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Caring for Person with dementia

                Amrita Patil -Pimpale
    Trainer ,EHA ; Researcher Univ of Northampton UK



1
Introduction :

  Echoing Healthy Ageing (EHA)
      We are a social enterprise
 providing consultation, education,
         home care support
 for people with dementia and their
              Families.


2
Dementia
       A term that doctor uses when someone has number of
        problems with thinking and remembering.
       Problems interfere with person’s ability to do things
        that they used to be able to manage.




    3
What is happening
       The brain is made up of billions of nerve cells.

       Nerve cells are specially designed for their function.
        They are elongated with many tentacle-like projections
        called dendrites that make connections with the
        cells around them.

       Dementia is caused by loss of nerve cells in the brain.




    4
Dementia Symptoms
Dementia Symptoms
Dementia Symptoms
Dementia Symptoms
Old memories and New memories




9
Practical Difficulties

•Reading /Writing
•Preparing food
•Driving or travelling alone
•Getting dressed
•Handling money
10
Diagnosis of Dementia
Complicated to get an accurate picture of what is
occurring within the brain.
Today dementia is diagnosed by:
 ‘Mini Mental State Exam’(MMSE) A cognitive
  assessment tool which establishes mental impairment.
 A physical examination. This can affect when and what
  treatment is provided.
 Brain scans including MRI can detect signs of dementia
  in the brain.


 11
What do you think ?
     person with DEMENTIA

               -------

     PERSON with dementia


12
Person’s brain is still there




                            Elizabeth Milwain -
                   elizabeth@brainscapes.co.uk
Tom Kitwood
A Person-Centred Understanding
                  D = N + P + B + H + SP
                PERSON with dementia, not
                 person with DEMENTIA

   Neurological – nature of the underlying cause
   Personality – how we are, how we cope
   Biography – we are all shaped by our past
   Health – impact of other conditions
   Social Psychology – other people: help or hindrance?
What is the difference between a person with
dementia and ourselves?

   Think about cognitive function
                            Different
   Think about emotional function

   Think about physical needs

   Think about social needs

   Think about psychological need
                         All the Same
                     What Do You Think ?
Psychological Needs by Kitwood(1997)
Adaptation is the key

  ‘Normal life’          ‘Life in the
                         moment’


       •   Information        •   Emotion
       •   Thinking           •   Sensing
       •   Goals              •   Experiences
       •   Complex            •   Simple
       •   Fast               •   Slow
       •   Remembered         •   Enjoyed
       •   Variety            •   Consistency
Why do people turn away?



            Feeling
                        Can’t fix it
          inadequate




                          Might do
          Frightening
                        ‘The Wrong
          & upsetting
                           Thing’
Recognition     The person is acknowledged, called by name, eye contact or touch.


Negotiation     The person is consulted about their preferences, being offered
                choice makes you feel you can still have an impact on the way
                things turn out. As human being we hate no being able to choose.


Collaboration   Working with the person, not doing things to them. This is about
                sharing your power. Helping someone to get dressed is assisting
                them with the bits they find difficult, not taking over.

    Play        Having fun, enjoying yourself with the person with
                dementia/depression. If you are having a good time they probably
                will too
Celebration     When the person achieves something celebrate with them.

 Validation     Acknowledging person’s emotion, taking it seriously and responding
                to it.
 Facilitation   Assisting a person to achieve something they would not normally
    19
                do alone.
Meaningful Activities and Therapies
            Alternate therapies
                  Music
                Gardening
              Occupational
              Pet therapies
              Reminiscence




20
Reminiscence
  Meaningful pictures
 The reminiscence bump
 Getting the conversation started
  -sight :family photographs
  -sound
  -touch
  -smell
  -taste




    21
Carer’s Role : Reality
 You feel you can help
 A sense of guilt for not helping your loved
  one to maintain their quality of life
 Sense of increasing isolation and
  commitment : More you do the more you are
  needed .
 Caring can be hard, but it can also be
  rewarding.


22
Answer these….
  1.Am I receiving or likely to receive
 enough support from others in my own
  life to help me be an effective carer?

2.Am I able to give the necessary time to
    help and support my loved one
        experiencing dementia ?


23
Your Well Being
                    YES.
              All well and Good.


                    NO.
     How can you get support and arrange
                  you time?


24
Your Well Being

   Making choices : Time. How much/Type?

   Help from family members

   Carers support groups

   Find time for yourself


25
Your Well Being

To be effective carer the
first person you need to
  look after yourself is
          ‘YOU’.

26
Your Well Being

                      Sleep
        Time for                   I am
          me                      special
                     Look after
                      yourself
                                   Positive
        Relaxation                thoughts

                     Meditation
   27
Attitude
        ‘’This is what I have to do’’


     ‘’I am doing, what I am
       doing, because this is
         what I want to do.’’
28
Questions ?


29
Email : amrita.p@echoinghealthyageing.com

Phone : 91 58 65 66 65

Website : www.echoinghealthyageing.com/

Like us on Facebook : EchoingHealthyAgeing

Follow us on Twitter : @EHAgeing

30

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Caring for pwd

  • 1. Caring for Person with dementia Amrita Patil -Pimpale Trainer ,EHA ; Researcher Univ of Northampton UK 1
  • 2. Introduction : Echoing Healthy Ageing (EHA) We are a social enterprise providing consultation, education, home care support for people with dementia and their Families. 2
  • 3. Dementia  A term that doctor uses when someone has number of problems with thinking and remembering.  Problems interfere with person’s ability to do things that they used to be able to manage. 3
  • 4. What is happening  The brain is made up of billions of nerve cells.  Nerve cells are specially designed for their function. They are elongated with many tentacle-like projections called dendrites that make connections with the cells around them.  Dementia is caused by loss of nerve cells in the brain. 4
  • 9. Old memories and New memories 9
  • 10. Practical Difficulties •Reading /Writing •Preparing food •Driving or travelling alone •Getting dressed •Handling money 10
  • 11. Diagnosis of Dementia Complicated to get an accurate picture of what is occurring within the brain. Today dementia is diagnosed by:  ‘Mini Mental State Exam’(MMSE) A cognitive assessment tool which establishes mental impairment.  A physical examination. This can affect when and what treatment is provided.  Brain scans including MRI can detect signs of dementia in the brain. 11
  • 12. What do you think ? person with DEMENTIA ------- PERSON with dementia 12
  • 13. Person’s brain is still there Elizabeth Milwain - elizabeth@brainscapes.co.uk
  • 14. Tom Kitwood A Person-Centred Understanding D = N + P + B + H + SP PERSON with dementia, not person with DEMENTIA  Neurological – nature of the underlying cause  Personality – how we are, how we cope  Biography – we are all shaped by our past  Health – impact of other conditions  Social Psychology – other people: help or hindrance?
  • 15. What is the difference between a person with dementia and ourselves?  Think about cognitive function Different  Think about emotional function  Think about physical needs  Think about social needs  Think about psychological need All the Same What Do You Think ?
  • 16. Psychological Needs by Kitwood(1997)
  • 17. Adaptation is the key ‘Normal life’ ‘Life in the moment’ • Information • Emotion • Thinking • Sensing • Goals • Experiences • Complex • Simple • Fast • Slow • Remembered • Enjoyed • Variety • Consistency
  • 18. Why do people turn away? Feeling Can’t fix it inadequate Might do Frightening ‘The Wrong & upsetting Thing’
  • 19. Recognition The person is acknowledged, called by name, eye contact or touch. Negotiation The person is consulted about their preferences, being offered choice makes you feel you can still have an impact on the way things turn out. As human being we hate no being able to choose. Collaboration Working with the person, not doing things to them. This is about sharing your power. Helping someone to get dressed is assisting them with the bits they find difficult, not taking over. Play Having fun, enjoying yourself with the person with dementia/depression. If you are having a good time they probably will too Celebration When the person achieves something celebrate with them. Validation Acknowledging person’s emotion, taking it seriously and responding to it. Facilitation Assisting a person to achieve something they would not normally 19 do alone.
  • 20. Meaningful Activities and Therapies Alternate therapies  Music  Gardening  Occupational  Pet therapies  Reminiscence 20
  • 21. Reminiscence  Meaningful pictures  The reminiscence bump  Getting the conversation started -sight :family photographs -sound -touch -smell -taste 21
  • 22. Carer’s Role : Reality  You feel you can help  A sense of guilt for not helping your loved one to maintain their quality of life  Sense of increasing isolation and commitment : More you do the more you are needed .  Caring can be hard, but it can also be rewarding. 22
  • 23. Answer these…. 1.Am I receiving or likely to receive enough support from others in my own life to help me be an effective carer? 2.Am I able to give the necessary time to help and support my loved one experiencing dementia ? 23
  • 24. Your Well Being YES. All well and Good. NO. How can you get support and arrange you time? 24
  • 25. Your Well Being  Making choices : Time. How much/Type?  Help from family members  Carers support groups  Find time for yourself 25
  • 26. Your Well Being To be effective carer the first person you need to look after yourself is ‘YOU’. 26
  • 27. Your Well Being Sleep Time for I am me special Look after yourself Positive Relaxation thoughts Meditation 27
  • 28. Attitude ‘’This is what I have to do’’ ‘’I am doing, what I am doing, because this is what I want to do.’’ 28
  • 30. Email : amrita.p@echoinghealthyageing.com Phone : 91 58 65 66 65 Website : www.echoinghealthyageing.com/ Like us on Facebook : EchoingHealthyAgeing Follow us on Twitter : @EHAgeing 30

Editor's Notes

  • #5: http://www.youtube.com/watch?v=5DpQhf1aQjs&feature=player_embeddedhttp://www.youtube.com/watch?v=UUenCdXaXVI&feature=player_embeddedhttp://www.alzheimers.org.uk/braintour