Why Electronic Data Capture?
- 1. Based on a story of every day….
- 2. She won an NIH grant to study Malaria in Kenya • Summary of the aproved Protocol: • Collect demographic data and blood samples • 3 sites in rural Kenya • N= 6,000 subjects • Lab tests: PCR and microscopy • Frequency: 2 months; Duration: 4 years (logitudinal) • Minimun of 10 papers in high impact journals every year. • And more *.….. * Projects can be more complex than this. Here, we focus on the data managment
- 3. • Summary of the aproved Protocol: • Collect demographic data and blood samples • 3 sites in rural Kenya • N= 6,000 subjects • Lab tests: PCR and microscopy • Frequency: 2 months; Duration: 4 years (logitudinal) • Minimun of 10 papers in high impact journals every year. • And more *.….. * Projects can be more complex than this. Here, we focus on the data managment She won an NIH grant to study Malaria in Kenya
- 4. • Summary of the aproved Protocol: • Collect demographic data and blood samples • 3 sites in rural Kenya • N= 6,000 subjects • Lab tests: PCR and microscopy • Frequency: 2 months; Duration: 4 years (logitudinal) • Minimun of 10 papers in high impact journals every year. • And more *.….. * Projects can be more complex than this. Here, we focus on the data managment
- 5. • Summary of the aproved Protocol: • Collect demographic data and blood samples • 3 sites in rural Kenya • N= 6,000 subjects • Lab tests: PCR and microscopy • Frequency: 2 months; Duration: 4 years (logitudinal) • Minimun of 10 papers in high impact journals every year. • And more *.….. * Projects can be more complex than this. Here, we focus on the data managment But.. I am new .. I don’t know anything about this project… O.K. I need to see this working as soon as possible. And remember… we do not have much money or resources.. Bye!
- 6. • Data Collection intruments • Demographics and lab results. • Personal health information (phi) . • Secure tool (backups). • Facilitate statistical analysis and reports. • Should work for 4 years. • Off-line data collection • Oversee data colelction, (who, what, when) • Data acces groups
- 7. • Where to save the collected data? • Excel. • Build my own tool. • Existing Electronic Data Capture Tool. • REDCap (available at Stanford)
- 8. • Where to save the collected data? • Excel. • Build my own tool. • Existing Electronic Data Capture Tool. • REDCap (available at Stanford) Poor validation; no version control; difficult to share, manage, and integrate data ….
- 9. • Where to save the collected data? • Excel. • Build my own tool. • Existing Electronic Data Capture Tool. • REDCap (available at Stanford) Takes a long Time and is expensive
- 10. • Where to save the collected data? • Excel. • Build my own tool. • Existing Electronic Data Capture Tool. • REDCap (available at Stanford) REDCap is a mature, secure web application for building and managing online surveys and databases. Using REDCap's stream-lined process for rapidly developing projects.
- 11. • REDCap (available at Stanford) • Export (SPSS, SAS, Stata, R) • calendar, scheduling module, reporting tools, branching logic, file uploading, and calculated fields. • Multicentric projects, extensible via API, Hooks and Plugins. • App for off-line data-collection. Humm..
- 12. • REDCap (available at Stanford) • Longitudinal projects. Humm..
- 13. • Where to save the collected data? • Excel. • Build my own tool. • Existing Electronic Data Capture Tool. • REDCap (available at Stanford) • Automated export procedures (SPSS, SAS, Stata, R) • Built-in project calendar, a scheduling module, ad hoc reporting tools, and advanced features, such as branching logic, file uploading, and calculated fields. • Multicentric projects, extensible via API, Hooks and Plugins. Humm… that sounds complicated Don’t Worry, We are here to help.
- 14. • Where to save the collected data? • Excel. • Build my own tool. • Existing Electronic Data Capture Tool. • REDCap (available at Stanford) • Automated export procedures (SPSS, SAS, Stata, R) • Built-in project calendar, a scheduling module, ad hoc reporting tools, and advanced features, such as branching logic, file uploading, and calculated fields. • Multicentric projects, extensible via API, Hooks and Plugins. Humm… that sounds complicated Let Me Show you our Services.
- 15. • The Application FAQ • Stanford MedWiki Site • redcap-help@lists.stanford.edu (for questions) • REDCap Office Hours • REDCap Professional Services
- 16. • The Application FAQ • Stanford MedWiki Site • redcap-help@lists.stanford.edu • REDCap Office Hours • REDCap Professional Services REDCap at Stanford is supported as a 'self-service' tool.
- 17. • The Application FAQ • Stanford MedWiki Site • redcap-help@lists.stanford.edu • REDCap Office Hours • REDCap Professional Services You have available Videos, turorials and even a coursera course..
- 18. • The Application FAQ: • Stanford MedWiki Site: O.K. I Am going to check that…
- 19. TWO WEEKS LATER.. That is Amazing !
- 20. • The Application FAQ • Stanford MedWiki Site • redcap-help@lists.stanford.edu • REDCap Office Hours • REDCap Professional Services Sure, if you need more Help.. I Like REDCap, I built my database.. But, I still have questions, and not much time
- 21. • redcap-help@lists.stanford.edu (SalesForce): • REDCap Office Hours:
- 22. • REDCap Professional Services ($): • Project Design • Form Design • Event Design (longitudinal / repeating / etc...) • Survey Options (Patient Reported Outcomes) • Testing and Validation • Custimization – Working on the last 20%... • Development (Plugins, Hooks, API) And if you need more….
- 23. Thank You!! This project is going to be Amazing! You are Welcome!
- 24. But, it's never that easy .... Thank You!! This project is going to be Amazing! You are Welcome!
- 25. One year Later…. Guess What? I just got into Med School! That’s Great!
- 26. • Summary of the aproved Protocol: • Collect demographic data and blood samples • 3 sites in rural Kenya • N= 6,000 subjects • Lab tests: PCR and microscopy • Frequency: 2 months; Duration: 4 years (logitudinal) • Minimun of 10 papers in high impact journals every year. • And more *.….. * Projects can be more complex than this. Here, we focus on the data managment See ya!
- 27. • Summary of the aproved Protocol: • Collect demographic data and blood samples • 3 sites in rural Kenya • N= 6,000 subjects • Lab tests: PCR and microscopy • Frequency: 2 months; Duration: 4 years (logitudinal) • Minimun of 10 papers in high impact journals every year. • And more *.….. * Projects can be more complex than this. Here, we focus on the data managment See ya! And.... I don’t know anything about this project…
- 28. TO BE CONTINUED…