ppt on develpmental disabilities
- 2. Definition Developmental disability is an umbrella term for different disabilities that involve a person having "prescribed significant limitations in cognitive functioning and adaptive functioning and those limitations, 1. originate before the person reached 18 years of age; 2. are likely to be life-long in nature; and 3. affect areas of major life activity, such as personal care, language skills or learning disabilities, the capacity to live independently as an adult or any other prescribed activity.“ (Definition from Ontario's Services and Supports to Promote the Social Inclusion of Persons with Developmental Disabilities Act, 2008)
- 3. Most Common Developmental DisabilitiesFragile X Syndrome Down Syndrome Pervasive Developmental Disorder Fetal Alcohol spectrum Disorder Cerebral Palsy Intellectual Disability
- 4. To remain a professional helper one needs to ask oneself, what do I mean by helping?• CASE: A blind man was standing by a crossing. He seemed a little agitated and restless. A sighted women passing by spotted him, grabbed hold of his arm and while marching him across the road said ‘Don’t worry dear, I’ll help you to get to the other side’. As it happened the blind man was standing by the road waiting for a friend who had been delayed, hence the agitation. He had not wanted to cross the road. This situation is an everyday occurrence for many disabled people, who in this over care scenario are viewed and treated at best as infants and at worst as objects.
- 5. Issues faced by these Individuals a) Physical health issues b) Mental Health issues (Dual Diagnosis) c) Abuse and Vulnerability d) Challenging Behaviour
- 6. In Canada, Dual Diagnosis Usually Refers To An Individual With A Mental Illness And A Co-occurring Developmental Disability.. People With Developmental Disabilities Are At Increased Risk For Developing Mental Health Problems Throughout Their Lives. Psychotic Disorders Have Been Suggested To Occur Three Times More Often In Adults With Developmental Disabilities Compared To The General Population Various Biological, Psychological And Social Factors Make It More Likely That A Person With A Developmental Disability Will Develop A Mental Health Problem, Compared With Someone Without A Dual Diagnosis Dual Diagnosis
- 7. Five principles guide how to care for people with dual diagnosis People with dual diagnosis are people first, before their disabilities. They have strengths in addition to having problems. Mental health problems in developmental disability are under identified but common. Mental health problems in developmental disability are complex but understandable. Mental health problems in developmental disability are challenging but respond to care. Mental health problems in developmental disability require responses that go beyond separate disability and mental health treatment.
- 8. Facts to foster awareness Adults with developmental disabilities have higher rates of morbidity and are more likely to be diagnosed with a range of chronic disease than other adults. Nearly one in two adults with developmental disabilities has a mental illness or addiction Approximately one in five adults with developmental disabilities are prescribed 5 or more medications at once. Antipsychotics are the most commonly prescribed medication. Adults with developmental disabilities present frailty issues 30 years younger than adults without developmental disabilities. Compared to the general population adults with developmental disabilities are more likely to present repeatedly to Emergency department and have repeat hospitalizations. Compared to the general population, adults with developmental disabilities are less likely to Be screened for breast, colon, & cervical cancer Receive guideline- recommended inter professional care.
- 9. Screening for Developmental DisabilitySlow Response Time Difficulty Filling Out Forms/Paperwork Repeat Visits For Same Issues Difficulty Following Instructions Difficulty With Basic Math, Telling Time Chronic Social Or Legal Troubles Difficulty Rephrasing Information Frequently Misses Follow Up Gaps In Day Time Activity Learning Disability Low Literacy Mental Health Issues Concrete/Literal Thinking
- 10. Commonly Missed Diagnoses: Head to Toe Assessment ♠ H Headache and other pain ♠ E Epilepsy ♠ A Aspiration pneumonia ♠ D Drugs. Patients are at high risk for adverse effects or polypharmacy ♠ T Teeth pain and lead to aggressive behaviour and food refusal ♠ O Ocular like problem with vision, hearing and sleep. ♠ T Tummy issues like constipation or bowel obstruction ♠ O Osteoporosis and atypical fractures, pressure sores ♠ E Etiology or causes ex. Calcium disturbance in William’s syndrome ♠ S Serious illness- ask caregivers how they express pain ♠ S Screen for abuse ALL BEHAVIOUR IS COMMUNICATION
- 11. Know your Client Don’t be afraid to ask if there is a developmental disability If you suspect an individual has a developmental disability and may not be receiving services, you can share information about Developmental Services Ontario(DSO) Remember that there are many individuals who have impaired cognitive and adaptive abilities who may not meet criteria for developmental disability. This means they can’t access certain services, but they can still benefit from accommodations. Never forget your role as advocate. If the services are not there yet to meet their needs, work with your patient and those around him or her to help make that happen.
- 12. Developmental Services Ontario • Developmental Services Ontario agencies can help adults with developmental disabilities find services and supports in their community. We can also provide information and help you or someone you care for with planning for the future. There are nine Developmental Services Ontario agencies across Ontario. The agency in your region will help you access the supports that are available in your community. These agencies are: Region Email Phone Central East dsocentraleast@yssn.ca 1-855-277-2121, 905-953-0796 Central West dso@dsocwr.com 1-888-941-1121 East admin@dsoer.ca 1-855-376-3737 Hamilton- Niagara info@dsohnr.ca 1-877-376-6376 North East dso@handstfhn 1-855-376-6376 Northern info@iccctbay.org 1-855-376-6673 South East esteele@dsoser.com 1-855-237-6737 South west maryregan@dsoswr.ca 1-855-437-6797 Toronto DSOTR@surreyplace.on.ca 1-855-372-3858
- 13. Financial Resources for People with Developmental Disabilities Name of Resource Services Provided Contact Information Passport funding Ages : 18+ (if not in school) 21+ (if in school) A program to offer secondary school students with a disability exposure to post- secondary options www.dsontario.ca Special Services at Home(SSAH) Ages : 0-18 A resource to help families care for a child with disabilities www.children.gov.on.ca Respite Services Ages : All ages Connects care givers to funding and agencies that offer in- home, and out-of-home respite for caregivers via Respite Facilitation Program. www.respiteservices.com Disability Tax Credit Ages : All ages Can reduce the amount of income tax that an adult with a disability must pay Canada Revenue Agency 1-800-959-2221 Registered Disability Savings Plan (RDSP) Ages : Under 60 Can help people with disability to grow protected, tax free savings www.rdsp.com
- 14. Financial Resources for People with Developmental Disabilities Name of Resource Services Provided Contact Information Ontario Disability Support Program (ODSP) Ages : 18+(income support) 16+((employment support) Can offer monthly income support for adults with disabilities who meet financial need criteria and disability criteria www.mscc.gov.on.ca 416-314-5700 Obtain the paperwork online, in person at local ODSP office, or over the phone. ODSP- Special Diet Ages : Must have eligible medical condition and be eligible for ODSP Can help people on ODSP receive additional funds each month to cover dietary needs related to particular medical conditions like diabetes, obesity, hypertension, food allergies etc. www.mscc.gov.on.ca 416-314-5700 A doctor, Nurse Practitioner or Dietician can complete the application. ODSP- Mandatory Special Necessities Allowance (MSN) Additional funds to cover costs of certain medical supplies or travel to and from medical appointments. Obtain the application form from the local DSO office Equipment Needs Assistive Devices Program : Equipment must be prescribed by “an ADP authorized” OT or PT. 1-877-396-4867 (Press “2” to speak with an intake counselor) Henson Trust Ages : All ages A trust that can be used for the future financial planning of individuals with developmental disabilities. Contact Estate Lawyers directly to see if they have experience with Henson Trusts.
- 15. Helpful resources for Clients and care givers Easy health www.easyhealth.org.uk This website is from England. It has a lot of videos and handouts about health. IT covers so many topics,and is made for people with disabilities. Connect Ability www. connectability.ca This website has lots of information for people with disabilities and our friends and family. It has ideas on how to get services and has a space where you can type in questions to ask other people. Developmental Services Ontario www.dsontario.ca The DSO is the place to call to see so that your name can be added to waiting lists for things like day programs, a support worker, or extra money (called passport). The DSO website has lots of information. You can also call them. Their phone number is 1-855-372-3858. Magnus model www.magnusmode.com Magnus mode is an “app” (like a game) that teaches people about different things- like going to the doctor, going to the dentist, going to the emergency room. Magnus is the boy’s name in the game and your job is to learn new things with Magnus and earn coins along the way. H-CARDD www. Hcardd.ca H- CARDD is a website about research. There is lots of information on this website. There is a section that is made just for people with disabilities and include handouts and videos about health.
- 16. The Accessibility for Ontarians with Disabilities Act, 2005 (AODA) uses the same definition of “disability” as the Ontario Human Rights Code, which includes both visible and non-visible disabilities. The Accessibility for Ontarians with Disabilities Act, 2005 (AODA) became law on June 13, 2005. Under this landmark legislation, the government of Ontario has developed mandatory accessibility standards that identifies, removes, and prevents barriers for people with disabilities. The Accessibility for Ontarians with Disabilities Act
- 17. There is a plan and a purpose, a value to every life, no matter what its location, age, gender, or disability. -Sharron Angle