Mdsc resources 2010 (2)
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This document provides resources for healthcare professionals regarding Down syndrome, including the Massachusetts Down Syndrome Congress for parent support and information, the Children's Hospital Down Syndrome Program, websites providing information on prenatal testing and diagnosis, an online course on healthcare management of Down syndrome from Harvard Medical School, and several national organizations like the National Down Syndrome Society and National Down Syndrome Congress that provide information, support, and healthcare guidelines for individuals with Down syndrome and their families.
Mdsc resources 2010 (2)
- 1. SUGGESTED RESOURCES for healthcare professionals 2010 MDSC Massachusetts Down Syndrome Congress (MDSC) www.mdsc.org Parents’ First Call Program (800) 664-MDSC Please feel free to call anytime 24/7 MDSC Family Support Director: Sarah Cullen E-mail: scullen@mdsc.org Children’s Hospital Down Syndrome Program – sees families www.childrenshospital.org/downsyndrome (857) 218-4329 prenatally as well as children from birth to age 18 Prenatal Booklet for expectant families English and Spanish in same booklet – www.canisterbooks.com Understanding a Down Syndrome Diagnosis Brighter Tomorrows - An interactive tutorial to provide physicians www.brighter-tomorrows.org with current knowledge about Down syndrome, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome. Online course through Harvard Medical School Dept of To access the course, please visit Continuing Education: http://cmeonline.med.harvard.edu/course_descriptions.asp?Course_id=121 Down Syndrome: Healthcare Updates for the Primary Care Pediatrician Down syndrome is the most common chromosomal condition in humans, but do you know the latest evidence-based medicine on how to best manage these patients? Much has changed since
- 2. medical school! Many healthcare guidelines and emerging literature are changing the way that individuals with Down syndrome are diagnosed, followed, and managed. Astute physicians can now detect associated conditions before they become symptomatic in an effort to maximize health care development. The goal of this course if to review the latest advances in healthcare management of children with Down syndrome so that primary care pediatricians and other interested health care professionals can provide exceptional care. Prenatal Booklet for expectant families English and Spanish in same booklet – www.canisterbooks.com Understanding a Down Syndrome Diagnosis National Down Syndrome Society www.ndss.org - Info in English and Spanish (800) 221-4602 “A Promising Future Together” packet, which includes healthcare guidelines, is free to new parents from NDSS National Down Syndrome Congress www.ndsccenter.org - Info in English and Spanish Growth Charts and Circumference Charts www.growthcharts.com Down syndrome health issues www.ds-health.com Down Syndrome Educational Trust www.downsed.org Adoption information DSAGC Adoption Awareness Program www.dsagc.com/programs_adoption.asp Robin Steele at rsteele@zoomtown.com 888-796-5504