2011 03 23 hpm tweetchat transcript
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This transcript summarizes a Twitter discussion about plans to advocate for advance directive education around National Healthcare Decisions Day (NHDD) in April. Participants shared ideas like scheduling presentations at hospitals and churches, talking to family/friends, and partnering with community organizations to host educational events on the importance of advance care planning. The discussion emphasized starting conversations about healthcare wishes before a medical crisis.
2011 03 23 hpm tweetchat transcript
- 1. #hpm Healthcare Hashtag Twitter Transcript From: Wed Mar 23 17:55:00 PDT 2011 To: Wed Mar 23 19:05:00 PDT 2011 Customize transcript dates and layout Learn more about #hpm at The Healthcare Hashtag Project MatthewsMichele RT @renee_berry: #hpm Tweetchat is in less than 10min! Don't wait until you need #palliative care to learn about it, join our friendly chat #meded #healthlit Wed Mar 23 17:56:24 PDT 2011 MeredithGould And now a switch to our regular Wednesday programming: #HPM chat for an hour. Wed Mar 23 18:00:32 PDT 2011 renee_berry See Comment Section for my thoughts: RT @doclake Happy Hospitalist talks abt palliative care http://is.gd/GlZ0xY #hpm Wed Mar 23 18:02:42 PDT 2011 emilybarryPR Right on! RT @MeredithGould: And now a switch to our regular Wednesday programming: #HPM chat for an hour. #hpm Wed Mar 23 18:02:47 PDT 2011 renee_berry @MeredithGould Hey Meredith are you hosting or @PracticalWisdom ? #hpm Wed Mar 23 18:03:17 PDT 2011 renee_berry In the mean time... Hello everyone let's all start with introductions! Say hello & tell us your passion or interest in --> #hpm Wed Mar 23 18:04:06 PDT 2011 aliciabloom time for a little wednesday night #hpm chat. all the cool kids are doing it. Wed Mar 23 18:04:11 PDT 2011 DrSnit RT @MeredithGould: And now a switch to our regular Wednesday programming: #HPM chat for an hour. Wed Mar 23 18:04:35 PDT 2011 DrSnit Hey cats! Good to see you! #hpm Wed Mar 23 18:05:15 PDT 2011
- 2. GailZahtz Hi @renee_berry stopping in for as long as I can- patient, caregiver, founder of @ALifeGuide coming out in beta this week for ebm hcsm #hpm Wed Mar 23 18:05:26 PDT 2011 emilybarryPR Hi all! Emily Barry with Transcend Hospice Maarketing Group, aka @hospice_mktg! Advocate for starting #hospice early, convos about eolc #hpm Wed Mar 23 18:06:00 PDT 2011 GailZahtz If we're making T1 our passion in #hpm mine is definitely educating doctors and patients on the greater help pal docs provide to all pts. Wed Mar 23 18:06:47 PDT 2011 renee_berry --> passion for early palliative care, advance care directives, love live tweeting for public health, work w/ @KLXmedia #hpm Wed Mar 23 18:07:02 PDT 2011 GailZahtz @renee_berry HA, it was because of #HPM that I got a proxy and #hadthetalk so thanks for that Wed Mar 23 18:07:48 PDT 2011 MatthewsMichele @renee_berry hi all! I'm a media junkie...#hpm and #healthpolicy comm is my thing...mgr, public engagement @klxmedia #hpm Wed Mar 23 18:07:51 PDT 2011 renee_berry Well I'm going to do an impromptu lead on topics tonight... :) #hpm Wed Mar 23 18:07:57 PDT 2011 renee_berry T1 W/ @NHDD less than a month away, what are your plans as an individual to advocate for advance directive education in the community? #hpm Wed Mar 23 18:08:40 PDT 2011 GailZahtz @MatthewsMichele Are you knew at @klxmedia ? I thought it was the infamous pair from here at #hpm and some silent $ dude who never shows :)) Wed Mar 23 18:09:11 PDT 2011 GailZahtz @renee_berry T1 I thought April was for all #HPM Is it just for advance directive education? Wed Mar 23 18:09:55 PDT 2011 DrSnit My passion in #hpm is sharing and connecting REAL PEOPLE with OUR stories as MEANING in our every day lives -Research/pub/evidence/listening Wed Mar 23 18:09:56 PDT 2011 emilybarryPR T1 - Ask family and friends if they have advanced directives, tweet about importance of eol convos #hpm Wed Mar 23 18:10:29 PDT 2011 MatthewsMichele @GailZahtz @MatthewsMichele @klxmedia Yep, I'm the newbie...making it the dymanic trio v. duo...lol...excited to be a part of the team! #hpm Wed Mar 23 18:10:39 PDT 2011 renee_berry woo hooo! great! RT @emilybarryPR: T1 - Ask family and friends if they have advanced directives, tweet about importance of eol convos #hpm
- 3. Wed Mar 23 18:10:58 PDT 2011 renee_berry @DrSnit awesome, that's why you fit in with this group for sure! #hpm Wed Mar 23 18:11:28 PDT 2011 MeredithGould <--sociologist committed to communicating health & building online communities. Also on Twitter as @HealthFaith http://healthfaith.com #hpm Wed Mar 23 18:11:38 PDT 2011 CoachMattBloom RT @aliciabloom: time for a little wednesday night #hpm chat. all the cool kids are doing it. Wed Mar 23 18:11:49 PDT 2011 GailZahtz @MatthewsMichele Well welcome to #HPM you couldn't have better company than @klxmedia with @renee_berry and @ctsinclair Wed Mar 23 18:11:52 PDT 2011 hvto Hi all. T1 Have scheduled AD presentations at hospitals, ALF's, SNF's, and churches. #hpm Wed Mar 23 18:12:02 PDT 2011 drpippa Sorry to be late! T1- talking to staff, family, & friends. #hpm Wed Mar 23 18:12:12 PDT 2011 renee_berry @GailZahtz Hey Gail, @NHDD is in April check www.nhdd.org for more details, but here we're always advocating for edu on --> #hpm Wed Mar 23 18:12:26 PDT 2011 emilybarryPR RT @GailZahtz: @MatthewsMichele Well welcome to #HPM you couldnt have better company than @klxmedia with @renee_berry and @ctsinclair #hpm Wed Mar 23 18:12:28 PDT 2011 MatthewsMichele I've sent it out to my fellow alumni and current students at my alma mater to engage them on advance care planning #hpm Wed Mar 23 18:12:39 PDT 2011 renee_berry Great welcome everyone! We are chatting about our plans for @NHDD (anything from doing our own AD, chatting w/fam or community edu) #hpm Wed Mar 23 18:13:11 PDT 2011 aliciabloom @NHDD is an opportunity for #HPM clinicians to partner w/ community orgs/hospitals to host events re: importance of advance care planning Wed Mar 23 18:13:30 PDT 2011 GailZahtz T1 from my end we're running a grief and preparation chat @ALifeGuide with @JoshGriffin and others- helping plan ahead and cope after #HPM Wed Mar 23 18:13:54 PDT 2011 MeredithGould If next month is like this month, I might have to ask someone to deploy MY AD. #hpm Wed Mar 23 18:13:57 PDT 2011
- 4. hvto T1; Plan to leave notices at MD offices offering presentations at local hospitals for individuals and groups #hpm Wed Mar 23 18:14:13 PDT 2011 renee_berry we can all do this right? Thanks Pippa that's great! RT @drpippa: Sorry to be late! T1- talking to staff, family, & friends. #hpm Wed Mar 23 18:14:14 PDT 2011 renee_berry April 16th as in 'death & taxes' :) RT @MeredithGould: If next month is like this month, I might have to ask someone to deploy MY AD #hpm Wed Mar 23 18:14:52 PDT 2011 aliciabloom @NHDD is a chance to encourage communication about health care wishes before a medical crisis strikes. #HPM Wed Mar 23 18:15:06 PDT 2011 renee_berry RT @aliciabloom: @NHDD is a chance to encourage communication about health care wishes before a medical crisis strikes. #HPM Wed Mar 23 18:15:30 PDT 2011 MeredithGould @renee_berry Wha??? I was on the sched to host??? #hpm Wed Mar 23 18:15:38 PDT 2011 drpippa Not just clinicians! @aliciabloom: @NHDD an opportunity for #HPM clinicians partner w/ comm orgs/hosp to host events re: importance of acp Wed Mar 23 18:15:42 PDT 2011 GailZahtz @aliciabloom I agree completely that education for proxies should be when we're well for all areas, not just after medical crisis #HPM Wed Mar 23 18:15:55 PDT 2011 MatthewsMichele Agreed-->aliciabloom: @NHDD is an opp for #HPM docs to join orgs/hospitals to host events re: importance of advance care planning #hpm Wed Mar 23 18:16:17 PDT 2011 hvto T1- Can any one recommend an appropriate "letter to the editor" type article? Submitting my own but interested n other resources #hpm Wed Mar 23 18:16:33 PDT 2011 renee_berry RT @drpippa: Not just clinicians! @aliciabloom: @NHDD an opportunity for #HPM clinicians partner w/ comm orgs/hosp to host events re: im ... Wed Mar 23 18:16:43 PDT 2011 drpippa Also - we are teaming up with local orgs for outreach that can cover a wider area than we can cover alone. #hpm Wed Mar 23 18:17:03 PDT 2011 KathyKastner Sory late.I love coming to this school of #hpm .Will be reviewing fantastic book @DNRstories Wed Mar 23 18:17:05 PDT 2011 Hi folks. Thanks for hosting Renee. Lurking. #hpm
- 5. Hi folks. Thanks for hosting Renee. Lurking. #hpm Wed Mar 23 18:17:23 PDT 2011 equijada renee_berry @hvto talk to @matthewsmichele she's been helping a lot of people with specific @NHDD outreach to local media #hpm Wed Mar 23 18:17:32 PDT 2011 renee_berry hi Earl!! RT @equijada: Hi folks. Thanks for hosting Renee. Lurking. #hpm Wed Mar 23 18:17:59 PDT 2011 emilybarryPR @hvto Check out @nhdd website too #hpm Wed Mar 23 18:18:04 PDT 2011 ctsinclair Hey everyone, sorry I am late. I was home sick today and overslept for Tweetchat, thanks @Renee_Berry for picking up mantle #hpm Wed Mar 23 18:18:38 PDT 2011 hvto @emilybarryPR Check out @nhdd website too - thought that as soon as I hit "enter". #hpm Wed Mar 23 18:19:10 PDT 2011 ctsinclair Will be mostly lurking and RT good tweets, not up for talking too much #hpm Wed Mar 23 18:19:19 PDT 2011 GailZahtz @ctsinclair You okay? #hpm Wed Mar 23 18:19:38 PDT 2011 renee_berry @ctsinclair no prob, we're chatting about plans as individuals for @NHDD #hpm Wed Mar 23 18:19:44 PDT 2011 hvto @ctsinclair Need hospice? #hpm Wed Mar 23 18:19:51 PDT 2011 DrSnit @equijada Hey lurky! :) Glad you're here! #hpm Wed Mar 23 18:19:56 PDT 2011 DrSnit @ctsinclair Sorry you're sick. :( booo! #hpm Wed Mar 23 18:20:08 PDT 2011 renee_berry We're about to move to T2 so wrap up any thoughts on your (personal) plans for 4/16 @NHDD #hpm Wed Mar 23 18:20:36 PDT 2011 KathyKastner LOL RT @hvto: @ctsinclair Need hospice? #hpm Wed Mar 23 18:20:37 PDT 2011 ctsinclair RT @hvto: @ctsinclair Need hospice? #hpm "No not too bad, body achy stuff,. carry
- 6. ctsinclair on, ignore the infirm man hacking in the back of class" Wed Mar 23 18:20:38 PDT 2011 DNRstories RT @KathyKastner: Sory late.I love coming to this school of #hpm .Will be reviewing fantastic book @DNRstories Wed Mar 23 18:21:08 PDT 2011 MatthewsMichele @hvto @emilybarryPR @nhdd is great resource! I'm also happy to help you and identify press for a pitch. #hpm Wed Mar 23 18:21:08 PDT 2011 GailZahtz @equijada Sent a dm cause I know you hardly check. BTW if anyone asks in DC metro, National Rehab Hospital has amazing pal med team #hpm Wed Mar 23 18:21:19 PDT 2011 GailZahtz @MatthewsMichele why don't you post a link to one at the fb page y'all started? #hpm Wed Mar 23 18:22:17 PDT 2011 EldrcareConsult Hello all! Sorry I am late.....bad weather here in Knoxville #hpm Wed Mar 23 18:22:22 PDT 2011 hvto @MatthewsMichele @hvto @emilybarryPR @nhdd Thank you - will be in touch. #hpm Wed Mar 23 18:22:35 PDT 2011 renee_berry T2 What are some innovative & out of the box ways that we (as an online community) can help advocate for early advance care planning? #hpm Wed Mar 23 18:23:01 PDT 2011 doctatum Missouri EOL coalition doing button campaign. "Who Knows?" When asked what, a conversation starts #nhdd #hpm Wed Mar 23 18:23:14 PDT 2011 EldrcareConsult @renee_berry Hire a geriatric care manager! :) #hpm Wed Mar 23 18:23:35 PDT 2011 ctsinclair The hospital that I work at will be hosting information booths about @NHDD, but I also wonder if that is the best way to engage? #hpm Wed Mar 23 18:23:53 PDT 2011 emilybarryPR That's great! RT @doctatum: Missouri EOL coalition doing button campaign. "Who Knows?" When asked what, a conversation starts #nhdd #hpm Wed Mar 23 18:24:11 PDT 2011 ctsinclair RT @doctatum: Missouri EOL coalition doing button campaign. "Who Knows?" When asked what, a conversation starts #nhdd 'clever' #hpm Wed Mar 23 18:24:22 PDT 2011 KathyKastner #hpm T2 add #seniors #eldercarechat to tweets. Wed Mar 23 18:24:31 PDT 2011
- 7. GailZahtz @renee_berry T2 If AD is taken out of just EOL into all a proxy can do, it would be much more approachable for people #HPM Wed Mar 23 18:24:36 PDT 2011 EldrcareConsult Seriously, its all about education #hpm Wed Mar 23 18:25:23 PDT 2011 ctsinclair RT @renee_berry: T2 What are some innovative ways that we (as an online community) can help advocate for early advance care planning? #hpm Wed Mar 23 18:25:34 PDT 2011 MatthewsMichele @ctsinclair @NHDD It's a way to engage with ppl who not yet bitten by the social media bug and good way to direct to online resources #hpm Wed Mar 23 18:26:00 PDT 2011 GailZahtz @EldrcareConsult Yes, but the education has to be more than just asking if you have an AD when you go into the ER..too intimidating #HPM Wed Mar 23 18:26:11 PDT 2011 hvto I use the 5 Wishes forms. Local church posted "5 Wishes with Robin" but sounded a little kinky - ironically we had a great turnout. #hpm Wed Mar 23 18:26:33 PDT 2011 renee_berry agree! RT @GailZahtz @renee_berry T2 If AD is taken out of just EOL into all a proxy can do, would be much more approachable for people #hpm Wed Mar 23 18:26:51 PDT 2011 ctsinclair T2: get young adults involved to at least consider advanced care planning with engaging stories about sudden change in health status #hpm Wed Mar 23 18:27:07 PDT 2011 DrSnit I'm constantly fascinated by the multiple cultural differences in "early planning" & "having the talk." There is no standard way to die #hpm Wed Mar 23 18:27:15 PDT 2011 renee_berry haha as long as they go over advance directives! RT @EldrcareConsult: @renee_berry Hire a geriatric care manager! :) #hpm Wed Mar 23 18:27:18 PDT 2011 renee_berry RT @ctsinclair: T2: get young adults involved to at least consider advanced care planning with engaging stories about sudden change in health status #hpm Wed Mar 23 18:27:27 PDT 2011 aliciabloom we need to take the AD conversation out of the hospital and into the community-- churches & community organizations. #HPM Wed Mar 23 18:27:41 PDT 2011 KathyKastner #hpm T2 I can Wed Mar 23 18:27:45 PDT 2011 EldrcareConsult @GailZahtz @EldrcareConsult Agreed Gail. It starts with the primary care docs long before they would need an AD #hpm Wed Mar 23 18:27:46 PDT 2011
- 8. Wed Mar 23 18:27:46 PDT 2011 nothosepeople RT @DrSnit: I'm constantly fascinated by the multiple cultural differences in "early planning" & "having the talk." There is no standard way to die #hpm Wed Mar 23 18:28:03 PDT 2011 DrSnit Many religions will teach people that there should be no fear of death. But they never teach what to do when they really start to die #hpm Wed Mar 23 18:28:12 PDT 2011 ctsinclair I think online polling and services like Hunch might be good to explore re: prevailing attitudes #hpm Wed Mar 23 18:28:13 PDT 2011 aliciabloom @DrSnit just as there is no standard way to live. #HPM Wed Mar 23 18:28:16 PDT 2011 GailZahtz T2 Many people, especially teens don't want to confront any sudden medical change, but will approach proxy for emergencies #HPM Wed Mar 23 18:28:20 PDT 2011 renee_berry T2 I think advance care planning is a public health issue, should be part of annual visit w/primary care MD starting @ age 17 #hpm Wed Mar 23 18:28:34 PDT 2011 DrSnit @aliciabloom word. Yet we are constantly dictated to as though there IS a "better" way to live and die both. #hpm Wed Mar 23 18:29:11 PDT 2011 GailZahtz @renee_berry T2 your idea on annual visit made me think of all the work that's done on self-exams and momogram-maybe a model? #hpm Wed Mar 23 18:29:22 PDT 2011 joshgriffin RT @DrSnit: I'm constantly fascinated by the multiple cultural differences in "early planning" & "having the talk." There is no standard way to die #hpm Wed Mar 23 18:29:22 PDT 2011 EldrcareConsult @renee_berry YES!! Just what I was saying renee #hpm Wed Mar 23 18:29:42 PDT 2011 renee_berry T2 (expanded) Have you seen innovative ways to educate the community on advance care planning? Can we use this chat to brainstorm some? #hpm Wed Mar 23 18:29:44 PDT 2011 DrSnit @ctsinclair The study of attitudes (both qualitative and quantitative) is what I both specialize in and do. #hpm Wed Mar 23 18:29:47 PDT 2011 hvto office asks "any change in insurance?" - how about "any change in AD's?" "Don't have 1"= impetus for conversation during visit. #hpm Wed Mar 23 18:30:00 PDT 2011
- 9. rlbates RT @DrSnit Many religions teach people there should be no fear of death. But they never teach what to do when they really start to die #hpm Wed Mar 23 18:30:05 PDT 2011 KathyKastner #hpm T2 (oops) I have to give a sneak preview of @DNRstories: Fantstic examples of IRL decisions that helps give perspective to AD Wed Mar 23 18:30:23 PDT 2011 GailZahtz @EldrcareConsult IMO a strong physician to physician campaign of pal med docs to primary care and hospitals would go a long way #HPM Wed Mar 23 18:30:30 PDT 2011 DrSnit @renee_berry why age 17? (and I agree with this idea and sentiment). #hpm Wed Mar 23 18:30:33 PDT 2011 ctsinclair @DrSnit I think we need to take the research at make it more accessible/personalized to the general public , need brainstorming power #hpm Wed Mar 23 18:30:46 PDT 2011 EldrcareConsult @renee_berry I always ask during my inital assessments if they have an AD or HPOA and if they dont I have information to give them #hpm Wed Mar 23 18:30:50 PDT 2011 joshgriffin RT @DrSnit: Many religions will teach people that there should be no fear of death. But they never teach what to do when they really start to die #hpm Wed Mar 23 18:31:01 PDT 2011 renee_berry @GailZahtz interesting, I think that advance care planning shouldn't be a thing 'we get around to' but a core part of care #hpm Wed Mar 23 18:31:08 PDT 2011 aliciabloom reframe the advance directive discussion-- it's about how you want to live, not how you want to die #HPM Wed Mar 23 18:31:25 PDT 2011 ctsinclair RT @DrSnit Many religions teach people there should be no fear of death. But they never teach what to do when they really start to die #hpm Wed Mar 23 18:31:44 PDT 2011 DrSnit @ctsinclair YES! And this is why I'm here. I want to STOP being an "outside" no touch researcher and BRING it to the people. #hpm Wed Mar 23 18:31:51 PDT 2011 GailZahtz @renee_berry Yes, I'm thinking in every restroom now there are signs for self exam, domestic violence, condoms- why not AD? #hpm Wed Mar 23 18:32:03 PDT 2011 EldrcareConsult @renee_berry @GailZahtz There just needs to be an overhaul of the whole process but how to you get buy in from the industtry? #hpm Wed Mar 23 18:32:14 PDT 2011 renee_berry RT @EldrcareConsult: @renee_berry I always ask during my inital assessments if
- 10. renee_berry they have an AD or HPOA and if they dont I have information to give them #hpm Wed Mar 23 18:32:34 PDT 2011 renee_berry RT @DrSnit: @ctsinclair YES! And this is why Im here. I want to STOP being an "outside" no touch researcher and BRING it to the people. #hpm Wed Mar 23 18:32:58 PDT 2011 KathyKastner RT @aliciabloom: reframe the advance directive discussion-- it's about how you want to live, not how you want to die #HPM #eldercarechat Wed Mar 23 18:33:04 PDT 2011 renee_berry RT @aliciabloom: reframe the advance directive discussion-- its about how you want to live, not how you want to die #hpm Wed Mar 23 18:33:07 PDT 2011 DrSnit @KathyKastner am very interested in this. #hpm Wed Mar 23 18:33:22 PDT 2011 ctsinclair Speaking of bold thinking for adv care planning check out @rlbates blog post about her 5 wishes http://bit.ly/hIhYOa #nhdd #hpm Wed Mar 23 18:33:24 PDT 2011 GailZahtz @EldrcareConsult within hospital and trainings, such as grand rounds, all docs need more info on what pal med docs really offer #hpm Wed Mar 23 18:33:29 PDT 2011 renee_berry (sorry for so many RT's everyone, I just agree many times over) #hpm Wed Mar 23 18:33:32 PDT 2011 ctsinclair Every wednesday I seem to want to learn more and more about the enigimatic and interesting @DrSnit #hpm Wed Mar 23 18:34:10 PDT 2011 DrSnit @aliciabloom I love this! And at some point -how you live and how you die are basically intertwined because we're on a terminal track #hpm Wed Mar 23 18:34:16 PDT 2011 ctsinclair RT @renee_berry: (sorry for so many RTs everyone, I just agree many times over) "S'alright" #hpm Wed Mar 23 18:34:22 PDT 2011 drpippa We are doing a trial of waiting room posters & having MA ask all physicals & provide a basic FAQ if needed while waiting for doc. #hpm Wed Mar 23 18:34:37 PDT 2011 MeredithGould @ctsinclair She's quite amazing & wonderful -->@DrSnit #hpm Wed Mar 23 18:34:43 PDT 2011 hvto @ctsinclair @rlbates this is why I use 5 wishes- 5 wish describes a great plan for living; forgiveness, honor, etc. #hpm Wed Mar 23 18:34:44 PDT 2011
- 11. KathyKastner Oh Good. Cause I couldn't put it down. RT @DrSnit: @KathyKastner am very interested in this. #hpm cc@DNRstories Wed Mar 23 18:34:55 PDT 2011 renee_berry @DrSnit @aliciabloom technically we're all dying right now... just as much as we're living (right?) #hpm Wed Mar 23 18:35:15 PDT 2011 ctsinclair @drpippa MA? #hpm Wed Mar 23 18:35:23 PDT 2011 doctatum RT @DrSnit: @aliciabloom And at some point -how you live and how you die are basically intertwined because were on a terminal track #hpm Wed Mar 23 18:35:24 PDT 2011 EldrcareConsult I think with the knowledge we have in this group we could make a huge difference #hpm Wed Mar 23 18:35:40 PDT 2011 ctsinclair RT @DrSnit: @aliciabloom And at some point -how you live and how you die are basically intertwined because were on a terminal track #hpm Wed Mar 23 18:36:04 PDT 2011 aliciabloom @renee_berry @DrSnit absolutely right! #hpm Wed Mar 23 18:36:05 PDT 2011 KathyKastner +1RT @EldrcareConsult: I think with the knowledge we have in this group we could make a huge difference #hpm Wed Mar 23 18:36:06 PDT 2011 MeredithGould T2 Should (that naughty word) be part of health ed in schools & part of athletic team participation sign-up. #hpm Wed Mar 23 18:36:14 PDT 2011 emilybarryPR Tks for reality check! RT @renee_berry: @DrSnit @aliciabloom technically were all dying right now... just as much as were living right? #hpm Wed Mar 23 18:36:25 PDT 2011 drpippa MA=medical assistant. Training them to ask just like they take vitals, ask re allergies, etc @ctsinclair: @drpippa MA? #hpm Wed Mar 23 18:36:45 PDT 2011 rlbates Thx RT @ctsinclair Speaking of bold thinking for adv care planning chk out @rlbates post about her 5 wishes http://bit.ly/hIhYOa #nhdd #hpm Wed Mar 23 18:37:08 PDT 2011 EldrcareConsult @MeredithGould That is a good point! I think health ed but not neccesarily school sports #hpm Wed Mar 23 18:37:10 PDT 2011 MeredithGould RT @drpippa: MA=medical assistant. Training them to ask just like they take vitals,
- 12. MeredithGould RT @drpippa: MA=medical assistant. Training them to ask just like they take vitals, ask re allergies, etc @ctsinclair: @drpippa MA? #hpm Wed Mar 23 18:37:11 PDT 2011 hvto @DrSnit @aliciabloom blog post today described a PA's response to dying pt - http://bit.ly/gIRFRM, made AD discussion easier for family #hpm Wed Mar 23 18:37:14 PDT 2011 renee_berry T2 What about setting goals w/a list of medical conferences--> not #hpm & submit abstracts about advance care planning #hpm Wed Mar 23 18:37:15 PDT 2011 ctsinclair @drpippa Cna the MA follow up with significant answers or are they instructed to defer? Trying to avoid checklist and move on phenom #hpm Wed Mar 23 18:37:36 PDT 2011 GailZahtz Gotta run, but whether we are chronic, diagnosed, terminal or healthy, we all choose if we're living or dying today. #HPM Wed Mar 23 18:37:42 PDT 2011 MeredithGould @EldrcareConsult I immediately think school sports because, well, kids can DIE playing them. #hpm Wed Mar 23 18:37:46 PDT 2011 renee_berry yes! have you seen @BradHStuart 's AIM program? RT @drpippa MA=medical assistant. Training them to ask just like they take vitals #hpm Wed Mar 23 18:38:05 PDT 2011 hvto I hate to leave this great group - think I'm forgiven; have to make posters for the AD presentation coming up in the a.m. #hpm Wed Mar 23 18:38:29 PDT 2011 renee_berry @MeredithGould @EldrcareConsult or how about durring driver's ed, instead of just an organ donation sheet, start your advance directive #hpm Wed Mar 23 18:38:48 PDT 2011 ctsinclair @hvto Yes you are forgiven #hpm Wed Mar 23 18:39:08 PDT 2011 renee_berry obvi :) RT @hvto I hate to leave this great group - think Im forgiven; have to make posters for the AD presentation coming up in am #hpm Wed Mar 23 18:39:13 PDT 2011 FeliciaDewar @GailZahtz Gail, sorry to interrupt the #HPM chat but have you ever heard of "Youth Juice"? I know u educate yourself lots, so just wonderin Wed Mar 23 18:39:15 PDT 2011 MeredithGould @renee_berry Brilliant! Driver's Ed...along with a visit to an ER on Saturday night. @EldrcareConsult #hpm Wed Mar 23 18:39:16 PDT 2011 drpippa @renee_berry @bradhstuart no haven't seen it! Would love to tho #hpm Wed Mar 23 18:39:22 PDT 2011
- 13. ctsinclair @renee_berry that might get controversial in some school districts a la "government intrusion fears" #hpm Wed Mar 23 18:39:42 PDT 2011 drpippa @ctsinclair varying success, really depends on how comfortable we can make them. Def working on it! #hpm Wed Mar 23 18:40:01 PDT 2011 MatthewsMichele T2 PSAs encouraging ppl to plan health care decisions like schooling/financial futures ex. #NHDD post by Schuster http://bit.ly/hSjyTb #hpm Wed Mar 23 18:40:04 PDT 2011 ctsinclair Anyone interested in taking on @Quora on the Advance care planning topic? Popular place to be right now #hpm Wed Mar 23 18:40:32 PDT 2011 MatthewsMichele @ctsinclair @renee_berry how is it anymore intrusive than telling them what they can and cant eat in schools? #hpm Wed Mar 23 18:40:40 PDT 2011 renee_berry Amazing innovations from @BradHStuart http://ow.ly/4lbx0 @drpippa you will LOVE this :) #hpm Wed Mar 23 18:41:09 PDT 2011 EldrcareConsult @renee_berry @MeredithGould @EldrcareConsult Oh now that is a good idea! #hpm Wed Mar 23 18:41:21 PDT 2011 drpippa @renee_berry @MeredithGould kids are hard - gen have no sense of their mortality & we don't want to do harm. Not sure I agree with age #hpm Wed Mar 23 18:42:37 PDT 2011 ctsinclair @MatthewsMichele Just saying it could be blown out of proportion without the right implementation #hpm Wed Mar 23 18:42:38 PDT 2011 MeredithGould @ctsinclair May I be forgiven in advance for something I may or not do? Just askin' #hpm Wed Mar 23 18:42:53 PDT 2011 renee_berry As a parent I would be like, yes child see the ED I don't want you there & I want you to know why #driversEd #havethetalk early #hpm Wed Mar 23 18:43:00 PDT 2011 renee_berry so can anything :) RT @ctsinclair: @MatthewsMichele Just saying it could be blown out of proportion without the right implementation #hpm Wed Mar 23 18:43:11 PDT 2011 DrSnit RT @hvto: @DrSnit @aliciabloom blog post today described a PA's response to dying pt - http://bit.ly/gIRFRM, made AD discussion easier for family #hpm Wed Mar 23 18:43:20 PDT 2011
- 14. MeredithGould @drpippa By "harm" do you mean scare the snot out of them? If so, why not?? #hpm Wed Mar 23 18:43:22 PDT 2011 ctsinclair @MeredithGould I try to avoid promises without seeing the goods, but in your case I will oblige ;-) #hpm Wed Mar 23 18:43:49 PDT 2011 MeredithGould @ctsinclair <blush> Missed you at #mccsm #mayoragan #hpm Wed Mar 23 18:44:13 PDT 2011 ctsinclair RT @hvto blog post today described a PAs response to dying pt - http://bit.ly/gIRFRM, made AD discussion easier for family @NHDD #hpm Wed Mar 23 18:44:19 PDT 2011 renee_berry @MeredithGould @drpippa agree we don't want to harm, just think it's important for them to understand their mortality as a new driver #hpm Wed Mar 23 18:45:34 PDT 2011 aliciabloom let's make "have you had the talk?" buttons. #hpm Wed Mar 23 18:45:34 PDT 2011 ctsinclair RT @aliciabloom: let's make "have you had the talk?" buttons. #hpm Wed Mar 23 18:45:53 PDT 2011 drpippa @MeredithGould not quite what i meant but evidence shows that scared straight programs (whether for drugs, etoh, etc) don't work. #hpm Wed Mar 23 18:45:58 PDT 2011 EldrcareConsult @aliciabloom I would so buy one of those! #hpm Wed Mar 23 18:46:06 PDT 2011 MeredithGould @renee_berry @drpippa Clearly *I* am not a mom! #hpm Wed Mar 23 18:46:12 PDT 2011 MeredithGould @drpippa Yeah, I know...you're right. #hpm Wed Mar 23 18:46:36 PDT 2011 renee_berry RT @aliciabloom lets make "have you had the talk?" buttons. #hpm Wed Mar 23 18:46:48 PDT 2011 ctsinclair RT @drpippa: @MeredithGould not quite what i meant but evidence shows that scared straight programs dont work. 'agree work w/ empower' #hpm Wed Mar 23 18:47:19 PDT 2011 renee_berry I have a five wishes @NHDD button, I wear it everywhere (even when I get drinks w/friends at bars #yesImInMyTwenties ) #hpm Wed Mar 23 18:47:29 PDT 2011
- 15. MatthewsMichele @renee_berry @MeredithGould great idea to help them plan their futures; they're at that age--why not advance care planning too? #hpm Wed Mar 23 18:47:39 PDT 2011 aliciabloom RT @renee_berry: I have a five wishes @NHDD button, I wear it everywhere (even when I get drinks w/friends at bars #yesImInMyTwenties ) #hpm Wed Mar 23 18:48:13 PDT 2011 drpippa Me too! @renee_berry: I have a five wishes @NHDD button, I wear it everywhere (even when I get drinks w/friends at bars #notinmy20s) #hpm” Wed Mar 23 18:48:40 PDT 2011 renee_berry ok wrap up w/ T2 final thoughts, moving to T3 #hpm Wed Mar 23 18:49:28 PDT 2011 EldrcareConsult @drpippa @renee_berry @NHDD Someone needs to send me a "5 wishes" button! :( #hpm Wed Mar 23 18:50:02 PDT 2011 ctsinclair If anyone knows someone on Conana/Kimmel/Fallon/Colbert/Daily Show would love to get @NHDD as a topic. Hits key demographic #hpm Wed Mar 23 18:50:05 PDT 2011 doctatum While waiting T3, Modern Family "dying" neighbor scene hillarious. #hpm Wed Mar 23 18:50:54 PDT 2011 drpippa Haven't spent time there...should go @ctsinclair: Anyone interested in taking on @Quora on the ACP topic? Popular place to be right now #hpm Wed Mar 23 18:51:25 PDT 2011 ctsinclair RT @doctatum: While waiting T3, Modern Family "dying" neighbor scene hillarious. "Missed that one, will search" #hpm Wed Mar 23 18:51:36 PDT 2011 emilybarryPR Great idea! RT @ctsinclair: If anyone knows someone on Conana/Kimmel/Fallon/Colbert/Daily Hits key demographic #hpm Wed Mar 23 18:51:40 PDT 2011 MatthewsMichele @ctsinclair @NHDD I'll work on that! Few contacts I can tap. #hpm Wed Mar 23 18:51:46 PDT 2011 ctsinclair @drpippa Only if you have no other projects to work on. Reportedly @Quora can suck you in. #hpm Wed Mar 23 18:51:57 PDT 2011 GinaRClark RT @DrSnit: Many religions will teach people that there should be no fear of death. But they never teach what to do when they really start to die #hpm Wed Mar 23 18:51:58 PDT 2011 MeredithGould @doctatum LOVE Modern Family. Totally hilarious and great physical comedy. #hpm Wed Mar 23 18:52:13 PDT 2011
- 16. renee_berry T3 What are your favorite advance care planning resources 1 that you send to other professionals &2 that you send to fam/friends #hpm Wed Mar 23 18:52:32 PDT 2011 drpippa I 2nd that! The dying scene was hilarious. @MeredithGould: @doctatum LOVE Modern Family. Totally hilarious and great physical comedy. #hpm Wed Mar 23 18:53:01 PDT 2011 renee_berry why I don't let myself on much RT @ctsinclair @drpippa Only if you have no other projects to work on. Reportedly @Quora can suck you in #hpm Wed Mar 23 18:53:01 PDT 2011 DNRstories @ctsinclair Agree. Bringing EOL issues into mainstream media is first step to awareness #hpm Wed Mar 23 18:53:15 PDT 2011 aliciabloom Five Wishes is an excellent tool for advance care planning discussions #HPM Wed Mar 23 18:53:55 PDT 2011 renee_berry (rapid fire T3 peeps only 6min left in our lovely chat... fav resources?) #hpm Wed Mar 23 18:54:15 PDT 2011 emilybarryPR T3 - Five Wishes, Engage With Grace are both great resources that are simple and get convos going #hpm Wed Mar 23 18:54:15 PDT 2011 renee_berry RT @aliciabloom: Five Wishes is an excellent tool for advance care planning discussions #hpm Wed Mar 23 18:54:22 PDT 2011 ctsinclair RT @emilybarryPR: T3 - Five Wishes, Engage With Grace are both great resources that are simple and get convos going #hpm Wed Mar 23 18:54:28 PDT 2011 EldrcareConsult @aliciabloom I like 5 wishes too #hpm Wed Mar 23 18:54:34 PDT 2011 MeredithGould My fave social media buds hypothesize that @Quora is yet another Flavor of the Month #hpm Wed Mar 23 18:54:55 PDT 2011 renee_berry I sent people to CaringInfo.org often but I like that @NHDD has up to date content so I send people there now more often #hpm Wed Mar 23 18:55:24 PDT 2011 joshgriffin RT @ctsinclair: If anyone knows someone on Conana/Kimmel/Fallon/Colbert/Daily Show would love to get @NHDD as a topic. Hits key demographic #hpm Wed Mar 23 18:55:48 PDT 2011 ctsinclair RT @MeredithGould: My fave socmed buds hypothesize @Quora is yet another
- 17. ctsinclair RT @MeredithGould: My fave socmed buds hypothesize @Quora is yet another Flavor of the Month "concur - shiny new object syndrome" #hpm Wed Mar 23 18:55:49 PDT 2011 KathyKastner #hpm A teenager is distracting me. I think I'll have to have the talk to shut her up. Thank goodness for transcripts. Wed Mar 23 18:55:50 PDT 2011 drpippa yep @renee_berry: I sent people to CaringInfo.org often but I like that @NHDD has up to date content so I send ppl there now more often #hpm Wed Mar 23 18:56:27 PDT 2011 aliciabloom POLST forms are the future #HPM Wed Mar 23 18:56:35 PDT 2011 MeredithGould @ctsinclair Ok, just wanted another take on @Quora. I learning to be an late early adopter for my own sanity & time mgmt #hpm Wed Mar 23 18:56:47 PDT 2011 MatthewsMichele me too @renee_berry: sent ppl to CaringInfo.org often but like that @NHDD has up to date content so I send people there now more often #hpm Wed Mar 23 18:56:54 PDT 2011 healthpolicygrp MT @DrSnit: There is no standard way to die. There are multiple cultural "early planning" & "having the talk differences" #hpm #publichealth Wed Mar 23 18:57:02 PDT 2011 renee_berry Madison Park @CNN has written some great articles on different advance care planning topics & angles #hpm Wed Mar 23 18:57:24 PDT 2011 renee_berry RT @healthpolicygrp: MT @DrSnit: There is no standard way to die. There are multiple cultural "early planning" & "having the talk differences" #hpm #publichealth Wed Mar 23 18:57:45 PDT 2011 emilybarryPR Agree! More detailed than AD and part of med rec. I'm an advocate for them RT @aliciabloom: POLST forms are the future #hpm Wed Mar 23 18:57:48 PDT 2011 OncoPRN RT @ctsinclair: Anyone interested in taking on @Quora on the Advance care planning topic? Popular place to be right now #hpm Wed Mar 23 18:58:20 PDT 2011 ctsinclair Going to sleep all! Wise words: drink lots of water, wash your hands, dont get sick. #hpm Wed Mar 23 18:58:35 PDT 2011 renee_berry more clinical edu needed & I do like POLST but don't think they replace AD's RT @aliciabloom POLST forms are the future #hpm Wed Mar 23 18:59:00 PDT 2011 DrSnit @ctsinclair nite nite feel better!!! #hpm Wed Mar 23 18:59:24 PDT 2011
- 18. doctatum RT @aliciabloom: POLST forms are the future #hpm Wed Mar 23 18:59:32 PDT 2011 emilybarryPR Feel better @ctsinclair! Some of my @hospice_mktg colleagues are visiting KC Hospice tomorrow! #hpm Wed Mar 23 18:59:43 PDT 2011 MatthewsMichele @renee_berry @healthpolicygrp @DrSnit Too bad those differences sometimes = not "having the talk" at all...how do we combat?! #hpm Wed Mar 23 18:59:55 PDT 2011 MeredithGould @ctsinclair Pink gloves! Purple if pink doesn't work! Feel better. #hpm Wed Mar 23 18:59:55 PDT 2011 MatthewsMichele @renee_berry @healthpolicygrp @DrSnit ...or work within them to address advance care planning? #hpm Wed Mar 23 19:01:23 PDT 2011 renee_berry OK everyone we're wrapping up! Thanks so much for joining the #hospice & #palliative care tweetchat! stats here http://ow.ly/4lbWf #hpm Wed Mar 23 19:01:30 PDT 2011 doctatum I think next step here is for our EMR to adequately capture Adv Dir. Prominently Displayed ACP not done, might start the talk #hpm Wed Mar 23 19:01:52 PDT 2011 DrSnit @MatthewsMichele I LISTEN to others once I ask them what their cultural beliefs are -even if they don't want to talk about THEMSELVES #hpm Wed Mar 23 19:02:18 PDT 2011 renee_berry @MatthewsMichele @healthpolicygrp @DrSnit ---> w/Public Education #havethetalk @NHDD #hpm Wed Mar 23 19:02:26 PDT 2011 drpippa Thanks for a fab tweet chat @renee_berry! Loved the conversation. #hpm Wed Mar 23 19:02:36 PDT 2011 DrSnit Thanks for rocking the #hpm so much everyone. You cats get more fab every time I see you! Thanks for great mod @renee_berry !! *cartwheel* Wed Mar 23 19:03:23 PDT 2011 KathyKastner RT @drpippa: Thanks for a fab tweet chat @renee_berry! Loved the conversation. #hpm Wed Mar 23 19:03:23 PDT 2011 MatthewsMichele great chat everyone! Thanks. #hpm Wed Mar 23 19:03:33 PDT 2011 renee_berry thanks for coming! (I knew you'd love tonight Pippa!!) RT @drpippa Thanks for a fab
- 19. renee_berry thanks for coming! (I knew you'd love tonight Pippa!!) RT @drpippa Thanks for a fab tweet chat @renee_berry! Loved the conversation. #hpm Wed Mar 23 19:03:51 PDT 2011 MeredithGould Your point about being alert for and sensitive to cultural differences is very impt.@DrSnit #hpm Wed Mar 23 19:03:55 PDT 2011 emilybarryPR Thanks for leading @renee_berry! Always great chats everyone! #hpm Wed Mar 23 19:04:03 PDT 2011