J. Kaiser Family Foundation7 (an operating foundation that develops and runs its own policy research and communications programs, which are increasingly difficult to value financially). Two corporate funders that appeared in past reports (ExxonMobil and Altria Group) moved away from funding HIV/AIDS in 2008. FCAA surveyed funders about funding commitments and disbursements in 2008. Tracking commitments (funding pledged for grants/projects in a given year, whether or not the funds were disbursed in that year) helps to gauge current and future outlays. Tracking disbursements (funding actually made available in a given year, which may include funding from prior year commitments) provides data on funds actually disbursed in a given year. For some funders, commitments and disbursements are the same in a given year; for others, commitments indicate funding above or below actual disbursements in a year.) Among all funders for which FCAA has both 2007 and 2008 data, the total value of disbursements increased 17% from 2007 to 2008. Chart 1a: Total HIV/AIDS Grantmaking Disbursements by U.S. Philanthropies 2005-20088 7 The Henry J. Kaiser Family Foundation is a private operating foundation with HIV-related 2005 $351 activities that are increasingly integrated throughout its programs across the entire foundation. 2006 $501 Though the foundation is usually one of the top ten funders in terms of highest annual disbursements, it 2007 $544 is no longer possible to separately identify and report the level of foundation resources dedicated 2008 $612 specifically to HIV/AIDS. It should be noted that the foundation has maintained its commitment and $0 $100 $200 $300 $400 $500 $600 $700 level of resources dedicated to HIV/AIDS both domestically and globally. (See Appendix A HIV/AIDS Grantmaking (in $ millions) for a larger discussion about operating foundations and Kaiser’s contributions.) 8 This chart includes only the funders for which FCAA has all four years of disbursement data (2005, 2006, 2007 and 2008) for 2005-2008. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 11
  • 14. total U.S. hiv/aidS grantmaking in 2008 Among the top funders9 tracked by FCAA, commitments decreased 16% between 2007 and 2008. Chart 1b: Total HIV/AIDS Grantmaking Commitments by U.S. Philanthropies 2000-200810 2000 $312 2001 $501 2002 $300 2003 $394 2004 $346 2005 $354 2006 $979 2007 $491 2008 $413 $0 $200 $400 $600 $800 $1000 $1200 HIV/AIDS Grantmaking Commitments (in $ millions) 9 “Top funders” are those identified by FCAA that have disbursed $300,000 or more to HIV/AIDS grants and projects in a given year. In 2008, a total of 72 funders met that criterion. 10 This chart includes all commitments data available for all top funders each year. 12 FUNDERS CoNCERNED AboUT AIDS
  • 15. toP U.S. hiv/aidS fUnderS in 2008 Seventy-two funders reported HIV/AIDS-related grantmaking disbursements of $300,000 or more in 2008. All are listed in Table 1. Table 1: Top 72 U.S. HIV/AIDS Funders in 2008 (ranked by amount of disbursements)11 Name Disbursements ($) Commitments ($) 1. bill & Melinda Gates Foundation, WA 378,482,751w w 234,155,177 2. The Ford Foundation, NY 27,777,195w w 31,714,691 3. Abbott and Abbott Fund, Il 25,229,419w w 0 4. M•A•C AIDS Fund and M•A•C Cosmetics, NY 23,461,948w w 27,362,165 5. Merck & Co., Inc, NJ 13,368,736w w Not available 6. open Society Institute, NY12 12,494,236w w 12,494,236 7. Johnson & Johnson, NJ 11,667,000w w 11,667,000 8. bristol-Myers Squibb Foundation and bristol-Myers Squibb Co., NY 10,383,997w w 4,553,626 9. broadway Cares/Equity Fights AIDS, NY 10,039,298*w w 10,039,298 10. Pfizer Inc and Pfizer Foundation, NY13 9,162,372 Not available 11. Irene Diamond Fund, NY 8,305,366w w 9,820,866 12. Elton John AIDS Foundation, NY 6,375,034*w w 6,375,034 13. Tides Foundation, CA14 5,494,462*w w 3,044,581 14. The Foundation for AIDS Research (amfAR), NY 5,100,050*w w 4,619,805 11 The state associated with each entity 15. Robin Hood Foundation, NY 4,895,000w w 5,135,000 refers to the state in which the entity is based, not necessarily where grants and 16. National AIDS Fund, DC 4,750,273*w w 5,456,797 projects are funded by the entity. 17. Elizabeth Glaser Pediatric AIDS Foundation, CA 4,168,868*w w 4,756,639 12 The 2008 dollar amounts provided by 18. Doris Duke Charitable Foundation, NY 3,830,000w w 2,790,000 the open Society Institute are estimates 19. HIV Collaborative Fund, a project of the Tides Center, CA 3,001,210* Not available and not exact figures. These estimated disbursements only include HIV/AIDS- 20. Rockefeller brothers Fund, Inc., NY 2,550,000w w 2,692,500 related grants made to 1) the open Society Institute’s Public Health Program, 21. The Starr Foundation, NY 2,005,000w w 10,005,000 2) the Southeast Asia Initiative/burma 22. W.K. Kellogg Foundation, MI 1,985,000 Not available Project, and 3) national and regional Soros Foundations. They do not include 23. Global Fund for Women, CA 1,968,090*w w 2,058,600 HIV/AIDS-related grants made by any 24. Firelight Foundation, CA 1,872,084*w w 1,977,584 other Soros Foundation network program or entity. 25. levi Strauss & Co., CA 1,809,000w w 1,809,000 26. The New York Community Trust, NY 1,746,000*w w 1,746,000 13 This figure includes grants from both Pfizer Inc. and the Pfizer Foundation, but 27. The Wells Fargo Foundation, CA 1,722,269 Not available should be regarded as an estimate that does not include all HIV/AIDS funding due 28. AIDS Foundation of Chicago, Il 1,663,982* Not available to the unavailability of complete data. 29. American Jewish World Service, NY 1,640,623w w 1,430,009 14 A large part of HIV Collaborative Fund 30. The Sidney Kimmel Foundation, PA 1,640,000 Not available monies are included in the total figure for 31. GlaxoSmithKline US, NC15 w 1,575,174 Not available Tides Foundation, but the Collaborative Fund also handles funds that are not 32. The San Francisco AIDS Foundation, CA w 1,512,500w w 750,000 included in the Tides Foundation total. Double counting of funds is corrected in 33. Silicon Valley Community Foundation, CA 1,435,066 Not available the aggregate total of disbursements. 34. Washington AIDS Partnership, DC w 1,354,984*w w 1,199,620 15 The figure for GlaxoSmithKline includes grants data from the U.S. branch of the company only. The company is headquartered in the United Kingdom, and non-U.S. HIV/AIDS funding (approximately $4.7 million in 2008) is tracked in the European HIV/AIDS Funders Group (EFG) resource tracking report (see www.hivaidsfunders.org to view the report, European Philanthropic Support to Address HIV/AIDS in 2008). U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 13
  • 16. toP U.S. hiv/aidS fUnderS in 2008 Table 1, continued Name Disbursements ($) Commitments ($) 35. Pride Foundation, WA w 1,316,952w w Not available 36. Missouri Foundation for Health, Mo w 1,185,662w w 1,421,612 37. H. van Ameringen Foundation, NY 1,091,000w w Not available 38. Children Affected by AIDS Foundation, CA w 1,057,593*w w 1,057,593 39. Alphawood Foundation, Il w 1,057,000w w Not available 40. The Design Industries Foundation Fighting AIDS (DIFFA), NY w 1,026,131w w 1,264,008 41. James b. Pendleton Charitable Trust, WA w 990,411w w 990,411 42. International Fund for Health & Family Planning, NY 950,109w Not available 43. The Comer Foundation, Il w 940,775w w 940,775 44. The William and Flora Hewlett Foundation, CA w 900,000w w 1,049,048 45. The Pew Charitable Trusts, PA w 881,000w Not available 46. Weingart Foundation, CA w 773,400w Not available 47. United Nations Foundation, DC w 753,346*w w 953,346 48. The Anne Dinning and Michael Wolf Foundation, NY 750,000w Not available 49. The Harry and Jeanette Weinberg Foundation, Inc., MD 725,000w Not available 50. boston Foundation, Inc., MA w 713,850*w Not available 51. South Africa Development Fund, MA w 686,928*w w 686,928 52. Macy’s Foundation, oH w 673,070w Not available 53. Evelyn and Walter Haas, Jr. Fund, CA w 645,000w w 505,000 54. The John D. & Catherine T. MacArthur Foundation, Il 615,000w w 250,000 55. The Summit Foundation, DC w 568,000w w 568,000 56. The David and lucile Packard Foundation, CA w 550,000w w 1,580,000 57. AIDS Funding Collaborative, oH w 544,763*w w 525,048 58. bD (becton, Dickinson and Company), NJ w 524,000w w 250,000 59. Houston Endowment Inc., TX w 522,500w w 465,000 60. Arcus Foundation, MI w 510,000w Not available 61. The Skoll Foundation, CA w 510,000w Not available 62. The Community Foundation for the National Capital Region, DC w 504,030w Not available 63. The John M. lloyd Foundation, CA w 484,550w w 334,550 64. Staying Alive Foundation, NY w 480,810w w 665,458 65. San Diego HIV Funding Collaborative, CA w 470,081w w 541,000 66. The Campbell Foundation, Fl w 442,946w w 442,946 16 The Indiana AIDS Fund is a program 67. Indiana AIDS Fund, IN16 w 424,550w w 424,550 of the Health Foundation of Greater 68. The Health Foundation of Greater Indianapolis, IN 394,740w w 418,251 Indianapolis; however, the two conduct separate RFPs and grantmaking. 69. Charles Stewart Mott Foundation, MI w 370,000w Not available 17 Funders with an asterisk (*) after 70. World Children’s Fund, CA w 322,019w Not available their total reported that they received 71. The Duke Endowment, NC w 320,929w Not available some financial resources from other agencies tracked by FCAA. At least some 72. The Denver Foundation, Co w 315,500w Not available of these funds were then re-granted to support HIV/AIDS-related funding to other institutions. To avoid double counting 2008 HIV/AIDS Grantmaking Disbursements by Top 7217 $600,814,259 of funds, the top 72 subtotal reflects a 2008 HIV/AIDS Grantmaking Commitments by Top 72 $412,986,752 reduction of $19,644,373 to correct for re-granting of funds from one FCAA- Total 2008 U.S. HIV/AIDS Grantmaking Disbursements $617,883,789 tracked top grantmaker to another. The total amount for all grantmakers also reflects a reduction of $19,644,373 to account for re-granting of funds from one FCAA-tracked grantmaker to another. See Appendix A for a more full explanation of the methodology used for this report. 14 FUNDERS CoNCERNED AboUT AIDS
  • 17. concentration of hiv/aidS fUnderS HIV/AIDS funding by U.S.-based private philanthropic funders is increasingly concentrated among a relatively small number of entities. Funding disbursements from the largest U.S. HIV/AIDS grantmaker, the Bill & Melinda Gates Foundation, accounted for 59% of all identified HIV/AIDS grantmaking disbursements in 2008—a slightly higher share than the 54% recorded for 2007. The top 10 U.S. HIV/AIDS funders, including the Gates Foundation, accounted for 82% of all identified HIV/AIDS grantmaking disbursements in 2008 (a slight increase from 79% in 2009). Chart 2: Distribution of Disbursements by Amount of the U.S. HIV/AIDS Funders in 2008 (by percentage of total disbursements) Largest funder (Gates) 59% Funders 2-10 23% Funders 11-26 9% Funders 27-72 6% Funders 73-345 3% U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 15
  • 18. INCREASING IMPACT THROUGH PUBLIC/PRIVATE PARTNERSHIPS THE WASHINGTON AIDS PARTNERSHIP In November 2007 headlines across the country pronounced Washington, D.C. as home to the highest HIV infection rate among U.S. cities. The first statistics amassed on HIV in the District revealed “a modern epidemic remarkable for its size, complexity and reach into all parts of the city.” The Washington AIDS Partnership, an initiative of the Washington Regional Association of Grantmakers, is the largest private funder of HIV/AIDS prevention, education and advocacy services in the Washington, D.C. metropolitan region. The Partnership awards approximately $1 million a year to local HIV/AIDS agencies, and also works to find ways to increase local HIV/AIDS resources and foster collaborative relationships with a variety of local and national partners. In 2008 the Partnership formed a new public-private partnership with the D.C. government and the HIV/AIDS Administration (HAA) to expand the HIV medication safety-net and improve advanced planning for D.C.’s AIDS Drug Assistance Program (ADAP). ADAP is a federal program that provides funding to states for HIV medication for low- income individuals with HIV/AIDS who have limited or no access to prescription drugs. At FCAA’s Annual Gathering in September, Washington AIDS Partnership Executive Director Channing Wickham (far left) A significant problem with enrollment and planning had led to $5.8 moderated a panel on the local epidemic. Dr. Shannon Hader (far million in unspent federal ADAP funding in the District – money that the right), Director, HIV/AIDS Administration, D.C. Department of Health, D.C. government would have had to forfeit. As a result of this public- joined the panel to emphasize the District’s growing leadership in private partnership, the surplus was transferred to the Washington innovative public-private partnerships. AIDS Partnership to examine best practices in the field, ensure that D.C. has an innovative drug procurement and delivery process in place, and According to Channing Wickham, Executive Director of the Washington purchase much-needed HIV medications for low-income individuals AIDS Partnership, the District’s approach to ADAP had not been living with HIV/AIDS. evaluated prior to 2008. “In order to create the type of forward-looking program that can be responsive to shifts in enrollment and drug utilization, we first had to study and align ourselves with best practices With a staff of two and a 23 member advisory committee of from around the world.” The Partnership contracted John Snow, Inc. funders, experts, and individuals living with HIV/AIDS to guide (JSI), a public health research and consulting firm, to provide technical the work, the Washington AIDS Partnership invests resources assistance in establishing an HIV Medication Pipeline to ensure the in local organizations to improve HIV/AIDS prevention and supply of antiretroviral (ARV) drugs and other HIV medications for the care services in the Washington, D.C. region. In addition to D.C. ADAP. JSI’s detailed analysis included the exploration of alternative grantmaking, activities include providing techincal assistance to sources of supply and options for procurement of ARV drugs, as well local organizations, facilititating local public policy initiatives as the development of a forecasting methodology to guide long-term to improve the HIV/AIDS system of prevention and care, and planning and management of the HIV Medication Pipeline. recruiting and mentoring a team of young people who commit to a year of full-time volunteer service at local HIV/AIDS Ultimately, the scale up of the D.C. ADAP will maximize drug availability, agencies as AmiCorps members. HIV treatment stability, and enrollment of District residents who desperately need HIV medications. The public-private partnership is The Partnership is pursuing five important goals in its efforts to just one step in this massive effort: with new systems in place, a public end HIV/AIDS in the region. They are: marketing campaign will also be needed to work with providers on 1. PROMOTING EFFECTIVE POLICy; getting HIV positive people back into care and treatment. “In this type 2. BUILDING NONPROFIT CAPACITy; of partnership, you have access to resources far beyond your own,” 3. PROMOTING BEST PRACTICES; says Wickham. “As private philanthropy, our fluency in grantmaking 4. DEVELOPING AND INVESTING IN LEADERS; and ability to negotiate flexible contracts has complemented the 5. ENGAGING PHILANTHROPIC PARTNERS. public sector’s epidemiology expertise and access to federal dollars.” This unique combination of skills and resources has created the right For more information on the Partnership, and their goals, environment to support the D.C. government in the development of please visit: an innovative new model for drug access and provision in the www.washingtonaidspartnership.org/PDF/AFightWeCanWin.pdf District of Columbia. 16 FUNDERS CoNCERNED AboUT AIDS
  • 19. changeS in hiv/aidS grantmaking Among the top 72 U.S.-based HIV/AIDS funders for which FCAA had disbursements data for 2005 through 2008 (51 of 72 funders), a total of 41 reported a higher level of HIV/AIDS grantmaking disbursements in 2008 than in 2005. Thirty-six funders reported higher amounts of disbursements in 2008 compared with 2007. Table 2: HIV/AIDS Funders Reporting Higher Amounts of HIV/AIDS Grantmaking Disbursements in 2008 than 2005 (ranked by amount of increase between reported amounts for those years) Change % Name 2005 ($) 2006 ($) 2007 ($) 2008 ($) 05-08 ($) Change bill & Melinda Gates Foundation, WA 137,546,593w 257,855,885w 308,917,741w 378,482,751w 240,936,158w 175% M•A•C AIDS Fund and M•A•C Cosmetics, NY 9,122,623w 16,187,422w 22,042,057w 23,461,948w 14,339,325w 157% The Ford Foundation, NY 14,692,292w 22,669,531w 18,482,541w 27,777,195w 13,084,903w 89% Merck & Co., Inc, NJ 8,340,000w 15,696,000w 15,937,739w 13,368,736w 5,028,736w 60% Johnson & Johnson, NJ 7,812,000w 12,925,000w 12,490,000w 11,667,000w 3,855,000w 49% The Foundation for AIDS Research (amfAR), NY 2,568,944w 2,812,983w 2,085,840w 5,100,050w 2,531,106w 99% Elton John AIDS Foundation, NY 3,884,391w 4,805,874w 6,288,676w 6,375,034w 2,490,643w 64% National AIDS Fund, DC 2,568,944w 2,812,983w 2,085,840w 5,100,050w 2,531,106w 99% broadway Cares/Equity Fights AIDS, NY 7,986,298w 8,035,864w 8,824,046w 10,039,298w 2,053,000w 26% Robin Hood Foundation, NY 2,845,000w 3,805,000w 4,275,000w 4,895,000w 2,050,000w 72% Irene Diamond Fund, NY 6,426,715w 6,690,905w 7,127,787w 8,305,366w 1,878,651w 29% Tides Foundation, CA 3,976,736w 4,332,319w 5,037,793w 5,494,462w 1,517,726w 38% American Jewish World Service, NY 309,008w 1,839,061w 1,538,960w 1,640,623w 1,331,615w 431% Abbott and Abbott Fund, Il 23,933,226w 19,474,610w 26,449,721w 25,229,419w 1,296,193w 5% Pride Foundation, WA 73,000w 73,000w 77,864w 1,316,952w 1,243,952w 1704% The New York Community Trust, NY 730,000w 1,330,000w 1,545,450w 1,746,000w 1,016,000w 139% Firelight Foundation, CA 930,037w 1,507,723w 2,056,400w 1,872,084w 942,047w 101% W. K. Kellogg Foundation, MI 1,045,000w 1,520,073w 1,450,000w 1,985,000w 940,000w 90% Rockefeller brothers Fund, Inc., NY 1,650,000w 1,624,500w 2,050,000w 2,550,000w 900,000w 55% Global Fund for Women, CA 1,132,924w 1,371,583w 1,961,758w 1,968,090w 835,166w 74% U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 17
  • 20. changeS in hiv/aidS grantmaking Table 2, continued Change % Name 2005 ($) 2006 ($) 2007 ($) 2008 ($) 05-08 ($) Change Weingart Foundation, CA 35,000w 265,000w 130,000w 773,400w 738,400w 2110% boston Foundation, Inc., MA 80,000w 110,000w 140,280w 713,850w 633,850w 792% The Pew Charitable Trusts, PA 338,000w 0w 326,000w 881,000w 543,000w 161% Washington AIDS Partnership, DC 821,675w 1,010,800w 1,193,050w 1,354,984w 533,309w 65% AIDS Funding Collaborative, oH 49,565w 424,232w 386,398w 544,763w 495,198w 999% The Design Industries Foundation Fighting AIDS (DIFFA), NY 594,807w 683,000w 1,221,290w 1,026,131w 431,324w 73% Charles Stewart Mott Foundation, MI 48,600w 404,228w 260,000w 370,000w 321,400w 661% Children Affected by AIDS Foundation, CA 749,686w 911,364w 909,986w 1,057,593w 307,907w 41% The David and lucile Packard Foundation, CA 250,000w 750,000w 1,270,000w 550,000w 300,000w 120% bD (becton, Dickinson and Company), NJ 243,200w 837,464w 650,000w 524,000w 280,800w 115% The Wells Fargo Foundation, CA 1,470,175w 1,490,089w 1,607,101w 1,722,269w 252,094w 17% AIDS Foundation of Chicago, Il 1,435,148w 1,785,401w 1,186,594w 1,663,982w 228,834w 16% The Comer Foundation, Il 724,836w 806,000w 1,140,000w 940,775w 215,939w 30% International Fund for Health & Family Planning, NY 750,253w 1,703,029w 1,619,810w 950,109w 199,856w 27% H. van Ameringen Foundation, NY 933,500w 1,178,000w 1,434,000w 1,091,000w 157,500w 17% The Health Foundation of Greater Indianapolis, IN 933,500w 1,178,000w 1,434,000w 1,091,000w 157,500w 17% Evelyn and Walter Haas, Jr. Fund, CA 532,000w 585,000w 280,000w 645,000w 113,000w 21% The Community Foundation for the National Capital Region, DC 416,963w 472,067w 263,253w 504,030w 87,067w 21% The John M. lloyd Foundation, CA 404,175w 410,000w 390,000w 484,550w 80,375w 20% South Africa Development Fund, MA 614,041w 638,455w 686,828w 686,928w 72,887w 12% Indiana AIDS Fund, IN 375,550w 433,900w 515,050w 424,550w 49,000w 13% 18 FUNDERS CoNCERNED AboUT AIDS
  • 21. Of the top 72 funders for which FCAA had HIV/AIDS grantmaking disbursement data from 2005 through 2008, a total of 10 reported disbursing less in 2008 than in 2005. Twenty-three funders reported disbursing less in 2008 than in 2007. It should be noted that some changes in funding are not indicative of larger trends of decreases in funding for some funders. Many funders make multi-year commitments and expenditures of those commitments can vary greatly between years. Table 3: U.S. HIV/AIDS Funders Reporting Lower Amounts of HIV/AIDS Grantmaking Disbursements in 2008 than 2005 (ranked by amount of decrease between reported amounts for those years) Change % Name 2005 ($) 2006 ($) 2007 ($) 2008 ($) 05-08 ($) Change bristol-Myers Squibb Foundation and bristol-Myers Squibb Co., NY 26,806,679w 31,935,113w 15,996,612w 10,383,997w -16,422,682w -61% Elizabeth Glaser Pediatric AIDS Foundation, CA 8,580,706w 8,619,232w 5,821,951w 4,168,868w -4,411,838w -51% United Nations Foundation, DC 1,531,278w 6,708,922w 1,537,977w 753,346w -777,932w -51% Alphawood Foundation, Il 1,700,600w 2,275,000w 570,000w 1,057,000w -643,600w -38% The John D. & Catherine T. MacArthur Foundation, Il 1,138,000w 1,336,000w 1,817,000w 615,000w -523,000w -46% Missouri Foundation for Health, Mo 1,667,440w 2,147,438w 1,086,099w 1,185,662w -481,778w -29% levi Strauss & Co., CA 2,124,958w 2,212,370w 1,876,100w 1,809,000w -315,958w -15% The William and Flora Hewlett Foundation, CA 1,075,000w 1,390,417w 2,100,000w 900,000w -175,000w -16% The Campbell Foundation, Fl 603,400w 652,668w 644,687w 442,946w -160,454w -27% Houston Endowment Inc., TX 550,000w 1,040,000w 435,000w 522,500w -27,500w -5% U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 19
  • 22. 2009 forecaSt In the FCAA survey on 2008 funding, funders were asked about their anticipated grantmaking levels for 2009. Only 15% of HIV/AIDS funders that responded to this survey question (8 of 52 entities) indicated that they expected an increase in HIV/AIDS grantmaking in 2009, including only one of the top 10 funders. This is the lowest forecast for a year-on-year increase since FCAA began asking this question on the survey. Equally troubling is the sharp increase in the share of funders that forecast their 2009 grantmaking levels to be less than in 2008—41% (21 of 52 responding), compared with only 17% of respondents forecasting a year-on-year decrease for the report compiled in 2008 (on 2007 data). Six of the top 10 funders expect their funding to decrease in 2009. Forty-four percent (22 of 52) reported that they anticipate disbursements to remain at approximately the same level or were unsure. Chart 3: Forecast of 2009 U.S. Philanthropic HIV/AIDS Funding (by percentage of funders) Expect funding to remain the same in 2009, or unsure of likely levels 44% Expect funding to decrease in 2009 41% Expect funding to increase in 2009 15% 20 FUNDERS CoNCERNED AboUT AIDS
  • 23. U.S. corPorate hiv/aidS fUnderS In 2008, 11 corporate foundations and giving programs were among the top 72 U.S. HIV/AIDS funders identified by FCAA. The total estimated support of these 11 entities in 2008 was $100 million (1,831 grants), representing 16% of the $618 million total estimated HIV/AIDS U.S. philanthropy for 2008, and a 3% decrease in the amount of corporate giving compared with results reported for the 11 top corporate funders for 2007.18 Table 4: Top U.S. Corporate HIV/AIDS Funders in 2008 (ranked by amount of disbursements) Abbott and Abbott Fund, Il $25,229,419 M•A•C AIDS Fund and M•A•C Cosmetics, NY 23,461,948 Merck & Co., Inc, NJ 13,368,736 Johnson & Johnson, NJ 11,667,000 bristol-Myers Squibb Foundation and bristol-Myers Squibb Co., NY 10,383,997 Pfizer Inc and Pfizer Foundation, NY 9,162,372 levi Strauss & Co., CA 1,809,000 GlaxoSmithKline US, NC 1,575,174 The Wells Fargo Foundation, CA 1,722,269 Macy’s Foundation, oH 673,070 bD (becton, Dickinson and Company), NJ 524,000 Total $99,576,985 2009 Corporate Forecast Nine of the 11 corporate funders listed in Table 4 provided FCAA with information about their grantmaking, including whether they expected their HIV/AIDS-related funding to increase or decrease in 2009. None of the corporate funders forecasted funding to increase in 2009. Three expected grantmaking to remain about the same, two funders were unsure, and four funders said they expected funding to decrease in 2009. 18 FCAA reported $102.2 million in disbursements among the top 11 corporate HIV/AIDS funders in 2007. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 21
  • 24. BRINGING FUNDERS TOGETHER THE FIRST ANNUAL GATHERING OF FUNDERS CONCERNED ABOUT AIDS Alone we can impact the epidemic, together we can end it. - FCAA From September 16-18, 2009, balancing the hope and opportunity presented by new leadership in the fight against AIDS with unparalleled global economic challenges, FCAA convened its first annual gathering of more than 120 domestic and international HIV/ADS grantmakers, advocates, and people living with HIV/AIDS; key federal administration officials; newly appointed leaders of international efforts focused on HIV/AIDS; and other distinguished thought leaders and innovators. Key to the gathering was also the outreach to and attendance of stalwart leaders from the field of private philanthropy, particularly other affinity groups whose members’ work intersects with the myriad issues surrounding HIV and AIDS. over the course of three intensive and action-packed days, we heard from all corners of the globe about innovative approaches to HIV/AIDS Members of the Future of Funding for HIV/AIDS in the Private grantmaking, prevention, social services and care provision, and human Sector panel: (from L to R) Moderator, Steve Gunderson (Council rights protections for people with or at high risk of HIV/AIDS; discussed on Foundations), Kim Frawley (Pfizer, Inc.), Thomas Coates (UCLA), the impact of the new economic paradigm in which we all live and work; Nancy Mahon (M•A•C AIDS Fund), Todd Summers (Bill & Melinda learned about the future of U.S. policy and funding for HIV/AIDS at Gates Foundation), and Kandy S. Ferree (National AIDS Fund). home and abroad; discovered innovative and exciting uses being made of media and technology in AIDS work; delved deep into the issue of reproductive rights of women with HIV and AIDS; and explored new collaborative possibilities between funders and among funders, the public sector and NGos. Several significant themes emerged around the role of private philanthropy in contributing to the end of the epidemic, including: • breaking through the blockages that exist in funding essential to HIV/AIDS advocacy work at the local, state, regional and global levels; Grantmakers took part in roundtable discussions to help guide future • Participating actively in the development of a coherent, evidence- FCAA programming. based and effective U.S. National HIV/AIDS Strategy; • Exploring and taking concrete action on grantmaker collaborations to enhance philanthropy’s positive impact on the epidemic; • Refocusing on building the basic capacity and leadership of “I look forward to continuing to grassroots organizations, particularly those that serve marginalized populations, and with a special focus on developing the next advocate for grantmakers to support generation of leaders in the fight against HIV/AIDS. our common goal to maintain the energy, NExT STEPS FOR FCAA commitment, and results that we need The net result of the gathering for FCAA is a richness of ideas on to reverse this epidemic.” short- and long-term opportunities to continue to fulfill our mission and further hone our approach to Inform, Convene and Collaborate. - Keynote Speaker Michel Sidibé, our first tasks – already begun - to embark on the important work Executive Director, UNAIDS prioritized for FCAA by participants include producing an in-depth report on the gathering to be shared with our stakeholders, collecting the vast resources shared by participants into one central location, and continuing the conversations about collaboration begun at this historic event. 22 FUNDERS CoNCERNED AboUT AIDS
  • 25. geograPhic diStribUtion of hiv/aidS fUnding Among the top 72 U.S. HIV/AIDS funders in 2008, a total of 55 (76%) provided data on the geographic distribution of their funding disbursements. FCAA gathered geographic distribution data for 16 other funders from The Foundation Center, Foundation Search, grants databases on a funder’s website, or 990 tax forms, but could not obtain data on geographic distribution for one of the top 72 HIV/AIDS funders. Analysis by FCAA suggests that of the estimated $618 million disbursed in 2008 by the top 72 funders, at least $521 million (84%) was directed to global or international HIV/AIDS work (including funds granted to U.S. organizations for international work). At least $98 million was disbursed to domestic U.S. HIV/AIDS efforts, representing 16% of the amount of all HIV/AIDS grants disbursed by the top 72 funders. The geographic distribution of the remaining funds (approximately $1.5 million, or 0%) could not be identified. In 2007, the figure for international funding was $446 million (an increase of 77% from 2007 to 2008), and the figure for domestic funding was $97 million (an increase of 1% from 2007 to 2008). Chart 4: U.S. Grant Dollar Disbursements in 2008 by Geographic Focus (by percentage of total disbursements) For international grants and projects 84% For domestic U.S. epidemic 16% Unspecified 0% U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 23
  • 26. geograPhic diStribUtion of hiv/aidS fUnding Data collected by FCAA indicates that, in 2008, 32% of funders provided funding exclusively to address the epidemic internationally, while 34% of funders provided funding exclusively to address the epidemic domestically. In 2007, 45% of those funders for whom FCAA was able to gather geographic distribution data were focused exclusively on the U.S. domestic epidemic, indicating a decrease of funders focused exclusively on the United States. Chart 5: Geographic Focus of U.S. HIV/AIDS Funders in 2008 (by percentage of funders) U.S. and international focus 34% U.S. domestic focus only 34% International focus only 32% 24 FUNDERS CoNCERNED AboUT AIDS
  • 27. fUnderS with an international hiv/aidS focUS FCAA identified 24 funders out of the top 72 funders that disbursed 90% or more of their grantmaking to support international HIV/AIDS programming in 2008. Table 5: Top U.S. HIV/AIDS Funders with a Primarily International Focus in 2008 (ranked by amount of international disbursements) International ($) % of total bill & Melinda Gates Foundation, WA w 378,482,751w 100% open Society Institute, NY w 12,494,236w 100% Elizabeth Glaser Pediatric AIDS Foundation, CA w 4,168,869w 100% Doris Duke Charitable Foundation, NY w 3,830,000w 100% HIV Collaborative Fund, a project of the Tides Center, CA w 3,001,210w 100% Rockefeller brothers Fund, Inc., NY w 2,555,000w 100% The Starr Foundation, NY w 2,005,000w 100% Global Fund for Women, CA w 1,968,090w 100% Firelight Foundation, CA w 1,872,084w 100% American Jewish World Service, NY w 1,640,623w 100% International Fund for Health & Family Planning, NY w 950,109w 100% The William and Flora Hewlett Foundation, CA w 900,000w 100% United Nations Foundation, DC w 753,346w 100% The Anne Dinning and Michael Wolf Foundation, NY w 750,000w 100% South Africa Development Fund, MA w 686,928w 100% The John D. & Catherine T. MacArthur Foundation, Il w 615,000w 100% The Summit Foundation, DC w 568,000w 100% The David and lucile Packard Foundation, CA w 550,000w 100% San Diego HIV Funding Collaborative, CA w 541,000w 100% bD (becton, Dickinson and Company), NJ w 524,027w 100% The Skoll Foundation, CA w 510,000w 100% Staying Alive Foundation, NY w 468,765w 97% Charles Stewart Mott Foundation, MI w 370,000w 100% World Children’s Fund, CA w 322,019w 100% U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 25
  • 28. geograPhic diStribUtion of hiv/aidS fUnding Of the top 72 funders in 2008, FCAA identified 48 that disbursed funds to address the international epidemic. FCAA was not able to determine international regional distribution of funding disbursements for one of these 72 funders. In comparison with earlier reports, more detail was requested from funders for the 2008 report in regards to the geographical distribution of their funding. Two new categories were added: funds to the Global Fund to Fight AIDS, Tuberculosis and Malaria; and funds to the World Health Organization (WHO), the Joint United Nations Programme on HIV/AIDS (UNAIDS), and other multilateral organizations. In addition, two regional categories were broken down further: sub-Saharan Africa was divided into two separate categories (Western and Central Africa, and Eastern and Southern Africa), and Asia and the Pacific was divided into two separate categories (South Asia and the Pacific, and East Asia and Southeast Asia). Finally, the Middle East and North Africa were combined as one new category. Chart 6: Geographic Distribution of International U.S. HIV/AIDS Philanthropic Funding in 2008 (by percentage of top U.S. Funders’ total international disbursements) Eastern & Southern Africa 36% North Africa & Middle East 0% South Asia & Pacific 16% East Asia & Southeast Asia 6% Global Fund 12% WHO, UN etc. 3% Western & Central Africa 8% Unspecified 1% Eastern Europe & Central Asia 4% U.S. for International 9% Western & Central Europe 1% Caribbean 1% Latin America 3% Canada 0% Comparisons can be made for the larger regions with previous years’ data by combining the new subcategories. For example, there was an increase in giving to the sub-Saharan Africa region: Western and Central Africa’s 8%, plus Eastern and Southern Africa’s 36%, gives a total of 42% of total international disbursements given to sub-Saharan Africa in 2008—compared with the 33% share provided to sub-Saharan Africa in 2007. There was also an increase in funding to the Asia and Pacific region: South Asia and the Pacific’s 16%, plus East Asia and Southeast Asia’s 6%, gives a total of 22%—compared with the 14% given in 2007. Funding to U.S. organizations for international work decreased in 2008, from 45% in 2007 to only 9% in 2008. 26 FUNDERS CoNCERNED AboUT AIDS
  • 29. fUnderS with a domeStic U.S. focUS Thirty of the top 72 U.S. funders in 2008 identified by FCAA disbursed 90% or more of their grantmaking to domestic HIV/AIDS issues. Table 6: Top U.S. HIV/AIDS Funders with a Primarily Domestic Focus in 2008 (ranked by amount of domestic disbursements) Domestic ($) % of total broadway Cares/Equity Fights AIDS, NY 9,434,298w 94% Irene Diamond Fund, NY 8,305,366w 100% Robin Hood Foundation, NY 4,895,000w 100% National AIDS Fund, DC 4,750,273w 100% The New York Community Trust, NY 1,746,000w 100% The Wells Fargo Foundation, CA 1,716,969w 100% AIDS Foundation of Chicago, Il 1,617,115w 97% GlaxoSmithKline US, NC 1,575,174w 100% Washington AIDS Partnership, DC 1,354,984w 100% Pride Foundation, WA 1,316,952w 100% Missouri Foundation for Health, Mo 1,185,662w 100% H. van Ameringen Foundation, NY 1,091,000w 100% The Design Industries Foundation Fighting AIDS (DIFFA), NY 1,026,131w 100% James b. Pendleton Charitable Trust, WA 990,410w 100% The Comer Foundation, Il 940,775w 100% The Pew Charitable Trusts, PA 881,000w 100% Weingart Foundation, CA 773,400w 100% The Harry and Jeanette Weinberg Foundation, Inc., MD 725,000w 100% boston Foundation, Inc., MA 702,350w 98% Macy’s Foundation, oH 660,070w 98% Evelyn and Walter Haas, Jr. Fund, CA 645,000w 100% AIDS Funding Collaborative, oH 544,763w 100% Houston Endowment Inc., TX 522,500w 100% Arcus Foundation, MI 510,000w 100% The Community Foundation for the National Capital Region, DC 504,330w 100% The Campbell Foundation, Fl 399,892w 90% Indiana AIDS Fund, IN 424,550w 100% The Health Foundation of Greater Indianapolis, IN 394,740w 100% The Duke Endowment, NC 320,929w 100% The Denver Foundation, Co 300,500w 95% Chart 7 shows the U.S. regional distribution of domestic HIV/AIDS philanthropic funding. Of the top 72 funders in 2008, FCAA identified a total of 49 funders that disbursed funds to addressing the U.S. domestic epidemic. Approximately 4% of total grantmaking to address U.S. domestic activities tracked by FCAA was not able to be identified by region. FCAA asks funders to report domestic funding according to where the office of the grantee is located. It is important to note that some funders’ grantees conduct HIV/AIDS work outside of the region in which they are based. Therefore, the share of funding given to a domestic region in Chart 7 is only an estimate of the actual funding spent in the region. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 27
  • 30. geograPhic diStribUtion of hiv/aidS fUnding The funding patterns in Chart 7 do not reflect geographic HIV prevalence estimates in the United States. According to the CDC, 46% of the country’s new AIDS cases in 2007 were in the South, as well as the highest numbers of people living with HIV and AIDS and the most AIDS deaths. That region was followed, in decreasing order of HIV prevalence, by the Northeast, the West, and the Midwest.19 Chart 7: Regional Distribution of Domestic U.S. HIV/AIDS Philanthropic Funding in 2008 (by percentage of total domestic disbursements) Northeast 41% South 22% Midwest 13% West 20% Unspecified 4% U.S. territories 0% 19 Centers for Disease Control and Prevention, HIV/AIDS Surveillance Report, 2007, Vol. 19. Atlanta: U.S. Department of Health and Human Services, CDC, 2009. www.cdc.gov/hiv/topics/surveillance/ resources/reports/ 28 FUNDERS CoNCERNED AboUT AIDS
  • 31. Table 7: Top Funders by U.S. Region in 2008 (ranked by amount of disbursements to grantees based in each region) Northeast ($) Irene Diamond Fund, NY 8,305,366 broadway Cares/Equity Fights AIDS, NY 6,381,574 M•A•C AIDS Fund and M•A•C Cosmetics, NY 4,970,728 Robin Hood Foundation, NY 4,895,000 The New York Community Trust, NY 1,746,000 South ($) The Ford Foundation, NY 3,690,500 National AIDS Fund, DC 3,178,450 M•A•C AIDS Fund and M•A•C Cosmetics, NY 1,774,660 Elton John AIDS Foundation, NY 1,470,291 Pfizer Inc and Pfizer Foundation, NY 1,424,697 Midwest ($) AIDS Foundation of Chicago, Il 1,617,115 Pfizer Inc and Pfizer Foundation, NY 1,327,765 Abbott and Abbott Fund, Il 1,279,691 Missouri Foundation for Health, Mo 1,185,662 M•A•C AIDS Fund and M•A•C Cosmetics, NY 1,080,900 West ($) Merck & Co., Inc, NJ 5,247,648 M•A•C AIDS Fund and M•A•C Cosmetics, NY 2,076,822 The Wells Fargo Foundation, CA 1,410,425 Abbott and Abbott Fund, Il 1,279,691 Pfizer Inc and Pfizer Foundation, NY 1,248,495 U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 29
  • 32. geograPhic diStribUtion of hiv/aidS grantS Table 8: Focus of Funding by the Top 72 U.S. HIV/AIDS Funders in 2008 (in alphabetical order) Domestic International Both Abbott and Abbott Fund, Il ● AIDS Foundation of Chicago, Il ● AIDS Funding Collaborative, oH ● Alphawood Foundation, Il ● American Jewish World Service, NY ● The Anne Dinning and Michael Wolf Foundation, NY ● Arcus Foundation, MI ● bD (becton, Dickinson and Company), NJ ● bill & Melinda Gates Foundation, WA ● boston Foundation, Inc., MA ● bristol-Myers Squibb Foundation and bristol-Myers Squibb Co., NY ● broadway Cares/Equity Fights AIDS, NY ● The Campbell Foundation, Fl ● Charles Stewart Mott Foundation, MI ● Children Affected by AIDS Foundation, CA ● The Comer Foundation, Il ● The Community Foundation for the National Capital Region, DC ● The David and lucile Packard Foundation, CA ● The Denver Foundation, Co ● The Design Industries Foundation Fighting AIDS (DIFFA), NY ● Doris Duke Charitable Foundation, NY ● The Duke Endowment, NC ● Elizabeth Glaser Pediatric AIDS Foundation, CA ● Elton John AIDS Foundation, NY ● Evelyn and Walter Haas, Jr. Fund, CA ● Firelight Foundation, CA ● The Ford Foundation, NY ● The Foundation for AIDS Research (amfAR), NY ● GlaxoSmithKline US, NC ● Global Fund for Women, CA ● H. van Ameringen Foundation, NY ● The Harry and Jeanette Weinberg Foundation, Inc., MD ● The Health Foundation of Greater Indianapolis, IN ● HIV Collaborative Fund, a project of the Tides Center, CA ● Houston Endowment Inc., TX ● Indiana AIDS Fund, IN ● International Fund for Health & Family Planning, NY ● Irene Diamond Fund, NY ● James b. Pendleton Charitable Trust, WA ● The John D. & Catherine T. MacArthur Foundation, Il ● The John M. lloyd Foundation, CA ● 30 FUNDERS CoNCERNED AboUT AIDS
  • 33. Table 8, continued Domestic International Both Johnson & Johnson, NJ ● levi Strauss & Co., CA ● M•A•C AIDS Fund and M•A•C Cosmetics, NY ● Macy’s Foundation, oH ● Merck & Co., Inc, NJ ● Missouri Foundation for Health, Mo ● National AIDS Fund, DC ● The New York Community Trust, NY ● open Society Institute, NY ● The Pew Charitable Trusts, PA ● Pfizer Inc. and Pfizer Foundation, NY ● Pride Foundation, WA ● Robin Hood Foundation, NY ● Rockefeller brothers Fund, Inc., NY ● San Diego HIV Funding Collaborative, CA ● The San Francisco AIDS Foundation, CA ● The Sidney Kimmel Foundation, PA Not available Silicon Valley Community Foundation, CA ● The Skoll Foundation, CA ● South Africa Development Fund, MA ● The Starr Foundation, NY ● Staying Alive Foundation, NY ● The Summit Foundation, DC ● Tides Foundation, CA ● United Nations Foundation, DC ● Washington AIDS Partnership, DC ● Weingart Foundation, CA ● The Wells Fargo Foundation, CA ● The William and Flora Hewlett Foundation, CA ● W. K. Kellogg Foundation, MI ● World Children’s Fund, CA ● U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 31
  • 34. EXAMPLES OF FUNDER INNOVATION As part of this year’s survey, FCAA asked grantmakers to provide SUPPORTING LEADERSHIP IN AIDS ADVOCACy: examples of innovative programs they funded in 2008. While THE JOHN M. LLOyD FOUNDATION collected responses ranged broadly in scope, we were pleased to find common definitions of innovation, including: working collaboratively In 2008 the John M. lloyd Foundation created The John M. lloyd AIDS to solve a problem and leverage resources towards greater impact; leadership Award to recognize, support and empower the unsung and, trusting in grantees to best address the true needs of their local heroes of AIDS activism. A portion of the $100,000 award, modeled communities. Below are just a few of the submitted examples. on the MacArthur Fellows Program, is paid directly to the honoree as an unrestricted gift to be used however s/he believes will build their leadership capacity. The balance is then given to the organization for ASSESSING IMPACT: which the honoree works. The first award was bestowed upon Gregg AIDS FUNDING COLLABORATIVE Gonsalves, formerly of the AIDS and Rights Alliance of Southern Africa (ARASA). More recently, AIDS activists Paisan Suwannawong and Karyn Around the country momentum continues Kaplan of the Thai AIDS Treatment Action Group (TTAG) were selected to build around K-12 comprehensive sexual as co-recipients of the 2009 leadership Award. education; however, the lack of replicable evidence-based programming remains an The leadership Award is just one of the Foundation’s strategic obstacle to national progress. responses to the changing AIDS epidemic. Established in 1991 by John Musser lloyd (1948-1991) “to seek creative, compassionate and In the summer of 2006, concerned by data on increasing HIV infection courageous solutions to the root causes of the AIDS epidemic,” the rates in local teenagers, Cleveland’s Mayor Frank G. Jackson called for early work of the foundation was driven by the family’s grief and a plan to address the issue in the public schools. A multi-stakeholder personal connection to the epidemic. They operated through person-to- collaborative -- composed of educators, public officials, community person grantmaking, supporting mostly local AIDS service organizations organizations, activists and funders -- responded by designing in the los Angeles area. by 2001 the Foundation’s geographic focus the K-12 Responsible Sexual behavior (RSb) Initiative to provide a shifted from domestic to global, and in 2003 their funding priorities comprehensive sexuality education to all students within the Cleveland moved from education and prevention to an emphasis on mobilization, Metropolitan School District (CMSD). At its inception, the RSb Initiative grassroots movement in advocacy, and convening. was one of the only, if not the only, such programs in a large urban school district in the United States. In 2006, led by board Chair Robert Estrin, the board, Staff and select thought leaders gathered in New Mexico to commemorate the A cornerstone of the approach of the AIDS Funding Collaborative (AFC) Foundation’s 15th anniversary and reflect on the road ahead. Together -- established as a public-private partnership in 1994 -- is “enabling local they recognized the potential for long-term impact in supporting funders to respond collectively to HIV/AIDS by increasing coordination advocacy organizations active in the fight against AIDS. The leadership of funding efforts and identifying gaps.” According to Director, laureen Award is a direct result of the Foundation’s new approach and provides Tews Harbert, AFC quickly recognized an opportunity to support the the flexible money necessary for advocates to do innovative and RSb Initiative’s evaluation phase. “We knew it would be a critical step responsive work. “by trusting in grantees to make the best decisions to ensuring that the program was responsive to, and reflective of, the for their organizations, you create the space for them to dream,” says needs of students, parents and teachers.” In November 2007, AFC Executive Director Melanie Havelin. “but it requires new thinking, and engaged Philliber Research Associates (PRA) to conduct the full-scale the patience to creatively develop benchmarks to evaluate success K-12 evaluation effort. To date, the AFC has committed to three years along the way.” of funding, as well as staff time, to manage the evaluation process in partnership with local stakeholders. Evidence-based case studies are essential to encourage other school districts to replicate the success of the RSb Initiative. “For the stakeholders in our community, the evaluation process is not just about monitoring outcomes to improve the RSb initiative,” says Harbert. “It’s also about a commitment to communicating about our program and documenting our lessons learned so that the CMSD model can inform conversations happening in other communities and at the state and national level.” The results of the first phase of the evaluation, released in January 2009, “demonstrated improvements in students’ knowledge, attitudes, skills, and behavioral intent as a result of the program, and strong 2008 AIDS Leadership Award recipient Gregg Gonsalves, support for the initiative among parents, teachers, and community formerly of ARASA, and 2009 recipients Paisan Suwannawong leaders.” In the 2009-2010 school year, the 3rd year of the evaluation, and Karyn Kaplan of TTAG one goal is transferring more of implementation and management of the evaluation in-house in effort to build a sustainable program. 32 FUNDERS CoNCERNED AboUT AIDS
  • 35. SUPPORTING THE GROWTH OF GRASSROOTS MOBILIZING NEW LEADERS IN HIV PREVENTION: ORGANIZATIONS: THE GLOBAL FUND FOR WOMEN M∙A∙C AIDS FUND The legal AIDS Division In 2007, the M·A·C AIDS Fund partnered with two of the world’s leading of Shannxi Women’s educational institutions – Columbia University and the University Federation was of California, los Angeles (UClA) – to create the M·A·C AIDS Fund established in 1993 to leadership Initiative (MAFlI), a fellowship program aimed at cultivating protect the rights of emerging leaders in HIV prevention and seeding innovative HIV rural women in Shaanxi, prevention programs in South Africa. In 2009, the Human Science an arid province in Research Council, South Africa’s statutory research agency, joined this northern China. In 2002 collaboration as the primary implementing partner in South Africa. the Division conducted a survey of migrant Each year a group of local emerging leaders in the field of HIV/AIDS workers living with HIV/ prevention apply for the fellowship program with a proposed HIV AIDS that revealed prevention plan. Applicants are mid-career individuals who have rampant discrimination, demonstrated strong leadership potential. After an open nation-wide Members of the Legal AIDS Division poverty, fear, and competition, selected fellows undergo an intensive two-month HIV conduct HIV training in Shaanxi, China. ignorance around prevention training program, facilitated by local and international AIDS. At particular risk experts in HIV prevention, and develop a business model to rollout their were women, whose frequent travel back and forth for jobs creates prevention plans. Upon completion, fellows receive seed funding from opportunities for the virus to spread. the M·A·C AIDS Fund to launch their HIV prevention programs. Fellows also receive ongoing one-on-one mentorship throughout a 10-month As their own data predicted an explosion in both migration patterns implementation period to help identify solutions to possible roadblocks and HIV, the Division quickly reprioritized their efforts on HIV/AIDS in their plans. In total, the M·A·C AIDS Fund committed more than $3.29 awareness. This led them to launch HIV/AIDS programs in 2002, now million dollars in support of MAFlI from 2007-2010. known as their “love and Care” campaign for women and children living with HIV/AIDS. Recent successes include education workshops, one of the more innovative aspects of this program is that it seeks out distribution of over 100,000 illustrated pamphlets on self-protection applicants from a wide range of professional backgrounds as diverse and medical services and training for 250 women migrant workers on entry points for at-risk individuals. Projects have ranged from working sexual and reproductive health and rights. The project focuses on the with male juvenile offenders in local detention centers to factory use of labor recruiters as a last “point of contact,” with migrant women, employees at large local employers such as the Ford Motor Company. many of whom experience isolation once they are in a factory or MAFlI also prioritizes fellowships that give special consideration to domestic care situation. gender-based inequities and their role in the spread of HIV. The Global Fund for Women (GFW) has proudly provided the Division To date, 34 fellows have completed the training program and are with general operating support for more than 12 years, and just recently implementing their HIV prevention programs. Together, the partners are increased their commitment in 2009. Since its founding in 1987, GFW currently planning for the program’s evolution, and importantly, on the has nurtured flexible and responsive grantmaking strategies deeply need to identify and leverage additional funding to help fellows to bring rooted in the recognition that “women should have a full range of their programs to scale. “We created this program to support local choices and that women themselves know best how to determine leaders to create and integrate HIV prevention programs into diverse their needs and propose solutions for lasting change.” According to institutions like schools, churches and early childhood programs, in Caitlin Stanton, Senior Development officer, Philanthropic Partnerships, which the fellows were already established and trusted. The programs GFW’s emphasis on flexible support, “allows organizations to be truly they have created have been as varied, creative and effective as the responsive to the needs of their community, sustainably grow their fellows themselves,” says Nancy Mahon, Executive Director, M·A·C AIDS budget, and attract new and diverse funders.” The Division continually Fund. “With a relatively small investment of about $30,000 per fellow, self-evaluates their own progress, measuring success in increased we have been able to foster leadership and much needed local capacity numbers of women reached, publications produced, and the depth of on HIV prevention. We would very much like to find other funding information shared. partners for this program.” A former GFW board Member, Wu Qing, first met with the legal Aid Division in 1996 at a training workshop organized by another GFW grantee. This highlights the tremendous value of flexible grant dollars as a tool to support networking opportunities that build leadership within civil society organizations. “breaking the isolation of these groups is critical,” says Stanton. “It is the reality that for women leaders of NGos to develop their strength, they need the opportunity to interact with each other and other experts in the field.” U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 33
  • 36. intended USe of hiv/aidS fUnding Fifty-three (74%) of the top 72 U.S. HIV/AIDS funders in 2008 provided survey data on intended use of their HIV/AIDS grants. FCAA was able to gather intended use data for 15 additional funders from The Foundation Center, Foundation Search, grants databases on funders’ websites, or 990 tax forms, but could not obtain intended use data for four of the top 72 HIV/AIDS funders. For the 2008 survey, FCAA asked funders to provide detail on intended use of international and HIV/AIDS grants separately. Also new were two additional categories: “orphans and vulnerable children” (OVC) and “human resources.” Chart 8: International Intended Use of U.S. HIV/AIDS Philanthropic Funding in 2008 Prevention $111,777,498 Treatment $80,029,631 Social services $10,589,550 Advocacy $61,416,791 Research $215,394,610 OVC $8,168,442 Human resources $1,681,904 Other $29,814,774 $0 $100,000,000 $200,000,000 $300,000,000 The “other” category for international intended use includes funding that was un-specified and funding for projects that did not fall under the pre-determined categories, such as: long-term health systems strengthening, general operating funds to community-based and service organizations, funding that fell across multiple categories and could not be broken down, organizational capacity-building, salaries, travel, rent and other administrative costs, building facilities, stigma reduction, and creating organizational alliances. 34 FUNDERS CoNCERNED AboUT AIDS
  • 37. Chart 9: Domestic Intended Use of U.S. HIV/AIDS Philanthropic Funding in 2008 Prevention $26,953,627 Treatment $20,876,039 Social services $23,551,300 Advocacy $6,121,228 Research $12,636,120 OVC $391,061 Human resources $334,823 Other $7,565,474 $0 $10,000,000 $20,000,000 $30,000,000 The “other” category for domestic intended use includes funding that was un-specified and funding for projects that did not fall under the pre-determined categories, such as: general operating funds to community-based and service organizations, funding that fell across multiple categories and could not be broken down, capacity-building of community-based organizations, technical assistance, fundraising events and activities, stigma reduction, and creating organizational alliances. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 35
  • 38. target PoPUlationS of hiv/aidS fUnding Of the top 72 U.S. HIV/AIDS funders in 2008, FCAA was able to obtain information from 67 on the three population groups that receive the greatest benefit from their domestic and international funding. Funders were asked to report the top three target populations of their funding only. However, some funders reported more than three populations as their main focus. The charts below show the percentage of funders of the total 67 that answered the survey question that chose each category. Chart 10: International Target Populations for U.S. HIV/AIDS Philanthropic Funding in 2008 (by percentage of 41 top funders that responded to the survey question) PLWHA 80% Women 59% Youth 51% OVC 27% IDUs 17% Other 17% MSM 12% HCWs 5% Sex workers 5% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% Percentage of Top Funders The “other” category for international target populations included responses such as: funding for all populations, funding that does not have a specific target population, children living with HIV/AIDS, medical research not directed to a specific population, apparel workers, and rural populations. HCWs= healthcare workers IDUs = injecting drug users MSM = men who have sex with men OVC = orphans and vulnerable children PLWHA = people living with HIV/AIDS 36 FUNDERS CoNCERNED AboUT AIDS
  • 39. Chart 11: Domestic Target Populations for U.S. HIV/AIDS Philanthropic Funding in 2008 (by percentage of 48 top funders that responded to the survey question) Domestic Funding Target Populations PLWHA 63% African-Americans 33% MSM 33% Youth 31% Homeless/impoverished 31% Women 27% IDUs 21% Other 19% Latinos 13% HCWs 6% Asian/Pacific Islanders 4% OVC 4% Migrants 2% Sex workers 2% Incarcerated people 1% 0% 10% 20% 30% 40% 50% 60% 70% Percentage of Top Funders The “other” category for domestic target populations included responses that fell outside of the pre- determined categories. Funders reported the following examples as “other”: funding for all populations, people of color, medical research not directed to a specific population, all persons at risk of contracting HIV, Jewish communities, and immigrant communities. It is notable that while data from the U.S. Centers for Disease Control and Prevention (CDC) indicate over half of new HIV infections in the United States in 2006 were among gay and bisexual men, only a third of domestic funders identified this group as a top beneficiary of their organizations’ giving.20 Similarly, African-Americans accounted for half of HIV diagnoses in 2007, but only a third of domestic funders identified this group as a top target population of their funding.21 20 Centers for Disease Control and Prevention. HIV/AIDS Surveillance Report 2007, (Vol. 19). http://www.cdc. gov/hiv/topics/surveillance/resources/ reports/2007report/default.htm 22 ibid. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 37
  • 40. APPENDIx A methodology SoUrceS of hiv/aidS grantmaking data This report covers HIV/AIDS grant disbursements from all sectors of U.S. philanthropy, including private, family, and community foundations; public charities; corporate grantmaking programs (corporate foundations and direct giving programs); and major U.S. HIV/AIDS grantmaking charities. FCAA included data for over 340 grantmaking entities in this report. Data were collected using a variety of sources: 1) a survey tool developed and administered by FCAA to funders, 2) grants databases maintained by The Foundation Center and Foundation Search, 3) funder websites and 990 forms, and 4) direct communications with funders. FCAA believes that this multi-faceted approach arrives at a more comprehensive data set of HIV/AIDS funders than can be accomplished using any single data source or any single method of calculation. FCAA FUNDER SURVEy FCAA distributed a survey instrument that asked respondents to describe their HIV/AIDS- related grantmaking disbursements in 2008 (see Appendix B). The survey was sent to several hundred U.S. funders in May 2009. FCAA staff distributed the survey to a pre-determined list of grantmaking organizations which FCAA determined were most likely to have significant levels of 2008 HIV/AIDS grantmaking and/or were most likely to list HIV/AIDS as a priority funding issue. Staff conducted several rounds of follow-up to secure as much data as possible directly from funders. Responses to the survey were received from 79 funders, either through fully completed surveys or other communications with foundation staff. Over 95% of estimated total HIV/AIDS grantmaking activity is captured by surveys returned to FCAA. FOUNDATION CENTER AND FOUNDATION SEARCH DATABASES AND OTHER SOURCES To capture data for which FCAA did not have survey responses, FCAA conducted further research of U.S. HIV/AIDS funders and 2008 HIV/AIDS grant disbursements using the Foundation Center and Foundation Search grants databases, as well as grantmaker websites and 990 forms. FCAA reviewed HIV/AIDS grantmaking totals and notable dataset outliers. It is important to reiterate that 2008 data for the Children’s Investment Fund Foundation (US), Coca-Cola Africa Foundation, and Gilead Foundation (all likely to be top HIV/AIDS funders) were not available, and therefore not included, at the time of publication of this report. analySiS DEFINITION OF HIV/AIDS PHILANTHROPy FCAA was intentionally broad in its definition and selection of U.S. HIV/AIDS funders by including the HIV/AIDS philanthropic activity of several large U.S.-based public charities, donor-advised funds, corporate grantmaking programs, and operating foundations. While this report focuses only on U.S.-based funders, it also includes HIV/AIDS grants from foreign offices of U.S.-based foundations that operate internationally, such as the Ford Foundation. Survey respondents were asked to distinguish between domestic (within the United States and for U.S. programs) and international HIV/AIDS efforts, to the extent possible. For domestic U.S. grantmaking, FCAA requested regional data based on five U.S. sub-regions, using Northeast, 38 FUNDERS CoNCERNED AboUT AIDS
  • 41. South, Midwest, West, and U.S. territories categories as defined by the U.S. Census Bureau and used by the CDC and other federal agencies.22 For internationally focused HIV/AIDS grantmaking, FCAA requested data about where the grantee was located, using global regions as defined by UNAIDS.23 FCAA also asked about the intended use of HIV/AIDS grants disbursed both inside and outside the United States, using the following eight categories: ● HIV/AIDS awareness and prevention (including harm reduction); ● HIV/AIDS-related treatment and medical care (including provider and patient treatment information); ● HIV/AIDS-related social services (e.g. housing, employment, food, legal); ● HIV/AIDS public policy, advocacy and communications; ● HIV/AIDS research (including medical, prevention, and social science research); ● Orphans and vulnerable children; ● Human resources (e.g. training, recruitment, and retention of healthcare workers); and ● Other. FCAA also asked funders to indentify the three population groups that benefit the most from their domestic and/or international funding. The tally of responses listed in this report captures the number of funders focusing on particular groups, not the relative share of actual funding dedicated to addressing these groups. DISBURSEMENTS VS. COMMITMENTS FCAA uses funders’ disbursements rather than funding commitments to calculate distribution of total funding by geographic region, intended use and other details. The reliance on disbursement data for funding details harmonizes the report with other resource tracking projects. Disbursements are the amount of funding expended on grants/projects in a given year and may include funding from commitments made in prior years as well as in the current year. Commitments are funding pledged for grants/projects in a given year, whether or not the funds were disbursed in that year. For some funders, commitments and disbursements are the same in a given year; for others, commitments indicate funding above or below actual disbursements in a year. CALCULATIONS OF RE-GRANTING To avoid counting the same funds twice, data in this report are adjusted to account for known re-granting. Re-granting refers to funds given by one FCAA-tracked grantmaker to another for the purposes of making HIV/AIDS-related grants. The 2008 aggregate total grantmaking for all funders was adjusted downward by $19,644,373 to account for known re-granting. This adjustment represents approximately 3% of the total estimated 2008 HIV/AIDS grant disbursements. The re-granting figures are estimates based on direct communications with funders following review of FCAA survey and Foundation Center and Foundation Search 22 U.S. Census bureau. “Census Regions and Divisions of the United States:” www. data. The true re-granting total is likely modestly higher than the total used for calculating the census.gov. 2008 total. 23 www.unaids.org U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 39
  • 42. aPPendix a methodology LIMITATIONS FCAA’s data may differ from other data on HIV/AIDS philanthropy in several ways: 1) The use of multiple data sources is the main way FCAA seeks to ensure the accuracy of the information presented in its report. However, such reliance also presents challenges in reconciling the different methodologies—each of which has its respective advantages and limitations—applied to obtain information about grantmaking and philanthropic support activity. 2) Missing data/under-reporting: FCAA recognizes that its data for 2008 HIV/AIDS grantmaking are likely to have missed HIV/AIDS disbursements from some institutions for which FCAA had no information or incomplete or unverified data. FCAA was also unable to collect data from some of the philanthropic organizations that did not respond to the survey, in addition to institutions for which data were unavailable from the Foundation Center, Foundation Search, or other sources. In the case of corporations, although federal law makes a corporation’s tax returns open to the public, businesses are not otherwise legally required to disclose details about corporate philanthropic giving. Thus, determining levels of corporate philanthropic efforts are more challenging than estimations of private foundation/public charity giving. Moreover, corporations are neither required nor always able to place a value on the many forms of other support they can and do offer, such as volunteer efforts by their employees, in-kind donations, cause-related marketing, and similar activities.24 Finally, philanthropic support is often not collected centrally within business organizations and may be higher than reported in this publication.25 3) The definition of HIV/AIDS-related philanthropy in the survey was intentionally inclusive and broad, in acknowledgement of the fact that such efforts often overlap with many other issue areas of philanthropy. Several respondents chose a restricted definition and reporting of HIV/AIDS-related grantmaking, excluding grants that were not wholly focused on HIV/AIDS efforts. 24 See also Committee to Encourage Corporate Philanthropy, “The Corporate Giving Standard: A Measurement Model for Corporate Philanthropy,” which aims to establish methods of accounting for corporate contributions: www. corphilanthropy.org. 25 According to the National Committee for Responsive Philanthropy, an estimated 50% of corporate philanthropy is undisclosed to the American public. National Committee for Responsive Philanthropy. The NCRP Quarterly, Summer 2003, p 7. 40 FUNDERS CoNCERNED AboUT AIDS
  • 43. OTHER TyPES OF HIV/AIDS SUPPORT The data in this report represent financial contributions only from CORPORATE PROGRAMS HIV/AIDS funders, in the form of external grants and programs. Several corporations that operate HIV/AIDS programs are not willing or Such financial contributions can be used to conduct a trend able to report those programs financially. In some cases, corporations analysis because they are quantifiable as monetary amounts and do not centrally or specifically track HIV/AIDS expenditures and are measurable in a clear and distinct way. However, many funders therefore reporting is not feasible. Also, many corporations with contribute in other important ways that are not as easily quantifiable branch facilities in areas highly affected by HIV (such as in sub-Saharan or measurable. Some examples are noted below. Africa) support workplace programs that provide HIV/AIDS services to employees, sometimes extending those services to employees’ families PRIVATE OPERATING FOUNDATIONS or all community members. These HIV/AIDS-specific services are usually Private operating foundations are those specifically designated as offered with other health services at a corporate facility’s on-site clinic. such by the Internal Revenue Service (IRS). They use the bulk of As such, quantifying the monetary value of specific HIV/AIDS services their resources to run their own charitable programs and make few, for a corporation with facilities in several countries as data is very if any, grants to outside organizations. In some cases, the HIV/AIDS difficult, if not impossible. philanthropy reported to FCAA includes the value of programmatic efforts and operational grantmaking, but not operational (internal) In addition, other forms of support—such as volunteer efforts by staff or other costs. corporate employees, matching donations programs, in-kind donations, cause-related marketing, and donations of technical assistance—are The Henry J. Kaiser Foundation is one example of a private operating not always able to be valued monetarily or tracked as such. They are foundation that is not able to identify and report HIV/AIDS-specific nonetheless valuable resources offered by corporations, especially funding. Nevertheless, it is a leader in HIV/AIDS policy, media, and those that can leverage other investments or build the capacity of communications efforts. This includes serving as a major producer of communities to operate their own programs and services. policy analysis and research on domestic and global HIV/AIDS policy issues, providing fact sheets, polls, policy briefs, briefings, online news information services, and numerous other web-based resources, and developing and helping to run large-scale public health information campaigns on HIV throughout the world, in direct partnership with media companies, with an emphasis on reaching young people. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 41
  • 44. OTHER TyPES OF HIV/AIDS SUPPORT IN-KIND DONATIONS FUNDERS WITH A BROADER FOCUS FCAA offers funders the option of reporting donations of goods and In some cases, funders choose to support projects across broad focus services that are not or cannot be valued monetarily. Some reported areas, such as health systems strengthening or sexual and reproductive examples are noted below, illustrating the diversity of support: health, where funding for HIV/AIDS would only be a part of a grant or project. FCAA asks funders to report a project or grant if a significant • boston Foundation, Inc.: Staff time for boston Community aspect is focused on HIV/AIDS; however, some funders may not be able AIDS Partnership to separately quantify specific HIV/AIDS funding. of course, all HIV/AIDS • bristol-Myers Squibb Foundation and bristol-Myers Squibb Company interventions are important and should be encouraged, including the (bMS): South-to-South technical assistance: grantees and partners more broad approaches, even though they are difficult to track. from bMS’s Secure the Future program provide technical assistance to organizations, governments, and communities in Africa on OTHER SOURCES OF SUPPORT planning, fundraising, and advocacy. Community programs, research institutions, hospitals, clinics, counseling centers, churches, homeless shelters, orphanages, private individual • Children Affected by AIDS Foundation (CAAF): Distribution of toys donors, and anonymous donors all represent other valuable sources of to a non-profit serving American children infected or affected by HIV/AIDS funding, goods, and services that are difficult to identify and/ HIV, and tickets for HIV-affected families to attend the CAAF Dream or quantify. Halloween Fundraisings in los Angeles and Chicago • The Design Industries Foundation Fighting AIDS (DIFFA): Distribution of approximately $100,000 in goods to AIDS service organizations for sale and/or auction • Firelight Foundation: Providing training in monitoring and evaluation to grantees, and distribution of resource materials on program planning, community mobilization, and resource mobilization • M•A•C AIDS Fund and M•A•C Cosmetics: Donation of approximately $60,000 in cosmetics to HIV/AIDS organizations in North America. M•A•C makeup artists also participate in the M•A•C Good Spirits program, where they volunteer their time to teach men and women with HIV/AIDS simple makeup techniques and help them enhance their appearance and minimize problems resulting from the illness or medication regimens. The program aims to encourage those with HIV/AIDS to be active in promoting their own health and well-being. In 2008, M•A•C artists volunteered at more then 60 Good Spirits sessions across North America, donating over $1 million in services for 4,300 people living with HIV and AIDS. • Merck & Co., Inc: Donations of the medicines Crixivan, Stocrin and Isentress benefitting underserved populations in the United States and Africa (botswana) • Pfizer Inc and Pfizer Foundation: Donations of the medicine Diflucan from Pfizer Inc to governments and NGos in developing countries. Pfizer also provides materials to support patient education and healthcare worker training. • Staying Alive Foundation: HIV/AIDS awareness television programming on DVDs; condoms 42 FUNDERS CoNCERNED AboUT AIDS
  • 45. APPENDIx B fcaa 2008 hiv/aidS reSoUrce tracking SUrvey Name of organization: Person completing survey: Email address: Telephone: organization website URl: In answering the questions below, please note the following: ww Changes to this year’s survey: We have made a few changes in this year’s survey in an effort to capture more useful information for readers of the Resource Tracking report and to minimize time needed to complete the survey where possible. For those with HIV/AIDS-related disbursements below $300,000 in 2008 we are only asking that you complete the beginning of the survey. The “geographic” question for international funding now includes revised categories for regional funding in harmonization with UNAIDS’ latest resource tracking regional definitions, and includes categories for funding to the Global Fund and other multilateral organizations that work globally. This year we are asking that you report “intended use” of funding for domestic and international funding separately. Two new categories—oVC and human resources—have been added to the “intended use” question to harmonize with UNAIDS’ intended use categories. We have made minor changes to the “target population” categories. Finally, we have provided space for you to let us know of particularly innovative funding projects in which you are engaged. ww As with last year’s survey, questions about the geographic focus and intended use of funding are asked about your organization’s disbursements rather than commitments. If you are unable to answer any of the survey questions for your disbursements, but could provide data based on commitments, please provide that data with a note that the data were based on commitments. We distinguish disbursements and commitments as follows: • Disbursements: Disbursements are the amount of funding expended on grants/projects in a given year and may include funding from commitments made in prior years as well as in the current year. • Commitments: Commitments are funding pledged for grants/projects in a given year, whether or not the funds were disbursed in that year. ww Defining an HIV/AIDS grant or project: In addition to reporting on grants/projects that are focused explicitly on HIV/ AIDS, please include grants/projects made in other health, social, economic, and political areas when a significant aspect of the grant or project included a focus on HIV/AIDS. ww Activities to include: Please restrict your answers to external HIV/AIDS grantmaking/projects (i.e., do not count internal expenditures on staff and/or other programming). • Private operating foundations (as defined by the IRS)* should include the direct costs of HIV/AIDS-related programs only and not costs for staff. • Do not include the value of donated services, products, or other in-kind donations. (there is a space to list examples of your organization’s in-kind donations, if you wish) • Do not include grants/projects committed or disbursed from funding received from the U.S. government or any other government. * Private operating foundations are those specifically designated as such by the Internal Revenue Service (IRS) that use the bulk of their resources to run their own charitable programs, making few, if any, grants to outside organizations. Very few funders that FCAA surveys qualify as private operating foundations. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 43
  • 46. aPPendix b fcaa 2008 hiv/aidS reSoUrce tracking SUrvey Please complete the survey by June 15, 2009. Return your completed survey to Erika baehr via email at erikabaehr@ gmail.com or fax at (617) 674.2240. Questions? Call Erika at (617) 987.0095 QUeStionS for calendar year 2008 1a. What was the total dollar amount of your HIV/AIDS grant/project disbursements in 2008? $ ________________ Note: Disbursements means the total dollar amount actually paid out to grantees/projects or for projects during the calendar year. This total should include funds re-granted from other organizations. 1b. What was the total dollar amount of your HIV/AIDS grant/project commitments in 2008? $ ________________ Note: Commitments means the total dollar amount pledged during the calendar year, whether the funds were disbursed in that or another year. This total should include funds re-granted from other organizations. A multi-year grant/project should be fully counted in the year that it was committed. Note: If your answer to question 1a was below $300,000, please STOP HERE. You do not need to complete the rest of the survey. Please send us the information above. Thank you. All SUbSEQUENT QUESTIoNS FoR THIS YEAR REFER To GRANT/PRoJECT DISBURSEMENTS ONLy. (Private operating foundations should include only the direct costs of HIV/AIDS-related programs) 1c. Private operating foundations only*: of the amount reported in #1a above, please provide a breakdown between: The dollar amount of HIV/AIDS cash grants disbursed in 2008 $ ________________ The dollar value of HIV/AIDS program activities conducted in 2008 $ ________________ 1d. All organizations: Compared to 2008, please predict whether the total amount of your HIV/AIDS disbursements in 2009 will (please type ‘x’ by only one response): increase ____ decrease ____ remain the same ____ discontinue ____ unsure ____ 2. What was the total number of HIV/AIDS grants/projects disbursed in 2008? 2a. Were any of these grants/projects multi-year commitments? Y( )/N( ) (type ‘x’ next to one) * Private operating foundations are those specifically designated as such by the IRS that use the bulk of their resources to run their own charitable programs, making few, if any, grants to outside organizations. Very few funders that FCAA surveys qualify as private operating foundations. 44 FUNDERS CoNCERNED AboUT AIDS
  • 47. 3. In 2008, where were your HIV/AIDS grant/project dollars disbursed? (Please approximate total dollar amounts as best you can for the locations of grant recipients/projects. The geographical location would be where the recipients’ main offices are situated. If you are unable to provide geographical data on disbursements, but could provide data based on commitments, please provide the data with a note that the data was based on commitments.) The amounts in 3a, 3b, and 3c should add up to the total reported for question 1a. 3a. Total dollars disbursed to U.S.-based grantees/projects for domestic HIV/AIDS programs: $ ________________ Please provide total dollar disbursements by region (the definitions of U.S. regions are consistent with U.S. Census definitions): Amounts should add up to the total reported for question 3a. Northeast $ _____ (CT, MA, ME, NH, NJ, NY, PA, RI, VT) South $ _____ (Al, AR, DC, DE, Fl, GA, KY, lA, MD, MS, NC, oK, SC, TN, TX, VA, WV) Midwest $ _____ (IA, Il, IN, KS, MI, MN, Mo, NE, ND, oH, SD, WI) West $ _____ (AK, AZ, CA, Co, HI, ID, MT, NV, NM, oR, UT, WA, WY) U.S. territories $ _____ (PR, VI) 3b. Total dollars disbursed to U.S.-based grantees/projects for international HIV/AIDS work: $ ________________ 3c. Total dollars disbursed to grantees/projects based outside the United States for international HIV/AIDS work: $ ________________ Please provide total dollar disbursements to grantees/projects by region. Funding provided directly to the Global Fund, WHo, UNAIDS or other multilateral organizations should be entered in the appropriate area below, and not in a geographic region. Please see Appendix 1 for definition of each region. The amounts here should add up to the total reported for question 3c. Canada $ _____ Caribbean $ _____ latin America $ _____ Western and Central Europe $ _____ Eastern Europe and Central Asia $ _____ West and Central Africa $ _____ East and Southern Africa $ _____ North Africa and the Middle East $ _____ South Asia and the Pacific $ _____ East Asia and South East Asia $ _____ The Global Fund $ _____ WHo, UNAIDS, other multilaterals $ _____ U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 45
  • 48. aPPendix b fcaa 2008 hiv/aidS reSoUrce tracking SUrvey 4a. In 2008, what was the intended use of your disbursed grants/projects to address the epidemic in the United States? (Please approximate total dollar amounts as best you can for the intended use of your grants/projects. If you are unable to provide intended use data on disbursements, but could provide data based on commitments, please provide the data with a note that the data was based on commitments.) These amounts should add up to the total reported for question 3a. HIV/AIDS awareness and prevention (including harm reduction) $ ________________ HIV/AIDS treatment and medical care (including provider and patient treatment information) $ ________________ HIV/AIDS-related social services (e.g. housing, employment, food, legal) $ ________________ HIV/AIDS public policy, advocacy, and communications $ ________________ HIV/AIDS research (including medical, prevention, and social science research) $ ________________ orphans and vulnerable children (oVC) $ ________________ HIV/AIDS human resources (e.g. training, recruitment, and retention of health care workers) $ ________________ other (e.g. long-term health systems strengthening and/or facilities investment, program management and administration) - Please specify: ( ) $ ________________ 4b. In 2008, what was the intended use of your disbursed grants/projects to address the epidemic outside of the United States (including funds given to U.S.-based organizations to address HIV/AIDS outside the United States)? (Please approximate total dollar amounts as best you can for the intended use of your grants/projects. If you are unable to provide intended use data on disbursements, but could provide data based on commitments, please provide the data with a note that the data was based on commitments.) These amounts should add up to the total reported for questions 3b and 3c combined. HIV/AIDS awareness and prevention (including harm reduction) $ ________________ HIV/AIDS treatment and medical care (including provider and patient treatment information) $ ________________ HIV/AIDS-related social services (e.g. housing, employment, food, legal) $ ________________ HIV/AIDS public policy, advocacy, and communications $ ________________ HIV/AIDS research (including medical, prevention, and social science research) $ ________________ orphans and vulnerable children (oVC) $ ________________ HIV/AIDS human resources (e.g. training, recruitment, and retention of health care workers) $ ________________ other (e.g., long-term health systems strengthening and/or facilities investment, program management and administration) - Please specify: ( ) $ ________________ 46 FUNDERS CoNCERNED AboUT AIDS
  • 49. 5. Target populations: Please place an ‘x’ next to the three population groups that receive the greatest benefit from your domestic and international funding. The categories below are not mutually exclusive. Please mark the three that best reflect the main target populations reached through your funding. Domestic funding – Please only pick three International funding – Please only pick three People living with HIV/AIDS ______ People living with HIV/AIDS ______ Women ______ Women ______ Youth ______ Youth ______ orphaned/vulnerable children (oVC) ______ orphaned/vulnerable children (oVC) ______ African-Americans ______ Migrants ______ latinos ______ Refugees ______ Native Americans ______ Injecting drug users (IDUs) ______ Asians/Pacific Islanders ______ Sex workers ______ Migrants ______ Health care workers ______ Injecting drug users (IDUs) ______ Men who have sex with men (MSM) ______ Sex workers ______ Incarcerated people ______ Healthcare workers ______ other: (_______________________) ______ Men who have sex with men (MSM) ______ Incarcerated people ______ Homeless/impoverished persons ______ other: (_______________________) ______ 6. In-kind donations (optional): If you would like to, please list examples of HIV/AIDS-related in-kind donations you made in 2008. 7. Re-granting: If you received $50,000 or more from any of the foundations noted in Appendix 2 in 2008, please list the value of grants received from each foundation that were subsequently re-granted through your organization. Note that your organization’s total grantmaking, including funds you re-granted, will be reflected in the FCAA report. Grant received from Total re-granted to other organizations __________________________________________ $__________________________________________ __________________________________________ $__________________________________________ __________________________________________ $__________________________________________ ____________________________________________________ $___________________________________________________ 8. Innovative funding (optional): Please feel free to use the space below to share an example of innovative funding that you would like others to know about. We will publish several examples in our report. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 47
  • 50. fcaa 2008 hiv/aidS reSoUrce tracking SUrvey aPPendix 126 definitions of global regions (note: these definitions are taken from UnaidS) CARIBBEAN Anguilla, Antigua and barbuda, Aruba, bahamas, barbados, bermuda, british Virgin Islands, Cayman Islands, Cuba, Dominica, Dominican Republic, French Guyana, Grenada, Guadeloupe, Guyana, Haiti, Jamaica, Martinique, Montserrat, Netherland Antilles, Puerto Rico, St. Kitts and Nevis, St. lucia, St. Vincent and the Grenadines, Suriname, Trinidad and Tobago, Turks and Caicos Islands, U.S. Virgin Islands LATIN AMERICA Argentina, belize, bolivia, brazil, Chile, Colombia, Costa Rica, Ecuador, El Salvador, Guatemala, Honduras, Mexico, Nicaragua, Panama, Paraguay, Peru, Uruguay, Venezuela WESTERN AND CENTRAL EUROPE Austria, belgium, Denmark, Finland, France, Germany, Greece, Iceland, Ireland, Italy, liechtenstein, luxembourg, the Netherlands, Norway, Portugal, Spain, Sweden, Switzerland, United Kingdom of Great britain and Northern Ireland, Vatican City EASTERN EUROPE AND CENTRAL ASIA Armenia, Albania, Azerbaijan, belarus, bosnia and Herzegovina, bulgaria, Croatia, Cyprus, Czech Republic, Estonia, Georgia, Hungary, Kazakhstan, Kosovo, Kyrgyzstan, latvia, lithuania, Macedonia, Malta, Moldova, Poland, Romania, Russian Federation, Serbia and Montenegro, Slovakia, Slovenia, Tajikistan, Turkey, Turkmenistan, Ukraine, Uzbekistan WEST AND CENTRAL AFRICA benin, burkina Faso, burundi, Cameroon, Cape Verde, Central African Republic, Chad, Congo (brazzaville), Congo (DR), Côte d’Ivoire, Equatorial Guinea, Gabon, Gambia, Ghana, Guinea-bissau, Guinea (Conakry), liberia, Mali, Mauritania, Niger, Nigeria, Sao Tome, Senegal, Sierra leone, Togo EAST AND SOUTHERN AFRICA Angola, botswana, Comoros, Djibouti, Eritrea, Ethiopia, Kenya, lesotho, Madagascar, Malawi, Mauritius, Mozambique, Namibia, Rwanda, Seychelles, Somalia, South Africa, Swaziland, Uganda, United Republic of Tanzania, Zambia, Zimbabwe NORTH AFRICA AND THE MIDDLE EAST Afghanistan, Algeria, bahrain, Egypt, Iran, Iraq, Israel, Jordan, Kuwait, lebanon, libya, Morocco, oman, Palestinian Territories, Qatar, Saudi Arabia, Sudan, Syria, Tunisia, United Arab Emirates, Yemen SOUTH ASIA AND THE PACIFIC Australia, bangladesh, bhutan, Fiji, India, Maldives, Nepal, New Zealand, Pakistan, Papua New Guinea, Samoa, Sri lanka, Timor-leste EAST ASIA AND SOUTH EAST ASIA brunei Darussalam, Cambodia, China, Indonesia, Japan, lao People’s Democratic Republic, Korea (DPR), Korea (Republic), Malaysia, Mongolia, Myanmar, Philippines, Singapore, Thailand, Vietnam 26 This appendix was associated with the original survey sent to funders. It should therefore be considered a sub-appendix to Appendix b. 48 FUNDERS CoNCERNED AboUT AIDS
  • 51. aPPendix 227 grantmaker list to review for calculating re-granting (this list includes the top 82 funders in alphabetical order, based on 2007 data.) Abbott Laboratories Fund, IL The Elizabeth Glaser Pediatric James B. Pendleton Charitable Kate B. Reynolds Charitable AIDS Foundation, CA Trust, WA Trust, NC AIDS Foundation of Chicago, IL Elton John AIDS Foundation, Johnson & Johnson, NJ Richmond County Savings AIDS Funding Collaborative, OH Inc., Ny Foundation, Ny The Robert Wood Johnson Alphawood Foundation, IL ExxonMobil Foundation, Tx Foundation, NJ The Robin Hood Foundation, Ny Altria Group, Inc., Ny Firelight Foundation, CA The Henry J. Kaiser Family The Rockefeller Brothers Fund, Foundation, CA Inc., Ny American Jewish World Service, The Ford Foundation, Ny Inc., Ny W. M. Keck Foundation, CA The Rockefeller Foundation, Ny The Foundation for AIDS The Annenberg Foundation, PA Research (amfAR), Ny W. K. Kellogg Foundation, MI San Diego HIV Funding Collaborative, a project of Bill & Melinda Gates The Kresge Foundation, MI the Alliance Healthcare Atlanta AIDS Partnership Foundation, WA Foundation, CA Fund, GA Levi Strauss Foundation, CA The Gill Foundation, CO San Francisco AIDS BD (Becton, Dickinson and Foundation, CA Company), NJ The John M. Lloyd Glaser Progress Foundation, WA Foundation, CA The San Francisco Bickerstaff Family Foundation, CA Foundation, CA The Global Fund for Women, CA M•A•C AIDS Fund and M•A•C Cosmetics, Ny Silicon Valley Community The Bristol-Myers Squibb The George Gund Foundation, CA Foundation, Inc., Ny Foundation, OH John D. & Catherine T. MacArthur Foundation, IL South Africa Development Broadway Cares/Equity Fights Hartford Foundation for Public Fund, MA AIDS, Ny Giving, CT Merck Company Foundation and Merck & Co., Inc., NJ The Starr Foundation, Ny The California Endowment, CA The Health Foundation of Greater Indianapolis, IN Missouri Foundation for Health, MO Staying Alive Foundation, Ny The California Wellness Foundation, CA The Healthcare Foundation of New Jersey, NJ National AIDS Fund, DC Tides Foundation, CA The Campbell Foundation, FL The William and Flora Hewlett The New york Community United Nations Foundation, DC Children Affected by AIDS Foundation, CA Trust, Ny Foundation, CA Until There’s A Cure HIV Collaborative Fund, The John R. Oishei Foundation, CA The Children’s Investment Fund a project of the Tides Center, CA Foundation, Ny Foundation, Ny H. van Ameringen Houston Endowment Inc., Tx The David and Lucile Packard Foundation, Ny The Comer Foundation, IL Foundation, CA Indiana AIDS Fund, IN Washington AIDS The Pew Charitable Trusts, PA Partnership, DC The Design Industries Foundation Fighting AIDS International Fund for Health & (DIFFA), Ny Family Planning, Ny The Pfizer Foundation, Inc., Ny The Wells Fargo Foundation, CA Doris Duke Charitable Irene Diamond Fund, Ny Polk Bros. Foundation, IL White Flowers Foundation, Ny Foundation, Ny Public Welfare Foundation, Williamsburg Community Health Inc., DC Foundation, VA 27 This appendix was associated with the original survey sent to funders. It should therefore be considered a sub-appendix to Appendix b. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 49
  • 52. APPENDIx C toP U.S. hiv/aidS fUnderS webSiteS Abbott and Abbott Fund, IL Bill & Melinda Gates The David & Lucille Packard Global Fund for Women, CA www.abbott.com Foundation, WA Foundation, CA www.globalfundforwomen.org www.gatesfoundation.org www.packard.org AIDS Foundation of Chicago, IL The Harry and Jeannette www.aidschicago.org The Boston Foundation, MA The Denver Foundation, CO Weinberg Foundation, www.tbf.org www.denverfoundation.org Inc., MD AIDS Funding Collaborative, OH www.hjweinbergfoundation.org www.communitysolutions. Bristol-Myers Squibb Foundation The Design Industries com/projects/displayProject. and Bristol-Myers Squibb Co., Ny Foundation Fighting AIDS The Health Foundation of asp?project_id=16 www.bms.com (DIFFA), Ny Greater Indianapolis, IN www.diffa.org www.thfgi.com Alphawood Foundation, IL Broadway Cares/Equity Fights www.alphawoodfoundation.com AIDS, Ny Doris Duke Charitable HIV Collaborative Fund, www.broadwaycares.org Foundation, Ny a project of the Tides Center, CA American Jewish World www.ddcf.org www.hivcollaborativefund.org Service, Ny The Campbell Foundation, FL www.ajws.org www.campbellfoundation.com The Duke Endowment, NC Houston Endowment www.dukeendowment.org Inc., Tx The Foundation for AIDS Charles Stewart Mott www.houstonendowment.org Research (amfAR), Ny Foundation, MI Elizabeth Glaser Pediatric AIDS www.amfar.org www.mott.org Foundation, CA Indiana AIDS Fund, IN www.pedaids.org www.indianaaidsfund.org The Annenberg Foundation, PA Children Affected By AIDS www.annenbergfoundation.org Foundation, CA Elton John AIDS Foundation, Ny The John D. & Catherine T. www.caaf4kids.org www.ejaf.org MacArthur Foundation, IL Arcus Foundation, MI www.macfound.org www.arcusfoundation.org The Comer Foundation, IL The Evelyn and Walter Haas, Jr. www.comer-foundation.com Fund, CA The John M. Lloyd Atlanta AIDS Partnership www.haasjr.org Foundation, CA Fund, GA The Community Foundation for www.johnmlloyd.org www.aidsfundatl.org the National Capitol Firelight Foundation, CA Region, DC www.firelightfoundation.org Johnson & Johnson, NJ BD (Becton, Dickinson and www.cfncr.org www.jnj.com/community/index. Company), NJ The Ford Foundation, Ny htm www.bd.com/responsibility www.fordfound.org GlaxoSmithKline US, NC us.gsk.com 50 FUNDERS CoNCERNED AboUT AIDS
  • 53. Levi Strauss Foundation, CA Pride Foundation, WA The Starr Foundation, Ny Note: www.levistrauss.com/citizenship www.pridefoundation.org www.starrfoundation.org The Anne Dinning and Michael Wolf Foundation, the M•A•C AIDS Fund and M•A•C Robin Hood Staying Alive Foundation, Ny International Fund for Health Cosmetics, Ny Foundation, Ny www.staying-alive.org/en/home www.macaidsfund.org www.robinhood.org and Family Planning, the Irene The Summit Foundation, DC Diamond Fund, the James b. Macy’s Foundation Rockefeller Brothers Fund, Ny www.summitfdn.org Pendleton Charitable Trust, and www.macysinc.com/Community/ www.rbf.org the H. van Ameringen Foundation Tides Foundation, CA do not have websites. Merck & Co., Inc., NJ San Diego HIV Funding www.tides.org www.merck.com/cr Collaborative, CA www.alliancehf.org/sdhiv/who_ United Nations Foundation, DC Missouri Foundation for we_are.html www.unfoundation.org Health, MO www.mffh.org San Francisco AIDS Washington AIDS Foundation, CA Partnership, DC National AIDS Fund, DC www.sfaf.org www.washingtonaidspartnership. www.aidsfund.org org The Sidney Kimmel The New york Community Foundation, PA Weingart Foundation, CA Trust, Ny www.kimmel.org www.weingartfnd.org www.nycommunitytrust.org Silicon Valley Community Wells Fargo Foundation, CA Open Society Institute, Ny Foundation, CA www.wellsfargo.com/about/ www.soros.org www.siliconvalleycf.org charitable The Pew Charitable Trusts, PA The Skoll Foundation, CA The William and Flora Hewlett www.pewtrusts.com www.skollfoundation.org Foundation, CA www.hewlett.org Pfizer Inc and Pfizer South Africa Development Foundation, Ny Fund, Ny W.K. Kellogg Foundation, MI www.pfizerphilanthropy.com www.southafrica-newyork.net/ www.wkkf.org sadf.htm World Children’s Fund, CA www.worldchildrensfund.org U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 51
  • 54. APPENDIx D global hiv/aidS fUnding organizationS GLOBAL RESOURCE TRACKING: HISTORy AND HARMONIZATION The Working Group on Global HIV/AIDS Philanthropic Resource Tracking is a current collaboration among FCAA, the European HIV/AIDS Funders Group (EFG) and UNAIDS that was formed to investigate HIV/AIDS philanthropy on a global level. UNAIDS began convening meetings of key players to examine global resource flows several years ago by creating the Global Consortium on Resource Tracking. Representatives included staff from multilateral agencies and NGOs (including WHO, the United Nations Population Fund [UNFPA], the Global Fund, the International AIDS Vaccine Initiative, and others), HIV/AIDS experts, and experts in tracking global resource flows. Members of the group met twice a year to begin creating coherent resource tracking mechanisms and reporting on global HIV/AIDS resource flows. The European HIV/AIDS Funders Group (EFG) was created in 2002 by a group of European- based funders working to promote greater transparency, collaboration, and effectiveness in European HIV/AIDS philanthropy, and to encourage new activity in the field. FCAA and EFG have deepened their collaborative relationship since, stepping away from a country- or region-specific approach towards connecting funders in both regions and mobilizing a global philanthropic response to HIV/AIDS. In 2008, FCAA and EFG worked to harmonize their resource tracking data by using a similar survey tool, categories, and layout in their resource tracking reports; they subsequently launched the reports jointly to a global audience. The regional and intended use categories found in both the FCAA and EFG resource tracking reports for 2008 coordinate with the UNAIDS categories, which are also used by PEPFAR and the Global Fund, in an effort to make all resource flows data comparable.28 CURRENT OBJECTIVES In continuation of the earlier exploratory resource tracking efforts of UNAIDS and others, the Working Group on Global HIV/AIDS Philanthropic Resource Tracking has sought to identify funders of HIV/AIDS in regions of the world beyond those tracked by FCAA (U.S.-based funders) and EFG (Western and Central Europe-based funders), including private and public foundations, corporate foundations, and other funding institutions. The Working Group aims to connect with these funders as best as possible, to offer information and support for their work, to foster channels of potential collaboration between funders in the global North and those in the global South, Eastern Europe and Asia, and to inform the global dialogue about HIV/AIDS resource tracking. METHODOLOGy In 2008, the Working Group drafted a preliminary list of funders located outside the United States and Western and Central Europe that were likely to be engaged in funding HIV/AIDS- related programming. This list, which also included the funders’ websites, resulted from a brief web-based and literature-review research project. More recently, in 2009, the Working Group engaged in deeper research into private global philanthropy over a longer period and reached out to the funders previously identified and others in a much more systematic way—by, for example, identifying resources on philanthropy in different regions of the world, consulting with experts in philanthropy at the global and regional levels, and surveying the global funders directly about their HIV/AIDS giving. Surveys were sent in June to over 80 funders. 28 See www.hivaidsfunders.org for the EFG HIV/AIDS resource tracking report, European Philanthropic Support to Address HIV/AIDS in 2008. 52 FUNDERS CoNCERNED AboUT AIDS
  • 55. CHALLENGES The formidable challenges to this research include: a lack of any kind of centralized or comprehensive database of philanthropic entities (such as the Foundation Center in the United States); a wide range of different kinds of philanthropic resources; language barriers; lack of transparency of financial information; and great variety in the definition of private philanthropy. It should also be noted that in general resource tracking surveys request a level of detail that can be prohibitively time-consuming or otherwise difficult for funders to voluntarily share. Therefore, high response rates are always a challenge, especially in the early efforts of outreach to newly identified funders unfamiliar with the project. RESULTS The results of this research have provided a new understanding of private philanthropy climates and regions, and the barriers in identifying them, outside of the United States and Western and Central Europe. Moreover, they enabled the production of a refined and expanded global funders list with additional in-depth information about select funders for this report. Research and survey results revealed that in many regions outside of the United States and Western and Central Europe, there are few private foundations or trusts as they are defined in the United States. A majority of the organizations featured, for example, acted as local funding intermediaries and were financially, technically, or otherwise supported by governments and/or multilateral and bilateral organizations (e.g., the Global Fund or PEPFAR). Others, meanwhile, were corporations with main offices based in the United States or Western and Central Europe, and/or branches of private foundations with main offices based in those two regions. While the responses received from such funders were informative, there was not enough of a critical mass of data to produce analysis as extensive as that provided in the FCAA and EFG reports. Research highlights include the following: ● Few funders on the list had exclusively independent sources of income such as traditional endowments, which are common among funders in the United States and Western and Central Europe. ● In the Asia and Pacific, Latin American, Eastern Europe and sub-Saharan Africa regions, research suggested that most HIV/AIDS organizations are structured as community-based organizations (CBOs) or non-governmental organizations (NGOs), and are funded in part or wholly by governments and other organizations. ● In the Asia and Pacific region, private philanthropy was reported as not very visible—at least partly because bilateral and multilateral donor programs are so large. ● Similarly, in Latin America, public policies funded by governments largely overshadow private philanthropy, which plays a much smaller role. ● In India, a source reported that there are few indigenous HIV/AIDS funders; rather, HIV/ AIDS programs are supported by the government, multilaterals, and a few major foreign foundations. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 53
  • 56. aPPendix d global hiv/aidS fUnding organizationS ● In the Middle East, a source reported being “appalled” at the lack of private HIV/AIDS funders. ● Many major foundations and corporations based in the United States and Western and Central Europe have active funding branches in sub-Saharan Africa, particularly in South Africa, that provide local philanthropic funding. GLOBAL RESOURCE TRACKING—AN IMPORTANT WORK IN PROGRESS Despite the many variables that make private institutional philanthropy different in different regions of the world, institutions engaged in such grantmaking can be as uniquely poised as their counterparts in the United States and elsewhere to fund projects and populations that governments, corporations, and other organizations may consider too controversial or sensitive to fund. One foundation officer in the Central American region reported that philanthropists with private or corporate wealth avoid funding HIV/AIDS in general and seek more conservative issues to support. This situation highlights the difficulties faced by many local community groups and PLWHA seeking funding and support, especially those working with and on behalf of marginalized groups. Private HIV/AIDS philanthropy funders from more robust and well-resourced regions, such as the United States and Western and Central Europe, should be encouraged to fill the gap by seeking out and supporting individuals and groups engaged in HIV/AIDS activities that local stakeholders ignore. One potentially useful strategy would be to prioritize the creation of partnerships between organizations in the global North and the global South, Eastern Europe and Asia, with the goal of promoting impactful philanthropy in these regions. Structures and opportunities such as collaborative partnerships, networks, and coalitions with partner organizations and business partners can increase access to funding and other vital resources at the grassroots level in those needy areas. Given the flexibility of private philanthropy to respond to critical issues, the synergistic opportunities of global partnerships, and the potential of emerging economies in parts of the world outside of the United States and Western and Central Europe, global resource tracking efforts are a valuable work in progress that will continue to be pursued. FCAA welcomes any feedback related to this section of the report. Comments or suggestions about how to improve global resource tracking in the future should be sent to Makfire Alija at makfire.alija@hivaidsfunders.org. 54 FUNDERS CoNCERNED AboUT AIDS
  • 57. liSt of global ARMENIA Open Society Institute Helen Macpherson Smith Trust level 43 CANADA Canadian Foundation For AIDS hiv/aidS fUnding Assistance Foundation 80 Collins Street Research (CANFAR) organizationS 7/1 Tumanyan St. 2-nd cul-de-sac, 375002 Melbourne, Australia 3000 Tel.: +61 03 9631 2551 165 University Avenue, Suite 710 Toronto, ontario Yerevan, Armenia Fax: +61 03 9631 2530 Canada M5H 3b8 The following is a list of Tel./Fax: +374 10 53 38 62 www.hmstrust.org.au Tel.: +1 416 361 6281 funding organizations www.osi.am Fax: +1 416 361 5736 outside of the United States The Trust awards a limited www.canfar.com and Western and Central The Foundation supports number of HIV/AIDS grants Europe that are involved in harm reduction programs through its health program. CANFAR is the only national HIV/AIDS-related activities. to reduce HIV transmission organization in Canada dedicated among IDUs and others at risk. BRAZIL to privately funding research ARGENTINA It supports capacity-building, Fundacao Athos Bulcao into all aspects of HIV infection Fundacion Mantovano Para public awareness and advocacy Setor de Autarquias Norte and AIDS. La Prevencion Del Sida y programs throughout Quadra 01 bloco E Drogadiccion the country. 70041-904 brasília – DF – brasil Farha Foundation Rodriguez Peña 69 1º Piso Tel./fax: +55 61 3322 7801 100-576 rue Ste-Catherine West (1020) Capital Federal AUSTRALIA www.fundathos.org.br Montréal, Quebec buenos Aires, Argentina AIDS TRUST of Australia Canada H2l 2E1 Athos bulcao supports HIV/ Tel./Fax: +54 114 371 7393 P.o. box 1030 Tel.: +1 514 270 4900 AIDS awareness and prevention www.drwebsa.com.ar/fmsida Darlinghurst NSW Fax: +1 514 270 5363 programs for youth. Sydney, Australia 1300 www.farha.qc.ca/en/index.html The Foundation provides HIV/ Tel.: +61 02 9285 4400 AIDS awareness and prevention Fundo Angela Borba Farha funds organizations Fax: +61 02 9261 8845 education, direct services, Rua Hans Staden, 21 - botafogo, throughout Quebec providing www.aidstrust.com.au and financial stipends to help Cep 22281-060 HIV/AIDS care and services PlWHA and their families. The Trust raises funds and Rio de Janeiro - RJ - brasil as well as prevention and distributes grants to community- Tel.: +55 21 2286 1046 education programs. UBATEC based organizations that provide Fax: +55 21 2286 6712 Viamonte 577 5º Piso, C1053AbK HIV/AIDS awareness education, www.angelaborbafundo.org Match International Ciudad Autónoma de buenos research and direct support 310 - 411 Roosevelt Avenue The Foundation has a Women & Aires, Argentina for PlWHA. ottawa, ontario HIV/AIDS project. Tel./Fax: +54 11 4313 3600 Canada K2A 3X9 www.ubatec.uba.ar Bobby Goldsmith Foundation Tel.: +1 613 238 1312 P.o. box 97 Fax: +1 613 238 6867 UbATEC serves as an Darlinghurst NSW www.matchinternational.org intermediary for funds for Sydney, Australia 1300 HIV/AIDS public awareness, MATCH supports initiatives, Tel.: +61 02 9283 8666 prevention and education including those addressing HIV/ Fax: +61 02 9283 8288 programs with a focus on AIDS, which are identified by www.bgf.org.au women, youth and lGbT women in the global South and communities in Argentina. The Foundation provides are led and implemented by financial support to PlWHA women in Africa, Asia, South for medical, housing and America and the Caribbean. educational expenses. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 55
  • 58. aPPendix d global hiv/aidS fUnding organizationS Rooftops Canada Foundation CHINA, PEOPLE’S Kadoorie Charitable Foundations INDIA 720 Spadina Avenue, Suite 313 REPUBLIC OF 1st Floor, St. George’s building Rajiv Gandhi Foundation Toronto, ontario Chi Heng Foundation 2 Ice House Street Rajendra Prasad Road Canada M5S 2T9 P.o. box: GPo box 3923 Hong Kong, China New Delhi - 110 001, India Tel.: +1 416 366 1445 Central Hong Kong, China Tel.: +852 2905 3386 Tel.: +91 11 2375 5117 Fax: +1 416 366 3876 Tel.: +852 2517 0564 Fax: +91 11 2375 5119 The Foundation funds a wide www.rooftops.ca Fax: +852 2517 0594 www.rgfindia.com range of initiatives in health, www.chihengfoundation.com Rooftops focuses on community development, poverty The Foundation supports HIV disadvantaged communities in The Foundation funds and alleviation and education. It training programs for health Africa, Asia, latin America, the operates projects in education supports community health professionals working with NGos Caribbean and Eastern Europe. and care for children and education and HIV prevention to treat the underprivileged It provides support for housing adults impacted by AIDS, as programs. throughout India. It also supports and support services for PlWHA. well as HIV prevention and anti- education, prevention and direct discrimination programs. ECUADOR services programs for PlWHA as Snowy Owl AIDS Foundation Corporación KIMIRINA well as capacity-building grants 200 2500 Palladium Drive Hong Kong AIDS Foundation Ramirez Davalos 258 y Paez for Cbos working in this area. ottawa, ontario 5/F, Shaukeiwan Jockey Club Clinic Quito, Ecuador Canada K2V 1E2 8 Chai Wan Road Tel.: +593 22 55 67 50 Vasavya Mahila Mandali Tel.: +1 613 828 8843 Hong Kong, China Fax: +593 22 56 87 67 benz Circle, Vijayawada - 520 010 Fax: +1 613 828 7964 Tel.: +852 2560 8528 www.kimirina.org Andhra Pradesh, India www.snowyowl.org Fax: +852 2560 4154 Tel.: +91 86 6247 0966 KIMIRINA supports HIV/AIDS www.aids.org.hk Fax: +91 86 6247 3056 The Foundation supports education, awareness prevention www.vasavya.com organizations dedicated to HIV/ The Foundation has a PlWHA and treatment programs AIDS education, prevention, and Support Fund through which it throughout Ecuador from a Vasavya is an intermediary for direct support services in the provides limited direct assistance human rights perspective with a international and national ottawa-Hull region of Canada. to PlWHA. focus on gender equality. funders and governments. It supports home and community- Stephen Lewis Foundation Hua Qiao Foundation GHANA based HIV/AIDS care and 260 Spadina Avenue 6 lane 1279 African Women’s Development prevention programs. Suite 501 Zhong Shan Xi Road Fund Toronto, ontario Shanghai 200051, China PMb CT 89 Cantonments MAMTA Health Institute for Canada M5T 2E4 Tel.: +86 21 3209 5514 Accra, Ghana Mother and Child Tel.: +1 416 533 9292 www.huaqiaofoundation.org Tel.: +233 21 521257 b-5, Greater Kailash Enclave-II Fax: +1 416 850 4910 Fax: +233 21 782502 New Delhi, India 110048 Hua Qiao serves as an www.stephenlewisfoundation.org www.awdf.org Tel.: +91 11 2922 0210 intermediary for international Fax: +91 11 2922 0575 The Foundation supports funding to HIV/AIDS programs in The group’s HIV/AIDS Fund www.mamta-himc.org community-based organizations China that support AIDS orphans. supports women’s organizations in Africa working to assist throughout Africa advocating MAMTA is an intermediary for AIDS orphans, provide care for non-discrimination and international and national funders to women who are ill, support gender equality as well as direct and governments. It supports grandmothers caring for their support for HIV prevention, HIV/AIDS programs focusing orphan grandchildren, and sustain treatment, support and on direct care, advocacy, and associations of PlWHA. community care. The Fund training throughout the country. also provides capacity-building grants to women’s organizations working on HIV/AIDS issues. 56 FUNDERS CoNCERNED AboUT AIDS
  • 59. Palmyrah Workers Development organization, providing direct KENyA Kenya Community Society (PWDS) monetary support to PlWHA Africa Medical and Research Development Foundation Crystal Street, Marthandam – 629165 and their families. It also Foundation (AMREF) P.o.box 10501 Kanyakumari District engages in advocacy, training, P.o. box 27691-00506 Nairobi 00100, Kenya Tamil Nadu, India organizing, and networking Nairobi, Kenya Tel.: +254 20 676 3002 Tel.: +91 46 5127 0241 with local community members, Tel.: +254 20 699 300 Fax: +254 20 676 2538 Fax: +91 46 5127 0138 communities of faith, local Fax: +254 20 609 518 www.kcdfoundation.org www.pwds.org governments, and others to www.amref.org KCDF awards grants for educate and promote care PWDS is an intermediary for AMREF supports HIV prevention education scholarships, asset for PlWHA. international and national and treatment programs as development, early childhood funders and governments. well as advocacy and capacity- development, arts and culture, JAPAN It supports Cbos and NGos building for HIV/AIDS Cbos youth development, HIV/AIDS, Japanese Foundation For working with AIDS orphans as and NGos in most countries organizational capacity-building AIDS Prevention well as organizations providing throughout Africa. and food security. Suidobashi bldg. 5F, Misakicho 1-3-12 community-based care and Chiyoda-ku, Tokyo 101-0061, Japan support programs for PlWHA. Allavida K-Rep KyRGyZSTAN Tel.: +81 3 5259 1811 Development Agency Soros Foundation – Kyrgyzstan Fax: +81 3 5259 1812 LEPRA Society P.o. box 10434 – 0100 55A, logvinenko St. www.jfap.or.jp/english/index.htm Post box No. 1518 Nairobi, Kenya bishkek, 720040 Kyrgyzstan West Marredpally, Secunderabad JFAP raises funds from the Tel.: +254 20 310 526 Tel.: +996 312 66 34 75 Andhra Pradesh, India public to support its SToP AIDS Fax: +254 20 310 525 Fax: +996 312 66 34 48 Tel.: +91 040 2780 2139 Fund, which provides grants to www.allavida.org www.soros.org/about/ Fax: +91 040 2780 1391 Japanese grassroots HIV/AIDS- foundations/kyrgyzstan Allavida’s mission is to transform www.leprasociety.org related NGos. the practice and outcomes The Foundation administers lEPRA is an intermediary for of development funding, the Central Asia Regional JORDAN international and national funders grantmaking and philanthropy in HIV/AIDS Program, which is Noor Al-Hussein Foundation and governments. It supports a Africa. one of its projects funded designed to prevent the further P.o. box 926687 wide range of HIV/AIDS projects by PEPFAR provides credit and spread of HIV in Central Asia Amman 11110 Jordan from direct care to advocacy savings interventions to HIV- through capacity-building for Tel.: +962 6 560 7460 to education and vocational positive and affected persons to organizations addressing harm Fax: +962 6 560 6994 programs throughout the country. enable them to start or expand reduction, supporting prevention www.nooralhusseinfoundation.org micro-enterprises and small-scale activities, and advocating TEST Foundation The Foundation addresses farming activities. for policies to increase the 4, Sathalvar Street HIV/AIDS through its Family effectiveness of awareness and Mugappair West Planning and Reproductive Development Innovation for prevention programs. Chennai, India 600037 Health program, which focuses Rural Communities (DEVIRUCO) Tel.: +91 044 2624 4100 on education, prevention and P.o. box 542 Fax: +91 044-2625 0315 awareness campaigns. busia, Kenya 50400 www.testfoundation.in Tel.: +254 722 693 689 TEST is both an operating DEVIRUCo serves as an foundation, running its own intermediary to disburse a programs including home-based small amount of funding to care and a hospice for AIDS Cbos. It also operates HIV/AIDS patients, and a grantmaking education, prevention and treatment programs. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 57
  • 60. aPPendix d global hiv/aidS fUnding organizationS MOZAMBIQUE NICARAGUA ActionAid International Atlantic Philanthropies Foundation for Community Fondo Centroamericano PostNet suite #248 South Africa Development de Mujeres Private bag X31 Cradock Heights, Second Floor Av. 25 de Setembro Edificio Rotonda El Gueguense Saxonwold 2132 21 Cradock Avenue Times Square 1 c. al Norte Johannesburg, South Africa Rosebank 2196 C.P - 4206 Managua, Nicaragua Tel.: +27 11 731 4500 Johannesburg, South Africa Mozambique Tel.: +505 254 4981 Fax: +27 11 880 8082 Tel.: +27 11 880 0995 Tel.: +258 21 355 300 Fax: +505 254 4982 www.actionaid.org Fax: +27 11 880 0809 Fax: +258 21 355 355 www.fcmujeres.org www.atlanticphilanthropies.org ActionAid serves as an www.fdc.org.mz The Fund supports HIV intermediary for foundations Atlantic supports HIV/AIDS FCD supports education, prevention and treatment and governments throughout research, policy development and prevention and treatment programs for women in the world. It builds the organizational infrastructure in programs for PlWHA, capacity- Central America. capacity of NGos and Cbos South Africa. building for HIV/AIDS Cbos, and in 23 countries to advocate care for orphaned children. PHILIPPINES and provide support for DG Murray Trust Philippine Business for comprehensive HIV prevention, P.o. box 23893 NEW ZEALAND Social Progress treatment, care and support. Claremont 7735 J.R. Mckenzie Trust P.o. box 3839 Cape Town, South Africa P.o. box 10 006 Manila, Philippines Adelle Searll Memorial Trust Tel.: +27 21 670 9856 Wellington 6143, New Zealand Tel.: +63 2 527 7741 28 Norwich Drive Fax: +27 21 670 9850 Tel.: +64 04 472 8876 Fax: +63 2 527 3743 bishops Court Est, Claremont www.dgmt.co.za Fax: +64 04 472 5367 www.pbsp.org.ph Cape Town, South Africa The Trust funds NGos providing www.jrmckenzie.org.nz Tel.: +27 21 797 2890 PbSP supports advocacy efforts services to AIDS orphans The Trust makes grants in to increase awareness of HIV/ The Trust awards small grants and children. the areas of social services, AIDS throughout the Philippine in the Western Cape to Cbos health services and community business sector. It has supported working on aging, mental health, Dockda Rural development, with a focus on the development of HIV/AIDS AIDS orphans and other issues. Development Agency children, young people and education prevention programs P.o. box 186 people with disabilities. It for employees in companies AIDS Foundation of South Africa Rondebosch 7701 supports HIV/AIDS programs in across the country. P.o. box 50582 Cape Town, South Africa all of its focus areas. Musgrave, Durban 4062 Tel.: +27 21 685 1236 SOUTH AFRICA South Africa Fax: +27 21 689 7199 New Zealand AIDS Foundation Ackerman Family Foundation Tel.: +27 31 277 2700 www.dockda.org.za P.o. box 6663, Wellesley Street P.o. box 23087 Fax: +27 31 202 9522 The agency’s HIV/AIDS program Auckland 1141, New Zealand Claremont www.aids.org.za supports Cbos that provide Tel.: +64 09 303 3124 Cape Town 7735, South Africa The Foundation supports HIV treatment for PlWHA, support Fax: +64 09 309 3149 Tel.: +27 21 658 1000 prevention, education and for orphans, and advocacy for www.nzaf.org.nz Fax: +27 21 658 1135 treatment in the poorest and increased resources, prevention The Foundation supports MSM The Foundation funds a wide most under-resourced areas of and education. who have HIV and AIDS through range of issues in South Africa, the country. It also supports its Wellness Fund and a small including HIV/AIDS. AIDS orphans programs. scholarship fund. 58 FUNDERS CoNCERNED AboUT AIDS
  • 61. Ikhala Trust Nelson Mandela Children’s Fund Starfish Greathearts Foundation TANZANIA P.o. box 210957 P.o. box 797 Postnet Suite 510, Private bag X9 WAMA Foundation The Fig Tree Highlands North 2037 benmore 2010 P.o. box 10641 Port Elizabeth, South Africa South Africa South Africa Dar es Salaam Tel.: +27 41 585 0970 Tel.: +27 11 274 5600 Tel.: +27 11 259 4000 Tanzania Fax: +27 41 582 1425 Fax: +27 11 486 3914 Fax: +27 11 259 4111 Tel.: +255 22 212 6516 www.ikhala.org.za www.nmcf.co.za www.strafishcharity.org Fax: +255 22 2121 916 www.wamafoundation.or.tz The Trust provides seed funding Children orphaned by AIDS are Starfish builds the capacity and organizational capacity- supported through the fund’s of NGos and Cbos throughout WAMA’s focus is to improve building grants to Cbos in the Wellbeing Program. South Africa to meet the the social and economic Eastern Cape working on HIV/ educational, material and advancement of women and AIDS issues. Networking AIDS Community of emotional needs of girls in Tanzania by increasing South Africa (NACOSA) AIDS-orphaned children in access to education, maternal The Isidore, Theresa and Ronald P.o. box 6358 their own communities. and newborn health and sexual Cohen Charitable Trust Roggebaai, 8012 reproductive health services P.o. box 7256 South Africa Uthungulu Community including HIV and AIDS. Cape Town, 8000 Tel.: +27 21 461 7348 Foundation South Africa Fax: +27 21 461 7953 P.o. box 1748 UKRAINE Tel.: +27 21 421 7110 www.nacosa.org.za Richards bay 3900 Elena Franchuk Fax: +27 21 421 7191 South Africa Anti-AIDS Foundation NACoSA is a network of over Tel.: +27 35 797 1882/3 Horizon office Towers, office The Trust funds a wide range of 300 NGos and Cbos working Fax: +27 35 797 3134 419-А issues in South Africa, including to reduce the impact of HIV and www.ucf.org.za Shovkovychna Street, 42-44 HIV/AIDS. AIDS. It operates primarily in the Kyiv, Ukraine 01601 Western Cape, where it provides UCF awards small grants Tel.: +380 44 490 4805 Ken Collins Charity Trust small seed grants to Cbos. to grassroots organizations Fax: +380 44 490 4885 P.o. box 2330 providing direct service, www.antiaids.org Pietermaritzburg 3200 Open Society Foundation advocacy and education and KwaZulu-Natal, South Africa for South Africa awareness on HIV/AIDS issues. The Foundation supports Tel.: +27 33 345 3947 P.o. box 143 information and educational Howard Place TAIWAN campaigns and NGos providing The Trust supports Cbos Pinelands, South Africa 7450 Nurses’ AIDS Prevention direct support to PlWHA and providing HIV resources in Tel.: +27 21- 511 1679 Foundation HIV-positive children. South Africa. Fax: +27 21- 511 5058 4F, 279 Hsinyi Rd., Sec.4 www.osf.org.za Taipei, Taiwan ZIMBABWE Nelson Mandela Foundation Tel.: +886 02 2531 7575 Community Foundation for the Private bag X70000 Through its Human Rights and Fax: +886 02 2567 7585 Western Region of Zimbabwe Houghton 2041 Governance Program, oSF www.napf.org.tw/intor7_E.htm 21 Walter Howard Road South Africa promotes policy development North End Tel.: +27 11 728 1000 and public awareness of HIV/AIDS In addition to HIV/AIDS bulawayo, Zimbabwe Fax: +27 11 728 1111 as a human rights issue. counseling and education/ Tel./Fax: +263 9 200 078/209 617 www.nelsonmandela.org prevention work, the Foundation www.westfound.com supports a competition that The Foundation sponsors presents cash awards for HIV/ The Foundation supports school- community dialogues AIDS nursing-related articles on based programs providing throughout the country on research and special projects. It psychosocial support for young HIV/AIDS resulting in expanded also provides stipends for nurses children affected by AIDS and education and awareness who become infected through funds advocacy efforts to leading to community action. their work. increase support for a wide range of HIV/AIDS programs. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 59
  • 62. aPPendix d global hiv/aidS fUnding organizationS As part of the global resource tracking effort, the following profiles present examples of funding organizations (with income from various public and private sources) outside of the U.S. and Western and Central Europe. Their work offers useful models for utilizing the power of partnerships, creative fundraising, and a human rights approach to PLWHA and marginalized populations. Profile of a fUnding T he statistics reflecting the number of children in South Africa orphaned or left organization vulnerable by HIV/AIDS are staggering, with an estimated 1.4 million AIDS orphans in Starfish Greathearts the country in 2008. In response to the growing Foundation pandemic, a group of young South Africans founded Johannesburg, South Africa the Starfish Greathearts Foundation in 2001. HIV/AIDS funding in 2008: Driven by a vision to ensure that every orphaned $3,824,632 and vulnerable child has access to basic services, Andre van Rensburg Starfish’s goal is to support over 100,000 children Chief Executive Officer within the next five years. It hopes to achieve this goal by building the capacity of non- avanrensburg@iqgroup.net governmental and community-based organizations throughout South Africa to meet the www.starfishcharity.org educational, material and emotional needs of AIDS-orphaned children in their Tel.: +27 11 259 4000 own communities. Starfish is a not-for-profit developmental organization that enters into partnership with local organizations in under-resourced communities in the country’s nine provinces. It currently supports 120 projects that provide services for over 36,000 AIDS-orphaned children. Its primary services include home visits, counseling, nutritional support, access to education and access to social grants. Starfish offers a unique capacity-building program that empowers community-based organizations (CBOs) so that they are able to provide more effective services to a larger number of children orphaned by AIDS. This program provides mentors to teach basic management and fundraising skills to CBOs and provides training to local caregivers to assess and appropriately care for orphaned children in their community. General operating support is provided to the CBOs while in the program. Once they have completed the capacity-building program, organizations are eligible to apply for annual grant funding of $12,000 to $36,000 to provide direct services to the children they serve. One such organization is the Alex AIDS Orphans Project in the Johannesburg suburb of Alexandra, which was set up over a decade ago to provide food for families and ensure that local children have access to education in local schools. With the support of Starfish, newly added programs now include home visits, bereavement counseling for children, and support groups for grandparents and HIV-positive mothers caring for children. Children orphaned by AIDS seldom have the resources to continue with their education. Recognizing this critical problem, and being passionate about educational development, Starfish established an educational support program. Through this program the foundation provides needed assistance to CBOs such as Gozololo in KwaZulu-Natal, where its funding pays for children’s school fees and stationery and provides a new school uniform each year. 60 FUNDERS CoNCERNED AboUT AIDS
  • 63. In addition to basic food and education, every child needs emotional support, encouragement and care. Starfish ensures that orphans and vulnerable children receive much-needed counseling and home visits by caregivers in the community. Many caregivers receive training through its capacity-building program. The Ethembeni Orphan Care project near Port Elizabeth receives support from Starfish for food and education, and equally important, psychosocial support. Starfish is supported by a range of foundations, corporations, charitable trusts and development agencies in addition to generating income from innovative fundraising events. The vast majority of funding for its programs is provided by PEPFAR. Children throughout South Africa orphaned by AIDS are given a chance to be nurtured and loved by families in their communities thanks to the vision and commitment of the Starfish Foundation. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 61
  • 64. aPPendix d global hiv/aidS fUnding organizationS Profile of a fUnding T he economic crisis that Ecuador has been experiencing since 1999 has resulted in a organization dramatic increase in the levels of poverty throughout the country. Hardest hit by this crisis are Corporación KIMIRINA communities already vulnerable to HIV infection, Quito, Ecuador such as sex workers, migrants and men who have sex with men. The government has reduced funding HIV/AIDS funding in 2008: for public health, thereby leaving many people $428,213 living with HIV unable to afford adequate nutrition, Amira Herdoiza medical attention and medications. Executive Director amiraherdoiza@hotmail.com Partly in response to this growing crisis, Corporación KIMIRINA was founded in late 1999 Website: www.kimirina.org to help address the needs of people living with HIV and expand HIV/AIDS awareness and Tel.: +593 22 556 750 prevention efforts across the country. Unique among many funders in the country, KIMIRINA approaches its work from a human rights perspective with a focus on gender equality. A registered not-for-profit charity, Corporación KIMIRINA sponsors fundraising events and receives funds for re-granting to local organizations. During the past several years KIMIRINA has partnered with over 30 non-governmental and community-based organizations in 12 of Ecuador’s 22 provinces, providing technical support and financial assistance to build organizational capacity to address a range of advocacy, policy and service issues. In partnership with the International HIV/AIDS Alliance, KIMIRINA developed the Frontiers Prevention Project (FPP), which was implemented in six cities within Ecuador. The target populations included MSM, transgendered individuals, sex workers, and PLWHA. Working with dozens of local grassroots public and private partners, KIMIRINA provided organizational and programmatic technical support to increase counseling and HIV testing services. In addition, it trained partner organizations to advocate with local and national decision-makers for expanded rights and access to services. One significant result of these efforts was the inclusion of sex workers in a national program providing free HIV and STI testing services. KIMIRINA has supported many projects to raise awareness and community involvement in HIV prevention. In collaboration with local and regional governments it supported training activities for municipal employees, utilized innovative theatre and artistic techniques with teenagers in public and private schools, and increased awareness and prevention education with indigenous and Afro–Ecuadorian organizations. Currently, KIMIRINA is supporting the development of a program for the Empowerment of Women Living with HIV/AIDS. Workshops, training of peer educators and a campaign on women and HIV/AIDS are components of this program targeting the cities of Quito and Guayaquil. The project will also empower women to lobby local and national decision-makers for a broader, more holistic response to HIV and AIDS, emphasizing the importance of sustainable public policy advocacy. KIMIRINA has effectively built the capacity of NGOs, CBOs and government entities to address issues of sexual and reproductive human rights, awareness and prevention of HIV/AIDS. Its work has been supported by foundations, corporations, and multi/bilateral organizations. Through community mobilization initiatives, public policy advocacy strategies and expansive social dialogue, Corporación KIMIRINA has made an important impact on HIV/AIDS awareness, prevention and services in Ecuador. 62 FUNDERS CoNCERNED AboUT AIDS
  • 65. Profile of a fUnding U kraine remains one of the most affected countries in Europe, with an estimated adult organization HIV prevalence of 1.4%. WHO/UNAIDS estimates that the number of people living with HIV Elena Franchuk in Ukraine totals nearly 400,000. Ukraine also has Anti-AIDS Foundation one of the highest rates of HIV-positive pregnant Kyiv, Ukraine women in Europe. In 2008 alone, over 3,600 children were born to HIV-positive mothers and the HIV/AIDS funding in 2008: number is increasing 20-30% annually. $2,399,547 Olga Rudneva, Founded in 2003, the Elena Franchuk Anti-AIDS Executive Director Foundation is trying to change these statistics. As the only private foundation dedicated to o.Rudneva@antiaids.org fighting HIV/AIDS in Ukraine, it works in partnership with the Ukrainian government and Website: www.antiaids.org/en other foundations around the world. The Foundation’s activities focus on conducting large- Tel.: +38 44 490 4805 scale information and educational campaigns primarily through the mass media; providing direct support to people living with HIV and AIDS; attracting additional resources to support projects for prevention and treatment of HIV/AIDS; and working to decrease stigma and discrimination against people living with HIV/AIDS. The Foundation supports a number of programs working with HIV-positive children, providing direct support for families who have adopted HIV-positive children as well as awarding grants to orphanages and hospitals caring for them. In 2008 it entered into a partnership with the Elton John AIDS Foundation to create the Children Plus (+) project. That project focuses on ending discrimination against HIV-positive children, changing public attitudes through teacher training programs, and helping the children move out of orphanages and into adoptive or foster homes. The lives of hundreds of HIV-infected children have already been positively impacted by this work in 11 districts throughout Ukraine. A new and unique project, Mobile Clinic, was recently launched with funds raised through the largest charity auction ever held in the country, which was organized by the Foundation under Anti-AIDS’ social brand Fashion AID. Five fully equipped mobile clinics were purchased and given to regional HIV/AIDS centers in the areas most impacted by the epidemic. These clinics will provide thousands of children with critical medical treatment and care which would otherwise be nearly impossible to obtain. Children are not the only focus of the Anti-AIDS Foundation. The Foundation is in its third year of a five-year collaborative project with the Clinton HIV/AIDS Initiative. The project aims to reduce the growth rate of HIV cases in Ukraine and to improve access to treatment and care for PLWHA. Target areas include increasing access to HIV/AIDS testing; training healthcare providers; improving the government procurement system; and extending access to substitution therapy for IDUs. Saving lives and providing a better quality of life for thousands of children and adults affected by HIV/AIDS in Ukraine is a major goal of the Anti-AIDS Foundation. Through innovative and creative partnerships, it is turning that goal into reality. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 63
  • 66. fcaa board and Staff board of directorS Staff © November 2009, Funders Concerned About AIDS, Patricia Doykos Duquette John L. Barnes Brooklyn, NY. Bristol-Myers Squibb Executive Director Foundation, Inc. Permission is granted to Bob Bronzo reproduce this document Gregory W. Edwards Former Program Manager in part or in its entirety, Flowers Heritage Foundation provided that Funders Sarah Hamilton Concerned About AIDS Kandy S. Ferree Development & Communications (FCAA) is cited as the source National AIDS Fund Manager for all reproduced material. This document is posted Anu Gupta Ann Maldonado and distributed primarily Johnson & Johnson Administrative Coordinator as an electronic condensed PDF file. Please feel free to Melanie Havelin contact FCAA if you would The John M. Lloyd Foundation prefer printed copies of this report. Mark Ishaug AIDS Foundation of Chicago Funders Concerned About AIDS Jen Kates 189 Montague St., Suite 801A The Henry J. Kaiser Family Brooklyn, NY 11201 Foundation Telephone: 718-875-0251 Fax: 718-875-0255 Daniel Jae-Won Lee Email: info@fcaaids.org Levi Strauss Foundation Website: www.fcaaids.org LaTida Smith Chair Saint Luke’s Foundation of Cleveland, Ohio Jasmine Thomas Surdna Foundation 64
  • 67. U.S. PHIlANTHRoPIC SUPPoRT To ADDRESS HIV/AIDS IN 2008 65
  • 68. Funders Concerned About AIDS 189 Montague St., Suite 801A Brooklyn, NY 11201 Telephone: 718-875-0251 Fax: 718-875-0255 Email: info@fcaaids.org Website: Website: www.fcaaids.org