SlideShare a Scribd company logo
Big Data for Mobility Tracking Knowledge Extraction in Urban Areas
(Track&Know)
Prof. Ansar Yasar
University of Hasselt, BE
1
This project has received funding from the European Union’s Horizon 2020 research and innovation
programme under the Grant Agreement No 780754.
Towards Value-Centric Big Data:
Connect People, Processes and
Technology
Consortium
2Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
3
T&K Vision
Track&Know will research, develop and exploit a
new software framework that aims at increasing
the efficiency of Big Data applications in the
transport, mobility, motor insurance and health
sectors.
Stemming from industrial cases, Track&Know will
develop user friendly toolboxes that will be
readily applicable in the addressed markets.
T&K vision is in accordance with …
• the EU Big Data Value Reference model
• the US Big Data Reference Architecture
model
Source: NIST Big Data Interoperability
Framework: Volume 6, Reference
Architecture, v.2, Jun. 2018.
https://doi.org/10.6028/NIST.SP.1500-6r1
Source: European Big Data Value Strategic Research
Innovation Agenda (SRIA), v.4.0, Oct. 2017.
http://bdva.eu/sites/default/files/BDVA_SRIA_v4_Ed1.1.pdf
Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
4
• Platform to handle heterogeneous
streaming and archival data through
the use of newly created toolboxes
• Software Toolboxes, i.e.
• data-intensive computing
• interoperability
• usability
• standardisation
• All data from streaming and archival
data sources, as well as results from
toolboxes can take full benefit of the
computations of others, also taking advantage of seamless interoperability between their results.
• Platform Architecture
T&K Big Data Platform
Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
5
• GPS location data from vehicle black boxes (provided by
Octo Telematics)
• Business cases:
• Insurance: using historic telematics, environmental, demographic
and geographic information, … gain
in-depth and accurate crash probability estimation
• Electric Cars: (i) cost-benefit of a switching to an electric car
mobility; (ii) matching global charging times and charging points to
drivers’ habits
• Car Pooling: (i) park decreasing due to sharable routes; (ii) cost-
benefit of switching to a sharing mobility paradigm; (iii) likelihood of
finding a proper sharable route that matches time and geographical
zone
• Case studies: London (metropolitan city), Rome (metropolitan city),
Tuscany, Italy (country-urban mixed area)
Insurance Domain Pilot
Sistematica S.p.A
BIG DATA VALUE FORUM 2018 – Workshop 2.3 Policy issues, opportunities and barriers in big data-driven transport Vienna Austria 14/11/18
Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
6
• GPS and other sensor data (incl. fuel level and driver
behavior data) from vehicles (tracks) and their drivers
• Business objectives:
• Predictive maintenance
• Anomaly detection, reduction of false alarms
• Correlation of Fleet Data with external
Weather and Traffic services
• Fleet costs reduction
• Fleet downtime reduction
• Fleet response time improvement
• Improve driver behavior and reduce
accidents
• Datasets are geographically situated in Greece,
Albania, Cyprus and few in various EU countries
Fleet Management Domain
Vodaphone Innovus
Images produced by FRHF (Apr. 2018)
Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
7
• A complete set of 5 years data from Obstructive Sleep Apnoea
(OSA) patients
• Business objectives:
• Improvement of response times (increasing new patients, follow-
up patients)
• Reduction of unnecessary travel (reduce patient travel distances,
courier costs, CO2 emissions
• Cost efficiency gains
• New methods of OSA diagnoses based on driver behaviour
• Datasets are geographically situated in London area and
Cambridge, UK
• OSA increases risks of strokes and other cardiovascular diseases.
• An OSA diagnoses results in the suspension of ones driving license
Medical Service Optimisation
(a) Network of Outreach Clinics staffed by PAP
(b) Patient Journeys in 2018 to get access to OSA service
Royal Papworth Hospital
Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
(a)
(b)
Images produced by ILS (Jan. 2019)
Medical Pilot Data Collection
• This pilots utilizes patient mobility information for two purposes:
• Reallocating resources to better cover the catchment area based on geo-
spatial analysis of pervious patient journeys and population propensity
• Provide a proof-of-concept approach to (a) study the effects and (b) better
diagnose obstructive sleep apnoea by collecting real-time driver behaviour
using an App on the patients phone
• Personal Information is not unavoidable it is required to get a clear
understanding
• Pseudo anonymisation is possible however enough points of information
exist to make de-anonymisation trivial.
8Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
Measures in place to ensure protection of
Citizen Data
• Better than industry standard security and encryption procedures
• Very limited access to the data
• High-levels of encryption of data at transmit, process and storage phases
• Testing data for biases before making available on the platform
• Ethical and informed processes to identify biases created by historic, socio-
demographics, and geo-political factors
• Informed consent of patients through:
• Training patient facing staff to adequately inform patients of the aims and
expected outcomes of the research, what data is being collected, all actors
involved, and how the data is handled and processed
• Involvement of citizen advocacy and support groups as active stakeholders in the
research process to help identify the potential of disenfranchisement of citizens
by adopted research practices
• A robust and continuous ethical process review process to monitor data, tasks,
outcomes and deliverables 9Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
Further Ethical Considerations
• Un-identified significant data biases not detected or fully understood
at this stage, but adversely affect results of our tools once ‘out in the
wild’ – Significant commercialisation and exploitation plan
• Duty of care to report occurrences of OSA behaviour found in non-
medical pilot driver behaviour data to relevant authority VS affecting
a professional drivers livelihood/affecting insurance rate of citizens.
10
WE DON’T HAVE ALL THE ANSWERS… YET
Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
Thank You
Project Manager and Point of Contact
Dr Ibad Kureshi
ibad.kureshi@inlecomsystems.com
Inlecom BVBA, BE
11
This project has received funding from the European Union’s Horizon 2020 research and innovation
programme under the Grant Agreement No 780754.

More Related Content

PPT
EDF2014: Taru Rastas, Senior Advisor, Ministry of Communications of Finland: ...
PPTX
BDE_SC4_WS3_5_Arnaud Burgess - LeMO Project
PPTX
EDF2014: Talk of Vassileios Tsetsos, Chief Technical Officer, Mobics Ltd: Pre...
PPT
EDF2014: José Ignacio Sánchez Valdenebro, Deputy Director of Digital Public S...
PPSX
BDE_SC4_WS3_4_Victor Corral - AutoMat Project
PPTX
BDE_SC4_WS3_3_Rodrigo Castineira - Transforming Transport Project
PPTX
EDF2014: Talk of Krzysztof Wecel, Assistant professor, Poznan University of E...
PPTX
EDF2014: Talk of Marta Nagy-Rothengass, Head of Unit Data Value Chain, Direct...
EDF2014: Taru Rastas, Senior Advisor, Ministry of Communications of Finland: ...
BDE_SC4_WS3_5_Arnaud Burgess - LeMO Project
EDF2014: Talk of Vassileios Tsetsos, Chief Technical Officer, Mobics Ltd: Pre...
EDF2014: José Ignacio Sánchez Valdenebro, Deputy Director of Digital Public S...
BDE_SC4_WS3_4_Victor Corral - AutoMat Project
BDE_SC4_WS3_3_Rodrigo Castineira - Transforming Transport Project
EDF2014: Talk of Krzysztof Wecel, Assistant professor, Poznan University of E...
EDF2014: Talk of Marta Nagy-Rothengass, Head of Unit Data Value Chain, Direct...

What's hot (20)

PPT
EDF2014: Talk of Ioannis Kotsiopoulos, European Dynamics: Semantics – Interop...
PDF
EDF2014: Talk of European Data Innovator Award Winner: Johann Mittheisz, form...
PDF
Leveraging Big Data to Manage Transport Operations (LeMO project)
PPTX
Catch! Workshop concept 4 - Transforming Home-to-School transport with target...
PDF
OpenCoesione at INFORM meeting
PPTX
EDF2014: Ralf-Peter Schaefer, Head of Traffic Product Unit, TomTom, Germany: ...
PPT
BDE_SC4_WS3_7_Josep Maria Salanova - The Mobility Use Case in Thessaloniki
PDF
BDE Technical Webinar 1 : Pilot Instantiation
PPTX
EDF2014: Kush Wadhwa, Senior Partner, Trilateral Research & Consulting: Addre...
PPT
EDF2014: Talk of Ksenia Petrichenko, Building Policy Analyst, Global Building...
PDF
Inter-Modal Transport Data Sharing Programme
PPT
Societal Challnge 5 and Big Data Europe 1st hangout
PDF
EDF2014: Michele Vescovi, Researcher, Semantic & Knowledge Innovation Lab, It...
PDF
EIF and NIFO connecting public administrations, businesses, and citizens
PPTX
Big Data in Shift2Rail: Connective and in2Stempo projects
PDF
DISCOVERY DAY 2017: MAKE IT HAPPEN!
 
PPTX
James Wong - Open data in transport, St.Petersburg
PPT
OpenDataWeek Marseille : Gérald Santucci -- EU Harmonisation and the Data Val...
PPT
European study on Monitoring e-accessibility 2009-2011
EDF2014: Talk of Ioannis Kotsiopoulos, European Dynamics: Semantics – Interop...
EDF2014: Talk of European Data Innovator Award Winner: Johann Mittheisz, form...
Leveraging Big Data to Manage Transport Operations (LeMO project)
Catch! Workshop concept 4 - Transforming Home-to-School transport with target...
OpenCoesione at INFORM meeting
EDF2014: Ralf-Peter Schaefer, Head of Traffic Product Unit, TomTom, Germany: ...
BDE_SC4_WS3_7_Josep Maria Salanova - The Mobility Use Case in Thessaloniki
BDE Technical Webinar 1 : Pilot Instantiation
EDF2014: Kush Wadhwa, Senior Partner, Trilateral Research & Consulting: Addre...
EDF2014: Talk of Ksenia Petrichenko, Building Policy Analyst, Global Building...
Inter-Modal Transport Data Sharing Programme
Societal Challnge 5 and Big Data Europe 1st hangout
EDF2014: Michele Vescovi, Researcher, Semantic & Knowledge Innovation Lab, It...
EIF and NIFO connecting public administrations, businesses, and citizens
Big Data in Shift2Rail: Connective and in2Stempo projects
DISCOVERY DAY 2017: MAKE IT HAPPEN!
 
James Wong - Open data in transport, St.Petersburg
OpenDataWeek Marseille : Gérald Santucci -- EU Harmonisation and the Data Val...
European study on Monitoring e-accessibility 2009-2011
Ad

Similar to "Towards Value-Centric Big Data" e-SIDES Workshop - "Responsible Research: Analytics when dealing with personal and personalised mobility data: Track&Know", Prof. Ansar Yasar (20)

PPTX
Citadel bari event v0.1
PDF
Horizon2020 Project “CITADEL” and the relevance for eGovernment Action Plan 2...
PDF
Professor Isam Shahrour Summer Course « Smart and Sustainable City » Chapter...
PPTX
Modeling of future transport systems from different point of views: data, tec...
PDF
JRC_AI Watch. European landscape on the use of Artificial Intelligence by the...
PPTX
Big Data in a Digital City. Key Insights from the Smart City Case Study
PDF
OpenTransportNet: Stimulating Innovation with Open Geographic Information
PDF
Smart Cities
PPTX
H2020 ICT and Health Webinar - Samana Brannigan, Innovate UK
 
PDF
P. Struijs, Toward the Use of Big Data for European Statistics
PDF
BE-GOOD Challenges - factsheet 2017-06
PDF
La telefonía móvil como fuente de información para el estudio de la movilidad...
PPTX
Birmingham, a smart city
PPTX
Big Data Analytics in Transportation
PDF
Towards High-Value Datasets determination for data-driven development: a syst...
PDF
The Roadmap to a Lifesaving Digital Ecosystem
PPTX
In lab en_bruselas_4-5 juny 2012-long
PDF
User privacy in mobility data
PPTX
DIGITAL INNOVATION HUBS: WHAT ARE THE ACHIEVEMENTS SO FAR AND WHAT REMAINS TO...
PPTX
PrepData4Mobilty Data Gap Analysis - Approach and Discussion.pptx
Citadel bari event v0.1
Horizon2020 Project “CITADEL” and the relevance for eGovernment Action Plan 2...
Professor Isam Shahrour Summer Course « Smart and Sustainable City » Chapter...
Modeling of future transport systems from different point of views: data, tec...
JRC_AI Watch. European landscape on the use of Artificial Intelligence by the...
Big Data in a Digital City. Key Insights from the Smart City Case Study
OpenTransportNet: Stimulating Innovation with Open Geographic Information
Smart Cities
H2020 ICT and Health Webinar - Samana Brannigan, Innovate UK
 
P. Struijs, Toward the Use of Big Data for European Statistics
BE-GOOD Challenges - factsheet 2017-06
La telefonía móvil como fuente de información para el estudio de la movilidad...
Birmingham, a smart city
Big Data Analytics in Transportation
Towards High-Value Datasets determination for data-driven development: a syst...
The Roadmap to a Lifesaving Digital Ecosystem
In lab en_bruselas_4-5 juny 2012-long
User privacy in mobility data
DIGITAL INNOVATION HUBS: WHAT ARE THE ACHIEVEMENTS SO FAR AND WHAT REMAINS TO...
PrepData4Mobilty Data Gap Analysis - Approach and Discussion.pptx
Ad

More from e-SIDES.eu (19)

PDF
BDVe Webinar Series - Why are privacy-preserving technologies not used more w...
PDF
Beyond Privacy: Learning Data Ethics - European Big Data Community Forum 2019...
PDF
"Towards Value-centric Big Data: Community Position Paper" Daniel Bachlechner...
PDF
e-SIDES Community Position Paper User Manual
PDF
"Legal implementation barriers of privacy-preserving technologies" eLAW prese...
PDF
"Towards Value-Centric Big Data" e-SIDES Workshop - Slide-deck
PDF
"Towards Value-Centric Big Data" e-SIDES Workshop - "Privacy Preserving Techn...
PDF
"Towards Value-Centric Big Data" e-SIDES Workshop - "A win-win initiative for...
PDF
"Towards Value-Centric Big Data" e-SIDES Workshop - "The dangers of tech-dete...
PDF
"Towards Value-Centric Big Data" e-SIDES Workshop - "Safe and secure data mar...
PDF
"Towards Value-Centric Big Data" e-SIDES Workshop - “You’re monitoring my wh...
PDF
"Towards Value-Centric Big Data" e-SIDES Workshop - Slide-deck
PDF
e-SIDES presentation at NordSteva Conference, 11/12/2018
PDF
e-SIDES presentation at WISP 2018, San Francisco 13/12/2018
PPTX
e-SIDES workshop at ICT 2018, Vienna 5/12/2018
PPTX
e-SIDES workshop at EBDVF 2018, Vienna 14/11/2018
PDF
e-SIDES workshop at BDV Meet-Up, Sofia 14/05/2018
PDF
e-SIDES presentation at Leiden University 21/09/2017
PDF
e-SIDES workshop at ICE-IEEE Conference, Madeira 28/06/2017
BDVe Webinar Series - Why are privacy-preserving technologies not used more w...
Beyond Privacy: Learning Data Ethics - European Big Data Community Forum 2019...
"Towards Value-centric Big Data: Community Position Paper" Daniel Bachlechner...
e-SIDES Community Position Paper User Manual
"Legal implementation barriers of privacy-preserving technologies" eLAW prese...
"Towards Value-Centric Big Data" e-SIDES Workshop - Slide-deck
"Towards Value-Centric Big Data" e-SIDES Workshop - "Privacy Preserving Techn...
"Towards Value-Centric Big Data" e-SIDES Workshop - "A win-win initiative for...
"Towards Value-Centric Big Data" e-SIDES Workshop - "The dangers of tech-dete...
"Towards Value-Centric Big Data" e-SIDES Workshop - "Safe and secure data mar...
"Towards Value-Centric Big Data" e-SIDES Workshop - “You’re monitoring my wh...
"Towards Value-Centric Big Data" e-SIDES Workshop - Slide-deck
e-SIDES presentation at NordSteva Conference, 11/12/2018
e-SIDES presentation at WISP 2018, San Francisco 13/12/2018
e-SIDES workshop at ICT 2018, Vienna 5/12/2018
e-SIDES workshop at EBDVF 2018, Vienna 14/11/2018
e-SIDES workshop at BDV Meet-Up, Sofia 14/05/2018
e-SIDES presentation at Leiden University 21/09/2017
e-SIDES workshop at ICE-IEEE Conference, Madeira 28/06/2017

Recently uploaded (20)

PPT
Predictive modeling basics in data cleaning process
PPTX
AI Strategy room jwfjksfksfjsjsjsjsjfsjfsj
PDF
.pdf is not working space design for the following data for the following dat...
PDF
Optimise Shopper Experiences with a Strong Data Estate.pdf
PPTX
modul_python (1).pptx for professional and student
PDF
Capcut Pro Crack For PC Latest Version {Fully Unlocked 2025}
PPTX
The THESIS FINAL-DEFENSE-PRESENTATION.pptx
PPTX
climate analysis of Dhaka ,Banglades.pptx
PPTX
Microsoft-Fabric-Unifying-Analytics-for-the-Modern-Enterprise Solution.pptx
PPTX
STERILIZATION AND DISINFECTION-1.ppthhhbx
PDF
Lecture1 pattern recognition............
PPTX
Data_Analytics_and_PowerBI_Presentation.pptx
PDF
Data Engineering Interview Questions & Answers Cloud Data Stacks (AWS, Azure,...
PDF
BF and FI - Blockchain, fintech and Financial Innovation Lesson 2.pdf
PPTX
Introduction to Basics of Ethical Hacking and Penetration Testing -Unit No. 1...
PPTX
SAP 2 completion done . PRESENTATION.pptx
PDF
Introduction to the R Programming Language
PPTX
iec ppt-1 pptx icmr ppt on rehabilitation.pptx
PDF
Clinical guidelines as a resource for EBP(1).pdf
PDF
Transcultural that can help you someday.
Predictive modeling basics in data cleaning process
AI Strategy room jwfjksfksfjsjsjsjsjfsjfsj
.pdf is not working space design for the following data for the following dat...
Optimise Shopper Experiences with a Strong Data Estate.pdf
modul_python (1).pptx for professional and student
Capcut Pro Crack For PC Latest Version {Fully Unlocked 2025}
The THESIS FINAL-DEFENSE-PRESENTATION.pptx
climate analysis of Dhaka ,Banglades.pptx
Microsoft-Fabric-Unifying-Analytics-for-the-Modern-Enterprise Solution.pptx
STERILIZATION AND DISINFECTION-1.ppthhhbx
Lecture1 pattern recognition............
Data_Analytics_and_PowerBI_Presentation.pptx
Data Engineering Interview Questions & Answers Cloud Data Stacks (AWS, Azure,...
BF and FI - Blockchain, fintech and Financial Innovation Lesson 2.pdf
Introduction to Basics of Ethical Hacking and Penetration Testing -Unit No. 1...
SAP 2 completion done . PRESENTATION.pptx
Introduction to the R Programming Language
iec ppt-1 pptx icmr ppt on rehabilitation.pptx
Clinical guidelines as a resource for EBP(1).pdf
Transcultural that can help you someday.

"Towards Value-Centric Big Data" e-SIDES Workshop - "Responsible Research: Analytics when dealing with personal and personalised mobility data: Track&Know", Prof. Ansar Yasar

  • 1. Big Data for Mobility Tracking Knowledge Extraction in Urban Areas (Track&Know) Prof. Ansar Yasar University of Hasselt, BE 1 This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the Grant Agreement No 780754. Towards Value-Centric Big Data: Connect People, Processes and Technology
  • 2. Consortium 2Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
  • 3. 3 T&K Vision Track&Know will research, develop and exploit a new software framework that aims at increasing the efficiency of Big Data applications in the transport, mobility, motor insurance and health sectors. Stemming from industrial cases, Track&Know will develop user friendly toolboxes that will be readily applicable in the addressed markets. T&K vision is in accordance with … • the EU Big Data Value Reference model • the US Big Data Reference Architecture model Source: NIST Big Data Interoperability Framework: Volume 6, Reference Architecture, v.2, Jun. 2018. https://doi.org/10.6028/NIST.SP.1500-6r1 Source: European Big Data Value Strategic Research Innovation Agenda (SRIA), v.4.0, Oct. 2017. http://bdva.eu/sites/default/files/BDVA_SRIA_v4_Ed1.1.pdf Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
  • 4. 4 • Platform to handle heterogeneous streaming and archival data through the use of newly created toolboxes • Software Toolboxes, i.e. • data-intensive computing • interoperability • usability • standardisation • All data from streaming and archival data sources, as well as results from toolboxes can take full benefit of the computations of others, also taking advantage of seamless interoperability between their results. • Platform Architecture T&K Big Data Platform Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
  • 5. 5 • GPS location data from vehicle black boxes (provided by Octo Telematics) • Business cases: • Insurance: using historic telematics, environmental, demographic and geographic information, … gain in-depth and accurate crash probability estimation • Electric Cars: (i) cost-benefit of a switching to an electric car mobility; (ii) matching global charging times and charging points to drivers’ habits • Car Pooling: (i) park decreasing due to sharable routes; (ii) cost- benefit of switching to a sharing mobility paradigm; (iii) likelihood of finding a proper sharable route that matches time and geographical zone • Case studies: London (metropolitan city), Rome (metropolitan city), Tuscany, Italy (country-urban mixed area) Insurance Domain Pilot Sistematica S.p.A BIG DATA VALUE FORUM 2018 – Workshop 2.3 Policy issues, opportunities and barriers in big data-driven transport Vienna Austria 14/11/18 Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
  • 6. 6 • GPS and other sensor data (incl. fuel level and driver behavior data) from vehicles (tracks) and their drivers • Business objectives: • Predictive maintenance • Anomaly detection, reduction of false alarms • Correlation of Fleet Data with external Weather and Traffic services • Fleet costs reduction • Fleet downtime reduction • Fleet response time improvement • Improve driver behavior and reduce accidents • Datasets are geographically situated in Greece, Albania, Cyprus and few in various EU countries Fleet Management Domain Vodaphone Innovus Images produced by FRHF (Apr. 2018) Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
  • 7. 7 • A complete set of 5 years data from Obstructive Sleep Apnoea (OSA) patients • Business objectives: • Improvement of response times (increasing new patients, follow- up patients) • Reduction of unnecessary travel (reduce patient travel distances, courier costs, CO2 emissions • Cost efficiency gains • New methods of OSA diagnoses based on driver behaviour • Datasets are geographically situated in London area and Cambridge, UK • OSA increases risks of strokes and other cardiovascular diseases. • An OSA diagnoses results in the suspension of ones driving license Medical Service Optimisation (a) Network of Outreach Clinics staffed by PAP (b) Patient Journeys in 2018 to get access to OSA service Royal Papworth Hospital Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19 (a) (b) Images produced by ILS (Jan. 2019)
  • 8. Medical Pilot Data Collection • This pilots utilizes patient mobility information for two purposes: • Reallocating resources to better cover the catchment area based on geo- spatial analysis of pervious patient journeys and population propensity • Provide a proof-of-concept approach to (a) study the effects and (b) better diagnose obstructive sleep apnoea by collecting real-time driver behaviour using an App on the patients phone • Personal Information is not unavoidable it is required to get a clear understanding • Pseudo anonymisation is possible however enough points of information exist to make de-anonymisation trivial. 8Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
  • 9. Measures in place to ensure protection of Citizen Data • Better than industry standard security and encryption procedures • Very limited access to the data • High-levels of encryption of data at transmit, process and storage phases • Testing data for biases before making available on the platform • Ethical and informed processes to identify biases created by historic, socio- demographics, and geo-political factors • Informed consent of patients through: • Training patient facing staff to adequately inform patients of the aims and expected outcomes of the research, what data is being collected, all actors involved, and how the data is handled and processed • Involvement of citizen advocacy and support groups as active stakeholders in the research process to help identify the potential of disenfranchisement of citizens by adopted research practices • A robust and continuous ethical process review process to monitor data, tasks, outcomes and deliverables 9Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
  • 10. Further Ethical Considerations • Un-identified significant data biases not detected or fully understood at this stage, but adversely affect results of our tools once ‘out in the wild’ – Significant commercialisation and exploitation plan • Duty of care to report occurrences of OSA behaviour found in non- medical pilot driver behaviour data to relevant authority VS affecting a professional drivers livelihood/affecting insurance rate of citizens. 10 WE DON’T HAVE ALL THE ANSWERS… YET Towards Value-Centric Big Data: Connect People, Processes and Technology, Belgium, Brussels 2/4/19
  • 11. Thank You Project Manager and Point of Contact Dr Ibad Kureshi ibad.kureshi@inlecomsystems.com Inlecom BVBA, BE 11 This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the Grant Agreement No 780754.