TCP
- 1. 1 Adapted by Donzell Lampkins
- 2. Welcome Why bring TCP to this region? Why is this important? Why present it to the School of Social Work?
- 3. Introductions Name Social Work Interest Share a time when you experienced a “good” or “hard” death - either personally or professionally
- 5. TCP Founder Ellen Goodman 5
- 7. The Conversation Project Overview
- 8. WANT TO DIE AT HOME.
- 9. ACTUALLY DIE IN THE HOSPITAL
- 10. WANT TO TALK WITH THEIR DOCTORS.
- 11. HAVE HAD A CONVERSATION WITH THEIR DOCTORS
- 12. HAVE HAD A CONVERSATION WITH THEIR DOCTORS
- 13. THINK IT’S IMPORTANT TO HAVE THESE CONVERSATIONS
- 14. HAVE ACTUALLY DONE SO
- 15. Signs of Cultural Change Mainstream – Dr. Atul Gawande’s book “Being Mortal” and Dr. Paul Kalanithi’s “When Breath Becomes Air” hit the best seller list – Opening weekend success of “The Fault in Our Stars” – The Writers Guilds East and West – Brittany Maynard’s illness and death provokes national debate – Bi-partisan support for new legislation Medicine – The Institute of Medicine releases its report, "Dying in America” – Massachusetts rules that doctors must have a conversation about advance planning with terminally ill patients – CMS now reimburses for End-of-Life Care Conversations 15
- 16. Strategy for Creating Cultural Change Awareness: National media campaign and community engagement events Accessible: Tools to help people get started Available: Bringing TCP to people where they work, where they live, where they pray and where they receive care
- 19. Accessible: Our Tools Conversation Starter Kit (translations + EMR summary) How to Talk to Your Doctor Starter Kit Starter Kit for Parents of Seriously Ill Children Starter Kit for Families and Loved Ones of People with Alzheimer’s Disease or Other Forms of Dementia
- 21. Available: Where People Live, Work, and Pray Conversation Ready Communities: 400+ organizations in 40+ states Conversation Ready Companies: Tufts Health Plan, Goodyear Tire and Rubber Company, Fidelity and Dow Chemical bringing TCP to their employees Conversation Ready Health Systems: 40 systems Conversation Sabbath: an interfaith initiative started in Boston - engaging many faiths in November
- 22. The Conversation Starts with You
- 23. Getting Started How it works – Give current answers! – Personal, table, report out Ground rules
- 24. The Starter Kit
- 25. What Matters to Me… “I want to say goodbye to everyone I love, have one last look at the ocean, listen to some 90’s music, and go.” “Paced (and with enough space and comfort so that I can make it a ‘quality chapter’ in my life.) I want time and help to finish things.” “Having my sheets untucked around my feet!” “Peaceful, pain-free, with nothing left unsaid.” “In the hospital, with excellent nursing care.”
- 26. The Starter Kit: Get Set
- 27. 27
- 28. The Starter Kit: Go
- 29. When to Have “The Conversation” Early – Coming of Age – 18 & 21 Often – Before a Medical Crisis – 30, 40, 50, 60, 70 Major Life Event – College, Marriage, Children, Divorce, Medicare, Death in the Family Major Trip Newly Diagnosed with a Serious Illness
- 30. Icebreakers 30
- 31. The Starter Kit: Go Health Care Planning (HCP) Advance Directive (AD) Health Care Proxy Living Will MOLST/POLST
- 32. What Did You Learn? What plans did you make? Questions Concerns Surprises Trends
- 33. Leaving in Action Complete the Conversation Starter Kit Have the conversation Share the Conversation Starter Kit and other tools with friends and family Appoint a proxy, talk to your doctor, complete and Advance Directive Share your stories on our website Team up with local efforts in your region Join our monthly webinar for those interested in community efforts 33
- 34. Don’t Panic – It’s OK: A Letter to my Family If you are faced with a decision that you're not ready for, It’s ok I'll try to let you know what I would want for various circumstances, But if you come to something we haven't anticipated, It’s ok And if you come to a decision point and what you decide results in my death, It’s ok. You don't need to worry that you've caused my death – you haven't – I will die because of my illness or my body failing or whatever. You don't need to feel responsible. Forgiveness is not required, But if you feel bad / responsible / guilty, First of all don't and second of all, You are loved and forgiven. If you're faced with a snap decision, don't panic -- Choose comfort, Choose home, Choose less intervention, Choose to be together, at my side, holding my hand, Singing, laughing, loving, celebrating, and carrying on. I will keep loving you and watching you and being proud of you. 35
- 35. A Soul Doctor and a Jazz Singer
- 36. Questions? Name: Donzell Lampkins Role: HEALScholar & MSW Candidate Email: lampkin2@illinois.edu www.theconversationproject.org
- 37. Final Actions Complete Post-Evaluation Form Complete The Conversation Project Starter Kit Have the conversation today Visit the website for more information and resources www.theconversationproject.org