Inclusion for a Student with Traumatic Brain Injury (TBI) in Third Level Education in Ireland: An Auto-ethnographic perspective
Background
The overall aim of this research is to create awareness and understanding of what living with TBI
means for a person participating in the work place environment of third level education.
An individual’s experiences at work—be they physical, emotional, mental or social in nature—
affect a person in the workplace, but it can also have implications for their life in general.
A holistic approach to improve the promotion of health and wellbeing in the workplace
environment will help people with TBI reach their maximum potential and create a more
inclusive environment.
Approximately 9,000-11,000 sustain TBI in Ireland annually (Headway, 2016). Men are twice as
likely to sustain TBI than woman (Jennett, 1996).
TBI is a sudden trauma to the brain. It has physical, cognitive, emotional and behavioural
consequences for an individual (Yeates, 2009). These manifest as psychosocial challenges for
me which on reflection, exacerbated the consequences of my TBI and caused great stress and
reduced my participation in third level education.
Inclusion for a Student with Traumatic Brain Injury (TBI) in Third Level Education in Ireland: An Auto-ethnographic perspective
Autoethnographic research
“My self-concept suffered as a result of acquiring TBI as I contend that I
failed to live up to the person I ought to be or would like to be. I resisted and
denied the outcomes of my TBI. I experienced a sense of loss following my
accident which was exacerbated by interactions in the educational
environment. I avoided all social interactions, both good and bad which
caused a decline in my emotional well-being.”
Self-identity
(Humphrey, 1987:
Cantor, 2005).
“On many occasions because of my mobility and balance difficulties, I had to
take a more accessible route rather than the most logical route to get to the
next lecture hall. This separated me from my peers so I found it a challenge to
establish meaningful relationships with others”.
Physical barriers-
Balance, and slow
mobility
(Sherry, 2006).
Isolation
(Morton, and
Wehman, 1995).
“ I experienced emotional distress arising from the negative labels imposed on
me by my peers who were unaware of my hidden challenges. I internalised
these labels which constrained my ability to communicate, and my
engagement socially and academically”.
(Hogg and Terry,
1995)
•Physical barriers- Balance, and slow mobility (Sherry, 2006).
•Fatigue (Kennedy et al., 2008).
•Cognitive- Slow thought processing skills, speech and executive functioning
(Dikmen et al., 2009).
•Self-identity (Chamaz, 1995: Humphrey, 1987: Cantor, 2005).
•Severity of Injury (Mealings and Douglas, 2010).
•Isolation (Morton, and Wehman, 1995).
•Individualised needs and holistic approach (Chamberlain, 2006).
•Social network and support- increase well being (Haslam, et al., 2008) that
motivates students to perform.
•Acceptance of TBI develops one’s self awareness (Yeates et al., 2008).
•Cognitive Behavioural Therapy helps to gain an understanding of why one
thinks and responds to certain situations. Improves coping (Yeates et al.,
2008).
Literature
Inclusion for a Student with Traumatic Brain Injury (TBI) in Third Level Education in Ireland: An Auto-ethnographic perspective
• Sense of belonging
• Enhances a person’s well-
being and reduces stress
• Recognition of
consequences of TBI
• Unique and Individualised
Supports
• A better awareness and
understanding regarding
strengths and weaknesses of
students with TBI would
create a more collaborative
working environment
• CBT
• Self- Acceptance
• Develops self-awareness
• Resilience
• Appreciated by others
• Self-advocacy
Self
Identity
Academic
Support
Social
Support
Holistic
approach
Recommendations
• The American Speech-Language-Hearing Association (ASLHAb), ‘dysarthria’ http://www.asha.org/public/speech/disorders/dysarthria/ [accessed
31December2016].
• Charmaz, K. (1995). The body, identity, and self. The Sociological Quarterly, 36(4), 657-680.
• Cantor, J. B., Ashman, T. A., Schwartz, M. E., Gordon, W. A., Hibbard, M. R., Brown, M., ... and Cheng, Z. (2005). The role of self‐discrepancy theory in
understanding post–traumatic brain injury affective disorders: A pilot study. The Journal of head trauma rehabilitation, 20(6), 527-543.
• Dikmen, S. S., Corrigan, J. D., Levin, H. S., Machamer, J., Stiers, W., & Weisskopf, M. G. (2009). Cognitive outcome following traumatic brain injury. The Journal
of head trauma rehabilitation, 24(6), 430-438.
• Dickson, A., Knussen, C., & Flowers, P. (2008). ‘That was my old life; it's almost like a past-life now’: Identity crisis, loss and adjustment amongst people living
with Chronic Fatigue Syndrome. Psychology and Health, 23(4), 459-476.
• Evans, J. J. (2011). Positive psychology and brain injury rehabilitation. Brain Impairment, 12(02), 117-127.
• Goodley, D. (2005). Empowerment, self-advocacy and resilience. Journal of Intellectual Disabilities, 9(4), 333-343.
• Haslam, C., Holme, A., Haslam, S. A., Iyer, A., Jetten, J., & Williams, W. H. (2008). Maintaining group memberships: Social identity continuity predicts well-being
after stroke. Neuropsychological Rehabilitation, 18(5-6), 671-691.
• Headway (2015) ‘To create awareness’,[Online] available: yes http://www.headway.ie/download/pdf/3_types_of_abi.pdf [accessed 2 December 2014].
• Headway (2015b) ‘Life after brain injury: Physical effects of brain injury’,[Online] available: yes https://www.headway.org.uk/about-brain-
injury/individuals/effects-of-brain-injury/physical-effects/ [accessed 2 December 2015].
• Hogg, M. A., Terry, D. J., & White, K. M. (1995). A tale of two theories: A critical comparison of identity theory with social identity theory. Social psychology
quarterly, 255-269
• Jennett, B. (1996). Epidemiology of head injury. Journal of Neurology, Neurosurgery & Psychiatry, 60(4), 362-369.
• Kennedy, M. R., Krause, M. O., and Turkstra, L. S. (2008). An electronic survey about college experiences after traumatic brain injury. NeuroRehabilitation, 23(6),
511-520.
• .Morton, M. V., & Wehman, P. (1995). Psychosocial and emotional sequelae of individuals with traumatic brain injury: a literature review and recommendations.
Brain injury, 9(1), 81-92.
• Nochi, M. (1998) ‘ “Loss of self” in the narratives of people with traumatic brain injuries: a qualitative analysis’, Soc. Sci. Med., 46 (7), pp.869-878.
• Olney, M. F., & Kim, A. (2001). Beyond adjustment: Integration of cognitive disability into identity. Disability & Society, 16(4), 563-583
• Muenchberger, H., Kendall, E., & Neal, R. (2008). Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative
balance. Brain injury, 22(12), 979-992.
• Yeates, G. N., Gracey, F., & Mcgrath, J. C. (2008). A biopsychosocial deconstruction of “personality change” following acquired brain injury. Neuropsychological
Rehabilitation, 18(5-6), 566-589.
References
Thank you.

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Inclusion for a Student with Traumatic Brain Injury (TBI) in Third Level Education in Ireland: An Auto-ethnographic perspective

  • 2. Background The overall aim of this research is to create awareness and understanding of what living with TBI means for a person participating in the work place environment of third level education. An individual’s experiences at work—be they physical, emotional, mental or social in nature— affect a person in the workplace, but it can also have implications for their life in general. A holistic approach to improve the promotion of health and wellbeing in the workplace environment will help people with TBI reach their maximum potential and create a more inclusive environment. Approximately 9,000-11,000 sustain TBI in Ireland annually (Headway, 2016). Men are twice as likely to sustain TBI than woman (Jennett, 1996). TBI is a sudden trauma to the brain. It has physical, cognitive, emotional and behavioural consequences for an individual (Yeates, 2009). These manifest as psychosocial challenges for me which on reflection, exacerbated the consequences of my TBI and caused great stress and reduced my participation in third level education.
  • 4. Autoethnographic research “My self-concept suffered as a result of acquiring TBI as I contend that I failed to live up to the person I ought to be or would like to be. I resisted and denied the outcomes of my TBI. I experienced a sense of loss following my accident which was exacerbated by interactions in the educational environment. I avoided all social interactions, both good and bad which caused a decline in my emotional well-being.” Self-identity (Humphrey, 1987: Cantor, 2005). “On many occasions because of my mobility and balance difficulties, I had to take a more accessible route rather than the most logical route to get to the next lecture hall. This separated me from my peers so I found it a challenge to establish meaningful relationships with others”. Physical barriers- Balance, and slow mobility (Sherry, 2006). Isolation (Morton, and Wehman, 1995). “ I experienced emotional distress arising from the negative labels imposed on me by my peers who were unaware of my hidden challenges. I internalised these labels which constrained my ability to communicate, and my engagement socially and academically”. (Hogg and Terry, 1995)
  • 5. •Physical barriers- Balance, and slow mobility (Sherry, 2006). •Fatigue (Kennedy et al., 2008). •Cognitive- Slow thought processing skills, speech and executive functioning (Dikmen et al., 2009). •Self-identity (Chamaz, 1995: Humphrey, 1987: Cantor, 2005). •Severity of Injury (Mealings and Douglas, 2010). •Isolation (Morton, and Wehman, 1995). •Individualised needs and holistic approach (Chamberlain, 2006). •Social network and support- increase well being (Haslam, et al., 2008) that motivates students to perform. •Acceptance of TBI develops one’s self awareness (Yeates et al., 2008). •Cognitive Behavioural Therapy helps to gain an understanding of why one thinks and responds to certain situations. Improves coping (Yeates et al., 2008). Literature
  • 7. • Sense of belonging • Enhances a person’s well- being and reduces stress • Recognition of consequences of TBI • Unique and Individualised Supports • A better awareness and understanding regarding strengths and weaknesses of students with TBI would create a more collaborative working environment • CBT • Self- Acceptance • Develops self-awareness • Resilience • Appreciated by others • Self-advocacy Self Identity Academic Support Social Support Holistic approach
  • 9. • The American Speech-Language-Hearing Association (ASLHAb), ‘dysarthria’ http://www.asha.org/public/speech/disorders/dysarthria/ [accessed 31December2016]. • Charmaz, K. (1995). The body, identity, and self. The Sociological Quarterly, 36(4), 657-680. • Cantor, J. B., Ashman, T. A., Schwartz, M. E., Gordon, W. A., Hibbard, M. R., Brown, M., ... and Cheng, Z. (2005). The role of self‐discrepancy theory in understanding post–traumatic brain injury affective disorders: A pilot study. The Journal of head trauma rehabilitation, 20(6), 527-543. • Dikmen, S. S., Corrigan, J. D., Levin, H. S., Machamer, J., Stiers, W., & Weisskopf, M. G. (2009). Cognitive outcome following traumatic brain injury. The Journal of head trauma rehabilitation, 24(6), 430-438. • Dickson, A., Knussen, C., & Flowers, P. (2008). ‘That was my old life; it's almost like a past-life now’: Identity crisis, loss and adjustment amongst people living with Chronic Fatigue Syndrome. Psychology and Health, 23(4), 459-476. • Evans, J. J. (2011). Positive psychology and brain injury rehabilitation. Brain Impairment, 12(02), 117-127. • Goodley, D. (2005). Empowerment, self-advocacy and resilience. Journal of Intellectual Disabilities, 9(4), 333-343. • Haslam, C., Holme, A., Haslam, S. A., Iyer, A., Jetten, J., & Williams, W. H. (2008). Maintaining group memberships: Social identity continuity predicts well-being after stroke. Neuropsychological Rehabilitation, 18(5-6), 671-691. • Headway (2015) ‘To create awareness’,[Online] available: yes http://www.headway.ie/download/pdf/3_types_of_abi.pdf [accessed 2 December 2014]. • Headway (2015b) ‘Life after brain injury: Physical effects of brain injury’,[Online] available: yes https://www.headway.org.uk/about-brain- injury/individuals/effects-of-brain-injury/physical-effects/ [accessed 2 December 2015]. • Hogg, M. A., Terry, D. J., & White, K. M. (1995). A tale of two theories: A critical comparison of identity theory with social identity theory. Social psychology quarterly, 255-269 • Jennett, B. (1996). Epidemiology of head injury. Journal of Neurology, Neurosurgery & Psychiatry, 60(4), 362-369. • Kennedy, M. R., Krause, M. O., and Turkstra, L. S. (2008). An electronic survey about college experiences after traumatic brain injury. NeuroRehabilitation, 23(6), 511-520. • .Morton, M. V., & Wehman, P. (1995). Psychosocial and emotional sequelae of individuals with traumatic brain injury: a literature review and recommendations. Brain injury, 9(1), 81-92. • Nochi, M. (1998) ‘ “Loss of self” in the narratives of people with traumatic brain injuries: a qualitative analysis’, Soc. Sci. Med., 46 (7), pp.869-878. • Olney, M. F., & Kim, A. (2001). Beyond adjustment: Integration of cognitive disability into identity. Disability & Society, 16(4), 563-583 • Muenchberger, H., Kendall, E., & Neal, R. (2008). Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance. Brain injury, 22(12), 979-992. • Yeates, G. N., Gracey, F., & Mcgrath, J. C. (2008). A biopsychosocial deconstruction of “personality change” following acquired brain injury. Neuropsychological Rehabilitation, 18(5-6), 566-589. References