Collaboration  In Disease Surveillance &  Response Dennis Israelski, M.D. Dir. of Programs  Eduardo Jezierski, Dir. of Engineering
InSTEDD at a Glance Non profit, based in Palo Alto, California, USA Mission: Innovative application of technology to early detection and better response to diseases and disasters Founded by Larry Brilliant in 2006, TED Prize Funding: Google.org, Rockefeller Foundation and others First implementation: Mekong Collaboration Program Free and open source
After the tsunami in Banda Aceh:  A city leveled, and only one bar of cell signal
In our view,  collaboration ,  in outbreak containment and humanitarian action,  is THE critical task  Refugee management Cholera outbreak Katrina response
Economic Impact of Recent Epidemics (12 listed, and all but one zoonotic) Avian Flu, EU $500m 1996 1997 1998 1999 2000 2001 2002 2003 $50bn $40bn $30bn $20bn $10bn Estimated costs BSE, UK  $10-13bn Foot & Mouth Disease Taiwan, $5-8bn 1992 1993 1994 1995 Foot-and-Mouth Disease UK $30bn Avian Flu Asia, US, Canada $10bn (2004-now) 2004 BSE, US  $3.5bn BSE, Canada $1.5bn Lyme disease US $2.5bn SARS China, Hong Kong, Singapore, Canada… $50bn+ Nipah, Malaysia $350-400m Swine Flu, Netherlands $2.3bn BSE, Japan  1.5bn ©  Graphic from  "SARS and the New Economics of Bio-Security", by James Newcomb, Managing Director, Research for Bio Economic Research Associates, LLC or bio-era in 2003.
Hybrid Disease Surveillance Surveillance Systems Capture Filter Verify Identified risks Mandatory notification Laboratory surveillance Emerging risks Syndromic surveillance Mortality monitoring Healthcare activity monitoring Prescription monitoring Non healthcare based Veterinary surveillance Behavioral surveillance Environmental surveillance Poison centers Food safety/water supply … Domestic, NGOs Field Reports Open Media Surveillance Veratect (Argus) , GPHIN, etc  Int’l Distribution lists ProMed (Regular, MBDS, Spanish, Russian, etc.) International agencies  WHO, OIE, CDC NASA (e.g., remote sensing, weather, population migration, bird migration, population density, plant, animal) Confidential/Limited ProMed (e.g., MBDS) International health regulation agencies (WHO, OIE, CDC, NASA) Threat bulletin (EWARN, ECDC) Public dissemination News, blogs, articles,  Health ministry press releases websites Weekly releases (Eurosurveillance) Event Monitoring Indicator Based Event Based Collect Analyze Interpret Assess Disseminate Investigate Signal Control measures Alert
Steung Treng Province, northern Cambodia May 2008
From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation
From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation Human Sensor & Actuator Network GeoChat Messages Location Metadata Alerts Data Interop& Information Flow Mesh4x 2-way sync Maps Databases Documents Over Files, Web, SMS Group Decision Making & Analytics “ Riff” Info Streams Social Metadata Visualizations Analytics
From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation Group Decision Making & Analytics “ Riff” Info Streams Social Metadata Visualizations Analytics Human Sensor & Actuator Network GeoChat Messages Location Metadata Alerts Data Interop & Information Flow Mesh4x 2-way sync Maps Databases Documents Over Files, Web, SMS
GeoChat SMS Messages on a map Mabvuku, Zimbabwe * Found 3 cases of watery diarrhea * urgent Lat long, Geocoding, tags SMS, email, (VHF?) Open or closed groups Visualize, Analyze, Export data Interactive Reply, see conversation threads Group reply, with filters Group chat channels (IRC over SMS) Built for austere settings Cell plugged in to PC, or scale up to SIP Simple extensibility of message bots Wiki-like base for geocoding gaps Integrate with your application Sync with HR contact list, embed UI Integrate client into J2ME or WinCE device
From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation Human Sensor & Actuator Network GeoChat Messages Location Metadata Alerts Group Decision Making & Analytics “ Riff” Info Streams Social Metadata Visualizations Analytics Data Interop & Information Flow Mesh4x 2-way sync Maps Databases Documents Over Files, Web, SMS
Mesh4x: Simplify information flow REST-based N-way sync + Reliable than SOAP messaging Feedsync- Creative Commons ATOM & RSS Extensions No ‘single master’ Server, Desktop & Mobile Storage adapters MySQL, Access, KML, … Transport adapters Http, File, SMS text messages,… Security Encryption & oAuth authN Mapping Xforms, RDF support 1- abc 2 - efg2 3 - xyz 1- abc 2 - efg1 3 - --- 1- abc 2 - efg 3 - xyz 1- abc 2 - efg 3 - xyz 1- abc 2 - efg 3 - --- 1- abc 2 - efg2 3 - xyz SMS-based or IrDA sync http or USB Drive sync Sync over http 1- abc 2 - efg2 3 - --- 1- abc 2 - efg2 3 - ---
From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation Journals ICS Operations Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Human Sensor & Actuator Network GeoChat Messages Location Metadata Alerts Group Decision Making & Analytics “ Riff” Info Streams Social Metadata Visualizations Analytics Data Interop & Information Flow Mesh4x 2-way sync Maps Databases Documents Over Files, Web, SMS
Riff: Collaboration around streams Field Report 12 Article 234 Discussions Tagging Tags: influenza, unconfirmed 2 Comments Tags: maps, influenza, asia 3 Comments Favorites Location 12  2  asia   influenza   maps   outbreak ,  suspected,  unconfirmed SE Asia Health Alerts Alerts Search Last Update: 30 minutes ago 30 minutes ago 12 hours ago … Extensible! Language translation Visualization of data –eg genetic sequences, health alerts, medical records Cross-space search, aggregation. Exporting as different data formats. Spatiotemporal metadata Autonomous agents scanning & applying heuristics continuously Logged in as  User567 News Item 345 16 hours ago Newest first Latest comments 30 min ago by User445 ( link ) “I don’t think this news is accurate as it omits  to mention the ...” (3 other members logged in) Current Alerts Item 1  , 30 mins ago, by User123 List Existing Modules Lorem ipsum dolor sit amet, consectetuer adipiscing elit. Proin a ante. Fusce magna arcu, tristique vitae, accumsan eget, tristique eu, tortor. Donec euismod leo vitae augue. Donec aliquet augue non eros. Nam Lorem ipsum dolor sit amet, consectetuer adipiscing elit. Proin a ante. Fusce magna arcu, tristique vitae, accumsan eget, tristique eu, tortor. Donec euismod leo vitae augue. Donec aliquet augue non eros. Nam condimentum. Donec Private or Public Spaces One or more source feeds Security Management From Stung Treng province From ReliefWeb
Collaborative Analytics Article feature extraction Tags Content – in Riff Metadata Comments Location Flags/Alerts/Bookmarks Environment Factors Phylogenetics Remote Sensing Event Classification and Detection Previous Event Training Data Previous Event Control Data Metadata extraction Other reference information Machine Learning Show event characterizations Social network acting on item Other information Open Media Professional network feedback Professional Feedback Anomaly Detection Riff Spaces InSTEDD Event Characterization & Detection Bot
InSTEDD Field Lab Participatory ethnography meets natural selection We learn there by failing fast and failing often. In the end, we hope the tools we select will be:   more robust, more reliable, and easier to use.
Know who’s driving Release Plan Iteration Plan Iteration Release Daily Standup Dev & Test Spikes Month Week Day Release Release 1m Quality Requirements Functional and non Priorities Partners Demo Script Iteration 1 w Priorities Key Tasks Deployments “ Day” 1d Dev, Test, UX Community
Don’t reinvent the wheel Develop & share  Partner, influence & contribute Integrate & extend existing components Use & recommend Existing Solutions Examples KML, Feedsync, Open Street Maps,  Integrate BT w21c SMS with Google Maps, SMSLib with Mesh4x, transformers & adapters Contribute to SMSLib, javaROSA, etc Platform components OSS project creation Scout, search, integrate & extend, before building. When building, share and actively involve adopters in the process
Innovation Lab in Phnom Penh Beyond Local Sustainability…. … to Sustainable Local Innovation Cross Discipline Experts Unforeseen ideas Cultural fit Global Public Health experience Human Factors & Design Innovative tools & services Epidemiologists Anthropologists Broader adoption Better  cross sector coordination Research Developing Engineers Global applicability
Thank you! http://instedd.org [email_address] [email_address]
Requirements we’ve run into
Using consumer technologies in times of crisis Microblogging – post text messages, subscribe to friends and colleagues, real-time information Send text messages to all followers or directed to specific people, in the open or privately Social Networking – Graphs of people, trust and information Control who gets access to information and infer relevance based on that ‘who’ Mapping, imagery, and 2D / 3D map modeling Rapidly assess a situation, then add information that other tools can use to enhance an understanding of ‘where’ US & UK SMS Only Web signup required www.istwitterdown.com Web-only, not applicable to austere environments, privacy & security concerns, restrictive interop EULA Great for visualizing, hard to interact No offline mode When will it become OSS?
Using consumer technologies in times of crisis Microblogging – post text messages, subscribe to friends and colleagues, real-time information Used extensively by some fire departments, some journalists Social Networking – Graphs of people, trust and information Control who gets access to information and infer relevance based on that ‘who’ Mapping, imagery, and 2D / 3D map modeling Rapidly assess a situation, then add information that other tools can use to enhance an understanding of ‘where’ US & UK SMS Only Web signup required www.istwitterdown.com Web-only, not applicable to austere environments, privacy & security concerns Great for visualizing, hard to interact, Not OSS Area Commercial Systems Humanitarian & Health systems Privacy breach Annoying Life-threatening Usability Always a plus! Overworked, underpaid, untrained, and tired users Coordination & Process Integration Centralized Workflows No overarching authority; dynamic dependencies; collaborate in context of conflicting agendas Data Integration Hierarchical replication, high bandwidth Dynamic, whenever/however possible Infrastructure Central governance, slow-moving, slack capacity End-user driven, dynamic, no excess capacity Agility IT dictates user behavior. Long & expensive dev cycles Users can wait to get features from engineering Need to empower local users to innovate on & beyond existing solutions –  Customization, Extensibility, Interoperable by design

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InSTEDD HISA Conference

  • 1. Collaboration In Disease Surveillance & Response Dennis Israelski, M.D. Dir. of Programs Eduardo Jezierski, Dir. of Engineering
  • 2. InSTEDD at a Glance Non profit, based in Palo Alto, California, USA Mission: Innovative application of technology to early detection and better response to diseases and disasters Founded by Larry Brilliant in 2006, TED Prize Funding: Google.org, Rockefeller Foundation and others First implementation: Mekong Collaboration Program Free and open source
  • 3. After the tsunami in Banda Aceh: A city leveled, and only one bar of cell signal
  • 4. In our view, collaboration , in outbreak containment and humanitarian action, is THE critical task Refugee management Cholera outbreak Katrina response
  • 5. Economic Impact of Recent Epidemics (12 listed, and all but one zoonotic) Avian Flu, EU $500m 1996 1997 1998 1999 2000 2001 2002 2003 $50bn $40bn $30bn $20bn $10bn Estimated costs BSE, UK $10-13bn Foot & Mouth Disease Taiwan, $5-8bn 1992 1993 1994 1995 Foot-and-Mouth Disease UK $30bn Avian Flu Asia, US, Canada $10bn (2004-now) 2004 BSE, US $3.5bn BSE, Canada $1.5bn Lyme disease US $2.5bn SARS China, Hong Kong, Singapore, Canada… $50bn+ Nipah, Malaysia $350-400m Swine Flu, Netherlands $2.3bn BSE, Japan 1.5bn © Graphic from "SARS and the New Economics of Bio-Security", by James Newcomb, Managing Director, Research for Bio Economic Research Associates, LLC or bio-era in 2003.
  • 6. Hybrid Disease Surveillance Surveillance Systems Capture Filter Verify Identified risks Mandatory notification Laboratory surveillance Emerging risks Syndromic surveillance Mortality monitoring Healthcare activity monitoring Prescription monitoring Non healthcare based Veterinary surveillance Behavioral surveillance Environmental surveillance Poison centers Food safety/water supply … Domestic, NGOs Field Reports Open Media Surveillance Veratect (Argus) , GPHIN, etc Int’l Distribution lists ProMed (Regular, MBDS, Spanish, Russian, etc.) International agencies WHO, OIE, CDC NASA (e.g., remote sensing, weather, population migration, bird migration, population density, plant, animal) Confidential/Limited ProMed (e.g., MBDS) International health regulation agencies (WHO, OIE, CDC, NASA) Threat bulletin (EWARN, ECDC) Public dissemination News, blogs, articles, Health ministry press releases websites Weekly releases (Eurosurveillance) Event Monitoring Indicator Based Event Based Collect Analyze Interpret Assess Disseminate Investigate Signal Control measures Alert
  • 7. Steung Treng Province, northern Cambodia May 2008
  • 8. From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation
  • 9. From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation Human Sensor & Actuator Network GeoChat Messages Location Metadata Alerts Data Interop& Information Flow Mesh4x 2-way sync Maps Databases Documents Over Files, Web, SMS Group Decision Making & Analytics “ Riff” Info Streams Social Metadata Visualizations Analytics
  • 10. From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation Group Decision Making & Analytics “ Riff” Info Streams Social Metadata Visualizations Analytics Human Sensor & Actuator Network GeoChat Messages Location Metadata Alerts Data Interop & Information Flow Mesh4x 2-way sync Maps Databases Documents Over Files, Web, SMS
  • 11. GeoChat SMS Messages on a map Mabvuku, Zimbabwe * Found 3 cases of watery diarrhea * urgent Lat long, Geocoding, tags SMS, email, (VHF?) Open or closed groups Visualize, Analyze, Export data Interactive Reply, see conversation threads Group reply, with filters Group chat channels (IRC over SMS) Built for austere settings Cell plugged in to PC, or scale up to SIP Simple extensibility of message bots Wiki-like base for geocoding gaps Integrate with your application Sync with HR contact list, embed UI Integrate client into J2ME or WinCE device
  • 12. From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation Human Sensor & Actuator Network GeoChat Messages Location Metadata Alerts Group Decision Making & Analytics “ Riff” Info Streams Social Metadata Visualizations Analytics Data Interop & Information Flow Mesh4x 2-way sync Maps Databases Documents Over Files, Web, SMS
  • 13. Mesh4x: Simplify information flow REST-based N-way sync + Reliable than SOAP messaging Feedsync- Creative Commons ATOM & RSS Extensions No ‘single master’ Server, Desktop & Mobile Storage adapters MySQL, Access, KML, … Transport adapters Http, File, SMS text messages,… Security Encryption & oAuth authN Mapping Xforms, RDF support 1- abc 2 - efg2 3 - xyz 1- abc 2 - efg1 3 - --- 1- abc 2 - efg 3 - xyz 1- abc 2 - efg 3 - xyz 1- abc 2 - efg 3 - --- 1- abc 2 - efg2 3 - xyz SMS-based or IrDA sync http or USB Drive sync Sync over http 1- abc 2 - efg2 3 - --- 1- abc 2 - efg2 3 - ---
  • 14. From a faint signal to collective action Merge & Analyze Media Journals ICS Operations Collective understanding Event Characterization Response initiation Realtime feedback Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Informed collective action Realtime feedback and coordination Proactive education & preparation Journals ICS Operations Immediate analysis & Decision making capacity Peer- to –peer information sharing and collaboration Human Sensor & Actuator Network GeoChat Messages Location Metadata Alerts Group Decision Making & Analytics “ Riff” Info Streams Social Metadata Visualizations Analytics Data Interop & Information Flow Mesh4x 2-way sync Maps Databases Documents Over Files, Web, SMS
  • 15. Riff: Collaboration around streams Field Report 12 Article 234 Discussions Tagging Tags: influenza, unconfirmed 2 Comments Tags: maps, influenza, asia 3 Comments Favorites Location 12 2 asia influenza maps outbreak , suspected, unconfirmed SE Asia Health Alerts Alerts Search Last Update: 30 minutes ago 30 minutes ago 12 hours ago … Extensible! Language translation Visualization of data –eg genetic sequences, health alerts, medical records Cross-space search, aggregation. Exporting as different data formats. Spatiotemporal metadata Autonomous agents scanning & applying heuristics continuously Logged in as User567 News Item 345 16 hours ago Newest first Latest comments 30 min ago by User445 ( link ) “I don’t think this news is accurate as it omits to mention the ...” (3 other members logged in) Current Alerts Item 1 , 30 mins ago, by User123 List Existing Modules Lorem ipsum dolor sit amet, consectetuer adipiscing elit. Proin a ante. Fusce magna arcu, tristique vitae, accumsan eget, tristique eu, tortor. Donec euismod leo vitae augue. Donec aliquet augue non eros. Nam Lorem ipsum dolor sit amet, consectetuer adipiscing elit. Proin a ante. Fusce magna arcu, tristique vitae, accumsan eget, tristique eu, tortor. Donec euismod leo vitae augue. Donec aliquet augue non eros. Nam condimentum. Donec Private or Public Spaces One or more source feeds Security Management From Stung Treng province From ReliefWeb
  • 16. Collaborative Analytics Article feature extraction Tags Content – in Riff Metadata Comments Location Flags/Alerts/Bookmarks Environment Factors Phylogenetics Remote Sensing Event Classification and Detection Previous Event Training Data Previous Event Control Data Metadata extraction Other reference information Machine Learning Show event characterizations Social network acting on item Other information Open Media Professional network feedback Professional Feedback Anomaly Detection Riff Spaces InSTEDD Event Characterization & Detection Bot
  • 17. InSTEDD Field Lab Participatory ethnography meets natural selection We learn there by failing fast and failing often. In the end, we hope the tools we select will be: more robust, more reliable, and easier to use.
  • 18. Know who’s driving Release Plan Iteration Plan Iteration Release Daily Standup Dev & Test Spikes Month Week Day Release Release 1m Quality Requirements Functional and non Priorities Partners Demo Script Iteration 1 w Priorities Key Tasks Deployments “ Day” 1d Dev, Test, UX Community
  • 19. Don’t reinvent the wheel Develop & share Partner, influence & contribute Integrate & extend existing components Use & recommend Existing Solutions Examples KML, Feedsync, Open Street Maps, Integrate BT w21c SMS with Google Maps, SMSLib with Mesh4x, transformers & adapters Contribute to SMSLib, javaROSA, etc Platform components OSS project creation Scout, search, integrate & extend, before building. When building, share and actively involve adopters in the process
  • 20. Innovation Lab in Phnom Penh Beyond Local Sustainability…. … to Sustainable Local Innovation Cross Discipline Experts Unforeseen ideas Cultural fit Global Public Health experience Human Factors & Design Innovative tools & services Epidemiologists Anthropologists Broader adoption Better cross sector coordination Research Developing Engineers Global applicability
  • 21. Thank you! http://instedd.org [email_address] [email_address]
  • 23. Using consumer technologies in times of crisis Microblogging – post text messages, subscribe to friends and colleagues, real-time information Send text messages to all followers or directed to specific people, in the open or privately Social Networking – Graphs of people, trust and information Control who gets access to information and infer relevance based on that ‘who’ Mapping, imagery, and 2D / 3D map modeling Rapidly assess a situation, then add information that other tools can use to enhance an understanding of ‘where’ US & UK SMS Only Web signup required www.istwitterdown.com Web-only, not applicable to austere environments, privacy & security concerns, restrictive interop EULA Great for visualizing, hard to interact No offline mode When will it become OSS?
  • 24. Using consumer technologies in times of crisis Microblogging – post text messages, subscribe to friends and colleagues, real-time information Used extensively by some fire departments, some journalists Social Networking – Graphs of people, trust and information Control who gets access to information and infer relevance based on that ‘who’ Mapping, imagery, and 2D / 3D map modeling Rapidly assess a situation, then add information that other tools can use to enhance an understanding of ‘where’ US & UK SMS Only Web signup required www.istwitterdown.com Web-only, not applicable to austere environments, privacy & security concerns Great for visualizing, hard to interact, Not OSS Area Commercial Systems Humanitarian & Health systems Privacy breach Annoying Life-threatening Usability Always a plus! Overworked, underpaid, untrained, and tired users Coordination & Process Integration Centralized Workflows No overarching authority; dynamic dependencies; collaborate in context of conflicting agendas Data Integration Hierarchical replication, high bandwidth Dynamic, whenever/however possible Infrastructure Central governance, slow-moving, slack capacity End-user driven, dynamic, no excess capacity Agility IT dictates user behavior. Long & expensive dev cycles Users can wait to get features from engineering Need to empower local users to innovate on & beyond existing solutions – Customization, Extensibility, Interoperable by design

Editor's Notes

  • #2: We are going to tell you about instedd, how we see surveillance is evolving given emerging ID and converging technologies What we are doing in the field Our approach