Internal 2014 - data signposting
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The document provides an overview of various UK primary care and population health databases, including Clinical Practice Research Datalink (CPRD), The Health Improvement Network (THIN), QResearch, and ResearchOne. It describes the size and coverage of each database, as well as what types of medical data they contain. Additionally, it outlines other relevant UK data sources like Quality and Outcomes Framework (QOF) datasets, patient satisfaction surveys, census and mortality records, and hospitalization databases that can help provide context when analyzing primary care databases.
![GP clinical systems
North East
North West
London
West Midlands
Yorkshire & the Humber
South West
East Midlands
East of England
South Central
South East Coast
(90.2,90.5]
(89.9,90.2]
(89.6,89.9]
(89.3,89.6]
(89,89.3]
(88.7,89]
[88.4,88.7]
EMIS
In Practice Systems
TPP
Microtest
ISoft
NOTE: Chart size proportional to number of practices in area
Average practice scores by Strategic Health Authority, 2010−11
Overall reported achievement (62 indicators)
and GP systems suppliers
North East
North West
London
West Midlands
Yorkshire & the Humber
South West
East Midlands
East of England
South Central
South East Coast
(5.5,5.7]
(5.3,5.5]
(5.1,5.3]
(4.9,5.1]
[4.7,4.9]
LV
Vision 3
ProdSysOneX
PCS
Synergy
Practice Manager
Premiere
NOTE: Chart size proportional to number of practices in area
Average practice scores by Strategic Health Authority, 2010−11
Overall exception reporting (62 indicators)
and GP systems products
Kontopantelis (IPH) Data signposting 28 May 2014 9 / 27](https://image.slidesharecdn.com/internaldatasignposting2014-140606083752-phpapp01/85/Internal-2014-data-signposting-8-320.jpg)
Internal 2014 - data signposting
- 1. Data signposting what, where and how much Evan Kontopantelis123 1Centre for Health Informatics 2Centre for Primary Care 3Centre for Biostatistics Manchester, 28 May 2014 Kontopantelis (IPH) Data signposting 28 May 2014 1 / 27
- 2. Outline 1 Primary Care Databases 2 General Practice datasets 3 Population datasets 4 Hospital episode statistics 5 Linking and mapping Kontopantelis (IPH) Data signposting 28 May 2014 2 / 27
- 3. The Clinical Practice Research Datalink CPRD Established in 1987, with only a handful of practices Since 1994 owned by the Secretary of State for Health In July 2012: 644 practices (Vision system only: in Eng mainly London, SE, SC, NW, WM; see /pubmed/23913774) 13,772,992 patients (≈5m active) covering ≈7.1% of the UK population Access to the whole database is offered and costs ≈£130,000 pa Offers the ability to extract anything adequately recorded in primary care and construct a usable dataset Kontopantelis (IPH) Data signposting 28 May 2014 4 / 27
- 4. The Health Improvement Network database THIN Established in 2003 as a collaboration between In Practice Systems Ltd and CSD Medical Research UK (EPIC) Now part and parcel of UCL In May 2014: 562 practices (Vision system only, 50-60% overlap with GPRD) 11.1m patients (3.7m active) covering ≈6.2% of the UK population Usually offered under a 4-year license which costs £119,000 Similar structure to CPRD and possibly more efficient patient matching for socio-demographic characteristics Kontopantelis (IPH) Data signposting 28 May 2014 5 / 27
- 5. QResearch Collaboration with the University of Nottingham In May 2014 reports: 754 practices (EMIS systems: biggest UK provider) over 13m patients (??m active) covering ≈7% of the UK population? Datasets limited to 100k patients for externals Ran as a fiefdom? Publication list, 90-95%: Vinogradova, Coupland and/or Hippisley-Cox Kontopantelis (IPH) Data signposting 28 May 2014 6 / 27
- 6. ResearchOne Collaboration between TPP and the University of Leeds In May 2014 reports: ??? practices (SystmOne: Yorkshire&H, East Mid, East Eng, NE) GP, Community Care, Hospital Care. 30m research records covering ≈?% of the UK population costs? New potentially important player Uniformity of SystmOne and central databases for TPP systems likely to provide better quality data at lower cost Kontopantelis (IPH) Data signposting 28 May 2014 7 / 27
- 7. Primary Care Databases structure based on CPRD Event files. Clinical: all medical history data (symptoms, signs and diagnoses). Referral: information on patient referrals to external care centres. Immunisation: data on immunisation records. Therapy: data relating to all prescriptions issued by a GP. Test: data on test records. Lookup files. Medical codes: READ codes, ≈100k available. Product codes: ≈80k available. Test codes: ≈300 available. Kontopantelis (IPH) Data signposting 28 May 2014 8 / 27
- 8. GP clinical systems North East North West London West Midlands Yorkshire & the Humber South West East Midlands East of England South Central South East Coast (90.2,90.5] (89.9,90.2] (89.6,89.9] (89.3,89.6] (89,89.3] (88.7,89] [88.4,88.7] EMIS In Practice Systems TPP Microtest ISoft NOTE: Chart size proportional to number of practices in area Average practice scores by Strategic Health Authority, 2010−11 Overall reported achievement (62 indicators) and GP systems suppliers North East North West London West Midlands Yorkshire & the Humber South West East Midlands East of England South Central South East Coast (5.5,5.7] (5.3,5.5] (5.1,5.3] (4.9,5.1] [4.7,4.9] LV Vision 3 ProdSysOneX PCS Synergy Practice Manager Premiere NOTE: Chart size proportional to number of practices in area Average practice scores by Strategic Health Authority, 2010−11 Overall exception reporting (62 indicators) and GP systems products Kontopantelis (IPH) Data signposting 28 May 2014 9 / 27
- 9. Quality and Outcomes Framework QOF datasets Pay for performance scheme that started in 1/4/2004 Costs over £1bn pa Voluntary scheme but participation over 99.9% Freely available on Health & Social Care Information Centre (HSCIC), by financial year: NHS practice code and list size Prevalence on 15 key chronic conditions (e.g. diabetes, asthma, CHD, COPD etc) Practice level performance on various clinical indicators for these conditions Practice level exception rates for each indicator Kontopantelis (IPH) Data signposting 28 May 2014 11 / 27
- 10. General Medical Services GMS datasets Data from around 2000 Information on general practices Available on request (not free but cheap) from the HSCIC, by calendar year: NHS practice code, list size, contract type, full address (including postcode, sha, pct, lsoa) Number of GPs, FTE, names, country/area where qualified, sex, age Patient counts by age group and sex Part of the Workforce theme: more info for other health professions Kontopantelis (IPH) Data signposting 28 May 2014 12 / 27
- 11. Patient Satisfaction GP Patient Survey Data from 2007 Run by Ipsos MORI, data collected twice a year Stratified random sampling of patients to collect data on satisfaction with GP services Data freely at the practice and higher levels, weighted (to match patient population) and unweighted satisfaction scores on: access, making an appointment, waiting times speaking to GP or nurse, ease of access last GP and last nurse appointment, opening hours, overall experience and many more domains Kontopantelis (IPH) Data signposting 28 May 2014 13 / 27
- 12. Primary Care Mortality PCM database Data from 2006 Managed by the HSCIC and accessible remotely Monthly and annual extracts of individual record level data on deaths supplied by ONS: registered GP/practice, patient details e.g. age, causes of death, NHS no Data for use by Local Authorities and NHS organisations only Kontopantelis (IPH) Data signposting 28 May 2014 14 / 27
- 13. Census 2011 datasets but also 2001, 1991 etc Information aggregated at various levels, as low as lower super output area (LSOA) level Freely available from the ONS websites, including: Counts by age groups and sex Health Ethnicity Religion Occupation Qualifications Household-accommodation Kontopantelis (IPH) Data signposting 28 May 2014 16 / 27
- 14. Deprivation datasets Index of Multiple Deprivation (IMD): 2004, 2007, 2010, 2014 Important covariate, available at the 2001 LSOA level England only (although there is a Welsh IMD as well) Free at the Neighbourhood Statistics ONS website Aggregate of 7 domains: Income Employment Health deprivation Education and skills Housing Crime Environment 2010 range was 0.5-87.8 (9.8 and 30.2 for 25th and 75th centiles) Kontopantelis (IPH) Data signposting 28 May 2014 17 / 27
- 15. Mortality datasets From 1998 As counts available at the LSOA level (2001 or 2011) but special request to the ONS mortality team As standardised mortality rates freely available but at electoral ward level or higher from the main ONS website Specific mortality causes available: using ICD-10 codes from 2001, ICD-9 before counts at the LSOA level can be broken down by sex and age-group Kontopantelis (IPH) Data signposting 28 May 2014 18 / 27
- 16. Admitted patient care dataset and outpatient Data more or less available from 1989 Patient-level data, with various organisational markers: GP, SHA, PCT, site of treatment Available upon request from the HSCIC, including: patient characteristics (incl IMD), admissions, discharges, episodes, clinical, maternity, psychiatric Additional sensitive info: dob, NHS number, patient residence postcode, LSOA etc Data for outpatient care available from 2003: similar but less detailed Kontopantelis (IPH) Data signposting 28 May 2014 20 / 27
- 17. Critical care data Data available from 2008 Add-on dataset which should be matched with inpatient dataset, on request from the HSCIC Includes: critical care dates admission type support info critical care levels discharge info Kontopantelis (IPH) Data signposting 28 May 2014 21 / 27
- 18. Accident and Emergency data Data available from 2007 Similar covariate and organisation info as inpatient-outpatient datasets Available upon request from the HSCIC, with info on: attendances clinical diagnosis clinical investigation clinical treatment Additional sensitive info: dob, NHS number, patient residence postcode, LSOA etc Kontopantelis (IPH) Data signposting 28 May 2014 22 / 27
- 19. Lookup tables To combine datasets reported at different levels Usually the postcode is the best start, if known The UK Data Service (previously UK Borders) contains tables to help merge data at various levels, at 1991, 2001, 2011 or 2013 boundaries: PCTs Wards LSOAs SHAs Clinical Commissioning Groups (CCGs formerly PCTs) NHS Area Teams Kontopantelis (IPH) Data signposting 28 May 2014 24 / 27
- 20. Spatial mapping After merging at a geographical level spatial coordinates are useful for plotting or accounting for spatial correlations in regression analyses ONS Geoportal holds various digital vector boundaries files (shapefiles) for 2001, 2011 and more recent geographies: LSOAs PCTs-CCGs SHAs Regions Kontopantelis (IPH) Data signposting 28 May 2014 25 / 27
- 21. Overview Health Sciences related QOF PC Mortality Database GMS GP patient satisfaction other LSOA-PCT LSOA-SHA Postcode- LSOA other Admitted Patient Care Outpatient Critical Care A&E other Census Mortality Deprivation other Terminology Training resources Classifications other SHAs LSOAs PCTs (CCGs) other CPRD QResearch THIN ResearchOne Kontopantelis (IPH) Data signposting 28 May 2014 26 / 27
- 22. Comments and questions: e.kontopantelis@manchester.ac.uk Kontopantelis (IPH) Data signposting 28 May 2014 27 / 27