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HIV/AIDS Surveillance Systems:
Are they implemented effectively?




         LORENZO HOPPER
            HIMA 5060
          FINAL PROJECT
HIV/AIDs Epidemic

 First surfaced in United States in 1980s
 Acquired immune deficiency syndrome
   6th leading cause of death in United States

 Transmission occurs through:
   Blood (needle use)

   Vaginal secretions

   Breast milk

   Semen

 1.1 million Americans are living with HIV
   21% of these persons do not know they are infected



              Source: CDC, 2012
Approaches to address HIV/AIDs Epidemic

 Obama Administration
   2010 - initiated a National HIV/AIDS Strategy that established
    goals aimed at reducing HIV infection rates while increasing
    access to treatment
 Center for Disease Control and Prevention
   The CDC works with community, state, national, and
    international stakeholders in surveillance, research, and
    evaluation activities
 Surveillance Systems
   Improving the surveillance of the disease may have a major
    impact on the HIV/AIDs burden in America (Shortliffe, 2001)
Surveillance and Name Reporting

 HIV Surveillance
   Method of keeping a closer look at the activities of people and
    monitoring their behavior
 Name Reporting
   Reporting the names of all those who test positive for HIV to
    public health authorities
 AIDS
   listed as one of the notifiable diseases that state
    epidemiologists and the CDC have determined is of national
    significance and warrants routine, complete reporting.



                    Sources: Shortliffe, 2001
Benefits of Surveillance

 Benefits
   Provide periodic approximations of the incidence and
    prevalence of diseases
   Information used to produce annual surveillance reports,
    published by the Division of HIV/AIDS Prevention (DHAP).
   Due to the long incubation period of HIV, surveillance and
    name reporting may be the only way to maximize the number
    of people who qualify for a very high risk of contraction to get
    tested as soon as possible
Benefits

 Benefits
   Information used to prevent transmission

   Give patients ability to seek new effective drug therapies

   Name reporting can enhance the current HIV surveillance
    methodology while enhancing epidemiological data,
    promoting rapid dissemination of new information to public
    health professionals (Shortliffe, 2001).
Barriers to Data Collection

 Access to Care
   HIV Testing

 Underreporting
   Physicians

   Clinicians

 The CDC estimates that the completeness of case
 reporting of HIV infection to be around 80%
 currently (CDC, 2012).
Barriers

 Lack of awareness of the reporting requirement and
  procedures for the provider
 Lack of motivation due to the extra work necessary
  and poor system processes
 Ethical Issues
    Oppositions also exist for the general idea of name reporting of
     HIV cases to government entities
    Confidentiality
NEDSS

 National Electronic Disease Surveillance System
   CDC uses in order to address changing information technology
    capabilities for local, State, and national public health
    surveillance.
   Works as a secure online infrastructure that provides
    healthcare professionals and government agencies with the
    opportunity to communicate about disease patterns and
    coordinate national responses
   Not implemented across the United States




                   Source: NEDSS, 2007
References
Center for Disease Control and Prevention. HIV/AIDS Statistics and Surveillance. Department of Health and Human Services.
Retrieved November 30, 2012.

Chin, J. 1990. Public Health surveillance of AIDS and HIV infections. Bull World Health Organ. 68(5): 529-536

Desai, D., Wu, G., Zaman, M.H. 2011. Tackling HIV through robust diagnostics in the developing world: current status and
future opportunities. Lab Chip, 11, 194-211

Ford, M.A., Spicer, C.M. 2012. Monitoring HIV Care in the United States: Indicators and Data Systems. ISBN 978-0-309-21850-
4

HIV Surveillance and Name Reporting: A Public Health Case for Protecting Civil Liberties. An American Civil Liberties Union
Report. October 1997

Institute of Medicine. Monitoring HIV Care in the United States: Indicators and Data Systems. 2012. Report Brief. National
Academy of Sciences

National Electronic Disease Surveillance System. Center for Disease Control and Prevention. 2007, August. Retrieved from
http://www.cdc.gov/phin/library/phin_fact_sheets/111759_NEDSS.pdf

Pubmed Health. AIDS. A.D.A.M. Medical Encyclopedia. Retrieved November 30, 2012.

Roberts, L. 2012. HIV/AIDS in America. Introduction to Special Issue. Science 13 July 2012: 337:6091 p. 167

Savel, T.G., Foldy, S. 2012. The Role of Public Health Informatics in Enhancing Public Health Surveillance. Morbidity and
Mortality Weekly Report.

Schwarcz, L., Chen, M., Vittinghoff, E., Hsu, L., Schwarcz, S. 2012. Declining Incidence of AIDS-defining opportunistic illnesses:
results from 16 Years of population-based AIDS surveillance. AIDS

Shortliffe, E., Perreault, L.E., Wiederhold, G., Fagan, L.M. 2001. Medical Informatics: Computer Applications in Health Care
and Biomedicine. 2nd Edition. Springer. P 407

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HIV/Aids Surveillance Systems: Are They Implemented Effectively?

  • 1. HIV/AIDS Surveillance Systems: Are they implemented effectively? LORENZO HOPPER HIMA 5060 FINAL PROJECT
  • 2. HIV/AIDs Epidemic  First surfaced in United States in 1980s  Acquired immune deficiency syndrome  6th leading cause of death in United States  Transmission occurs through:  Blood (needle use)  Vaginal secretions  Breast milk  Semen  1.1 million Americans are living with HIV  21% of these persons do not know they are infected Source: CDC, 2012
  • 3. Approaches to address HIV/AIDs Epidemic  Obama Administration  2010 - initiated a National HIV/AIDS Strategy that established goals aimed at reducing HIV infection rates while increasing access to treatment  Center for Disease Control and Prevention  The CDC works with community, state, national, and international stakeholders in surveillance, research, and evaluation activities  Surveillance Systems  Improving the surveillance of the disease may have a major impact on the HIV/AIDs burden in America (Shortliffe, 2001)
  • 4. Surveillance and Name Reporting  HIV Surveillance  Method of keeping a closer look at the activities of people and monitoring their behavior  Name Reporting  Reporting the names of all those who test positive for HIV to public health authorities  AIDS  listed as one of the notifiable diseases that state epidemiologists and the CDC have determined is of national significance and warrants routine, complete reporting. Sources: Shortliffe, 2001
  • 5. Benefits of Surveillance  Benefits  Provide periodic approximations of the incidence and prevalence of diseases  Information used to produce annual surveillance reports, published by the Division of HIV/AIDS Prevention (DHAP).  Due to the long incubation period of HIV, surveillance and name reporting may be the only way to maximize the number of people who qualify for a very high risk of contraction to get tested as soon as possible
  • 6. Benefits  Benefits  Information used to prevent transmission  Give patients ability to seek new effective drug therapies  Name reporting can enhance the current HIV surveillance methodology while enhancing epidemiological data, promoting rapid dissemination of new information to public health professionals (Shortliffe, 2001).
  • 7. Barriers to Data Collection  Access to Care  HIV Testing  Underreporting  Physicians  Clinicians  The CDC estimates that the completeness of case reporting of HIV infection to be around 80% currently (CDC, 2012).
  • 8. Barriers  Lack of awareness of the reporting requirement and procedures for the provider  Lack of motivation due to the extra work necessary and poor system processes  Ethical Issues  Oppositions also exist for the general idea of name reporting of HIV cases to government entities  Confidentiality
  • 9. NEDSS  National Electronic Disease Surveillance System  CDC uses in order to address changing information technology capabilities for local, State, and national public health surveillance.  Works as a secure online infrastructure that provides healthcare professionals and government agencies with the opportunity to communicate about disease patterns and coordinate national responses  Not implemented across the United States Source: NEDSS, 2007
  • 10. References Center for Disease Control and Prevention. HIV/AIDS Statistics and Surveillance. Department of Health and Human Services. Retrieved November 30, 2012. Chin, J. 1990. Public Health surveillance of AIDS and HIV infections. Bull World Health Organ. 68(5): 529-536 Desai, D., Wu, G., Zaman, M.H. 2011. Tackling HIV through robust diagnostics in the developing world: current status and future opportunities. Lab Chip, 11, 194-211 Ford, M.A., Spicer, C.M. 2012. Monitoring HIV Care in the United States: Indicators and Data Systems. ISBN 978-0-309-21850- 4 HIV Surveillance and Name Reporting: A Public Health Case for Protecting Civil Liberties. An American Civil Liberties Union Report. October 1997 Institute of Medicine. Monitoring HIV Care in the United States: Indicators and Data Systems. 2012. Report Brief. National Academy of Sciences National Electronic Disease Surveillance System. Center for Disease Control and Prevention. 2007, August. Retrieved from http://www.cdc.gov/phin/library/phin_fact_sheets/111759_NEDSS.pdf Pubmed Health. AIDS. A.D.A.M. Medical Encyclopedia. Retrieved November 30, 2012. Roberts, L. 2012. HIV/AIDS in America. Introduction to Special Issue. Science 13 July 2012: 337:6091 p. 167 Savel, T.G., Foldy, S. 2012. The Role of Public Health Informatics in Enhancing Public Health Surveillance. Morbidity and Mortality Weekly Report. Schwarcz, L., Chen, M., Vittinghoff, E., Hsu, L., Schwarcz, S. 2012. Declining Incidence of AIDS-defining opportunistic illnesses: results from 16 Years of population-based AIDS surveillance. AIDS Shortliffe, E., Perreault, L.E., Wiederhold, G., Fagan, L.M. 2001. Medical Informatics: Computer Applications in Health Care and Biomedicine. 2nd Edition. Springer. P 407