![Hi - there are several things I want to go over when we meet. I suspect several will require referrals, and given the time it takes to get a slot, I'm thinking of making those appointments now. (It's easy to cancel and create an opening for someone else.) I'm 56 and I generally don't have any complaints. Here are the symptoms I'm concerned about: […] What do you think?](https://image.slidesharecdn.com/illness-in-the-age-of-e-dd-for-slideshare-1227586384094491-8/85/Illness-in-the-Age-of-e-5-320.jpg)
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Illness in the Age of \'e\'
- 1. Illness in the Age of ‘e’: A Case Study in Collaborative e-Medicine Daniel Z. Sands, MD, MPH Cisco Systems and Harvard Medical School Boston, MA Dave deBronkart, SB Blogger ‘e-Patient Dave’ Nashua, NH Harvard Medical School
- 4. Dave (Pre-diagnosis) “ This is too cool. It's almost SILLY that things can be this easy. I am having a very good patient/customer experience so far.”
- 5. Hi - there are several things I want to go over when we meet. I suspect several will require referrals, and given the time it takes to get a slot, I'm thinking of making those appointments now. (It's easy to cancel and create an opening for someone else.) I'm 56 and I generally don't have any complaints. Here are the symptoms I'm concerned about: […] What do you think?
- 6. The Visit
- 7. The Incidental Finding Incidental finding: Shadow indicates mass in upper lobe of right lung X-ray taken Jan. 2, 2007 by orthopedist to diagnose rotator cuff disease
- 8. The Incidental Finding INDICATION: Right shoulder pain. COMPARISONS: Comparison is made to a chest radiograph from December 23, 2003. TECHNIQUE: Right shoulder, three views. IMPRESSION: 1. Degenerative changes of the acromioclavicular joint. Normal radiographic appearance of the glenohumeral joint. 2. 3.3 cm right upper lobe lung mass needs further evaluation with a chest CT to exclude malignancy. Radiology report as displayed on PatientSite
- 9. The Work-up, Diagnosis, and Support
- 10. Lesion 1 – Left Upper Lobe 39x43mm Note: This is the left lung – opposite side from the lung in the x-ray
- 11. Sample finding upon googling my condition Sample finding upon googling my condition
- 12. “ Textbook” Stage IV, Grade 4 Renal Cell Carcinoma Illustration of Stage 4 RCC from Proleukin.com Details matching Dave’s case: #4 matches upper right lobe lesion seen in the x-ray Bone met in skull Left femur turned out to have a large bone met; femur broke in May
- 13. “ Textbook” Stage IV, Grade 4 Renal Cell Carcinoma Illustration of Stage 4 RCC from Proleukin.com Details matching Dave’s case: #4 matches upper right lobe lesion seen in the x-ray Bone met in skull Left femur turned out to have a large bone met; femur broke in May Additional mets found: both lungs, left ulna, iliac bone, and tongue
- 16. ACOR is great. I posted two messages tonight and got responses in 4 and 11 minutes. One responder also sent a private note mentioning Robin and Cathy. The other responder was Cathy. :) Through that list I've also found several other useful sites.
- 19. Remote Diagnosis of Wound Infection Photo of infected incision, taken by spouse and emailed to surgeon, avoiding the need for trip to Boston
- 20. Target Lesion 1 – Left Upper Lobe After treatment with High Dosage Interleukin-2 Baseline: 39x43 mm 50 weeks: 20x12 mm
- 21. Insights Gained Physicians must learn how to work with patients: Embrace knowledge symmetry Provide online services Encourage patients to use online connections
- 22. Insights Gained Physicians must learn how to work with patients: Embrace knowledge symmetry Provide online services Encourage patients to use online connections Patients must learn to play a participatory role: Embrace knowledge symmetry Find and use online services, especially good peer communities Learn how to filter the good from the garbage
- 23. Insights Gained Physicians must learn how to work with patients: Embrace knowledge symmetry Provide online services Encourage patients to use online connections Patients must learn to play a participatory role: Embrace knowledge symmetry Find and use online services, especially good peer communities Learn how to filter the good from the garbage Connected technology empowers: Patients Practices/health care organizations Providers!
- 24. Insights Gained Physicians must learn how to work with patients: Embrace knowledge symmetry Provide online services Encourage patients to use online connections Patients must learn to play a participatory role: Embrace knowledge symmetry Find and use online services, especially good peer communities Learn how to filter the good from the garbage Connected technology empowers: Patients Practices/health care organizations Providers! “ e” transforms patient experience through health and illness
- 25. Questions? [email_address] [email_address] Please submit your evaluations!