2009 Convegno Malattie Rare Albera [24 01]
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Il documento tratta del consorzio sulla ipertensione polmonare, evidenziando la necessità di un approccio multidisciplinare per la gestione di questa malattia rara complessa. Viene discusso un modello assistenziale, obiettivi per razionalizzare il percorso diagnostico e terapeutico, e l'importanza di aggiornare le linee guida in base a nuove evidenze. Inoltre, si sottolinea l'importanza di identificare risorse e procedure per garantire un'assistenza ottimale ai pazienti.
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