RDA-NISO Interest Group on Privacy Implications of Research Data Sets
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This document outlines the agenda and expected outcomes of the RDA-NISO Interest Group on Privacy Implications of Research Data Sets. The group aims to develop frameworks for responsible data sharing, define key privacy issues and vectors, identify variances in privacy laws, and recommend technical metadata and outreach materials. It discusses the merging of two task groups, reports from other task forces, and related working groups. The document encourages participation in the interest group's activities and provides contact information.
RDA-NISO Interest Group on Privacy Implications of Research Data Sets
- 1. RDA-NISO Interest Group on Privacy Implications of Research Data Sets
- 2. 2 Welcome & Introductions Recap of Charge & IG Discussion of German Research Data Infrastructure with a focus on sharing sensitive data Reports/Discussions from Task Forces Output Collection of Value Statements and Codes of Ethics Personas Resources for Stakeholders Breakout discussions of the IG Task Group Report of liaisons with other WGs & IGs Discussion of next steps Agenda
- 3. 3 The group will work to achieve the following specific outcomes: Development of a framework that explains, at a high level, the precautions that data creators, repositories, aggregators and scientists should use in creating, using, preserving, and providing access to research data. Definitions of key vectors where privacy issues are evident in the ecosystem of data sharing and reuse. An outline of situations where the privacy principles would be applied. Identification of key areas of variance in privacy laws or regulations at national and international levels that are significant when sharing data worldwide. Expected Outcomes (1)
- 4. 4 Definition of a set of technical metadata that can be used to describe privacy-related information contained within a data set, parameters for use, and description of where it should be applied. Gather and share a bibliography of data-and-privacy-related materials for public use. Advancement of adoption of the principles through an outreach and communications campaign Other ideas or suggestions for outputs welcome! Expected Outcomes (2)
- 5. 5 Chair(s): Todd Carpenter, Bonnie Tijerina, Bonnie Tijerina, Libby Bishop (resigned), Freyja Van den Boom Working group members: Currently 73 (Apr 4, 2017) Received TAB Approval Target participants Researchers, Privacy/Legal Experts, Administrators, Repository Managers, Librarians, About the Interet Group
- 6. 6 IG Home on the RDA Website
- 7. 7 DATE Milestone December 2015 Kicking off project – Submission of the Case Statement Jan-Feb 2016 RDA Case Statement Review March 2016 Project Approval First meeting of Working Group (Tokyo P7) Public webinar announcing launch March —August 2016 Nine bi-weekly meetings with working group September 2016 Second full-day meeting of Working Group (Denver P8) Public Teleconference about progress on project NISO public symposium on data & privacy Oct 2016—March 17 Ten bi-weekly meetings with working group January 2017 Public review of draft outputs for review Open Teleconference to discuss process April 2017 Second in-person working group meeting (Barcelona P9) Report to RDA Public Webinar to announce products April—July 2017 Six bi-weekly meetings with working group May—June 2017 Promotional presentations about project and outputs July 2017 Working group completes drafting work Drafting of final report to RDA September 2017 Final WG Meeting and Report presented to RDA (at P10) Timeline for the Working Group (Original)
- 8. 8 DATE Milestone December 2015 Kicking off project – Submission of the Case Statement Jan-Feb 2016 RDA Case Statement Review March 2016 Project Approval First meeting of Working Group (Tokyo P7) Public webinar announcing launch March —August 2016 Nine bi-weekly meetings with working group September 2016 Second full-day meeting of Working Group (Denver P8) Public Teleconference about progress on project NISO public symposium on data & privacy Oct 2016—March 17 Ten bi-weekly meetings with working group January 2017 Public review of draft outputs for review Open Teleconference to discuss process April 2017 Second in-person working group meeting (Barcelona P9) Report to RDA Public Webinar to announce products April—July 2017 Six bi-weekly meetings with working group May—June 2017 Promotional presentations about project and outputs July 2017 Working group completes drafting work Drafting of final report to RDA September 2017 Final WG Meeting and Report presented to RDA (at P10) Timeline for the Working Group (Original)
- 9. 9 Ethics and Social Aspects of Data IG – Seeking chair, no IG meeting at P9 Joint session tomorrow at 3:00 on Data Rescue WG for Data Security &Trust (WGDST) Case Statement released last month Health Data IG – Approved. Joint meeting with Big Data IG tomorrow 11:30 Breakout IG meeting at 2 – Data for research & industry BoF Health Data & Blockchain on Friday at 9:00 RDA/CODATA Legal Interoperability IG – meeting Friday at 9 on Open Access Metadata IG – Proposal on metadata for interoperation (now), Metadata lifecycle session at 11:00 on Friday BioSharing Registry – meeting on data policies, standards and data sets this morning at 11:30 – Outputs presentation tomorrow at 16:00 Related RDA Working/Interest Groups
- 10. 10 On Tuesday 24 January, IG leadership discussed the potential overlap between the two task groups and decided that the two task groups (Frameworks/Policy and Practice) will merge into a single group: Policy Frameworks to Practice. No risk of duplication efforts/work. Better information flow and synergy between all group members- Better time and energy investment:- Less administrative burden to lead these groups Merging of two task groups
- 11. 11 Collection of Value Statements and Codes of Ethics Personas Resources for Stakeholders Reports/Discussions from Task Forces Output
- 12. 12 Sign up for the working group Go to: http://bit.ly/1WO6YUd Login to RDA system (or create a profile, if you don’t have one) On the Right-hand column, select “Join this working group” Regular meetings are taking place, but limited number of people in the group are participating. Comment on the case statement, start a conversation topic. Lets get ideas rolling How to engage
- 13. 13 Thank you to this effort’s sponsors
- 14. 14 Join the group Participate in the calls Input on the Google Docs For more information: Todd Carpenter – tcarpenter@niso.org Nettie Lagace – nlagace@niso.org Bonnie Tijerina - bonnie@datasociety.net Freyja Van den Boom - freyja.vandenboom@okfn.org Next Steps and Contact Information