Simon Conroy EMRAN Launch
- 1. www.le.ac.uk Why do we need an EM research into ageing network? Simon Conroy Geriatrician & Honorary Senior Lecturer
- 2. Outline • Why ageing research at all? • Existing support for research & delivery • UK Clinical Research Network • Ageing speciality group • Possible roles for EMRAN
- 3. Why do we need research into older people? • To improve patient care • To test interventions – Valid findings – Intervention effect & health economics – Generalisability • Old & frail vs. old & fit
- 4. Why do we need research into older people? • Historically older people have been excluded from clinical trials (PREDICT study) – Ageism – societal & clinicians/researchers – Practical features to support participation – Study design – excluding people who can’t give consent Leading to treatments that are not tested in the populations for whom they are given (OR not given)
- 5. Older people & research participation • http://www.crn.nihr.ac.uk/ageing/pcpie/
- 7. Frailty related evidence base
- 9. Existing support - EM • Support for portfolio development – http://www.rds-eastmidlands.nihr.ac.uk/ • Funding for portfolio development – http://www.clahrc-em.nihr.ac.uk/clahrc-em- nihr/index.aspx • Research delivery – http://www.enrich.dendron.nihr.ac.uk/news- item.php?ID=141 – http://www.crn.nihr.ac.uk/ageing/
- 10. Existing support - EM • Translating research into practice – http://emahsn.org.uk/ • Patient & public involvement – http://emahsn.org.uk/public-involvement/ – Local groups
- 11. UK Clinical Research Network • Recruited over 600k study participants in 2013/14 • Infrastructure – Set up clinical studies – Support delivery – Research training – Patient & public involvement
- 13. NIHR CRN: East Midlands • Population: 4.5 M • Derbyshire, Lincolnshire, Nottinghamshire, Leicestershire & Rutland, Northamptonshire • 10 NIHR hosted research networks • 15 NHS Trusts • 19 CCGs • 8 universities • Budget £23 M
- 14. UK CRN divisional structure
- 15. 0 2000 4000 6000 8000 10000 12000 Ageing Dermatology Health services and delivery research Musculoskeletal disorders Oral and Dental Health Primary Care Public Health Recruitment by County & Specialty in 21014-15 Derby City & County Lincolnshire LLR Leicester City & County & Rutland Northamptonshire Notts City & County Non-NHS - East Midlands LCRN
- 16. Ageing speciality group - remit • Healthy ageing and frailty • Organising and delivering interventions for health promotion • Ageing process and early markers of ill health • Modelling links between disease and functioning • Education and lifelong learning • Environmental conditions for ageing well • Effectiveness of clinical and social care
- 17. Acronym Active Status Trust Name Local Investigator Lead CLOTS-3 Closed - in follow- up Chesterfield Royal Hospital NHS Foundation Trust Dennis, Prof M Strok CLOTS-3 Closed - in follow- up Sherwood Forest Hospitals NHS Foundation Trust Cooke, Dr Justin Strok CLOTS-3 Closed - in follow- up United Lincolnshire Hospitals NHS Trust Leach, Dr Simon; Mangion, Dr David Strok PD REHAB Closed - in follow- up University Hospitals of Leicester NHS Trust Deme neuro Survey of Older Adults' views on Advance Care Planning in UK & Japan Closed - in follow- up University Hospitals of Leicester NHS Trust Musa, Irfan Prima Survey of Older Adults' views on Advance Care Planning in UK & Japan Closed - in follow- up Formerly Nottingham City PCT Musa, Dr Irfana Prima Survey of Older Adults' views on Advance Care Planning in UK & Japan Closed - in follow- up Formerly Nottinghamshire County Teaching PCT Musa, Dr Irfana Prima Hypertension in Dementia - Feasibility Study In Set-Up Nottingham University Hospitals NHS Trust Van Der Wardt, Dr Veronika Prima The FINOF Study Open Nottingham University Hospitals NHS Trust Sahota, Prof Opinder Muscu IVANOF1 Study Open Nottingham University Hospitals NHS Trust Moppett, Dr Iain K Injuri The effect (s) of routine administration of Fluoxetine in patients with a recent stroke - FOCUS Open United Lincolnshire Hospitals NHS Trust Mangion, Dr David; Leach, Dr Simon Strok PRoBaND: Parkinson's Repository of Biosamples and Network Datasets Open University Hospitals of Leicester NHS Trust Critchley, Peter Deme neuro PRoBaND: Parkinson's Repository of Biosamples and Network Datasets Open Derby Hospitals NHS Foundation Trust Bajaj, Dr Nin Deme neuro PRoBaND: Parkinson's Repository of Biosamples and Network Datasets Open United Lincolnshire Hospitals NHS Trust Sharma, Prof Jagdish Deme neuro Clinical Trial for Elderly Patients with Multiple Diseases (CHROMED) Open Formerly Lincolnshire Teaching PCT Siriwardena, Prof Aloysius Niroshan Respi Clinical Trial for Elderly Patients with Multiple Diseases (CHROMED) Open NHS Lincolnshire East CCG Siriwardena, Prof Aloysius Niroshan Respi Clinical Trial for Elderly Patients with Multiple Diseases (CHROMED) Open NHS Lincolnshire West CCG Siriwardena, Prof Aloysius Niroshan Respi Clinical Trial for Elderly Patients with Multiple Diseases (CHROMED) Open NHS South Lincolnshire CCG Siriwardena, Prof Aloysius Niroshan Respi Increasing physical activity in older adults Open Lincolnshire Partnership NHS Foundation Trust Collins, Dr Iheanyichukwu Esiwe Prima Hypertension in Dementia - Feasibility Study Open Leicester City PCT Prima Hypertension in Dementia - Feasibility Study Open Formerly Derby City PCT Van Der Wardt, Dr Veronika Prima Hypertension in Dementia - Feasibility Study Open Formerly Derbyshire County PCT Van Der Wardt, Dr Veronika Prima Hypertension in Dementia - Feasibility Study Open Formerly Lincolnshire Teaching PCT Van Der Wardt, Dr Veronika Prima Hypertension in Dementia - Feasibility Study Open Formerly Nottinghamshire County Teaching PCT Van Der Wardt, Dr V Prima Hypertension in Dementia - Feasibility Study Open NHS Mansfield and Ashfield CCG Van Der Wardt, Dr V Prima Hypertension in Dementia - Feasibility Study Open NHS Nottingham City CCG Van Der Wardt, Dr V Prima OPTIMAL: Better health for care homes Open NHS Nottingham City CCG Pitchford, Russell Deme neuro OPTIMAL: Better health for care homes Open Nottinghamshire Healthcare NHS Trust Pithford, Richard Deme neuro
- 19. Possible roles for EMRAN • Navigation & translation • Connection & coordination • Peer-support • ‘Memory’
- 20. Summary • ‘We’ve never had it so good’ • Opportunities • Mechanisms • Collaboration key