Palliative Care 101 Webinar
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The document outlines a webinar on palliative care led by Dr. Beth Popp, focusing on its importance for patients with colorectal cancer. It clarifies that palliative care is specialized medical support aimed at improving quality of life and managing symptoms at any stage of illness, alongside curative treatments. The resource getpalliativecare.org is highlighted for further information and support in accessing palliative care services.
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Palliative Care 101 Webinar
- 2. TODAY’S WEBINAR SPEAKER(S) Beth Popp, MD, FACP QUESTIONS Ask a question in the panel on the RIGHT SIDE of your screen WEBINAR ARCHIVE FightCRC.org/webinar TWEET ALONG Follow along via Twitter – use the hashtag #CRCWebinar
- 3. RESOURCES TABOO-TY PODCAST MINI MAGAZINES CLINI
- 4. FIGHTCOLORECTALCANCERDISCLAIMER The information and services provided by Fight Colorectal Cancer are for general informational purposes only. The information and services are not intended to be substitutes for professional medical advice, diagnoses or treatment. If you are ill, or suspect that you are ill, see a doctor immediately. In an emergency, call 911 or go to the nearest emergency room. Fight Colorectal Cancer never recommends or endorses any specific physicians, products or treatments for any condition.
- 5. Beth Popp, MD, FACP, is associate professor in the Brookdale Department of Geriatrics and Palliative Medicine at the Icahn School of Medicine at Mount Sinai in New York. She has dedicated her career to improving care and quality of life for cancer patients. Dr. Popp has served as a clinician educator and provided leadership to develop hospital-based inpatient and ambulatory palliative care services at three medical centers in the New York area over a career that has already spanned more than two decades. She has been on the faculties of the Medical School of SUNY Health Science Center at Brooklyn, New York Medical College, and Albert Einstein College of Medicine in addition to Mount Sinai School of Medicine. She served as the senior associate program director for the hematology/oncology training program at Maimonides Medical Center for 15 years, from 2002 to 2017. She has also served as an adjunct faculty member at the NYU School of Nursing. Dr. Popp has served as the physician leader, guiding the development of several teaching hospital programs which provide hospital consultation services and ambulatory services to a range of patients at all stages of serious illnesses. Her clinical work has focused on management of pain and other symptoms in patients with cancer, communication skills for clinicians, customizing treatment plans to incorporate the unique values of patients (especially immigrants and patients from minority religious and cultures), biomedical ethics issues in palliative care, and palliative care needs of the developmentally disabled adult. Dr. Popp participates in public awareness activities about palliative care on behalf of the Center to Advance Palliative Care and GetPalliativeCare.org, CAPC’s online resource for patients and families. The website focuses solely on providing information on palliative care from the point of diagnosis. Dr. Popp resides in Brooklyn with her husband and four sons. Dr.BethPopp
- 6. An initiative of the Center to Advance Palliative Care Managing Colorectal Cancer Symptoms: How Palliative Care Helps October 24, 2019 Beth Popp, MD FAAHPM Associate Professor Icahn School of Medicine at Mount Sinai New York
- 7. An initiative of the Center to Advance Palliative Care Today’s Agenda ➔Define and clarify what palliative care is and who can benefit ➔Where palliative care comes in for those with colorectal cancer – early, advanced or metastatic ➔Frequently asked questions ➔Your questions ➔GetPalliativeCare.org as a resource 7
- 8. An initiative of the Center to Advance Palliative Care What is Palliative Care? ➔ Specialized medical care for people living with a serious illness that focuses on relief from the symptoms and stress of a serious illness ➔ The goal is to improve quality of life for both the patient and the family ➔ Palliative care is provided by a specially-trained interdisciplinary team who work together with a patient’s other health care providers to provide an extra layer of support ➔ It is appropriate at any age and at any stage in a serious illness ➔ It can be provided along with disease-focused and curative treatment 8
- 9. An initiative of the Center to Advance Palliative Care Fact: ➔ Treating the pain, symptoms, and stress of cancer and its aftermath is as important as treating the cancer
- 10. An initiative of the Center to Advance Palliative Care While the oncologist may be most focused on treating the cancer… ➔The person living with cancer is dealing with: – Insomnia and fatigue – Weight loss – or weight gain – Nausea – Pain, including neuropathy – Anxiety and/or depression – ………..
- 11. An initiative of the Center to Advance Palliative Care It’s really not that complicated….. ➔ When serious illness strikes, we want: – To treat the disease • Make it go away for as long as we can • Slow it down • Minimize it impinging on our ability to do what matters most to us – Maintain good functioning and quality of life – Have coordination and connection of care – Have support to help us make informed decisions
- 12. An initiative of the Center to Advance Palliative Care ➔ Currently our system: – Is a “sick care” system, more than a “health care” system – Is technology driven – Is disease-driven – Undervalues the importance of quality of life ➔ Until very recently, doctors* were not trained to assess or address pain, symptoms, and distress in serious illness ➔ We can and need to do better about these issues faced by cancer patients and survivors How well does the health care system meet theses challenges?
- 13. An initiative of the Center to Advance Palliative Care Where Palliative Care Comes In
- 14. An initiative of the Center to Advance Palliative Care Oncology and Palliative Care ➔ ASCO Clinical Practice Guideline Update 2017 “Patients with advanced cancer, whether inpatient or outpatient, should receive dedicated palliative care services, early in the disease course, concurrent with active treatment. Referring patients to interdisciplinary palliative care teams is optimal, and services may complement existing programs. Providers may refer caregivers of patients with early or advanced cancer to palliative care services.”
- 15. An initiative of the Center to Advance Palliative Care Low Public Understanding of Palliative Care Q: Rate your overall impression of Palliative Care (0=very unfavorable, 50=neutral, 100=very favorable) Source: National survey of 800 adults age 25+, June 2019, commissioned by CAPC When asked to rate their opinion of palliative care, a large portion were unable to do so.
- 16. An initiative of the Center to Advance Palliative Care Once Informed About Palliative Care ➔ >90% would be likely to consider palliative care for themselves or their families ➔ 94% believed patients should have access to palliative care at all hospitals ➔ 78% strongly agree that it’s important that patients, and their families, be educated that palliative care is available together with curative treatment (Source: National survey of 800 adults age 25+, June 2019, commissioned by CAPC)
- 17. An initiative of the Center to Advance Palliative Care Palliative Care and Early Colorectal Cancer ➔ Often no symptoms, diagnosed by screening colonoscopy ➔ Some patients have symptoms from treatment that are not managed by cancer care team, and would benefit from palliative care ➔ Treatment may range from surgery to chemo and other approaches, and may occur at different intervals complicating communication with care team
- 18. An initiative of the Center to Advance Palliative Care Palliative Care and Early Colorectal Cancer Pain and Symptom Management ➔ Pain ➔ Neuropathy ➔ Nausea ➔ Changes in bowel habits ➔ Taste changes ➔ Weight gain ➔ Fatigue from chemotherapy and/or radiation therapy Psychological Support ➔ Body image ➔ Anxiety ➔ Depression ➔ Sexuality Decision-Making Support ➔ Goals of care ➔ Treatment decisions ➔ Care coordination
- 19. An initiative of the Center to Advance Palliative Care Palliative Care and Metastatic Colorectal Cancer ➔ Quality of life is greatly affected by the symptoms patients experience ➔ Traditionally has significant symptom burden due to the disease process and treatments ➔ New disease-directed therapies and early inclusion of palliative care can lead to improved outcomes and greater quality of life throughout the disease
- 20. An initiative of the Center to Advance Palliative Care Palliative Care and Metastatic Colorectal Cancer ➔Pain and Symptom Management ➔Psychological Support ➔Spiritual Support ➔Decision Making ➔Care Coordination ➔Treatment Decisions ➔Goals of Care
- 21. An initiative of the Center to Advance Palliative Care Palliative Care and Colorectal Cancer
- 22. An initiative of the Center to Advance Palliative Care Palliative Care FAQs
- 23. An initiative of the Center to Advance Palliative Care When do you need palliative care? ➔Palliative care is based on need, not prognosis ➔It is for any age and any stage of disease, and you can have it along with disease-focused and curative treatments
- 24. An initiative of the Center to Advance Palliative Care Who is it for? ➔People in need of relief from the pain, symptoms, and stress of a serious illness ➔The goal is to improve quality of life for both the patient and family ➔It is appropriate at any age and at any stage and can be provided along with disease- focused and curative treatment
- 25. An initiative of the Center to Advance Palliative Care What’s the ultimate goal of palliative care? To improve quality of life
- 26. An initiative of the Center to Advance Palliative Care What is the impact of palliative care? ➔ Relieves pain & symptoms ➔ Patients may live longer ➔ Better family support ➔ Reduces hospitalizations & emergency department visits ➔ Reduces unnecessary tests, procedures
- 27. An initiative of the Center to Advance Palliative Care Can a patient have palliative care and still receive cancer treatment? ➔Yes, absolutely!
- 28. An initiative of the Center to Advance Palliative Care Should the patient bring it up or wait until the doctor mentions it? ➔It can be either, however, patients shouldn’t wait for the doctor to bring it up ➔Most people ask their doctor for the referral to palliative care ➔Palliative care teams are specialists, so the primary doctor must bring in the team
- 29. An initiative of the Center to Advance Palliative Care Who provides palliative care? ➔Palliative care is provided by a team of palliative care specialists, including palliative care doctors, nurses, and others ➔It can be provided in a variety of settings including the hospital, rehabilitation facility, outpatient clinic, and at home
- 30. An initiative of the Center to Advance Palliative Care How and when do you ask for a referral to palliative care? ➔If you are struggling with pain, other symptoms or stress due to the cancer or its treatment, you should ask your doctor for a palliative care referral ➔Explain that you could benefit from an extra layer of support ➔The patient, family or doctor can find a local team through the Provider Directory on GetPalliativeCare.org
- 31. An initiative of the Center to Advance Palliative Care What resources are there to learn more about palliative care? ➔ GetPalliativeCare.org – The most clear and comprehensive website on palliative care – Provides: – A definition, a 5-question self-assessment to understand if it’s right for you, information on how to get it – with tips on how to talk to your doctor about it – Real stories through free podcasts, including people living with colorectal cancer – Webinars on managing specific symptoms, living with different serious illnesses – A Provider Directory searchable by state, and now with community-based listings – “What You Should Know” – a downloadable handout
- 32. An initiative of the Center to Advance Palliative Care Key Takeaways ➔ Colorectal cancer patients are living longer than ever before ➔ Patients* often have symptoms that need to be addressed by specialists, when not addressed by their oncologist or primary doctor ➔ The cancer and the symptoms can and should be treated ➔ Palliative care improves outcomes for patients* ➔ Patients and family members can ask for palliative care *during treatment and some cancer survivors with long-term effects
- 33. An initiative of the Center to Advance Palliative Care Your Questions
- 34. An initiative of the Center to Advance Palliative Care To learn more, visit GetPalliativeCare.org
Editor's Notes
- #12: aligned with our personal preferences and goals