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Will, Tim, Sam, Marie
www.catalystproject.org.uk
  Lancaster University
#catalystas
Asa Calow   Rod Dillon
                  Jen Southern


Rebecca
Ellis




                                                              Will Simm

                                 M.A. Ferrario




  Sharon
  Calverley




          “A collaboration of people from different backgrounds,
                    some mad people but no bad people.”
Tireetechwave Slides - 15032013
Tireetechwave Slides - 15032013
#Sprint 2
What & Who
 Access ASD is a research sprint in the Catalyst
 project that will devise digital tools to help
 adults in the community with autism.


• Care commissioning managers {APB, LCC}
• NAS
• Psychology, SCC, Sociology
What We Have Brought To Tiree
1. Sam: Life Story
2. Tim: ToM
3. Jen: Ripping Sound
4. Will: Tools
5. Marie: Data, a ‘Plan’ &
.... ideas for prototypes
Sam

Life story
My life before diagnosis
•   Struggled with life
        Everyday life overwhelming, social rejection, alienation
•   Until a diagnosis I did not understand myself
        Concept I was different
        Tried various explanations
        All felt limited and incomplete
•   Schizoid personality disorder suggested
        Just did not seem correct
        Lead me to be sceptical about classification
        Vacillated about if I had psychological problems
Receiving a diagnosis
•   Autism suggested at age 23
        Checking it on google, just clicked
        Accounted for everything I'd misunderstood
        Further understanding of own problems
•   Diagnosis benefited my life
        Learned many behaviours did not help my situation
        Allowed me to access support
        Focus on strengths whilst realising limitations
Concepts of autism not helping
•   Is autism a disability
        Reject diagnosis as don't conceive self as disabled
        If autism is not a diagnosis why need help?
•   Holding a specific stereotype of autism
        Refuse diagnosis if different to stereotype
        Think does not fit stereotype so help will not work
•   Need to communicate autism better if we want
    people to engage with technology
        Interviewing autistic people to get better picture
Autistic spectrum
                                    ASD Spectrum (2D linear space )




                                                        Aspergers


                                   low                      High




•   Autism and Asperger's syndrome same or different?
        How does this affect my identity as an autistic person
Problems with the spectrum
Triad of impairments
    People with ASD have
difficulties in three main
areas within their lives; this
is referred to as the 'triad of
impairments' (Lorna Wing
and Judith Gould)
A Mismatch?
    Triad of impairment (3D Vector Space)                    ASD Spectrum (2D linear space )
    Imagination




                                                                                    Aspergers


                                                            low                      High




•                 Debate over which best for science
                      Triad of impairments an improvement but not suitable for many autistic people
The Aloof, the passive, the Odd
Personas of autism
Present autism in a manner
more acceptable


Find persona suitable for
individual, avoiding assuming
autistic different to individual


Emphasising both strengths and
weaknesses of specific individual,
reducing difficulties caused by
notions of disabilities
MAF 06/03/2013




Tim on ToM
Theory of Mind

primatology:

can a chimp attribute mental
states to other apes… including
humans?

mind reading

mentalizing

predicting behaviour
Sally – Anne test



ToM

Where is the marble?

mental state - false belief in
Anne
deception by Sally

who knows what?
Intentionality Detector (ID) – understanding agency; cause
for an action, goals that it is directed to

The Eye-Direction Detector (EDD) – noticing eyes, noticing
where they are looking, responding to eyes looking at me.

Shared-attention Mechanism (SAM) – ability to share
noticing something, e.g. pointing and eyes, to link two
persons and object of interest.

Theory of Mind Mechanism (ToMM) – this is the ability to
attribute thoughts to other people, to see them as having an
attitude, a reason or a motivation.
Testing ToM in autism spectrum



 items 5,6,9 & 10
“ If you tear paper in the right kind of way and
really pay attention, again there's a symphony,
there's a music. There's each fibre of paper
produces a tiny little sound. You get several
sequences of these fibres and there's a
variation there. Now the way to do it is to be
completely absorbed in the sound, so your
whole world is absorbed in the sound of the
paper tearing. (tears)”
MAF 06/03/2013




Will
Tireetechwave Slides - 15032013
Sensory
• Miracle Modus
• iPod
Navigation / Prep: Way Finder
Organisation / routine / scheduling
• Usual Calendar / to do “apps”
• Targeted apps
  – “ ASD Planner”

Brain in the Hand
• Scheduling
• Anxiety tracking - response to unscheduled
  events
• Peer / network support
Tireetechwave Slides - 15032013
MAF 06/03/2013




MAF {Marie}
1. Training I&II     2. Design Brief    3. Tiree        4. Prototype Selection   5. Final Prototype    6. HL Report




 A. Understand & Observe

Prepare
                                   B. Visioning &
                                    Visualising
                    Design
                                                           C. Iterative Prototyping
                                                             (Evaluate & Refine)
                                                       Build
                                                                                                D. User Study

                                              Easter                                         Evaluate
                                              Protee




      Jan              Feb              Mar             Apr               May           June             July
Social Media Data (Online forum)- ‘Big’ Data
...from the same source ‘Deep Data’
 ...Joining the conversation
Top three difficulties caused by autism:   Most difficult Socially                               Sensory...
Problem                          #         Problem                                           #
Social                           21                                                              Problem                                  #
                                           Eye contact                                       9
Sensory                          14                                                              Sound                                    11
                                           Small Talk                                        8   Lighting                                 7
Anxiety                          5         Asking questions in conversation                  5
Being Organised                  5                                                               Certain clothing                         6
                                           Knowing the diff between joining & forcing your   5   Difficulty detecting pressure            2
Dealing with changes             4         way in
Multitasking                     3                                                               Smell                                    2
                                           Humour                                            4   Flicker of an analog TV                  1
Too logical                      2
Low self esteem                  2         Talking to opposite sex                           4   Filtering out visual information         1
Isolation                        2         Jokingly insulting people                         4   Need to stim                             1
Getting Diagnosis as a female    2         Going into a monologue                            3   Food                                     1
Expressing emotion               2         Giving advice to friend                           3   Temperature of food                      1
Overwhelming interests           2         Being assertive                                   3   Handwashing OCD style                    1
Understanding emotions           2         Being confident                                   3   Sensitive to tempreatue                  1
Understanding body language      1                                                               HD TVs too blurry                        1
                                           Awkwardness making you seize up                   3
Weak memory                      1         Stimming in public                                2
Maintaining job                  1                                                               Specifics on sound
                                           Knowing how to finish a conversation              3   Sudden noise                             2
Bad diet                         1         Being too honest in conversations                 2
Depression                       1                                                               Focusing on sound when trying to sleep   1
                                           Staring conversations                             2   Filtering out sound                      1
Accepting other’s views          1         Being too logical                                 1
Not using social speech          1                                                               Loud noise                               1
                                           Unsure how much information to give               1   Continual noise for more than a few      1
Concern over wasting time        1
                                           Introducing yourself to people                    1   minutes
Group conversations              1
Knowing social status            1         Focusing too much on other people’s facial        1
Ineffectiveness                  1         expressions
Bad sleep patterns               1         Dealing with silences                             1
Dependent upon specific people   1         Remembering names                                 1
socially                                   Interacting with people passed in corridor        1
@the Tuesday
             On the Ground            Social Club

'What About 'BrainInHand' (...)? But it is
 expensive £1,000 per person'
'These people do not need much help but
 when they need it, they need it badly'
'I am not good at technology ... for me even
answering the phone is a big achievement' 'I
had to go to the shop to buy bread and I had
to stop, I was in complete panic'
MAF 06/03/2013




...Ideas

  .....
MAF 05/03/2013




Benefit s of Working in Tiree:
no reliable Internet connection so we need to think
about what happens in real-real emergency situations
From Spectrum To Types...




Data collection via Digital ‘Multi-
Sensory’ Assessment tool (e.g. play
loud sound, what is the reaction?).
Output: description by features,
what your are good, not that good
at & link up with local relevant
‘peer’ resources
And your Type is..
    It seems that you are ... the friendly one!
    What you may like/ are good at: XXXXXX
    What you may not do that well/Dislike: XXXXX
    Famous people like you ...




    People Like you in Your Area
    (connect with a local ‘champion’)



    Groups with your same interests in the Area

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Tireetechwave Slides - 15032013

  • 1. Will, Tim, Sam, Marie www.catalystproject.org.uk Lancaster University
  • 3. Asa Calow Rod Dillon Jen Southern Rebecca Ellis Will Simm M.A. Ferrario Sharon Calverley “A collaboration of people from different backgrounds, some mad people but no bad people.”
  • 7. What & Who Access ASD is a research sprint in the Catalyst project that will devise digital tools to help adults in the community with autism. • Care commissioning managers {APB, LCC} • NAS • Psychology, SCC, Sociology
  • 8. What We Have Brought To Tiree 1. Sam: Life Story 2. Tim: ToM 3. Jen: Ripping Sound 4. Will: Tools 5. Marie: Data, a ‘Plan’ & .... ideas for prototypes
  • 10. My life before diagnosis • Struggled with life  Everyday life overwhelming, social rejection, alienation • Until a diagnosis I did not understand myself  Concept I was different  Tried various explanations  All felt limited and incomplete • Schizoid personality disorder suggested  Just did not seem correct  Lead me to be sceptical about classification  Vacillated about if I had psychological problems
  • 11. Receiving a diagnosis • Autism suggested at age 23  Checking it on google, just clicked  Accounted for everything I'd misunderstood  Further understanding of own problems • Diagnosis benefited my life  Learned many behaviours did not help my situation  Allowed me to access support  Focus on strengths whilst realising limitations
  • 12. Concepts of autism not helping • Is autism a disability  Reject diagnosis as don't conceive self as disabled  If autism is not a diagnosis why need help? • Holding a specific stereotype of autism  Refuse diagnosis if different to stereotype  Think does not fit stereotype so help will not work • Need to communicate autism better if we want people to engage with technology  Interviewing autistic people to get better picture
  • 13. Autistic spectrum ASD Spectrum (2D linear space ) Aspergers low High • Autism and Asperger's syndrome same or different?  How does this affect my identity as an autistic person
  • 14. Problems with the spectrum
  • 15. Triad of impairments People with ASD have difficulties in three main areas within their lives; this is referred to as the 'triad of impairments' (Lorna Wing and Judith Gould)
  • 16. A Mismatch? Triad of impairment (3D Vector Space) ASD Spectrum (2D linear space ) Imagination Aspergers low High • Debate over which best for science  Triad of impairments an improvement but not suitable for many autistic people
  • 17. The Aloof, the passive, the Odd
  • 18. Personas of autism Present autism in a manner more acceptable Find persona suitable for individual, avoiding assuming autistic different to individual Emphasising both strengths and weaknesses of specific individual, reducing difficulties caused by notions of disabilities
  • 20. Theory of Mind primatology: can a chimp attribute mental states to other apes… including humans? mind reading mentalizing predicting behaviour
  • 21. Sally – Anne test ToM Where is the marble? mental state - false belief in Anne deception by Sally who knows what?
  • 22. Intentionality Detector (ID) – understanding agency; cause for an action, goals that it is directed to The Eye-Direction Detector (EDD) – noticing eyes, noticing where they are looking, responding to eyes looking at me. Shared-attention Mechanism (SAM) – ability to share noticing something, e.g. pointing and eyes, to link two persons and object of interest. Theory of Mind Mechanism (ToMM) – this is the ability to attribute thoughts to other people, to see them as having an attitude, a reason or a motivation.
  • 23. Testing ToM in autism spectrum items 5,6,9 & 10
  • 24. “ If you tear paper in the right kind of way and really pay attention, again there's a symphony, there's a music. There's each fibre of paper produces a tiny little sound. You get several sequences of these fibres and there's a variation there. Now the way to do it is to be completely absorbed in the sound, so your whole world is absorbed in the sound of the paper tearing. (tears)”
  • 28. Navigation / Prep: Way Finder
  • 29. Organisation / routine / scheduling • Usual Calendar / to do “apps” • Targeted apps – “ ASD Planner” Brain in the Hand • Scheduling • Anxiety tracking - response to unscheduled events • Peer / network support
  • 32. 1. Training I&II 2. Design Brief 3. Tiree 4. Prototype Selection 5. Final Prototype 6. HL Report A. Understand & Observe Prepare B. Visioning & Visualising Design C. Iterative Prototyping (Evaluate & Refine) Build D. User Study Easter Evaluate Protee Jan Feb Mar Apr May June July
  • 33. Social Media Data (Online forum)- ‘Big’ Data
  • 34. ...from the same source ‘Deep Data’ ...Joining the conversation Top three difficulties caused by autism: Most difficult Socially Sensory... Problem # Problem # Social 21 Problem # Eye contact 9 Sensory 14 Sound 11 Small Talk 8 Lighting 7 Anxiety 5 Asking questions in conversation 5 Being Organised 5 Certain clothing 6 Knowing the diff between joining & forcing your 5 Difficulty detecting pressure 2 Dealing with changes 4 way in Multitasking 3 Smell 2 Humour 4 Flicker of an analog TV 1 Too logical 2 Low self esteem 2 Talking to opposite sex 4 Filtering out visual information 1 Isolation 2 Jokingly insulting people 4 Need to stim 1 Getting Diagnosis as a female 2 Going into a monologue 3 Food 1 Expressing emotion 2 Giving advice to friend 3 Temperature of food 1 Overwhelming interests 2 Being assertive 3 Handwashing OCD style 1 Understanding emotions 2 Being confident 3 Sensitive to tempreatue 1 Understanding body language 1 HD TVs too blurry 1 Awkwardness making you seize up 3 Weak memory 1 Stimming in public 2 Maintaining job 1 Specifics on sound Knowing how to finish a conversation 3 Sudden noise 2 Bad diet 1 Being too honest in conversations 2 Depression 1 Focusing on sound when trying to sleep 1 Staring conversations 2 Filtering out sound 1 Accepting other’s views 1 Being too logical 1 Not using social speech 1 Loud noise 1 Unsure how much information to give 1 Continual noise for more than a few 1 Concern over wasting time 1 Introducing yourself to people 1 minutes Group conversations 1 Knowing social status 1 Focusing too much on other people’s facial 1 Ineffectiveness 1 expressions Bad sleep patterns 1 Dealing with silences 1 Dependent upon specific people 1 Remembering names 1 socially Interacting with people passed in corridor 1
  • 35. @the Tuesday On the Ground Social Club 'What About 'BrainInHand' (...)? But it is expensive £1,000 per person' 'These people do not need much help but when they need it, they need it badly' 'I am not good at technology ... for me even answering the phone is a big achievement' 'I had to go to the shop to buy bread and I had to stop, I was in complete panic'
  • 37. MAF 05/03/2013 Benefit s of Working in Tiree: no reliable Internet connection so we need to think about what happens in real-real emergency situations
  • 38. From Spectrum To Types... Data collection via Digital ‘Multi- Sensory’ Assessment tool (e.g. play loud sound, what is the reaction?). Output: description by features, what your are good, not that good at & link up with local relevant ‘peer’ resources
  • 39. And your Type is.. It seems that you are ... the friendly one! What you may like/ are good at: XXXXXX What you may not do that well/Dislike: XXXXX Famous people like you ... People Like you in Your Area (connect with a local ‘champion’) Groups with your same interests in the Area