Viv and daniel's journey mar13ppt
- 1. Daniel’s journey (so far!) Viv Cooper The Challenging Behaviour Foundation
- 2. To cover.. Our family Daniel’s pathway Right support, right place, right time
- 3. What do we want for Daniel? An interesting, happy life Range of experiences Fulfilling potential
- 4. Remember……. “People whose behaviour challenges have the same needs as everyone else, in addition to special needs for help to overcome the problems their behaviour presents. They do not surrender their needs for personal relationships, for growth and development or for anything else because their behaviour presents a challenge to services. They have the same human rights as everyone else.” Mansell 2, 2007
- 6. Looking back – what was needed? Access to local expertise Information and training A holistic approach Partnership working Long term planning
- 7. Looking back – what happened? 52 week school 275 miles from home High cost Planning - what next?
- 8. What do families want? Information Good support To be valued as partners
- 9. Their experiences… a lack of local expertise & capability in understanding & responding to challenging behaviour difficulty accessing services unless in crisis a lack of support and training a lack of information to plan realistically, and hopefully, for the future; not being included as essential partners Scoping report: McGill Cooper & Honeyman (2010)
- 10. Institutional care- policy & practice Government policy: Winterbourne View: Individualised and person × Not individualised or person centred centred Local × Out of area Outcome focused × No outcomes Value for money × Generating profits for private company shareholders (ave. fee £3500 per week) Not institutional Community based × Institutional Open × Industrial estate × Closed
- 11. What works? A person centred approach Working in partnership Staff with knowledge and skill Good management & planning A focus on outcomes for the individual “.. A successful service looks like an ordinary home or occupation, when…it is a carefully designed & organised service dependent on a great deal of skill & management.” Mansell (2007)
- 12. Daniel now… Rents a bungalow (tenant) Staff support team Interesting and active life! Close to family Exploring employment opportunities Circle of support
- 13. Actions Stop putting people in the wrong types of service Invest in the development of quality local support around the person Sort out the funding Only register appropriate services Strengthen safeguarding
- 14. Quality monitoring….. “I want support providers to ask themselves: ‘would you like to live your life like this? Would this be good enough for you? For your son, daughter or relative?’ If the answer is no, then you need to change what you are you are doing.” Parent
- 15. “Don’t keep asking me what my views are, or consulting me about this, that or the other or the latest new idea. All I want for my son is that he has a good quality of life, with good quality support and good quality services.” Parent “Quality means doing it right when no-one is looking.” Henry Ford
- 16. Contact The Challenging Behaviour Foundation, C/o The Old Courthouse New Road Avenue Chatham Kent info@thecbf.org.uk www.challengingbehaviour.org.uk 01634 838739 info@thecbf.org.uk