Data gathering | Primary data collection | Healthcare blockchain

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Copyright © 2023 pubrica. No part of this document may be published without permission of the author
Medical Data Collection
Sample Work
Medical data collection on interstitial cysts and
drug uracyst's impact on patient quality of life

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The objective outlined in this essay is to investigate the condition of interstitial cystitis as a
study topic, develop a research question and project goal, and explain three potential
methodologies. The gathering and administration of data collection important to the project
will be highlighted. The writer will critically evaluate the benefits and drawbacks of each
approach regarding the chosen topic and the ethical difficulties and considerations for each
methodological approach. The writer will next choose one of the approaches and explain why
it is the best method for gathering data. The author wishes to create a study that will assess
the impact of the medicine Uracyst on the quality of life of patients suffering from interstitial
cystitis before and after instillation.
Aim:
The study's goal is to evaluate the patient quality of life improvement using before and post-
symptom scores for each subject.
Objective
To assess the influence of the medication uracyst on a patient's quality of life at Week 1 and
Week 24 using the O Leary Sant Score assessment.
A set of questionnaires were used to collect data at week 1 and week 24. The O'Leary - Sant
score will be used by the author. As a therapy outcome measure for interstitial cystitis (IC),
the O'Leary-Sant Interstitial Cystitis Symptom Index (ICSI) has been suggested."The ICSI is
a valid, reliable, and responsive measure of change in IC symptoms," writes Ludbeck et al.
(2001). The author intends to investigate the effects of this specific medicine, as well as its
advantages and adverse effects. The writer will concentrate on how the medicine improves a
person's quality of life to the point where they can live with and regulate their symptoms. A
research like this should provide insight into the symptoms that certain customers will
experience and how they differ from other clients. In addition, the study will assess the use of
a perspective (the situational approach) that has received little attention in the IC/PBS
literature. Kushner et al. (2006) investigated the efficacy of interstitial cystitis screening
questionnaires.

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The researchers discovered that "these questionnaires should not be used to define interstitial
cystitis, but can be used to screen patients with urinary tract symptoms to identify those who
should be further examined for interstitial cystitis or to follow those who have already been
diagnosed" (Journal of Urology 2006 176 pg587-92).
The O'Leary- sant score will be used to:
Quantitative Research entails the examination of numerical data. The obtained data is
numerical, enabling data gathering from a larger sample size. Because there are three
nursing professionals, the statistics created will be more objective when analyzing
outcomes and independent of the researcher.
The data may be shown in graphs, charts, and tables by employing the O-Leary Sant
score. Examples can be provided towards the conclusion of the essay.
It will take less time and may frequently be completed on the computer by any of the
three nursing professionals.
Data gathering methods can be quite rapid; however, the time required to input the
statistics weekly can vary depending on the kind of data.
1. Using the O'Leary-sant score and evaluation, determine if urgency has improved during 24
weeks.
2. Using the O'Leary-sant score and evaluation, determine if the frequency has improved
during 24 weeks.
3. Using the O'Leary-sant score and evaluation, determine if nocturia has improved
throughout the 24 weeks.
4. Using the O'Leary-sant score and evaluation, determine if pain or burning improves over
24 weeks.
5. Using the O'Leary-sant score and evaluation, determine if specific lifestyle adjustments can
improve symptoms and general improvements in one's life.
Because three practitioners will conduct the Research, quantitative metrics may be more
accurate because they will be based on data analysis—design of Research.

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It will be longitudinal Research with defined week 1 and week 24 time points. It will
concentrate on symptom improvement during 24 weeks. Comparisons will be conducted at
the beginning and completion of the treatment, and symptom ratings will be examined. For
my project, I plan to use random sampling. Sampling at random Random sampling is one of
the most well-known sampling techniques. Each customer has an equal chance of being
included in the research sample in a random sample. Simple random sample selection may be
achieved in various methods, such as pulling names or numbers from a box and then
selecting all odd or even numbers to include the customer base. According to Mugo Fridah
W., "It can be said that using a sample in research saves primarily on money and time." A
sample should give accurate and trustworthy information if a good sampling approach is
utilized, an acceptable sample size is chosen, and essential safeguards are taken to decrease
search will on sampling and measurement mistakes." The three approaches that the author
will consider are as follows:
Structured Observation. This method could be used within the outpatient setting for gaining
data. Macleod (2015) feels that this type of Research has both strengths and weaknesses. He
found that other researchers could use it, and it appears reliable. The numerical figures are
easier and quicker to obtain results, and observations can occur quickly. However, the writer
feels it is not viable to see everyone in the outpatient setting following treatment. Time
constraints for clinics would not allow for this type of observation to be carried out.
Participants may even act differently when being observed therefore questioning the results
of the Research.
Structured Interview. These strategies aim to give all participants equal opportunity to answer
the same questions in the same sequence. This entails interacting with the interviewer.
Macleod (2015) discovered them to be simple and quick to carry out. However, without
flexibility, getting a real image of the individual is impossible. It is not easy to obtain detailed
information from a structured interview or to potentially quantify a genuine outcome,
especially after medication administration.
Structured Questionnaire. This will be the method of choice for the researchers. A before and
post questionnaire will be utilized to generate a result that will be compared to the
installation of a medicine. They are cost-effective, controllable, and provide quick and easy
outcomes in the authors' field of employment. Through computer-generated programs, they
are simple to analyze and obtain statistical findings. The writer believes that because the
patients would not be under any time limitations, they will answer the questions more
honestly.

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The symptom score can be filled in at this appointment. Before any research can begin,
informed permission must be obtained. The Royal College of Nursing (RCN) cites Parahoo
(2006) in its recommendations. Informed consent is " agreeing to participate in a study based
on having access to all relevant and easily digestible information about what participation
entails, particularly in terms of risks and benefits."(2006) (Parahoo). Informed consent is
more than simply agreeing to participate in Research; it is about the patient being aware of
all the information before deciding to participate in your study. Research is also influenced
by ethical and legal regulations. All patients, regardless of religion, gender, culture, or
handicap, should be treated with dignity. Researchers must get permission from the
appropriate research ethics committee.
The limitations that the writer may encounter are as follows.
Time limitations will be a big concern since the writer only has two outpatient
appointments weekly. Due to my hectic clinical responsibilities, this may cause challenges
and time constraints in working on the project.
For example, when on yearly leave, material may not be properly analyzed in my
absence. A patient's main restriction is whether they have a urinary tract infection.
Treatment is ignored in this situation, which may result in further outpatient
consultations. To avoid this problem, lifestyle guidelines following instillation must be
followed. In this instance, the medication must be discontinued and antibiotic therapy
initiated.
The participants' honesty. They could have someone else fill out the questionnaire. All
parts of the questionnaire may not be completed leading to incorrect data being
recorded.
Failures may also arise due to the patient's failure to comply. Medications are given by
the GP and consultant—failure to follow lifestyle recommendations.
Nonattendance in the therapeutic setting:
Successful treatment necessitates regular attendance at each weekly slot. Failure to attend
may cause symptoms to worsen and erroneous data to be collected if the cycle is
disrupted.

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Patient Questionnaire O-Leary Sant Score To be completed by the patient before Uracyst is
instilled at weeks 1, week and week 24 Patient Name:
_____________________________________ Date:
_________________________________________ Section A. How are you feeling in general?
1. How would you assess the overall improvement in your condition after starting Uracyst at
week 0?

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Section B. Tell us about your symptoms 1. How frequently have you had an urgent need to
urinate with little or no warning in the last month?
Section C. Tell us how much your condition has been a problem for you How much of the
following has been an issue for you in the last month? 1. Do you urinate frequently during
the day?

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Section D. Tell us about the pain you have been experiencing 1. Please mark with an X the
position on the line below (between the two faces) that best shows how much pain you have
been experiencing in the last month. Week 1_________________________J L No pain
Worst pain ever Week 10_________________________ J L No pain Worst pain ever
Week____________________________________ 24 J L No pain Worst pain ever 2.
Pain associated with urgency (urgency describes a sudden need to dash to the loo)? Week
1___________________ J L No pain Worst pain ever Week
10_________________________ J L No pain Worst pain ever Week
24_________________________ J L No pain Worst pain ever.
For further details, please see our website blog and Medical Survey Data Collection.
What are the Variables used in data extraction for prospective cohort studies in a systematic
review?
References
Barron A, White P (1996). Consultation .IN: Hamric A B, Spross J A and Hanson C M
(Eds) Advanced Nursing Practice – An Integrative Approach.W B Saunders:
Philadelphia. Cvach K , Rosamilia A. (2015 Dec). Review of intravesical therapies for
bladder pain syndrome/interstitial cystitis. Transl Androl Urol. 4 (6), 629–637.
Davis, N., Brady, C. and Creagh, T. (2014). Interstitial cystitis/painful bladder syndrome:
epidemiology, pathophysiology and evidence-based treatment options. European Journal
of Obstetrics & Gynecology and Reproductive Biology, 175, pp.30-37.
Ens G, Garrido GL. Role of cystoscopy and hydrodistention in the diagnosis of
interstitial cystitis/bladder pain syndrome. Translational Andrology and Urology.
2015;4(6):624-628. doi:10.3978/j.issn.2223-4683.2015.09.04. http://Galen (2011) Uracyst –
Chrondroitin Sulfate,2% www.Galen.co.uk [Accessed 1 Dec. 2017].
Haq, A., Donaldson, P. and Parry, J. (2001). Oral cimetidine gives effective symptom
relief in painful bladder disease: a prospective, randomized, double-blind placebo-
controlled trial. BJU International, 88(4), pp.444-445.

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Healthypeople.gov. (2017). Health-Related Quality of Life and Well-Being | Healthy
People 2020. [online] Available at:
https://www.healthypeople.gov/2020/about/foundation-health-measures/Health-Related-
Quality-of-Life-and-Well-Being [Accessed 1 Dec. 2017].
Kushner L1, Moldwin RM.(2006) Efficiency of questionnaires used to screen for
interstitial cystitis. (Journal of Urology 2006 176 pg587-92) Relief in painful bladder
disease: a prospective, randomized, double-blind Placebo-controlled trial. BJU Int 2001;
88:444–5. doi:10.1046/j.1464- 410X.2001.02377.
Torpy J, Kasturia MD , Golub RM , (May 23/30, 2012). Interstitial Cystitis. Available:
JAMA. 2012; 307(20):2211. doi:10.1001/jama.2012.3943. Last accessed 5th Nov 2015.
Lubeck, D., Whitmore, K., Sant, G., Alvarez-Horine, S. and Lai, C. (2001).
Psychometric validation of the O'leary-Sant interstitial cystitis symptom index in a
clinical trial of pentosan polysulfate sodium. Urology, 57(6), pp.62-66.

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