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SharedRecords.org A bottom-up perspective on collecting and sharing information for healthcare and other team based services Greg Wolff UnaMesa Association
Outline Key Question How do we get the  right information  to the  right people  at the  right time ? Two approaches Top down Bottom up Examples Clinics (physical therapy clinic) Family and Child Services center Demo & Questions The future: Private (EMR), Public (PHR), or Shared ownership? SharedRecords.org & the UnaMesa Association
Sharing information: “Official” way Top Down
Sharing information: “Official” way Every Org has their own system for collecting and managing information Each link between organizations requires custom development and administration If one link is broken, communication breaks down
Sharing information: “Usual” way Bottom Up
SharedRecords way: paper + data Digital Access key
Physical therapy records Physical therapists use forms to record treatments Charts pulled before visit, piled on desk until completed
Redesign eliminates filing Print face sheet for each visit Backside images of 4 prior visits Scan new notes at end of visit
Family and Child Services Head start provider 12 partners Paper forms Multiple languages Master file kept at center Shadow copies Daily deliveries to/from partners Constant problem of missing files, duplicate data
SharedRecords approach Web application to print blank forms with barcodes Scan all completed forms Print receipt for client Store scan in secure, online location Store “key” in local client database
Build on advantages of current paper sharing Local control Physical world Simple to use Fits existing processes Verifiable history Connecting data to paper  helps people work better together
SharedRecords system overview Paper scanned  (copier or camera) Image file  encrypted locally with unique key ID (fingerprint) of encrypted file and key printed as barcode Encrypted file uploaded  to SharedRecords.org using ID File downloaded and locally decrypted Accesses and  related info  uploaded
SharedRecords.org Input Data on paper Scan (or photograph) Encrypt (free software) Store image + data (free) Print receipt (with barcode) Sharing Scan barcode (web or phone camera) Retrieve image + data Decrypt (free s/w) View / print Deposit in local DB (optional) NOT a product – Free software plus web service UnaMesa can help partners package for specific needs
SharedRecords vs… EMR systems (Epic, etc) Data is “privately” owned by hospital Requires Role Based Access rules  PHR systems (GoogleHealth, etc) Data is stored on behalf of individual in a “public” commercial service Requires username and login to access All or nothing access – individual can only grant access to full record SharedRecords Data is shared by individual and provider Use keys to access individual records Shared infrastructure Supports transfer of data between systems “ Owned” by community
UnaMesa background: Service innovations projects Team members from Industry Academia NGO’s Local communities Develop and demonstrate in real world settings www.unamesa.org ServiceLink prototype Example childcare center project led to SharedRecords.org
Our Goal: Access for everyone Eliminate barriers Providers have free tools to create Individuals have ability to access and share their records Enable integration of information for better care
Acknowledgements Ricoh Innovations, Inc. for supporting the ServiceLink project and the UnaMesa Association Marc Guillet, PT, OCS, ATC for advice and participation in projects Child, Family and Community Services, Inc. for participation in projects Elin Pedersen for user centered innovation advice and practice Paul Lamb for advice and project management Zhenghao Chen for project support and artwork

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Shared Records project overview

  • 1. SharedRecords.org A bottom-up perspective on collecting and sharing information for healthcare and other team based services Greg Wolff UnaMesa Association
  • 2. Outline Key Question How do we get the right information to the right people at the right time ? Two approaches Top down Bottom up Examples Clinics (physical therapy clinic) Family and Child Services center Demo & Questions The future: Private (EMR), Public (PHR), or Shared ownership? SharedRecords.org & the UnaMesa Association
  • 4. Sharing information: “Official” way Every Org has their own system for collecting and managing information Each link between organizations requires custom development and administration If one link is broken, communication breaks down
  • 6. SharedRecords way: paper + data Digital Access key
  • 7. Physical therapy records Physical therapists use forms to record treatments Charts pulled before visit, piled on desk until completed
  • 8. Redesign eliminates filing Print face sheet for each visit Backside images of 4 prior visits Scan new notes at end of visit
  • 9. Family and Child Services Head start provider 12 partners Paper forms Multiple languages Master file kept at center Shadow copies Daily deliveries to/from partners Constant problem of missing files, duplicate data
  • 10. SharedRecords approach Web application to print blank forms with barcodes Scan all completed forms Print receipt for client Store scan in secure, online location Store “key” in local client database
  • 11. Build on advantages of current paper sharing Local control Physical world Simple to use Fits existing processes Verifiable history Connecting data to paper helps people work better together
  • 12. SharedRecords system overview Paper scanned (copier or camera) Image file encrypted locally with unique key ID (fingerprint) of encrypted file and key printed as barcode Encrypted file uploaded to SharedRecords.org using ID File downloaded and locally decrypted Accesses and related info uploaded
  • 13. SharedRecords.org Input Data on paper Scan (or photograph) Encrypt (free software) Store image + data (free) Print receipt (with barcode) Sharing Scan barcode (web or phone camera) Retrieve image + data Decrypt (free s/w) View / print Deposit in local DB (optional) NOT a product – Free software plus web service UnaMesa can help partners package for specific needs
  • 14. SharedRecords vs… EMR systems (Epic, etc) Data is “privately” owned by hospital Requires Role Based Access rules PHR systems (GoogleHealth, etc) Data is stored on behalf of individual in a “public” commercial service Requires username and login to access All or nothing access – individual can only grant access to full record SharedRecords Data is shared by individual and provider Use keys to access individual records Shared infrastructure Supports transfer of data between systems “ Owned” by community
  • 15. UnaMesa background: Service innovations projects Team members from Industry Academia NGO’s Local communities Develop and demonstrate in real world settings www.unamesa.org ServiceLink prototype Example childcare center project led to SharedRecords.org
  • 16. Our Goal: Access for everyone Eliminate barriers Providers have free tools to create Individuals have ability to access and share their records Enable integration of information for better care
  • 17. Acknowledgements Ricoh Innovations, Inc. for supporting the ServiceLink project and the UnaMesa Association Marc Guillet, PT, OCS, ATC for advice and participation in projects Child, Family and Community Services, Inc. for participation in projects Elin Pedersen for user centered innovation advice and practice Paul Lamb for advice and project management Zhenghao Chen for project support and artwork